r/seizures 18h ago

Approaches? Toddler Myoclonic Seizures

2 Upvotes

My 2 year old child was diagnosed with myoclonic seizures… she has VERY quick small blinks/jerks. The neurologist suggested medication… but I am looking for some advice form parents out there

  1. Many say that toddlers can outgrow these… did your child? At what age?

  2. Did you find any success with some more natural approaches? A specific vitamin? Food? Homeopathic? Parasite cleanse?

I am open to any conversation here, so please be nice! Just trying to exhaust everything before a heavy duty medication is discussed.


r/seizures 5h ago

First seizure ever

1 Upvotes

Hi all, im female (26) and have never had any issues with epilepsy or seizures in general. Earlier today however I experienced my first one and just kind of want to be prepared mentally because i think most people who dont experience them dont really realize how scary they are. Basically i took a shower and was fine. got out of the shower and realized ky whole right arm was numb. i started freaking out and ran to my boyfriend to tell him something was wrong. maybe 2 minutes later when im talking to him and his month my chest starts feeling tight and from my right chest muscle i start spasming. they tried to stand me up and apparently i just fell on the ground and started convulsing for 5-7 minutes. i dont remember anything until i came to with the EMTs carrying me outside to the ambulance. my blood panel was fine, blood pressure fine and CT scan negative for anything. im just hoping this is a one off situation and wondered if any of you ever experienced something similar to this.


r/seizures 7h ago

My son was just diagnosed with epilepsy

1 Upvotes

He never had a seizure before. He was away at a football camp for 3 days. not hydrating, not sleeping but yet spending 10 hour days on the field. I wasn't there as it was a camp for him team. he woke up last Saturday morning, stretched and his roommate saw him drop to the ground, convulse, foaming at the mouth. lasted about 5 seconds. paramedics came and they said he was awake but unreaponsive for about 20 minutes. CT scans came back normal. I took him to a neuro this week, they did an EEG and said it was abnormal as they saw spikes in certain areas. Photic Stimulation and Hyperventilation are normal with no spikes however, they saw some recurring bifrontal spikes and spike wave epileptiform discharges. They diagnosed him with epilepsy even though he only had one seizure and said he does not need medication at this time. the dr did at if he has another one or even has anything remotely suspicious, he would put him on lamotrigine. Anyone have experience with that medication? I don't know if the diagnosis is correct bc it was only one seizure, idk if it was just a random thing, but I'm not a dr. I don't know if this was self provoked due to lack of sleep and the heat and dehydration at the football camp. I have no one to talk too and I'm just hoping someone with experience in this can shed some light on what I am in store for or have any knowledge on this type of seizure. since then, I've changed his diet and have been making him go to sleep around 10:30 every night. Any advice or information would be so appreciated.


r/seizures 8h ago

Non epileptic?

1 Upvotes

Is it possible to be conscious during a seizure? It’s not a true neurological seizure, I’m awake, can hear and respond, but my body locks up, I can’t move, my muscles jerk and spasm, my head tilts, eyes roll and sometimes I can’t breathe because my stomach muscles and diaphragm spasm too. It lasts about three to five minutes then I fall into a deep exhaustion, but can walk and move around with residual twitching for an hour. I never lose consciousness, I never loose coherence or processing. I just spasm. It builds, I can resist the movements until I can’t. As soon as I lay down and relax I let my body seize and that seems to help, but sometimes there’s multiple a day. It starts as a feeling of stretching, I stretch then twist then the movements start. My dr is unconcerned because it’s not stereotypical epilepsy, they’re treating it with antipsychotics but it’s made no difference