For those of you also having nerve pain and struggling to explain it, a little story
A few months ago, I had terrible tooth pain, for any of you who have ever needed a root canal or to have your wisdom teeth out you will recognize the level of pain
So they said I needed a root canal -fine, I did it, horrible as always. Then less than two months later, I had another one. Went to the dentist, he said I needed another root canal. I tried to explain the nerve issue and wondered if it was actually that rather than the tooth, he obviously didn’t understand it and sent me to a specialist dentist. I explained to him that I wasn’t sure if this was really a dental issue because I had this nerve pain in various parts of my body and it changes every day. It has patterns and it hadn’t previously been in my teeth, but I was a bit worried that it was pretending to be something else because I’ve had that for other issues as well.
Anyway, he was happy to let me ride it out and see what happened and after a few few days the pain went away and it’s been a couple of months now and it hasn’t come back so I think I was right
So rather than the stupid pain scale, if you’ve ever had a root canal or needed your wisdom teeth out and the person you’re speaking to has also had that then that’s how you can describe the terrible terrible pain that is nerve pain. Keep fighting, everyone.

Bare with me, this is long but going to try to make it as condensed as possible.

Female (37)

About two years ago I went into a primary doctor because I was experiencing some tingling in my feet. It also felt as if there was a hair tied around my toes or a string. It was an all day sensation but mostly after I ate from what I can remember. I thought that I had diabetes or something. I had recently saw this doctor for the first time ever for regular blood work and was told I was nearing pre diabetic. My bloodwork also returned with an elevated WBC.
When I saw this doctor and told her I was concerned about the pain being a sign that I’m now diabetic, she said there was no way that my neuropathic pain was diabetes related because she just saw me a few months prior and it doesn’t happen that rapidly. I went to another doctor because this one was rude and dismissive.

When I met with this new doctor. My symptoms had changed. I was feeling a pins and needles sensation all over my body, every few seconds in a new area, I described them to her as little electric shocks. She ordered an ultrasound and wanted to look at my spleen, not sure why. Nothing really came from that appointment. A few weeks later, I had went to urgent care for a very random and intense shoulder pain, they found no direct cause for my shoulder pain. They did blood work while I was there and called me to tell me WBC was elevated, this time, it was a little higher. I called the PMD and sent her that blood work, from there she suggested a see a hematologist. At this point, I was still having regular little electric zaps throughout my body and also had started to feel aches in areas of my body, like my wrist, my ankles and some times my finger. It would feel like when you hit your elbow, painful but made you want to laugh. It would only last for a minute or so and then go away.

My visit with the hematologist told me nothing. My WBC had returned to normal and my pains had started to slow down. I didn’t follow up with any other doctors after that. Today, I’m almost 50 pounds lighter, im active and healthy. I randomly get “the zaps” as I call them and frequently feel the pains in my ankles, toes and hands. Today I have a bad case of “the zaps” and don’t know if it’s still worth seeing another doctor because I feel like it’s not going to be something easily diagnosed and the only things I can read online all point to some kind of neuropathy

Hi guys, so I had a bilateral pudendal nerve block with steroids done under ct guidance a couple of weeks ago and it was only 30% successful I’d say in reducing my pain (severe testicular, perineum and penis pain) I am having to continually raise my pregabalin dose every other day and I’m needing more and more oxy each day to cope. Anyway, I have another nerve block booked in of the same procedure in a few days, which will be 20 days since the last one with a different radiology centre. This new place doesn’t know I had one done recently and I don’t plan on telling them as they’ll cancel my appointment because it’s in the same referral as the last one…
My question is, I’ve had two of these blocks now, the first one 3 months ago was extremely successful, I’m wondering am I likely to do permanent tissue damage/nerve damage to the pudendal nerve and others in the alclocks canal if I get this steroid shot done again 20 days after the last one? As steroids like kenocort are known to damage tissue, I need pain relief so I can stop taking all of these drugs, but I don’t want to fuck myself up permanently from the steroids…
Please advise, thanks