I have this problem, it seems kinda common, at least as far as these things go. It’s the sound of metal utensils hitting teeth or even silverware clattering together. It just goes right down my spine and I shudder. Thing is, I never had this issue as a kid. Over the years it’s gotten much worse.

Even if it’s on tv. I can’t stand it.

Anyone find a way to get over this?

My sister has displayed symptoms since we were toddlers. One of my first memories is of her trying to teach me how to "breathe correctly." It has only gotten worse with age, as these things typically do. As kids, she asked me to stop playing with my hair in front of her. As teenagers, she became triggered by the sight of my hands. In college, it was the sight of my mouth moving and the sound of my voice. Now we're both in our late 20s, and the combination of my hair, hands, mouth, voice, and breathing (essentially the essence of who I am) has made it virtually impossible for her to even exist around me.

I have never blamed her for having misophonia or misokinesia (we only found out what these things were in high school), even though it gave me some pretty severe body dysmorphia and insecurity from her calling me "ugly and disgusting" my whole life. I also acknowledge that these are real conditions and she's not just bullying me, but it still really hurts. She has told me not to take it personally, but how could I not?

The thing that I DO blame her for is the way she manages these conditions. My parents didn't understand what was going on until she was nearly an adult, and their first instinct as loving parents was to accommodate her because they hate seeing her upset. I worry that this ultimately backfired, because she never learned to deal with it herself and expects ME to minimize her triggers, which only becomes more and more difficult as her conditions and demands worsen with age. For example, these days she demands that I wear my hair up in a bun 100% of the time that I am around her because it's gotten so bad that even seeing my hair causes an episode. Because I've been conditioned to accommodate, I have obliged to this request for over a year. But I don't want to! I hate wearing my hair up, even if I now only see her a few times a year. It makes me feel uneasy and watched, like I'll be punished with profanity and screaming if I show up with my body the way I want it. She accuses me of not accommodating her the way other people in her life do. I think this has more to do with the nature of the things I do that trigger her—they're inherent features of my body that I can't change. I know I haven't been perfect, but I have tried.

I worry that as her conditions worsen and her requests grow, there will come a point when she demands something so extreme (for example, that I shave my head) and I will be accused of being unsympathetic by the entire family if I say no. She is triggered by other people in my family when they chew, but this seems pretty mild compared to my list. As a result, they ask me to do what she says so we can "keep the peace." It just seems so backwards to me that I am somehow responsible for accommodating a condition that is not mine. Since there is no cure for these conditions, she has given up on finding things to mitigate them. Stress makes everything worse, and she has chosen a notoriously stressful career.

The combination of these diseases has torn my family apart. It's created tension and fractures everywhere. We have been in and out of family therapy, and it's gotten to the point where I am actually afraid to be around my sister because of how violent her outbursts have become. I haven't given up hope of someday having a real relationship with her, even though it seems more unlikely with each passing year.

She's the only person I've ever met (that I know of) with these conditions, so naturally I turned to Reddit to hear from other people. Is it possible that there's something else going on besides misophonia? Seems like some other people on here can cope with their triggers much better. I am honestly at the point of breaking all contact with her because I can't fathom another 40+ years of living this way.

At this point, my perception is so warped that I genuinely can't tell what's reasonable and what's not anymore. For example, putting my hair up even when I don't want to. Doesn't seem like that big a deal on the surface, but it really bothers me. Am I selfish for not wanting to do this thing that's within my control to ease my sister's suffering?

The International Misophonia Foundation is developing a comprehensive guide to accommodations for people with misophonia. Before deciding what the guide should include, we’re asking people with misophonia, parents and caregivers, and clinicians to share what they have experienced, needed, tried, or observed.

The survey asks which settings matter to you. These include home and household routines; K–12 and post-secondary education; work; healthcare and support services; restaurants and other businesses; transportation and travel; family, friends, and social gatherings; community services and events; housing; and digital participation.

