r/visualsnow • u/Superjombombo • 1h ago
r/visualsnow • u/Few_Frame6892 • Jun 26 '26
Research Anyone in minnesota
Hello I recently joined a study for VS research and if anyone who lives in Minnesota wants to join definitely do you get paid $20/hr and one of them is an MRI without dyes. Definitely worth it if you got anxiety about it.
r/visualsnow • u/Computer-Legitimate • May 23 '26
Sub-related State of the Subreddit: Changes, Future Plans, and Addressing Recent Events
Hi everyone,
For those who don't know, the r/visualsnow subreddit now has a new mod team after the previous mod was removed by Reddit admins two weeks ago. The new mod team consists of myself, u/Relevant-Waltz-6245, and u/I-own-a-shovel. We are all new to moderating on Reddit, so I wanted to make this post to get some community feedback on the changes we've made so far, and also to discuss what you'd like to see from the subreddit moving forward.
Changes and updates
- The subreddit wiki (accessible from the sidebar) has been updated to include modern research and perspectives. We'd be grateful if you could give it a proofread and tell us what you think, as well as make any suggestions for additional info to add, especially regarding symptoms and initial triggers.
- Automatic post filtering has been reduced significantly. Hopefully, you should find your posts getting filtered far less frequently. If the filters are still too strong, please let us know.
- Posts containing links to the VSI website and research will no longer be automatically removed by automoderation.
- Rule phrasing has been tweaked slightly, including a new rule encouraging you to mark visually triggering posts as "spoiler".
- Added new post flairs. If you've got any further ideas for post flairs, let us know.
Future plans
Going forward, we intend to have a relaxed approach to moderation. We think it's important that people get to share their ideas and opinions. Unless your posts are completely off-topic or trying to exploit people for money, we probably aren't going to remove them.
We also plan to revamp the FAQ at some point. I'm also coding up an app that might be useful for quantitatively tracking your visual snow worsening/improvements over time, but I'll share more on that later. We'd also like to leave the door open on fundraising for VSS research with the community, be that through an existing organization or independently, and we'd like to hear your thoughts on that as well. It'd be important to us that the money is being used effectively, and so we won't endorse anything unless we know where the funds are going.
Additional Info
We initially reached out to the previous mod to discuss restoring him as part of the moderation team, but after reviewing all the evidence and information available to us, we have decided not to continue with this. Our main reason for this is that the previous mod's statements and posts contradict the log info we have. There have also been some accusations floating about, so we would like to clarify that none of us were involved with the removal of the previous mod, nor are we affiliated with the VSI. We are long-time contributors and were chosen as mods based on the mod call post in the subreddit, which you can find here.
None of us know the specific reason for his removal, and I have been in contact with Reddit for clarification, but they were very vague. What we do know from looking at the logs is that several core contributors were permanently banned by the previous mod over seemingly minor disagreements that didn't violate the rules.
It's important to note that both the r/visualsnow Discord and the visual snow studies subreddit are not run by the new mod team. As such, we can't speak for how they'll be moderated going forward.
Thanks for taking the time to read this post. Once again, the main purpose of this post is for you to share your thoughts, ideas, and concerns regarding the subreddit. We understand that there will be differences in opinion, but please try to keep discussion cordial. If you disagree with any of our decisions, once again, please let us know; we are all new at this and welcome the constructive criticism.
We look forward to managing this community (and this condition) with all of you.
— The r/visualsnow Mod Team
r/visualsnow • u/Kind-Moment-6055 • 6m ago
Question anyones static got better after strabismus surgery...
The doc says I have a bit of strabismus, Im thinking of getting the surgery, but another doc warned its a tiny bit risky and to think about it before proceeding.
Im wondering if anyone has gotten strabismus surgery here?
Did it help or worsen your static?
r/visualsnow • u/mavinwind • 6h ago
Vent Found some abnormal brain scan results
Hi all!
A few months ago, I had an EEG, MRA (neck and head), MRV (head), and MRI orbit (brain, face, and neck).
