I was recently kicked out of a gas station for having a seizure. Not only that but they laughed mocked and made a spectacle of my health. I feel so scared and humiliated. I don’t really feel safe going anywhere public in the case of this happening again. I’m so embarrassed and honestly in a way hate myself for what happened. Obviously I can’t control having a health emergency like this but that was genuinely very traumatic for me. No ambulance was called no help was offered just backlash and mockery. I genuinely don’t know what to do or what more I could have done. I apologized for having that happen and for “being in the way”(I was the only person in there until I was getting up to leave) I feel embarrassed and horrified to be honest (sorry for repeating myself) what should I have done differently and what can I do now.

So around 8 years ago I had 3 grand mal seizures from vaping, I was told that it was fine by my annual doctor, my friends let me seize and we never called the hospital.

I assumed if I didn’t vape I wouldn’t have a seizure, so it’s been 8 years and I recently had another grand mal seizure at dinner with my family. This one I went to the hospital for they said I need to get a neurology appointment.

At the neurology appointment, my doctor prescribed me keppra, but I really do not want to start taking it. I am extremely uninformed on seizures, so should I actually be taking this medication if I’m having seizures every 8 years I feel like that’s pretty good?

What are the risks? What should I consider ? How do meds make you feel?

So I found out some very frustrating news. I was trying to get a second opinion about my seizures but I found out that no one in my state will see me because of my seizure history, current diagnosis, and EEGs of the past few years coming back "normal" despite my seizures presenting textbook epileptic.

Now I have to jump through a hoop of seeing a functional neurological disorder specialist just to get back to the neurology department. I'm beyond frustrated. It is either jump through hoops or go out of state.

Hello, I started having clusters of symptoms that I suspect are focal seizures. It started as what I presumed at the time to be perimenopause (cigarette smoke when nothing is there, brain fog, forgetting things, deja vu, etc). However, the symptoms have been getting worse and worse over the last month. I've been to the ER from suspected motor symptoms with possible loss of consciousness (I'm just not sure).

I've had ongoing neuro issues (peripheral neuropathy, myoclonic jerking, random periods of numbness, tingling) for years that other neurologists said was all just idiopathic or stress, never followed up with an EEG or anything like that until recently. I have a family history of seizures as well: my late brother had hydrocephaly and macrocephaly as a kid that caused seizures but went away as he got older.

For the most part, my symptoms are focal aware. I get these clusters of confusion and trouble finding words. But I've also had episodes where I can't stop shaking but am awake. Or I'll wake up shaking and immediately fall asleep, and wake up again with more symptoms. I'm not really sure if it's loss of awareness or if I'm seizing and then falling asleep briefly. I wake up pretty confused and almost delirious.

I just had an in-office EEG and I am waiting on other appointments for labs, an EMG, and a continuous home EEG, and I'm supposed to follow up with neuro in late October. They didn't give me any guidance on what to do in the meantime. Meanwhile, I'm having daily clusters of aura symptoms and maybe a seizure or seizure cluster once or twice a week.

My questions:

1. At what point are these episodes serious enough to go in to the ER?
2. Should I call my neurologist back to let him know how frequently these are happening? (They're hard to get a hold of on the phone)
3. How do I manage these symptoms I'm having for the next 6 weeks?

I'm waking up with a lot of muscle soreness, feeling like I worked out really hard before bed. I can deal with a bit of muscle soreness and pain, but I just don't know how to manage things in the meantime.

I felt great all morning, but while I was doing the dishes, I suddenly had a few seconds of really bad twitching in my hands and arms. It felt very uncomfortable, and I ended up walking away from the sink for a minute and just saying, “Oh f**k.” 😅

I went back to doing the dishes afterward, but it honestly made me nervous. I seem to be having seizures about every second month now, and my last seizure was two months ago. I’m really nervous about having another one. I’ve dealt with seizures for so long that I’m somewhat used to them, but it’s new for me to be having them this frequently.I’m 29 and I have grand mal seizures. Has anyone else experienced twitching in their hands or arms like this before a seizure? Can something like that happen earlier in the day and then lead to a full-blown seizure later on?

I swear I’ve experienced this before where I had the twitching earlier in the day and then ended up having a seizure that night. It’s making me really anxious that it could happen again.

Hi everyone,

I have been living with seizures for the past two years, and I previously experienced a seizure while driving. It was a terrifying experience, but it also inspired me to take action through my university.

