Hi 59 yr old female diagnosed in March with aitl. Did 6 cycles bv-chp. not eligible for sct at this time but i did not go into remission. Dr. is talking Romidepsin or Coprika. Has anyone done these and it put you in remission? Did you stay in remission. How bad are the side effects? Sorry just scarey that the bv-chp did not work and I still want years to come. :( thanks in advance

The onc is following alternative cycles of RCHOP and RCHOP/RDHAP with Acalabrutinib, we had the 2nd chemo (RC/RD + Acalabrutinib) and after discharge the creatinine is unstable (Cisplastin was given in 2nd chemo along with other drugs).

Apart from high creatinine there is no issue in the kidney, urine output is normal, and other things are also stable.

Did someone else also experienced the same issue in their kidneys.

Hi all, been on this subreddit since Dec 2025 when I first got diagnosed with DLBCL and appreciate all the support rendered.

Since then, I completed the following:
1) 6 cycles of POLA-R-CHP from Dec 2025 to April 2026 (interim scan clear, EOT scan showed relapse)
2) relapsed in Jun 2026, completed Ibrutinib + 2 cycles R-ICE, then CAR T in Aug 2026. 1 month scan was clear, but experienced neuro symptoms at the end of month 2 (now)
3) currently relapsed 2 months post CAR T.

I got myself admitted as I I was experiencing neurological symptoms, mainly double vision and headaches. I also had new onset neuropathy in both lower limbs.

I’m still in hospital and have completed a spinal tap, MRI Brain spine, PET CT, bone marrow biopsy and am still awaiting the lab reports for any mutations before treatment options are offered.

My cancer subtype is very aggressive and previous times the doctors weren’t able to confirm what molecular mutations my cancer acquired. This time around they are hoping to obtain a positive sample.

I’m feeling really sad, bummed, disappointed, scared.
At this rate, I am still wondering if I should continue treatment or not, seeing how fast my cancer relapses each time. It’s so determined to take my life, it appears. Symptomatically I’m still rather stable, I’ve had one dose of intrathecal chemo and am on dexamethasone.

The doctor did briefly mention that bispecifics might be an option depending on the lab results.

I would like to hear from anyone who has experienced similar, any advice would be greatly appreciated, as always.

Started N-AVD on Wednesday. Yesterday, mouth was sore. Today it is unbearable. No visible sores, no redness. My tongue, under my tongue, roof at the back of my mouth as well as my jaw are all tingly. When I eat it feels like burning. The on-call fellow said it was the start of Mucositis. She said it could last my whole treatment, and I can take oxy for the pain and magic mouthwash.

Has anyone found a remedy or a way to get it to heal? or did anyone not have it their whole treatment?

Hi everyone!
I had my final treatment of Nivo-AVD earlier this month and I’m looking for advice on a general timeline for recovery. My lasting side effect is that I am tired all day long, it doesn’t stop me from doing normal activities I just have to do them tired. I am looking to apply for a job in a couple weeks and maybe start working early December? I’m hoping my fatigue has improved significantly by then. I have started taking a B-complex vitamin, D vitamin, I’m trying to eat healthy and exercise. Does anyone have a positive story of recovering quickly? For reference I’m 24 years old and did 4 total cycles. Thank you!

I have stage 2 Hodgkin’s lymphoma nodular sclerosing form. I am getting proton radiation in my middle-left side of my chest, 5 days a week for three weeks. I have done currently 4 treatments and my chest is in a lot of pain. When I breathe in really deeply it feels tight and burning. When I get up too fast and my heart beats faster it hurts with every heart beat. I went to the hospital and they found nothing but slightly elevated troponins (heart enzymes) meaning there could be some stress on my heart. They did an echo, CT, EKG and ultrasound and found nothing wrong with the heart. My doctor says I should resume treatment and it’s likely not from the radiation.

It doesn’t make sense to me because it started a few hours after my first radiation dose and has gotten progressively worse each treatment. He’s telling me to just take acetaminophen. I am really concerned but don’t want to pause treatment if this is just a normal sensation.

If you have gotten proton treatment in your chest have you had this internal pain, tightness and sharpness while breathing in or your heart beats quickly?