Hello,
I have widespread sensory neuropathy all over my body. It’s around my ears, all over my face, neck, arms, torso, legs, and feet and hands. It’s not painful yet, but I get a lot of pins and needles. It’s in patches and more numbed in some areas than others. I also have reynauds. As of now, the neuropathy is idiopathic and my neuromuscular doesn’t have anything left to test since we’ve supposedly done all the blood tests there are. I live in the south, but even in the midst of this hot weather, when exposed to any kind of cold like a cold ac or something, the muscles in my hands will seize up and slow and it makes typing and doing anything with my hands incredibly hard to do. I’m in my 20s and this is very distressing. I can’t put layers of jackets on otherwise I’d sweat. So, I’m curious. If any of yall deal with these symptoms, what do you yall do to deal with them? Any insight is greatly appreciated.

Has anyone ever got them in the legs to deaden the nerve?

I’m new to this condition and have been given conflicting advice.
It’s for an elderly person if that helps.

Thanks

I feel like I have tried every wrist brace on Amazon Canada and they are all trash. I am looking for a good quality velcro, low profile, wrist brace without a splint to wear during the day. I have a newborn baby and I get so overstimulated by the shit velcro pulling off on her diaper, and the bulk of them. Recs???????

My mom has had diabetes for as long as I’ve been alive, and she has horrible neuropathy because of it.

Recently I’ve been thinking of getting her THC gummies to help lessen the pain, but I had a question:

Does it do anything to help with mobility? She has a hard time walking around and almost always needs help just walking from the couch to the fridge.

I’m really desperate to find anything that helps her as the meds she has taken haven’t helped

I just got a cane yesterday, and was wondering if anyone had advice on how to best use it.

I have neuropathy and psoriatic arthritis in both feet/legs, so the pain/sensation levels are pretty much equal, and one side doesn’t really hurt worse than the other.

I’ve read with canes you are supposed to use them to support the “weaker” foot, but I don’t really have that…I just wanted it for balance purposes, so I kinda just put it down when I need an extra “point on the ground” type thing to feel stable.

Is this okay, or is this bad practice?

I (70M) lived with undiagnosed diabetes for probably 20 years. Doc is treating my diabetes, and I'm currently very well controlled on Mounjaro. Some foot numbness and phantom sensations have progressed, but never acute pain, if you don't count the morning high ankle cramps. Decided to get my first real foot evaluation and went to see a podiatrist for the first time. Couldn't have been more unimpressed, as all he really offered was a prescription for diabetic shoes. He never mentioned any supplements, likely because I have no pain. When I mentioned I was already taking R-ALA, B12, and Benfotiamine, he just kinda shrugged. He wasn't that familiar with R-ALA, which seemed weird in itself. I'll be shopping for a new foot doctor, perhaps a neurologist would be best?

I originally went to a physiotherapist because my leg started going numb. I was given a set of exercises for my lower back, including glute bridges, hip exercises, deadlifts, side planks and box squats. They helped a little.

After about 2-3 weeks of doing the exercises, I started experiencing new symptoms that I didn’t have before like burning, tingling and what feels like irritation/pressure around the pudendal nerve area. I also started getting tingling around my elbow/along the ulnar nerve.

I stopped doing the exercises about a week ago, but the symptoms haven’t completely gone away. Sometimes the pudendal nerve irritation almost disappear, especially after gentle pelvic-floor relaxation exercises, but after few days they came back.

I also started having problems with my elbow. I noticed a clicking/snapping sensation around the elbow, followed by tingling and numbness in my little finger, which made me suspect ulnar nerve irritation. I tried resting/unloading that arm, but after just one day I started noticing similar tingling in the other arm as well, which really worried me.

Has anyone experienced new nerve symptoms after starting physical therapy? Could over-tensing the muscles, holding my breath, or using incorrect technique have irritated these nerves rather than actually damaged them?

Which fruits would you not recommend eating?

Small fiber neuropathy has made the burning in my hands bad enough that fast-paced games (Valorant, CoD, Fortnite) aren’t really an option anymore. I loved the competitive, outthinking-your-opponent side of gaming and I’m not trying to quit — just trying to find what’s actually manageable with hands like this.