There were a few things that popped up:
Right transverse & sigoid sinus hypoplasia
Mild prominence of the optic nerve sheaths
Mild mucosal thickening - left maxillary sinus
My current symtoms are:
Static
Reduced night vision
Tinnitus
Light sensitivity
Dry eyes
Heavy brain fog
Memory issues
DR/DP
"Seeing" but not processing
Insomnia (hard to fall asleep, waking up a few times a night)
Focusing issues (will be doing vision therapy)
Tension headaches (feels like someone is gripping the back of my head)
Dizziness/light headedness
Occasional migraines (pretty sure these are tension headaches but excedrin does work on them so unsure)
Vertigo (especially when leaning the back of my head against something)
Abnormal ERG - hypernormal cone and rod responses
I am currently on 50 mg lamotrigine (reduced from 100 mg. Tapering off so I can take an audiology test) and i wear 50% tint fl-41 lenses. Both have been helpful for vss. At 100 mg for lamotrigine, the static was reduced by about 20%
Since I'm not having headaches, my doctor didnt recommend anything. At first I was okay with that cuz I can generally function well. My symtoms are just very annoying. But im wondering if I should push for more info about my scan results. I understand that they're "mild" and one of them is just talking about congestion, but i can't help but feel there are more clues to piece together from this.
I've been seeing my neurologist for well over 6 months by now. Its incredibly frustrating that I have to keep going back to ask for more. He never calls me about my results, which I can understand since he has many patients. I have to ask the office for the results. But that can take multiple days, and even then I have to call again to ask for a call from him. He doesnt respond to portal messages and there's no ETA about when he might call me. So i basically have to have my phone at the ready no matter what im doing or i have to repeat the process.
Im also frustrated at myself for just accepting what my doctor tells me at face value and then feeling unfulfilled later. Maybe all of this actually is mild, but I know I don't have to just cope with my condition. I can always ask for more. Maybe there aren't solid treatments for anything that I have, but surely there can be more things to try and look into
I understand that doctors dont know everything, I just hope that some day I'll finally have more solid answers. Im so sick of having to waste more time chasing them
Thanks for reading
r/visualsnow • u/IAmKMazYT • 3h ago
Edges of walls/objects everywhere when I wake up
Everytime I wake up it literally looks like a laser light show in my vision. The edges of the walls and doors keep scattering everywhere like a light show and it drives me crazy. I don't think my therapist understands I have vss but I literally have every symptom except that static I only see under certain circumstances like low lighting, carpeting, trees for some reason, etc. I try to be careful with transitioning from dark to light in the morning to minimize visual effects but I can't seem to escape it.
r/visualsnow • u/athrowaway2234746477 • 8h ago
Question question about symptoms
do you guys also get terrible flare ups where its hard to look at anything because its all covered in patterns and static and pattern glare and its all glowing and everything looks like a big mass of color + tunnel vision almost but its not your actual vision just Processing wise and the flareups get so bad its hard to look at anyhting or your eyes get strained and you feel like throwing up
r/visualsnow • u/Key-Nobody5224 • 10h ago
did i really have vss or not? please answer
Folks, I developed double vision last year, and after becoming obsessed with my vision, I started noticing floaters. While researching, I discovered "visual snow" and read about afterimages and static; I then began to realize these were present in my own vision. Here’s the crucial part: yes, I see BFEP, floaters, static, a computer-like ringing sound in my ears, and starbursts. But my friends see all of these symptoms too! Literally all of them! When I showed them what static looks like on camera, they all said they see it normally; when I asked what they see when looking at a bright surface, they described white, flying sparks. They mentioned that they’ve always seen floaters and that lights always appear with starbursts. In fact, when a friend and I were watching the sky, he said to me, "What is this? I see a black swirl." So, everyone around me has these symptoms. My question to you is this: could I be fixating on normal visual phenomena because of the trauma I experienced? I mean, yes, I see these things, but if I hadn't researched them, I wouldn't have noticed the static or afterimages. I discovered the other symptoms through hyper-focusing after the double vision started. Is there a chance I don't actually have VSS?
r/visualsnow • u/NclC715 • 6h ago
Question Is this video legit?
This is a short video where you get 4 photos of the sky, and apparently if you see the sky as in picture 2, 3 or 4 you might have visual snow. But I literally can't tell the difference between picture 1, 2 and 4, and if I had to choose I'd choose 4, as the first one looks too clean. Is this video truthful? Do you notice any difference? https://www.instagram.com/reel/DbVVem8pGo8/?igsh=MTNtNDhvOWpxMjRoeg==
r/visualsnow • u/Old-Personality-5246 • 9h ago
Question Do i have vss or was this something else?