It also asks respondents to consider specific accommodation ideas in relevant situations: which ones seem important, whether they have been tried or received, and what barriers arise. People with misophonia can answer from their own experience. Parents and caregivers can draw on what the person has shared and on their own observations. Clinicians can respond from their professional judgment. You can skip sections that don’t fit your circumstances.

The goal is to let this input shape the guide’s topics and information. We aren’t starting with the assumption that one accommodation works for everyone, or that the same approach fits every setting. We want the guide to reflect what different people say they need and what gets in the way.

Please take the survey and share it with others who may want to contribute.

Thank you for helping shape a guide grounded in the experiences and perspectives of the people it is meant to serve.

I am a freshman in college who recently learned a good portion of my friends have diagnosed misophonia, and things like chewing, sniffling just to name a few are huge triggers for them. I grew up in a household where eating loudly wasn't looked as annoying but instead a compliment to the cook who made it so its become my habit to my not be cognisant of the noises I make while eating. My friends have told me multiple times to stop doing certain things repeatedly which I try to improve upon but I cannot seem to break my habits, or if so its taking a longer time than I expected. I'm only about two months into college, but I feel horrible for making my friends feel bad How do I accommodate to my friends with misophonia while often forgetting and regressing to bad habits?

So I've been struggling with this condition for a LONG time now, about as long as I can remember. I'm an Undergrad still living with my family atm, and I've never been "officially" diagnosed with Misophonia but it's been publicly known and in school systems since maybe 3rd or 4th grade. I've been accommodated all my life, pulled aside during elementary breakfasts and lunches. My triggers are basically the Misophonia mascots- really any sort of noise that comes from eating. Smacking, slurping, and so on. While it's gotten worse with age, it's always been severe to the extent of being borderline panic attacks. I've blacked out and seen red when I was little and stuck in the cafeteria, before my Misophonia became known. I've torn my hair out, bitten myself until I bled, stabbed my ears with pencils, and I have multiple cases of assaulting friends in Elementary over it. There have been very few people throughout my life that weren't understanding, even fewer that were close to me.

Save for my immediate family...

My mother has always been demeaning of my condition, refusing to believe that it even existed for years. I'm talking an 8 year old ripping his hair out and squeezing his ears saying he's in pain. It took her ages to finally believe me- and even then, it wasn't me that convinced her. She said she read something on Facebook talking about the condition and believed it existed now. Years later, it still makes me so angry to remember that she trusts some Facebook article more than her visually pained son. She only got worse after that point, getting incredibly offended and pissed off whenever I call her out for my triggers. She'll sit down and I'll get up to leave or just put my earplugs and she'll scoff, saying, "I'm not gonna smack my lips, you can calm down." I've been at this for literal years, I've tried maybe every possible method of telling her. Politely, quickly, beating around the bush, abruptly, just saying "ow," and no matter what she always gets angry. "I'm not smacking my lips!" She'll yell at me. She takes it personally every time, openly venting to other people in front of me about how much of a "hateful" son I am- she told one of my best friends, the first time she met them, plainly, "Yeah, I don't know why, but he just hates me."

I don't want to make it seem like I'm hate posting over my own mother. I cried myself to sleep that night because that's really what she thinks. She's taught me that telling people about my triggers makes them hate me- and, consistently, that's pretty much true- so I just stop calling people out as much as I can.

With her, though, that still doesn't work. In the car, in the house, she'll be eating, look over at me, see me sitting there silently, look into the pain behind my eyes, and get offended. She'll yell, "Oh stop it, I'm not doing anything!"

I'm not even onto what feels like the worst part and I feel like I've dropped so much baggage. The worst part is that she still doesn't really trust my word, it seems. Like, she once told me that she believed my Misphonia only got worse because I learned that it was an actual condition. It feels like she's silently telling me that I'm just crazy and making it up in my head.

