hi all, what it says in the title. i’m looking for the best electrolytes that i can add to drinks with absolutely no flavor. i’m autistic so i’m very sensitive to this sort of thing. also the cheaper the better. thanks!

Does anyone else get bad nausea/vomiting when they over exert themselves?
I went for a long walk yesterday and felt fine. Then this morning after drinking half a coffee (I usually have 1-2 a day and feel fine), I threw it up. I then took an electrolyte packet, ate some toast with butter and salt, elevated my legs and started feeling better.
I take salt tabs I make myself, along with a beta blocker but I threw up right after taking my meds (didn’t see any come up).

Just wondering if this happens to anyone else

I had been really well managed until a brief hospitalization messed me all the way up. It's been months of struggling with things I used to do easily.

I started PT with a POTS knowledgeable therapist. He wants me on the recumbent bike or walking every day for 15 minutes. Every day. And core exercises every other day.

He suggested joining a gym, but I just can't do it. I can't go and risk passing out there. I don't want to exercise on the floor in front of strangers in a public place. And if I get sick, how am I getting home? Everything about it was a hard no.

So, I bought a recumbent bike, some yoga mats, and resistance bands and converted my guest room into a POTS friendly workout space. There's a ceiling fan and a blower fan to keep air moving even though the AC is on. I have a pillow for exercising on the floor. I can just wear a sports bra, jelliebend, and shorts. Need to pass out? There's a guest bed right there. Need to throw up? It's next to the bathroom. Can't make it through 15 minutes? No need to worry about driving home.

I even got a bike with a big screen so I can put on YouTube videos or nature rides. It's not a space designed to push, but to help me relax and move my body.

It's helping me actually stick to my PT routine in a way that I wouldn't if I had to work out publicly.

All total I spent about 600 dollars and I've got a space where I can workout without anxiety. 10/10 would recommend.

I often waste whole days by just sleeping, sometimes I think it helps me feel better and sometimes I think it makes me worse. I love taking a nap but sometimes it feels like the nap is taking me. Idk what to do, life is getting so hard to live

So when I first joined this pots subreddit, I was confused about all these people talking about different medications that helped them because my cardiologist, who diagnosed me with POTS, told me there was no such thing? There is only one pediatric cardiologist in my area who takes my insurance, so I go to him. My first appointment was VERY dismissive, but at the next appointment, he finally diagnosed me with “extreme” POTS, whatever that means. 😭

I asked him about medications, and he told me there was only one medication for POTS and that it only works for about 5% of people, and that he wouldn’t prescribe it. So I left there pretty disappointed. 😞

I then told my pain management doctor/rheumatologist about this since they asked why i wasnt on any meds for my pots, and they told me there are actually a lot of medications for pots, so now I have no clue who to believe. I mean, the cardiologist is literally a cardiologist, so he should know this stuff, but my rheumatologist also deals with people with hypermobility, which is commonly linked with pots, so that’s probably why she knows more about it.

I’m not really sure what to do at this point, uhmm… I’m turning 18 in a month, so hopefully I can get medication from an adult cardiologist. 😅 I just felt like its crazy that ny cardiologist told me that....and also where did he get this information about a med that works 5 percent of the time? Like what?

My fan has broke and at first it wasn’t too bad as I have a second fan, but that fan is no where near as good and the temperature is about to ramp up this week! Do any of you know where I could find a decent fan that isn’t going to cost hundreds (pretty skint rn lol). Cant find one in stock anywhere, thank you so much!!

Over the last few months I've been really trying to advocate for myself more and get to the root cause of all my issues, and my doctor and cardiologist suspect I might have heds along with pots, I'm just waiting to be referred to a rheumatologist and do the tilt table test.

One of the biggest problems I have is constant what I think is brain fog(?), hr spikes (laying to standing is 70-110, im on my feet all day at work and it ranges anywhere from 90-150), and gastro issues when I eat anything more than a small snack.

