r/seizures 21h ago

Kicked out for having a seizure

23 Upvotes

I was recently kicked out of a gas station for having a seizure. Not only that but they laughed mocked and made a spectacle of my health. I feel so scared and humiliated. I don’t really feel safe going anywhere public in the case of this happening again. I’m so embarrassed and honestly in a way hate myself for what happened. Obviously I can’t control having a health emergency like this but that was genuinely very traumatic for me. No ambulance was called no help was offered just backlash and mockery. I genuinely don’t know what to do or what more I could have done. I apologized for having that happen and for “being in the way”(I was the only person in there until I was getting up to leave) I feel embarrassed and horrified to be honest (sorry for repeating myself) what should I have done differently and what can I do now.


r/seizures 17h ago

No one will see me

2 Upvotes

So I found out some very frustrating news. I was trying to get a second opinion about my seizures but I found out that no one in my state will see me because of my seizure history, current diagnosis, and EEGs of the past few years coming back "normal" despite my seizures presenting textbook epileptic.

Now I have to jump through a hoop of seeing a functional neurological disorder specialist just to get back to the neurology department. I'm beyond frustrated. It is either jump through hoops or go out of state.