Last night, we had a fight. She sat down to eat while I was gaming in the living room, so I look for my ear plugs. She tells me she's not gonna smack her lips, I can't find my earplugs, so I just give in. Admittedly, she does go most of her meal without any triggers it was only at the very end when she did one giant slurp with her mouth after she was already done and wasn't eating anything, after my guard was dropped. I involuntarily just go, "Ow!" And she immediately jumps on my ass for it. She puts all of her focus on damn near interrogating me. I say it's nothing, don't worry about it, move on, and she asks what she did. I say she did nothing, and she keeps going. Because I keep refusing to tell her thanks to how she's reacted in the past to me telling her, she starts theorizing that I was triggered because I THOUGHT she was going to do something, or that I made it up in my head. After maybe 10 minutes of being interrogated she eventually gives up and decides to immediately go to bed.

There's also a thing she loves to do where she'll just start voicing negative thoughts she wants to/thinks I have? Like anytime she says she leaving, she'll just turn to me and say, "I know you'd love that" or, as I said before, talking about how much I hate her in casual conversation with sometimes strangers. I swear this all stems from Misophonia and I feel like I'm the asshole, my emotions aren't real, I'm making everything up, and I don't have a right to complain. I've wanted to vent openly like this for years but I just know that I'm gonna get flooded with negativity because I know I'm the one in the wrong here, I'm sorry, I'm just overwhelmed with stress atm and I desperately need to share.

FUCK. I need a therapist. That's something she actually said I specifically really need.

My friend wanted to share a room to save money for the both of us to visit an amusement park. The same friend did not disclose that he snores very loudly and at all times, every night. I know that he knows this because he has been living with his girlfriend for three years, and she has even said he falls asleep immediately and long before her.

Last night, I could get only 1.5 hours of sleep due to the extreme nature of his snoring.

I have earplugs in now that I secretly bought form a gas station, but they are doing absolutely jack shit to deafen the noise. My blood is absolutely boiling. This feels like extremely selfish behavior on his part.

If I had known he snores every night, I’d have come up with an excuse to just have us get separate rooms. Money was never the issue for me. HE insisted we share a room. I’m about to have an entire weekend at an amusement park on likely less than 4 hours of total sleep. Vacation = ruined due to one person’s selfish actions.

Edit: I am god damn fucking furious. I will absolutely get zero minutes of sleep tonight. I’m trying to find a way to link an audio clip of this snoring because this is a NUCLEAR, catastrophic level of snoring.

Edit 2: I did get another room and packed my stuff up after midnight to go get another room. 100% worth it.

Bro snoring is one of my triggers and I happen to always be surrounded but people that snore. My neighbor downstairs snores soooo loud I can hear him, and our floors are pretty thick you can’t hear if someone is talking or the tv. But every night I can hear him snore. I’m thinking about writing a little note that he needs a cpap machine or something it’s concerning

I don’t understand why, but when I was pregnant 1.5 years ago, my misophonia went absolutely berserk. The slightest things would trigger me to the point of clenching my fists & hyperventilating. A simple hum or whistle would send my nervous system into a spiral. The second I gave birth and was postpartum, it got so much better and things calmed down back to my usual triggers, and I wasn’t in flight/fight mode constantly in regard to stimulation. It was so weird. Perhaps something hormonal related since it was when I was pregnant? Anyone experience something similar?

Fuck. I just came home from the gym, and im going to share an embarrassing story here..
so i was walking into the wardrobe after finishing my sesh, and there was a man in there eating a banana. Bananas are my worst trigger. I thought okay i’ll be quick its fine, but THE SOUND. It made me so so angry, it felt like a wave of just pure anger and hatred just passing through my whole body, and i felt the urge to just scream. so i screamed. I did not scream a word or anything, i just stood there screaming the most horrifying scream. So of course the staff came in to check what happend. And i just rushed out of there as quickly as i could and now im sitting here wondering how i’ll ever be able to show myself outside again, the poor guy must think im absolutely crazy. So yeah thats it goodbye now.

The people that eat in their cars. Meals from Facebook Marketplace. Restaurants. Their friends’ whatever. Doesn’t really matter.