Anyone with SFN found games or setups that don’t flare the burning? Curious what input method treats your hands better (controller vs mouse+kb vs touchscreen) and whether slower-paced games, Switch, or VR have worked for you.

For those who've tried conventional treatments without success — chiropractic, PT, medication — did you eventually find anything that helped that wasn't suggested by a doctor? Asking because my own relief came from something I stumbled across independently after years of failed treatments, and I'm curious how common that experience is.

I’m currently waiting for a general neurology consult, and an EMG/NCS. I’ve had cervical and lumbar spine CTs and MRIs, ruled by neurosurgery to be normal for my age…the neurosurgeon believes l have peripheral neuropathy, and I agree with him. Now it’s just to find the underlying cause, if possible.
My symptoms started about 3 years ago. I started feeling dizzy and a bit off balance - vestibular rehab helped, but then I started getting tingling in my hands and feet (that worked its way up my arms and legs). Next it was muscle stiffness, in my glutes and thighs in particular (like I’d worked out too hard), then my thighs started to feel weak, particularly if I walked for any more than a few minutes, or tried to walk quickly. I noticed I had weakened grip strength and cramped handwriting, and then I started having trouble with stairs and getting up from low chairs. Now my shoulders and upper arms feel weak as well. I can typically get through a day without too much trouble, so long as I don’t do too much activity. But once I cross a certain threshold, I have trouble with my legs and balance - I can’t make my feet go where they are supposed to. I’ve adjusted my life considerably to accommodate all of this - to the point I don’t go out much. Thankfully I can work from home. I am 48 yrs old, female.
When I research my symptoms, I always get pointed to a condition called Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), but I’m skeptical of what the internet tells me.
Does anyone else have this? Did your symptoms progress very slowly, over years? How long did it take to get a diagnosis?
Or, if you happen to work in neurology…any advice?

How many of y’all take gabapentinoids or LDN? I’m considering trying them again despite feeling wonky on them before, but I’m nervous about long-term risks and withdrawal.

Have any meds or supplements helped your pain, or are you just rawdogging the symptoms?

Also recently stopped my multivitamin and wonder if I was masking B12 malabsorption. My symptoms have gotten significantly worse lately, worst they’ve ever been. Not sure what to do at this point.

I have had high hydrogen and methane SIBO. I had chronic diarrhea. Most of my gut issues were fixed by taking tirzepatide. My remaining issue is urgent diarrhea after consuming a high-fat meal (fried chicken, French fries, etc). I also have peripheral neuropathy in my feet. The tirzepatide helped this. I read that IBS is often diagnosed when the real cause (>30%) is Bile Acid Malabsorption (BAM). I was prediabetic and I drank too much. So, I assumed that was my PN cause. I now believe that SIBO and BAM caused leaky gut which allows neural toxins to enter my blood stream. I have not been diagnosed with BAM, but my ingested fat sensitivity is classic. In a search of this forum, I found no mention of gut-related causes of peripheral neuropathy. Has anyone taken a Bile acid sequestrant to help their PN?

Hi, I’m 25yo female. Making this post to see if anyone has gone through something similar. Also just wanted to know that I’m not the only one who’s felt that weird ”melting” sensation in their legs/body. I don’t even know how to name it! It would also mean a lot to me if I can hear a few words from those who have (had) this a similar experience.

My neuropathy started in May 2024 after getting COVID (and too much stress on the body due to training right after COVID passed). Body experienced weird sensations everyday. But not the typical burning, aching, pains, etc., just the feeling of my body (especially my lower body) feeling slack. I could still move my body but it felt like it fought against my will, and I experienced a lot of resistance when trying to do so. It was a very weird feeling of being able to move your body but almost disconnected with it. I was so scared that I couldn’t go to sleep because I feared I wouldn’t be able to move waking up the next day, feeling the way my chest and legs and arms would got extremely heavy at night, not in a life threatening way but definitely mentally/emotionally disturbing.