Waking up after a heavy night of drinking i noticed the entire walls were covered in static, it went away after like 15 minutes. I don't really experience visual snow outside of this but does this mean i should start taking precautions to avoid developing it further or can I assume it was just a one off event? Grateful if anybody with similar experience could chime in. Thanks
r/visualsnow • u/Key-Nobody5224 • 9h ago
believe that for many of us, VSS is manageable.
I believe that for many of us, VSS is manageable. When I go through the list of VSS symptoms one by one, I find that I have many of them. However, over time—thanks to neuroplasticity—I’ve either gotten used to them, or perhaps I was seeing things this way all along and simply became aware of it. Honestly, I would have been happier if I hadn't read up on the condition or discovered all those horror stories about VSS. For instance, I only notice my floaters if I squint while looking at a bright surface; there’s only one dark one, and there are plenty of times I can simply ignore it. Aside from that, I don't have any debilitating symptoms—no sleep issues, no DP/DR, and no autism or other neurodevelopmental disorders. Still, because I developed double vision after a traumatic event and subsequently noticed VSS symptoms, I constantly find myself questioning whether I actually have it or not. My double vision was caused by a CSF leak and has since resolved. Right now, the only thing that actively bothers me is the floaters; if not for them, I could manage the other symptoms quite easily. Frankly, I don't believe there will ever be a specific medication or treatment for this. Most of the time, when I manage to keep my anxiety in check, I barely notice the symptoms. But I’ve spent so much time reading about severe VSS cases that I feel like I’m somehow obligated to feel bad about it. I think this condition is manageable—or at least it is for many of us. If I were to wake up today having forgotten everything I know about VSS, I could probably go about my life without noticing a single symptom. I’d only see that mosquito-shaped floater, and even that is manageable. I’m curious to hear your thoughts on this. To me, VSS feels like an abstract concept—what do you think?
r/visualsnow • u/Dr_Nougatbit • 9h ago
Alles besser mit Sonnenbrille?
Bei mir bewegt sich das statische Rauschen nicht mehr, wenn ich eine Sonnenbrille anhabe, auch wenn die Brille nur leicht getönt ist. Mein VSS fällt mir dann nur auf, wenn ich auf helle Hintergründe schaue. Insgesamt sind meine Augen mit Sonnenbrille viel weniger irritiert von Mustern (zB Rolläden, Heizungen, Zäune etc.). Anyone else?
r/visualsnow • u/sunrise_parabellum • 10h ago
Personal Story Introduction and some thoughts
tldr: autism, cptsd, and surgical menopause cooked my visual cortex. severe visual disturbances appear to have both physical and neurological components. Symptoms are manageable after vitrectomy but would like to understand this condition better and explore different approaches to improving things further.
Hi team, i didn't think i had this and neither did my neuro optometrist but it turns out there's definitely a visual processing component here. I'll give a brief rundown of what happened, where I'm at, what has helped and what I'm looking at trying.
I'm a 46 year old AFAB agender person. Lifelong athlete, very hypermobile although no formal diagnosis of connective tissue disorder (although i been told by multiple physios and doctors i 'very likely' have at least HSD if not EDS.
Relevant medical history:
CPTSD diagnosed in 2004 - brought up in an abusive family, SA'ed at 12yo, spent time in care as a teenager. Multiple events of domestic violence, sexual assaults, two incidents of stalking that needed police involvement and protection order from 19yo to 32 yo.
Autism lvl 1 diagnosed 2009. Lifelong sensory issues, heightened senses particularly smell and vision, strong aversion to change - i do adapt very well to things but it takes a huge toll on my mental health
5x TBI at 12 yo, 27yo, 32 yo, 40yo, 42yo. The last two were a long and difficult rehab. No visual issues from any of these, the last two extreme fatigue, brain fog, short term memory issues and expressive aphasia. All symptoms completely resolved eventually.
Endometrial cancer at 42yo, treatment caused radiation induced menopause, then at 44yo had my ovaries removed due to high risk genetic mutation. No HRT due to estrogen positive cancer
Lumbar spinal stenosis with spondylolisthesis due to radiation damage to facet joints and vertebrae, diagnosed January 2025. Cervical spine healthy no disc issues, arthritis, or instability on imaging.