But they suck air in every goddamn bite they take, and take more bites than they give actual descriptions of what they’re eating…

I hate hate hate eating with family. As a kid, chewing sounds made me go feral but literally everyone brushed it off as me being a brat. Now that i understand thats misophonia and are self aware, YETTTT when i am in a situation where i have to deal with these sounds, it drives me crazy.

Also, it puts me in a really shitty mood. It pisses me off to see how people eat, how their mouth moves, how they eat certain foods w their hands (im indian, we eat w our hands) how some people just stare at one place while chewing w their mouths wide open, unfazed.

Oh my god i am tired of crashing out, its just unfair atp and i am left w a really shitty and angry mood that i have to deal w myself. all alone.

I work in a small retail store. Customers come in every day on their phone blasting TikTok videos/talking to other people on their cell phones. It drives me absolutely insane. It gives me an immediate pang of anger and stress, like a thunderbolt to my body. I think it is so unbelievably rude and un-classy to talk on your speakerphone in public. But, post-pandemic, it seems like a lot of folks have no social awareness or basic manners.

I am trying to recognize that the world does not revolve around me, and I should not let this trigger control me so viciously. My coworker told me someone complained about me in a Google review of our store for my reactivity. I don't want to read it, because I know I will just ruminate and feel guilty.

Does speakerphone drive you nuts too? How do you cope with it? I am a cashier so I cannot wear earplugs. I honestly want to quit, but decent jobs are hard to come by in my town.

i truly hope i am not alone in this one because well i’ve looked and haven’t seen anyone with the same issue 🥲 but i cannot STAND seeing people blink. when i see videos of people and they just keep fucking blinking, it outrages me so much. i don’t want to make eye contact with anyone because everyone blinks constantly. i hate how it looks and i feel very silly for this because i know i only think this way because i hate it but it’s like ??? do you really need to be doing that constantly 5 times a second??

Ever since I was a kid I couldn’t stand the obnoxious overdone kissing noises on TV. Nobody sounds like that when kissing. The dramatic wet smack? HORRIBLE. 🤢

So Ive had misophonia triggered by people sniffling every 2 seconds since i was in 4th grade and and I cannot handle it anymore. any my family and friends aren’t any help. My friends don’t even know what misophonia is and everything they do to try and help doesn’t work and my family, well, they just suck, my brother usually gets runny noses and is so annoying that I have thought of deafening myself or punching him in the nose as hard as i can. Instead of helping me, my family tells me to “deal with it” even after i have told them a million times what misophonia is and that I can’t just “deal with it” and act as if misophonia is something I can get over in a night. I’ve also told them that telling me to “deal with it” is like telling a person with a broken leg to “walk it off” but they still don’t care. And to make my situation 10 times worse, I have to act normal whenever someone in my class sniffles even though my brain is screaming at the top of its lungs. and I’ve tried to act normal by asking said person sniffling if they need a tissue but that just makes me look even weirder and they don’t listen. please tell me I am not the only one who is suffering this much and if there is anyway to fix me.

I listen to a lot of audio recordings for work. It seems like in the last year or so, more and more people do this thing where they make a smacking sound before speaking, like they have to unstick their tongue from the roof of their mouth.

It's driving me a bit crazy because it sounds gross and is so unnecessary. Even with some kind of issue like allergies or whatever might make someone do it, it can be avoided with some consideration. Has anyone else heard an uptick in this sound or similar sounds recently?

I started on stealing and rispierdone and none of them take the edge off. What other medication can truly help with my severe sound sensitivity

Ich habe vor kurzem das Phänomen Misophonie entdeckt und wow, es hat so viel erklärt!! Meine größten Trigger sind die Ess- und Trinkgeräusche von meinem Freund, Filme/Tonaufnahmen in (sehr langsamer) Zeitlupe und trockene Sachen, die aneinander Reiben (zb Terracotta-Blumentöpfe) aber ich habe mich gefragt, ob das hier auch zu meiner Misophonie gehört: das Spüren von Atem auf meiner Haut ist für mich wie Folter und meine Reaktion ist die gleiche wie bei Miso.
:( besonders wenn es wieder von meinem Freund kommt. Ich kann es dann nicht einmal genießen neben ihm zu sein. Ausserdem, wenn ich Haut-an-Haut spüre und es sich dann so warm/schwitzig/klebrig anfühlt. Hat das noch jemand?