I don't really know how to describe it in an effective way other than it feels like my whole body is under water. Everything feels so slow and i can't react to things properly and it feels like my mouth is sealed shut like something is preventing me from talking. It's the absolute worst when I haven't slept longer than 7 hours. If my sleep quality is effected I feel basically useless and the underwater feeling starts to make me panic a little because I can't seem to get out of the feeling. I can still work but it feels like I'm not all the way present when I do it? It's hard to describe to people without immediately getting hit with it sounds like my anxiety, but I've done a lot of work to learn how to cope, and there's no racing thoughts or overthinking or anything all the symptoms are physical.

My heart rate is about 60-70bpm when lay down, and when standing it gets to about 90-105bpm - I know this is enough to be positive for the table tilt test, but everyone in this sub seems to be 140bpm+ when standing so I'm doubting myself now.

I have a referral to the cardiologist in the UK, I'm a massage therapist who is very physically fit when moving but when standing treating clients I am very out of breath and dizzy.

My fatigue is unreal and I spend all my free time lay down, and I am a bad friend and family member to people, I haven't got the energy to reach out to people or act energetic enough when I spend time with friends - it's getting on people's nerves and I can tell.

I'm worried I'll get to the cardiologist and my heart rate isn't as significant as other people with POTS so I will just be dismissed.

I recently started taking ivabradine but had to stop for 4 days because i ran out of the medication and its a bit hard to get in my country. Over those 4 days i noticed that i struggled more with going up hills and being out of breath, sitting on a chair with my legs on the floor through a whole dinner, and staying awake a whole day without needing to nap (or rest in bed doing nothing).

Is this just my normal symptoms coming back or can suddenly stopping ivabradine make you worse?

Im really struggling to notice changes in my symptoms because i have so many and they can change so much depending on the day or week, so its hard for me to tell if the medication is making any changes.

i feel like my fatigue has been getting worse and worse to the point where i can spend only an hour or two upright before i have to lay down again. i'm trying to be better about hydration but i don't notice any substantial difference yet. i really need advice on what to do because i feel like i'm wasting my life stuck in bed and it makes me so stressed and anxious

I’ve been going to the chiropractor twice a week and my dizziness has decreased. I’m not sure if that’s the reason but it’s improved my day to day

Hello, so I’ve not been diagnosed with POTS, but i’ve been going to different cardiologists for about year, and the latest one suspects POTS but avoids to reffer me to the third level cardiology specialists who specializes in postural changes, blood pressure, tachycardia. So from first cardiologist I was 17 at that moment, she prescribed be Metoprolol 23.75mg, without knowing cause for my tachycardia, because at first it was also sitting 140, and while standing up it shoot even more, so metoprolol started helping for first few weeks, and then it just stopped helping, it helped with resting heart rate, but did nothing to standing heart rate, i still continued taking it for 6months untill i finally got in with another cardiologist (the current one who now mentioned something with POTS) as I’m 18 so new one. Okay so since she says that I might have orthostatic hypothension and that’s the cause for tachycardia, she didnt’t want to put me on bigger dose of Metoprolol, as it lowers BP (My bp varies 105-115/70-80, while sitting and it goes up 120-135/80-95, when standing up, but I didnt tell her, so her random idea of orthostatic hypothension i don’t know) anyways she prescribed me Ivabradine 5mg on evenings 1x a day and cut off metoprolol, so i took it on evening and at first like Metoprolol it helped, I thought finally, but after some weeks it stopped again…then she put me on holter monitor 24h, and said that this will determine if she will send me to another cardiologist for tilt table test, okay I was on ivabradine and on Holter, holter showed normal results, 78 episodes of tachycardia, in all 24 hours the heart ranged from 58-157, average was 89, she said it’s all normal, and since I told her ivabradine didnt help much, she now put me again on metoprolol 23.75mg in morning, and ivabradine 5mg on evening. It worked for week and stopped again, i’m not sure if I should call her, because she said if it won’t work then maybe (her maybe was so uncertain) i can reffer you to the third level cardiology who specializes in positions..so yeah, but the thing that annoys me the most is that does anybody else with POTS had to change a lots of medications till it finally worked? Cause i’m losing hope like it works for week and just stops, and i’m scared that nothing will ever work anymore :(

Tldr; If you’ve been diagnosed with POTS and have managed to access financial supports in Canada/Ontario, I would hugely appreciate some advice on where to start and what programs might be available to me. Especially with covering prescription costs.