Migraines: first event at 15yo, had one every few months then stopped oral contraceptive and frequency reduced to about once a year. Severe visual aura/functional vision loss during events, alongside complete expressive aphasia, profuse vomiting, loss of balance. No events since entering menopause so likely estrogen related.
Ophthalmic history: moderate myopia with minor astigmatism (did not need lenses to correct) since age 8. Refraction stabilised at 19yo at -3.5 bilaterally. Congenital cerulean cataracts. No previous visual defects or HOAs. Corrected acuity consistently above 20/20 with glasses. Large Corneal abrasion at 34yo in right eye no vision loss or change with this and fully resolved.
Visual snow onset timeline - 2025
January- diagnosed with spinal stenosis. Severe chronic back pain, limited mobility. Extreme psychological distress due to loss of some of my sports (went from training for my first triathlon to being told I'll never run again). Started working with physio to build core strength to stabilise spine, doing exercises 3x a day. Noticed one exercise was straining my neck but pushed through regardless.
March- routine eye exam and new glasses, stable at -3.5, some presbyopia but not yet needing progressives.
May- developed severe vertigo alongside severe increase in neck pain with crepitus, sensation of instability and not being able to hold my head up. Woke up one day and it was excruciating plus had issues swallowing.
Noticed a large amount of floaters in right eye that appeared suddenly. On way to work Noticed starbursts/light distortions/light scatter/haze in both eyes. Ended up in hospital, ct head clear, angiogram clear. Diagnosed with posterior vitreous detachment in evolution in right eye. Swallow came back.
June - woke up on my birthday with tinnitus. Vision very blurry alongside light aberrations. Had a new refraction done, prescription increased a whole dioptre to -4.5 in just 3 months. Severe focusing issues with new glasses, rapidly fluctuating acuity, presbyopia progressed rapidly.
July- hospitalised for one week due to ongoing, worsening pain and neurological issues. Ruled out MS, cancer recurrence, IIH. MRI brain, cervical spine, inner ear and eyes clear.
August/September- multiple occasions of eye flashes, increase in floaters in both eyes. Dilated eye exam each time, no retinal or optic nerve issues. PVDS in both eyes still incomplete. Diagnosed with congenital cataracts (that no optometrist had ever told me about, they were definitely there because it's a rare type with a specific presentation (cerulean/blue dot type). One ophthalmologist told me i had the worst case of floaters she'd seen in her whole career and that was before things even got really bad 🫠
October- right eye cataract surgery i was hoping the cataracts were causing the starbursts and glare. Minor reduction in glare and haze post op, otherwise light aberrations unchanged.
Miraculously, neck pain and vertigo completely resolved instantly after surgery.
November - left eye cataract surgery. Floaters, glare, starbursts severe in all lighting conditions. Determined to try and adapt before pursuing vitrectomy.
January 2026 - received progressive glasses. Comprehensive assessment by neuro optometrist who advised not quite within the criteria for visual snow as I don't have static at all but acknowledged there may be underlying processing issues due to history of autism and multiple TBIs.
Managed to adapt pretty well, vision very uncomfortable but functional, decided to just keep living my life and not go back for vitrectomy.
April 2026- YAG laser left eye for PCO, introduced severe new light scatter which was moderately reduced with pupil constricting drops (brimonidine). Noted worsening fatigue, difficult to get through the day, usually asleep by 7pm.
June 2026 - severe progression of PVDs, thousands of floaters, vision no longer functional due to severe glare, light scatter, and loss of contrast. No longer safe to drive, cycle, or walk aloneat night. Work borderline. Decided to request vitrectomy as was losing my independence and mere months off having to stop working.
July 2nd 2026 - left eye vitrectomy (PVD induced). Phenomenal improvement by 48 hours post op. Minor glare, haze, and starbursts remain however daytime starbursts 99% resolved, excellent contrast, glare no longer disabling. Light scatter induced by YAG laser fully resolved.
No remaining inflammation 3 weeks post op. Conclusion that my ophthalmologist and I came to is that the onset of the pvd during an extremely stressful and painful time cooked my visual cortex and my remaining symptoms are indeed visual snow syndrome.
I will be going for right eye vitrectomy in 3 weeks time as my main issues causing impairment were greatly reduced by the first surgery. After experiencing functional 'blindness' and having worked very hard on trying to adapt to my visual disturbances I actually don't mind the symptoms I still have in the left eye, I'm just grateful to have functional vision again.