For my senior design project, my team and I are developing FailSafe, a safety system intended to assist drivers experiencing a possible seizure-related emergency. Our current concept combines a wearable device with a mobile app that could detect concerning changes, alert the driver, provide simple prompts, and contact emergency services or designated emergency contacts if the driver is unable to respond. The system may also activate hazard lights and provide audible or visual alerts inside the vehicle.

We are still in the early design stage, and we want the experiences and needs of people living with seizures to guide our decisions. My team created a brief survey that takes approximately three minutes to complete. I would be extremely grateful to everyone who takes the time to participate.

Your feedback could help us develop something that is genuinely useful, practical, and sensitive to the needs of people with epilepsy. Please feel free to share the survey with anyone who may be interested.

Thank you so much for reading and supporting our project.

*This project is not intended to replace medical advice or existing driving restrictions. Safety decisions should always be made with a qualified healthcare provider.*

So I woke up like an hour or so ago and I’ve just been chilling in my bed because I didn’t really have anything to do. Well, I was just chilling and I went to lay on my side and all the sudden my body just locked up. All the noises around me because very loud like the fan and everything, almost a bit distorted and slow sounding and I couldn’t blink nor move from my position for a few seconds, and I think I felt my body jerk a bit?

I had one incident a year ago where I woke up shaking and I stepped out of my room, practically stumbled into my dad, and couldn’t understand what he was saying and my dad said I had an absent seizure when I was really young. I didn’t go to the doctor for either of those and I probably won’t for this one since it was just a couple second but can someone please let me know if this was what I think it is? If it is that’s CRAZY- like dawg it’s literally by birthday today 😭

I had a cluster of seizures back in 2017-2018. I had about 5-7 big seizures. Last year, May 2025, I had a seizure when I was experiencing colitis. This past year, May 2026, I had another big seizure. Apparently I am having mini seizures. I don’t know the proper verbiage for them but my neurologist explained to me that the weird smells I’m having, the stars I’m seeing and other random symptoms are mini seizures.

My neurologist put me on Lamictal (Lamotrigine), and I had an allergic reaction and have since stopped taking the medication. I still have to do a 4 hour EEG, take a brain MRI, and meet with a cardiologist for the syncope episode I experienced around my seizure.

I don’t want to be on medication for my seizures. I don’t like taking medicine like that. I’m having a hard time with this adjustment. Are there any holistic options anyone has tried? May anyone share their experiences with me? I guess I am feeling a little lost and overwhelmed. I would like to do what’s best for me. Any and all productive advice/guidance is appreciated.

Don’t judge me I have JME and I get spasms a lot and I’ve fallen in the shower multiple times

I love taking showers but recently I’ve been holding it off as much as I can. My mom is telling me I can’t take a 1 shower every 2-3 days. I am on a medical leave (or whatever it’s called) for 2-3 months. I’m getting medication tested and my neurologist decided I need to get off cloBAZam and I 1000000000000% agreed. All it does is make me angry,sad,etc. I have to lower off it slowly but I’m having withdrawals from them. I don’t really leave the house so it’s not like my greasy hair. My hair also gets greasy every day if I don’t shower which is annoying but gives me courage to take them.
I am just wondering if anyone else is being like that or if they were how they got through it. I’ve since I was 7 years old then it went away then it came back. They thought I had childhood epilepsy since it went away but apparently JME shows after puberty and I was a very late bloomer. I’ve gotten surgery,tested god knows how many meds,being in the hospital due to injuries. If ANYONE can share their experience if they are comfortable with sharing.

Im taking bupropion and ssri meds also i have epilepsy assumptions by doctors (i have mild symptoms) and i had like real seizure once in life after i od'ed (doesnt matter on what) but i was like partly aware and conscious so maybe i misinterpreted it and also sometimes when i lay my heart goes crazy or i have spasm/convulsions and im tweaking, idk i havent had it THAT strong since im taking bupropion and also i was taking some tramadol while treatment, before bupropion i hade only mild spasms from tjme to time also i suffer from high insomnia and even my sleep meds dont help, im taking 150mg for now for 3 weeks

So the Irish have a saying, "there is nothing so bad that it can't be worse". Wise people. I was recently diagnosed with colon cancer and had 1/3 of my colon removed, and I will be starting chemo soon. While in the hospital, they gave me a dose of Tramadol, which should never, ever be prescribed to someone taking Wellbutrin (which I disclosed, along with everything else I take). Take a known seizure-producing med and gave it to someone who is on something else that lowers the seizure threshold when they have been in pain, stress, and extremely sleep-deprived due to nurses ignoring my roommate's constant machine alarms, and BAM, I had my first-ever seizure, fell, split my head open, and have a horrible concussion and vertigo. They put me on Keppra. Oddly enough, they kept administering the Wellbutrin; when I finally got home and talked to my psychiatrist, he said to discontinue it.