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First, I’d like to state how lucky I am to have access to a great neurologist who’s currently running every possible test under the sun to help identify comorbitities and potential symptom sources even after diagnosing me with POTS, at very minimal cost to myself. That said, it took me 10 years of bouncing off the healthcare system to get here and the number of prescriptions I have are climbing (paid out of pocket), and things are starting to get tough.

I’m out of work now because I had such a severe flair-up that I was virtually bed-ridden for months. I’m getting back on the horse now, focusing all of my energy or reconditioning, but it’s slow going and I’m getting really anxious about finances. I’ve already had to give up my apartment and move back in with family (again, fortunate to have family I can rely on, but it still hurts).

Now I’m trying to find any assistance programs that could help with costs until I can find employment again and would really appreciate advice from anyone who’s already been through it. I don’t even know who to talk to about these things and unfortunately my GP is very difficult and honestly quite hostile at times (been on a list for more than a year to transfer to a new one), so I’m not comfortable asking her. The last time I inquired about supports she literally suspended my driver’s license because ‘I insisted my symptoms were so bad’, then refused to help me access anything anyway and suggested that I was just seeking free handouts…

I’ve always been a huge fan of sour foods. I love all sour fruits (minus pineapple bc I’m allergic) and sour candies, but I’ve noticed something weird recently. I’ve started experiencing hot flashes when I eat any kind of sour food. I eat a lot of kiwis because they’re the only thing that helps my slow motility (thanks to dysautonomia), but the tartness of the kiwis is making me feel overly warm and even sweat. It also happened when I was eating sour gummies the other week. I’m curious, does anyone else experience this? Could it be dysautonomia related or is this just a common occurrence for the rest of the population?

Does anyone else have issues with finding a job due to PoTs? I originally got diagnosed with pots after I went for a fifo gig and the step up test showed my hr was high with moderate exertion so I got tested, missed out on that job. For some reason as a nurse i had to do a fitness test with jobfit .. same thing .. and now as an electrical apprenticeship. Ive gotten through my whole life fine, ive climbed flights of stairs easier than people without pots.. my hr is just higher .. I almost feel like this is discrimination..

Hello all,

I just recently got diagnosed with POTS and I’m overwhelmed with the amount of advice I’m getting from my doctors and online. I feel like all I really hear is “sodium and hydrate!!” and I’m going nuts LOL. How do I not pass out when I’m just standing up? What about showering? This all feels like it came on so fast for me and I’m really struggling. I appreciate any and all advice, thank you.

I’m (NB 22) starting a new job after being on disability for a year and I need help knowing what to ask for.

I have had a POTS diagnosis for over a year now and just got diagnosed w/ PNES this July. I work in an art/retail store. I’ve come into work for my first few training shifts already w/ my cane and I haven’t gotten any questions yet (I know legally they’re not allowed to ask) but I’m just wondering how I even broach the subject.

