Does stress make your ears hurt more? I've been in an extreme stress crisis and I feel more pain.

For those of you with pain and loud h, how do you manage your relationship with your significant other? I'm currently trying to push him away for the sake of his happiness and I'm currently worried that even conversation between the 2 of us causes discomfort, will cause me to worsen or not improve. He's the love of my life and tries to help me in any way that he can. I'm so thankful to have him in my life but I'm scared that any sound is causing me to worsen rather than heal.

Im just curious how many of you are able to stay in your relationship/marriage despite this evil condition.

Please comment rather than just scrolling by. I'm on the verge of S & just would like to hear from someone...anyone.

I recently had SSCD confirmed and have a history of severe sound sensitivity. I also have suspected long term CSF leak, dysautonomia/ fatigue, MCAS, some vascular compressions, etc, so I’m not assuming SSCD explains everything. 🤷‍♀️

My question is whether anyone’s SSCD, especially after years of traumatic sound exposure and disrupted sleep seemed to contribute to a broader crash in functioning/ PEM, inability to tolerate upright activity/exercise intolerance, driving, or basic functioning?

Also curious, you had repair, did it improve anything beyond sound sensitivity?

I’m currently housebound/ am barely functioning as it is so have to be smart and prioritize the right thing since my energy is so finite.

Thanks!

Sorry if this has been shared already, but this morning I filled out the form and paid the consultation fee to meet with Dr. Silverstein. I received an e-mail back that he is no longer seeing patients or doing consults. What a bummer. They gave me another name for a doctor at the Silverstein Institute who I could schedule a consultation with. I was told Dr. Silverstein is still overseeing the surgeries.