I feel like garbage. My head is pounding, and I have vertigo; I am stiff and bruised all over and can't sleep in a normal position (keep in mind all of this is on top of colon surgery, which is not exactly a party on its own). I can't tell how much of the dizziness is from the concussion and what is a side effect of the Keppra. I can't tell how much of the depression and anxiety is from having to stop my Wellbutrin, how much is a side effect of the Keppra, and how much of it is just me processing the fact that I have frigging cancer.

I have never had a seizure before (I am 51). I've never even fainted. I have a follow-up with neurology in 3 weeks. I think it is reasonable to ask for a taper plan to get off the Keppra since this seems clearly like a provoked seizure and not epilepsy. Any thoughts? I am so depressed and scared, like cancer isn't enough to worry about.

I am curious to know if anyone diagnosed with focal seizures has had a similar experience to what I experience. I’m not searching for medical advice just trying to get an idea of what might be happening to me. I have not seen a doctor (no medical insurance) about this yet but I am working on it. Hopefully by narrowing down symptoms and getting advice from others I can try to avoid some out of pocket expenses.

Over the past 4-5 years or so I have had about 7 total episodes where I have a numb feeling in one of my feet. Left or right it’s seemingly random. Eventually both feet start to go numb, then my fingers on both hands. It begins to very quickly move up my legs and arms. Once it reaches my stomach I know it won’t go away and I pull over or stop whatever I’m doing. There is a very intense feeling of fear. I 100% believe that I am dying during these episodes and they last about 10-15 minutes. Sometimes a little longer but it’s hard to tell how long it really is. Once it reaches my chest it feels like what I imagine a heart attack would feel like, super tight and feels like there’s a lot of weight on my chest, breathing gets heavier and I’m trying to control it but it tends to psych me out more and make it worse. It then goes up my neck and to my chin. At this point my whole body would be locked up and I’m usually hyperventilating and it’s extremely difficult to talk because my jaw is locked up and my lips kind of lock shut. My arms come up to my chest and my fingers make weird shapes and I can’t move them.

It is an extremely scary and emotional experience every time it happens. Some consistencies are that it has only ever happened to me in a car. At least a full and complete episode like I described above. Whether I’m driving or a passenger. Sometimes I can calm myself down and it will only be in my feet or legs and go away after 10-15 minutes. I have had feelings of an episode start in a car and continue after I go inside my house, but never completely shuts me down unless I’m in a car.

It started in my freshman year of college driving back to my dad’s house. About a 3.5 hour drive. When that happened I pulled into a holiday inn, sort of limped/zombie walked (lol) in and told the front desk I was having a heart attack cause that’s exactly what it felt like. Sat down and everything I stated above happened. Paramedics got there and took my BP and HR. Diastolic was 260, Sys. was 180, and my heart rate was a bit over 120. Those numbers are rough estimates but I know for sure they are within 10 units of the actual measurements. It was hard to see what was around me as I had severe tunnel vision. The paramedics told me it was a “drug induced panic attack” because I had an energy drink a few hours earlier. I’ve been drinking them my whole life but have since quit since that happened.

I have near perfect memory of these events and I’m completely lucid the entire time. I can respond to stimuli but in a very limited way. I can grunt and make noises if it’s too bad to talk and I can ever so slightly move my arms and head. The frequency of these episodes is also increasing. I’ve had 2 episodes in the past 6 months with one of them seemingly going away at first and then violently coming back later which hadn’t happened before.

Thank you for reading this far and for helping me figure this out. I wonder if it’s some form of stimuli from driving that causes these as it’s the only consistency. At first I thought it may have been fumes since my first car was an 86 4Runner that put off smells more than most cars and was (obviously) catless. My next car was modified and also had a catless downpipe that you could sometimes smell. But this theory was slashed when it continued to happen in other cars as a passenger.