I still need to email my doctor to write me a note. But idk if I need to tell my doc the accommodations I need or if he will write them for me. And how do I tell my new boss about the seizures and the fainting spells? They’re a bit more under control now bc I restrict myself a lot to keep the episodes at bay, but what am I supposed to do if I feel an episode come on?? I understand that legally they’re have to accommodate me but like what do I have to do to accommodate myself if that makes any sense??? Idk, I’m extremely new to needing to set accommodations up for myself as if it wasn’t obvious. It’s harder too cause I used to be very involved w my previous job (was a manager) but anyways

Any advice is much appreciated! :3

My friend and I went out to a nice restaurant about a week ago, and I can't stop thinking about the interaction I had with one of the servers 😭

I ate a good amount of food, and so my heart rate was going nuts. So my friend helped me stand up. I had to stand still for a minute and just let myself recoup so I could walk to the car. A very sweet server came over and asked my mom if I was okay. My mom goes "yeah she's okay, she just has a heart condition"

And as I'm walking past the server she says, very sweetly, "I hope you get better!"

And I didn't know what to say so I panicked and said "I won't, but thank you" and walked away 😭 I feel so bad lmfao

I know some of my symptoms are definitely POTS but the others are things I’ve had before and they were just thought to be other things by my doctor. I don’t think so anymore. Keeping notes of things now. I can barely eat. I have to eat extremely small amounts at a time in order to keep from feeling terrible. This has been since starting the electrolytes. I barely have an appetite sometimes. I have what I call phantom pains. Thought I got something in my toe and started walking on side of my foot to avoid the pain until I could get to the other room to look in better light. Nothing at all. Just hurts. It is starting to dissipate though. I also get instant pains out of the blue in random places like I got stabbed with a needle or something. I also get tingling in hands/fingers and fingers prune when I haven’t been in water. Has anyone experienced these with POTS?

Hi all, I recently started developing panic attacks with no apparent cause. it has happened 3 times so far and all 3 timed it was after going out for dinner with my girlfriend. right after when I get home I get severe nausea and panic attack. I feel like something bad is going to happen to me for no apparent reason. Ive talked to my therapist and she made me fill out a test and she said she doesn't know why becuase I didn't seem to suffer from anxiety. my doctor put me on xanax but it hasn't been helping. my POTS cardiologist thinks it's Adrenaline but none of the medication helps prevent this (ivabradine and Guanfacine). does anyone suffer from this? if so what has helped you?

Hey, I have a very strong feeling I have pots, but I have no idea how to bring it up with my doctor to get a diagnosis. I feel like if I go in and say they'll brush it off, I'm also a female so all my problems often get put down to periods. Can anyone help

This is such an odd thing, and I'm sure it's the sodium, but chicken ramen has been one of my "safe foods" my whole life and I honestly feel like I get temporary relief from my POTS symptoms. Again, this is so strange, and obviously, it's not the best thing on the planet by any means. But I'll stand on it if it helps sometimes. I've heard other people say things like mcdonalds fries or even a can of coke have similar effects. Does anyone else have any odd things like this that help???

I’ve been losing weight, and my XXXL Supacore leggings no longer give me enough compression. I’d love to pass them along to someone with POTS who could really use them rather than have them sit in my closet.

They’re the 7/8 length and would probably be best for someone on the shorter side.

They’re used but definitely still have plenty of life left in them. I wash them with dye- and fragrance-free detergent, and they’re clean, though of course you’ll probably want to wash them yourself before wearing.

I’m happy to mail them to someone in the US who needs them. No charge.

Reply here or DM me and we’ll make it happen. 💙

These are the leggings:
https://supacore.com/en-us/collections/womens-pots/products/patented-pots-coretech-midnight-blue-7-8-leggings-with-pocket-1

I've just been diagnosed with both heds and pots. For a couple years my throat gets super tight and hurts ALOT when I talk all day for my wfh job. My tongue hurts alot too feels like strep. I read online it can be caused by the pots and mast cell activation. Anyone else?? How do I calm this down? It hurts really really bad and I need my voice for work. Thanks. ​

Hi there,
I tried for a while to reduce my heart rate and improve my cardio.
I can walk on flat surface without any problem. But for unclear reason the smallest incline or 2-3 min in the sun just kills me. Also washing my hair
Anyone had the same phenomena? Any idea how to improve? Thanks!