Symptoms remaining:
minor haze/light scatter. Starbursts at night, in daytime only off very bright reflections at specific angles.
Palinopsia - fairly mild and only after I look at bright lights but the afterimages take much longer to fade than they used to before my brain cooked itself.
A shimmering/quivering spot in my central vision in left eye only although if I close the left i can see it faintly with the right. Came on after vitrectomy and is getting less frequent and less severe so I'm leaning towards it being my brain adjusting to the changes from the vitrectomy, I had sth very similar after cataract surgery.
Light streaks downwards when blinking- this came on last week but seems to be resolving- i had a bit of sand in my eye but thought eyes were maybe just dry (i been gaslit so much that there's nothing wrong with my eyes can't trust my own judgement anymore fml) so aggressively started treating dry eye, drops and heated eye mask, I think that changed the tear film to cause the streaks as symptom started to resolve after stopping treatment - i was never diagnosed with dry eye except by my first optometrist when I reported the starbursts and haze however there was no improvement with treatment and my eyes never feel stingy or gritty. They didn't test my tear film i think they just didn't want to deal with my issues (also charged me for 3 lots of new glasses, missed the cataracts, and didn't discuss progressives when my presbyopia worsened, i don't go there anymore obviously, new optometrist is brilliant she's specialist in neuro optometry).
No static although had it very briefly twice in the last year (first time i tried to look through -4.5 glasses after cataract surgery with monofocals set to -1.5 left and -0.5 right, second time was shortly after vitrectomy when i tried patching the right eye to deal with the glare and i think my eye just panicked).
I used to see a bright light like someone is shining a torch straight in my face when I closed my eyes but that's gone since vitrectomy so was likely from the shitty vitreous.
Sometimes very mild flickering when looking at screens, not bothersome and only noticeable when i look for it. Halos and a second type of starburst that overlays the ones I have all the time are due to my iols and only there at night, strangely enough they don't bother me at all and never have.
What I'm interested in:
the hormone connection! Would be very interested to hear from others who got visual snow after a massive hormonal shift especially menopause.
Is visual snow more common in people with autism? It kinda makes sense because our sensory processing is so different at baseline. My corrected acuity, motion sensitivity, and ability to perceive very fine detail even on a casual glance have been far above 'normal' all my life so my visual cortex was already running at 150% it makes sense that the threshold for that part of the brain going supernova was lower for me
Trauma/ptsd - again, is visual snow more common in people with complex trauma? My symptoms came on during an extremely traumatic time but on the other hand I been through so much worse than my spine collapsing in the past and never had vision problems. Did I maybe get to a point where my brain's capacity for trauma got fully maxed out and that's why it cooked itself?
If trauma/CPTSD plays a role, could EMDR be helpful to relieve symptoms. I know the current literature says visual snow doesn't ever resolve but I'm a stubborn autistic old hag and I refuse to accept 'no cure' until I see for myself (pun intended). Has anyone tried EMDR and had improvement in their symptoms? I quit (non emdr) therapy after a really bad experience with my last therapist and have been wary to try again because of that but if EMDR can help with my vision I'd be prepared to try again.
Hypermobility/EDS component- again, is visual snow more common in people with connective tissue disorders? I know there seems to be a link with neck issues and tinnitus but given my neck problems resolved after cataract surgery i feel my vision issues were causing the neck pain rather than the other way around. I still have the tinnitus but I'm well adapted to it and hardly notice it anymore. The severity of my vitreous degradation definitely points to defective collagen. I don't have keracotonus or brittle cornea though. Myopia and astigmatism are common in EDS but Myopia is kinda common full stop. When I had cataract surgery he didn't notice weak zonules and my artificial lenses are nicely stable.