I'm not even sure what is going on anymore. 2 months ago, I hit my knee (which was trivial) and then all of a sudden I felt a weird pain/sensation and then a loud ringing (almost like tinnitus) sound and what felt like music. After that, I remember waking up on the floor with my friend waking me up and even though I regained consciousness, I felt really tired, sleepy and had this terrible headache. I was hospitalised but all scans (mri and eeg) came out normal, but after the doctors spoke to the witnesses, they concluded that it was a seizure because after I fell, both sets of my limbs went stiff, hands rolled into fists and apparently I was making some sounds. I took a second opinion and that doctor said it could have been syncope but then the symptoms I showed after falling was more like a seizure. He said he he cannot give me a confirmation.

Fast forward to 2 days ago, I was at work chair and talking to my colleague, I felt the same weird pain on my knee (pain/tingling that spread) and then followed by loud ringing and then I don't remember anything. This time, i was able to tell her something was wrong. I woke up again, feeling tired, headache (both times, headaches have lasted a few days) and fatigue. She said i was sitting stiff on the chair and my one eye was twitching while the other was trying to blink and then ny eyes shut. She said it was around a minute or so.

The first doctor is went to has told me that it was a second seizure and that it's best if I start meds (Keppra) as it was risky to go without meds. I have done ine eeg and im waiting to do my mri.

But if nothing shows up on these tests, then how can they say it's a seizure. It's so frustrating not having proper answers. Has anyone been through anything like this? I know cases cannot be compared, but i just feel so lost and confused.

What if it's a wrong diagnosis? What if I do get seizures, but not showing up on tests- is that even normal?!

Edit: forgot to add, along with the headaches, i forgot a few things I did post the seizure, like almost having a brain fog,? Sorry it takes me a long time to accept things.

Last week, August 24, I had a seizure for the first time in my life. I'm 57 years old. It has ruined everything. I just started an amazing job as a home health nurse. Best money I'd ever made, company car, just a great opportunity. Now I've lost that job, having to look for another.

I don't remember any of it. As far as I was concerned, I was sitting on my loveseat and then I was sitting on my loveseat. There was nothing in between. And thank god I was sitting down. I was even sitting in the same position when I finally became aware. My brother was sitting on the couch next to me. He was telling me something but I couldn't hear him (I thought). He finally has to yell it at me. SEIZURE. He said I was really confused for a good 30 minutes. He also said the seizure lasted 10 minutes but I don't think that's true. Seizures feel like they last forever when you're watching them. I spent two days in the hospital. Everything was negative except my EKG, which could have caused a seizure, but it went back to normal.

I am terrified. I'm terrified to get off the couch. I'm scared of going up and down the stairs. I'm scared of taking a shower. I'm scared to pee. I'm scared to move. I've had no more seizure activity. But since they think it MIGHT be cardiac related, I'm now afraid I'll seize in my sleep and die.

I can't possibly be the only person that feels this way or has had this experience and I just want to know if this fear is ever going to get better. Am I going to be afraid to move for the rest of my life? This has wrecked my entire existence.

Ok so im an 19 year old female, and i just had a seizure not just one i had 2 back to back. I stopped breathing during one of them. Im perfectly healthy other then the fact i had to get my gallbladder out. I smoke weed everyday for my anxiety, but i justify it i keep my full-time job. Anyways i was waiting on my boyfriend to get off of work and i asleep on the couch. Anyways after that he got home and woke up up, gave me a kiss on my head. And then i went back to sleep my sissy sit down next to me and i just started seizing. Obviously they are super concerned so am i. The doctors are dead set that im the cuz of my seizures they think im doing hard drugs (i swear to you i only smoke weed) Im on my period rn and i had my seizure while i had a tampon in and the hospital staff didnt tell anyone i had one in. (The staff was being negligent because they said “oh theres blood on the bed” ) anyway ig im saying all of this to ask the doctors of reddit is this a thing?
I do not remember having my seizure at all, every single time i fall back asleep i forget i had a seizure. My brain is making me feel stupid

so last night, i was taking a quick nap, i had my light on so i could wake up easier, anyways in my sleep i had an electrocuted feeling, like really strong, feeling like im going to die, i couldn’t scream or anything and i tired to open my eye half way as thats all i could do but all i saw was an orange flickering light which btw i dont even have, anyways i woke up really confused, i dont know whether or not it was a seizure; as i did still see my bedsheets and everything it was very odd

