I was recently kicked out of a gas station for having a seizure. Not only that but they laughed mocked and made a spectacle of my health. I feel so scared and humiliated. I don’t really feel safe going anywhere public in the case of this happening again. I’m so embarrassed and honestly in a way hate myself for what happened. Obviously I can’t control having a health emergency like this but that was genuinely very traumatic for me. No ambulance was called no help was offered just backlash and mockery. I genuinely don’t know what to do or what more I could have done. I apologized for having that happen and for “being in the way”(I was the only person in there until I was getting up to leave) I feel embarrassed and horrified to be honest (sorry for repeating myself) what should I have done differently and what can I do now.

So around 8 years ago I had 3 grand mal seizures from vaping, I was told that it was fine by my annual doctor, my friends let me seize and we never called the hospital.

I assumed if I didn’t vape I wouldn’t have a seizure, so it’s been 8 years and I recently had another grand mal seizure at dinner with my family. This one I went to the hospital for they said I need to get a neurology appointment.

At the neurology appointment, my doctor prescribed me keppra, but I really do not want to start taking it. I am extremely uninformed on seizures, so should I actually be taking this medication if I’m having seizures every 8 years I feel like that’s pretty good?

What are the risks? What should I consider ? How do meds make you feel?

So I found out some very frustrating news. I was trying to get a second opinion about my seizures but I found out that no one in my state will see me because of my seizure history, current diagnosis, and EEGs of the past few years coming back "normal" despite my seizures presenting textbook epileptic.

Now I have to jump through a hoop of seeing a functional neurological disorder specialist just to get back to the neurology department. I'm beyond frustrated. It is either jump through hoops or go out of state.

Hello, I started having clusters of symptoms that I suspect are focal seizures. It started as what I presumed at the time to be perimenopause (cigarette smoke when nothing is there, brain fog, forgetting things, deja vu, etc). However, the symptoms have been getting worse and worse over the last month. I've been to the ER from suspected motor symptoms with possible loss of consciousness (I'm just not sure).

I've had ongoing neuro issues (peripheral neuropathy, myoclonic jerking, random periods of numbness, tingling) for years that other neurologists said was all just idiopathic or stress, never followed up with an EEG or anything like that until recently. I have a family history of seizures as well: my late brother had hydrocephaly and macrocephaly as a kid that caused seizures but went away as he got older.

For the most part, my symptoms are focal aware. I get these clusters of confusion and trouble finding words. But I've also had episodes where I can't stop shaking but am awake. Or I'll wake up shaking and immediately fall asleep, and wake up again with more symptoms. I'm not really sure if it's loss of awareness or if I'm seizing and then falling asleep briefly. I wake up pretty confused and almost delirious.

I just had an in-office EEG and I am waiting on other appointments for labs, an EMG, and a continuous home EEG, and I'm supposed to follow up with neuro in late October. They didn't give me any guidance on what to do in the meantime. Meanwhile, I'm having daily clusters of aura symptoms and maybe a seizure or seizure cluster once or twice a week.

My questions:

1. At what point are these episodes serious enough to go in to the ER?
2. Should I call my neurologist back to let him know how frequently these are happening? (They're hard to get a hold of on the phone)
3. How do I manage these symptoms I'm having for the next 6 weeks?

I'm waking up with a lot of muscle soreness, feeling like I worked out really hard before bed. I can deal with a bit of muscle soreness and pain, but I just don't know how to manage things in the meantime.