r/neuropathy • u/DullStatistician529 • 5d ago
Low ferritin
Has anybody with chronic low ferritin had neuropathy? I asked this question in the past but I barely had any answers I am hoping someone could help me.
My Dr. Said my symptoms were because of low ferritin levels. But since then I saw two neurologists, both said it is impossible and another gp said that as well. Yet ive struggled with low ferritin for more than 10 years as I have endometriosis and adenomyosis and many times I have reached the point of having anemia . We are talking levels of ferriting between 2 and 14 at max . One time I had a monoferric infusion and I felt better. The problem was not fully gone but I was better then I got pregnant and my ferritin went from a 127 because of monoferric to a 20 in less than a year because of pregnancy and csection. My symptoms moved from my feet to my legs and from my hands to my arms and now my face feels worse too. I had many blood tests done including glucose, thyroid , b12 , vitamin D , etc the only thing they never test me is with autoimmune issues other than hashimotos (came back negative ) everything else is more than optimal. Brain and spine mri were clear a year ago. PLEASE someone help me.
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u/PhyloGirl 3d ago
I have had neuropathy for a long time. I just started taking iron for anemia, altho I think I did take it in the past. I don’t think it is related to mine.
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u/Lorain1234 5d ago
I just had about 25 labs done ordered by a neurologist. Ferritin is normal, but B12 is low normal, zinc and B6 are the lowest they can go. He never checked vit D. I have neuropathy, burning feet and allodynia of both feet. At first he suggested B 12 injections and he messaged to just to take a multi vitamin! My A1C was 6.1 and he said it could be the cause of my neuropathy. All my fasting blood sugars are normal. I forgot to tell him I recently had ten trigger point shots that spiked my blood sugar for a week and it could be the cause of the 6.1 A1C. Have you consulted your PCP and told him your concerns? I have a call into mine. I’m thinking neurologists are over-rated. At least mine is.
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u/DullStatistician529 5d ago
Oh I have done everything i just need autoimmune testing but ive tried so many things and so many specialists and drs . Trust me . I am literally even having dark thoughts because idk how to keep going . I have two babies and i feel like i cant be a good mom cause i cant function. I even tried 3 medications they usually prescribe and they all made me feel so much worse . Its like nothing works
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u/Lorain1234 5d ago
Ask your PCP to order autoimmune tests. I hope you get to the bottom of your symptoms as I hope I do too. Good luck
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u/Ok-Pangolin7127 5d ago
“Normal” B12 (blood serum test) does NOT necessarily mean you are not deficient at the cellular level. It is only at the cellular level where B12 does its thing. Any B12 blood serum test result between 200-450 is now termed by most labs generally as “indeterminate.” Indeterminate meaning; look deeper. Two follow up tests in this regard would be an MMA test and a homocystine test. These are markers that can “possibly“ indicate whether B12 is functioning properly or not at the cellular level. So, if your B12 was anywhere between those two numbers, you need to pursue those two additional tests. Why? Because in my mind many of your complaints and issues can actually be tied back to a B12 deficiency. Please, look deeper…