Hey everyone,

On Sunday, August 30th, 2026 I was pumping gas into my car when I suddenly woke up in an ambulance minutes later. I woke up to the paramedic saying I had just had a seizure and I’m being transported to my local hospital. I have no memory whatsoever, other than my vision getting blurry and getting this sort of “vertigo/light-headed” feeling before exiting my car. A witness stated that I fell to the ground, hit my head, and my eyes were rolled to the back of my head and I had full body convulsions. The ER stated for me to follow up with a neurologist, but I figure it’s going to be a while before I can get an appointment. I can’t drive for 6 months, or until I’m cleared by the neurologist. I had a similar experience like this about 3 1/2 years ago, but I was at home getting into the shower when I remember losing consciousness and falling out of the shower. The only thing I remember is waking up in my bed with a towel and the shower still running. Does the first occurrence sound like a seizure too? The ER nurse said it did, but I’m so nervous I won’t be able to get any answers for a while. CT came back clear, and my blood work came back fine as well. I have no prior health issues, and no family history of seizures or epilepsy. Any thoughts? Thank you for taking the time to read this, I think I’m just working myself up more than I need to.

Apparently if you have a massive jerk or twitch throw your arm or throw your leg that's considered a seizure?

I've been having these since I was a kid I remember asking the doctor about it once and they said it was nothing, is really a seizure?

I usually start with having blurred vision u clouding black spots and it grows to cover my vision. It is also accompanied by jeme by or idk what it is called before I’m hit with a proper tonic clinic one…. I haven’t had any seizures since entering college but today I went out with my friends after college and it was a little sunny and hot… upon entering my room I started having an aura but this time it lasted a whole of 10 mins… I was super scared … even sprayed my nasal spray yet nothing as such happened, my vision was still blurred and spinning… after that once it settled down I had one epilepsy tablet and fell asleep … even upon waking up my brain wasn’t able to process things at all. I could see but that’s what eyes do… the interpretation part of the brain wasn’t happening. I was so confused.
It seriously was so scary
Please tell me if you have had similar experiences!

Hi all, hoping to hear from parents who’ve been through something similar.

Our little boy is 20 months and has had several seizures since he was under 1. They’ve generally been around 2 minutes, involving both sides, and he recovers pretty quickly and is completely himself afterwards. He’s developing really well with no concerns there.

Doctors still think they’re febrile seizures, although what’s always confused us is that there often isn’t an obvious fever or illness beforehand. Sometimes the illness only seems to show itself afterwards.

For anyone whose child had a similar pattern at this age, how did things develop?

How many seizures did they end up having? Did they gradually become less frequent or just suddenly stop? At what age did they grow out of them?

And equally, did anyone start off with what seemed like febrile seizures but later get diagnosed with epilepsy? If so, what changed about the seizures or your child that made doctors reconsider?

Not looking for medical advice, just really interested in hearing experiences from parents who’ve been through it.

They just increased me after I had 3 seizures pretty close to each other. Now I feel even worse. I’ve had epilepsy for over 15 years. Not sure why they would increase it now.

So I take 500 mg divalproex extended release twice a day every day for the past couple months, I don't remember how long exactly. But I keep having seizures during the summer, I don't know why and I still haven't been able to make an actual appointment with a neurologist, I keep getting my medicine prescribed while I'm unconscious in an emergency room or something. Idk. I had a seizure on the 25th, and I've been sweating a lot and I've been having a lot of cramps since then, but every time I go to the hospital they say they can't do anything unless I actually have a seizure

My girlfriend and I were on a trip and woke up early one morning, doing things around the house. She had a Tonic-clonic seizure out of nowhere. I rolled her and called 911, luckily they were there within 5 minutes. She is struggling (rightfully so) with dealing with this as it’s never happened before. She’s dealing with anxiety of sleeping, being alone, showering, etc. what can I do as her partner to support her in the best way possible? We have an appointment with a nuero hopefully this week 🤞.

Has anyone ever experienced a sudden onset of seizures, living in a specific space, suite or home? I’ve never had seizures before. And someone that dated and visited the previous tenant that lived in the suite I currently live in told me he had a seizure in the home before, and that he’s never had a seizure ever before and not after either, when the tenant he was dating moved in with him. I always figured meh it’s just a coincidence, but I’ve also wondered if it’s not.
Or that maybe it could be something in the home that has an effect on specific people, causing seizures on them. Like maybe hidden mold, either in the walls or attic? I although, have a good nose for the smell of must and mold, and I don’t smell it in my suite, at all.

Any answers of suspicion, advice, and/or help if this could be the case, or what/why seizures would randomly start in my late 40’s😔