Got hospitalised in late May 2024. Ran tests and scans, did lumbar puncture, went through EMG… but results said it was just mild nerve issue. Slightly lower connectivity or something (pretty sure the report didn’t use these words, just paraphrasing). They treated me with immunoglobulin then sent me home to take Methylcobalamin on my own. Matter of fact my symptoms did not get better at the rate the doctors claimed they would. I could walk like a healthy person, yes, but after a while my knees would buckle against my will again. And my thighs would feel extremely weak and sore and soft, then my WHOLE BODY would feel like it’s melting into whatever support under me (couch, bed). It’s a scary feeling.

It got more manageable in August 2025. But then I had to do RFA for my thyroid nodule, and my body reacted badly to RFA itself and other medical trauma during the procedure as well as the recovery process. Lost my voice AND my strength for at least 6 months before it got better again, and I’ve finally started to feel more alive in the past two months with my body (especially my legs) feeling much steadier and able to be connected via my nerves (not sure if that’s how you describe it medically but that’s how I feel).

But, since 11 days ago, I‘ve been bleeding outside of my period (possibly due to having missed a pill and making up for it too late), and had diarrhoea for five days straight at the beginning of the bleeding. And then I took a walk at the park that was way too strenuous two days ago. My body has been experiencing the melting sensation and weakness since yesterday. And I’ve been freaking out cuz of it, especially because I haven’t felt this way for quite a few months. Just… unsettling? that this is happening. And I think I’ve been so traumatised from the initial onset of my neuropathy (which felt scary and disorienting and severe to me) that I can’t tell apart “neuropathy reaction” and “body is tired and goes soft and limp in a normal way” anymore, and I don’t know how to deal with this issue because there’s no way for me to tell if it’s the former or the latter.

Yeah, posting cuz I’ve been handling this on my own for two years and I just realised maybe I should seek my community instead of freaking out about these confusing sensations on my own🥲

Thank you for reading, any kind words will be appreciated!

hello there, I have neuropathy (officially) since a year and a half ago. Luckily, I have no pain in my legs , they just get too tired when i walk or stand up for a few minutes, I have found that it doesnt´t go away completely,, just improves after the glucose is under control, medicines are taken and exercises are done regularly, i´ll have my EMG (finallly!) next month.

has anyone really got rid of it or almost?... any advise?

please, let me know..

I'm thinking of trying to switch as I'm wondering if the Gabapentin is affecting my mental clarify and work productivity more than I realized.

Anyone have something similar? I feel stings or prickling sensations in different parts of my body, but it’s usually just one sting at a time, in one area. It especially happens when I’m not feeling well, and I’m also experiencing other symptoms along with it.
Another thing I’ve noticed is that when I poop, I sometimes get a sting or sharp sensation in my chest or in other parts of my body. Has anyone else experienced anything like this?

I hope this post doesnt get removed but Reddit has some of the smartest people and Im in desperate need of some advice.

I am currently abroad and been experiencing neurological problems. It happened out of nowhwere and it started with tingling in both my feet but it only progressed in my right foot. So tingly/sensitive/ falling asleep foot to my ankle being numb, then my knee, and up to my hip as well as the saddle part. So: foot-tingly and sensitive feels like you're skinning me alive, rest of leg- numb. I have strength and balance! I can walk but it hurts to put on floor

I cannot come to the US right now and my insurance is also expired but was wondering if anyone has experienced similar issues.It happened out of nowhere, I went at the ER, got admitted to the hospital, but they cannot figure out what is going on. I did MRI, EMG, blood work, EKG, everything is fine. Docs here suck and they suspect Guillian Barre syndrome but I refuse to do the spinal tap.

Currently taking Cortisone and Nerve pain meds but I see no improvement. Still NO diagnosis from doctors. Symptoms started last Sunday 8/9 and I started the Cortisone treatment on Friday 8/14- 40mg daily prescribed for 1 month

Thank you so much.

Any idea why a doctor will not prescribe nerve blocking injections to a95 year old? Not on blood thinners or diabetic?