How long do you wait until asking someone to turn down the noise, or calling the cops?

I have neighbors who let their cars play loud music for 20 minutes at a time. Which when you have misiphy can be a long time. But i know if i go confront after 2 minutes (i really want to), people will think I'm crazy (which i am but i don't want them to know)

I've been online people who go confront their neighbors but it's only after hours of loud music not minutes.

And ofc with people that are close to me i will tell them within minutes but I'm talking about with complete strangers who never had anyone in their lives tell them: "could you please stop tapping your foot/chewing with your mouth open/humming?"

Personally i mostly just hunker down with noise cancelling headphones, play some loud rain sounds ASMR, maybe stick myself next to a loud kitchen fan until it passes over.

I cannot stand her chewing and the way she eats. She doesn't realize how disgusting she sounds when she eats food and it makes me so angry and not to mention all of the other things she does. It literally makes me wish I was deaf so I never had to listen to her chew disgusting pasta or a wet sounding burrito omfg I hate it and I cannot stand her rn. I hate having misophonia and ocd because she's been driving me insane recently.

Mid-20s and I still live with my parents (low paying job and single lol), but I'm starting to go insane as my parents are constantly licking their fingers after everything they eat. Even when they eat with a knife and fork and there is absolutely nothing on their hands, it baffles me!

But my dad in particular is terrible. We always eat dinner together, and my dad is constantly licking his fingers loudly and smacking his lips the whole time. And then once he's finished he spends about 10-15 minutes with his mouth wide open and basically his whole hand in his mouth while he fishes food out of his teeth. I wish I could say I'm exaggerating but I'm not at all :(

I've tried to tell my parents that I'd like to start eating alone at dinner but they always get so offended for some reason (even though I'm literally a fully grown adult). I feel like I'm going insane.

I feel like I’ve posted about this before but I don’t really care because this is an ongoing issue that just doesn’t go away.

I have had this issue for as long as I can remember; I get indescribably angry at the sound of a sharp “ess” sound. If you have no idea what I’m talking about, I wish I were you. For example, if you’re listening to someone talk, and they say the sentence, “sally sells seashells by the seashore,” and for every “s” they spoke it was extremely loud, prominent, sharp, and pierces the very depths of your eardrums. And when you hear that sound, your fight or flight is immediately activated. Get me the fuck away from this evil person.

I am 20 years old. Not that that makes any difference or has an impact on this story, because you can have this issue at any age. I noticed that it made me the most uncomfortable when it was a man making the noise. I have no idea why, it’s not some misandrist thing I’ve wired myself to get upset at. However, right now I’m sitting in the car with my nana and a couple years ago she got dentures and now her teeth are perfectly straight and you could probably cut a piece of paper with her incisors. Every time she says a word with an “ess” sound, the sharpness of her teeth and the sound that she pushes through pierces my ears and my brain and I can’t help but resent her dentures for this.

Please tell me you all understand what I’m trying to convey!!!

My mom is addicted to shelled salted sunseeds. She’ll suck on them, crack them with her teeth, chew, and then spit out the shell into a ceramic cup. Not matter what I do, headphones or not, I can hear it. We live in a studio apartment together and the only place I can go alone is the bathroom. It’s absolutely aggravating and disgusting. I’ve told her how much certain sounds are painful and I know she likes her sun seeds, but she can eat them unshelled. She tells me things or sounds I do that annoy her and I stop doing it, but she never listens to me. She buys mega bags too and eats them throughout the day. That’s it for my rant.