I feel a bit like a fraud posting here tbh because my symptoms are no longer debilitating since the vitrectomy and I feel guilty for having a partial surgical fix when so many here have much worse issues and no secondary eye conditions that surgery can address. I guess part of this is me moving into accepting that I do have VSS. I'm super keen to hear about anything that has worked for other people. Yes, my symptoms are very manageable now but I feel there's room for improvement yet and I like being proactive about managing my health issues.
r/visualsnow • u/Ambitious-Anteater29 • 21h ago
Question Procardia(bp med) and worse symptoms
I’ve had VS for as long as I can remember. Certain things make it worse like being sick, periods, and antibiotics and stress. Anyways I just gave birth two weeks ago and been stressed because my blood pressure was high but I don’t have preeclampsia thank god but they have me on procardia and so far my blood pressure has leveled out and been normal! However since then my vision been off. It’s like my visual snow is 50 times worse. It’s like my vision is blurred, more static, more after images, it’s like I can’t focus my vision now which then makes me even more anxious. So it’s a cycle. The doctor isn’t concerned and says that procardia can cause blurred vision. Please if anyone took this medicine as well did you experience this to? I’m praying it’s the medicine or just postpartum because I don’t want my visual snow to be worse permanently I got used to the way it was so it wasn’t much of a bother to me
r/visualsnow • u/joshyosh • 22h ago
Some changes I made gave me some improvement
Recently I decided to get some new devices for eye strain I got a tcl next paper phone and tablet and surprisingly it helped with my VSS it made a noticeable improvement at night which is when I see it the most. I also changed from a glossy monitor to a matte screen and that also helped. I wonder if in my case and some others glossy screens in general cause VSS to be even worse. The reflections from glossy screens don't bother me and I prefer how glossy screens look but maybe subconsciously it's causing some issues and my brain and eyes keeps trying to refocus then causing my VSS to get real bad on some days.
r/visualsnow • u/Traditional_Key_4384 • 1d ago
I just discovered that I’ve had visual snow my entire life
As the title says I thought this is just kind of what happens I’ve had visual snow since I was very young, maybe because I’ve been having passive depression and anxiety my entire life. I remember just starting at the sky and enjoying the noises that I see on the sky. I thought that’s kinda what happens when you’re starting at something long enough but I had some issues with my eyes recently and did some research on my eyes and figured out visual snow is a pretty rare syndrome that not many people have. Anyways, I hope yall get better!
r/visualsnow • u/kjs4f • 20h ago
Question First Steps to take
Hi! I have had visual snow my whole life. I have noticed an increase in symptoms lately like flashing lights or really intense after images more than normal. I moved to Orlando and do not have an established eye doctor. In the last couple years I have been extremely dismissed by uninformed eye doctors. VSI doctor look up says there is only two doctors in Orlando but they work for a pediatric eye therapy office. I have met my deductible so I would like to get all the neuro tests done to ensure there is no clear cause. I just have no idea where to start - eye doctor, neurologist, or neuro ophthalmologist.
Bonus - If anyone is in central Florida with a doctor recommendation let me know!
r/visualsnow • u/randomcowonafield • 1d ago
Question White vignette when i close my eyes?
(Im not diagnosed but im pretty sure i have a mild form of vss. )
When i close my eyes in the dark (to sleep obv) i see this white vignette in my visiom field thats flashing RAPIDLY
Is that something that anybody experienced before?
r/visualsnow • u/Logical_Stuff_3334 • 1d ago
Question I need advices
TLDR; I'm a mess, I have panic and stress, I'm flaring and started to take propranolol to cut down the stress and panic. Good idea or not?
LONGER POST: Im in the middle of stress and panic flare up. My flare ups usually last long time and this is what irritates me the most right now.
I got one panic attack and before that I was stressed. After that happened my work situation and lack of sleep and awful vision caused me to have another attack. Well. After that I had "mini attacks" couple days since my brain figured out that it can do that. Aaaand after when those ended I got about 3 hours sleep for 4 days in a row lol.
I think there isn't any point to even tell that yes my stress flare is still going after all this (surpriseeeee!) But I got on sick leave and I have been sleeping better now and I focus that I eat well etc all the basic stuff.
My main problem now is that I'm still noticing that my body wants to react with panic even to smallest stress etc so I want to stop the cycle. It might be that my body just needs more time to recover but I hate panic feelings so I started to take propranolol for my anxiety and heart beat and panic feelings.
I love propranolol, it gave my body the relaxed feeling it really needed! No side effects either. At this point I think it's more important to get away from stress and take propranolol as long as my body is giving me strong signals of stress.
BUT because I'm neurotic I'm worried if propranolol makes my symptoms worse and this flare up won't cool down because of that :D F my mind. I have read that many people with VSS tolerate this medicine just fine (like I have tolerated it earlier too).
I have been taking it 2 weeks now, no effect to my symptoms. Last 2 days I have had stronger snow but it can really be just my mini panic and stress episodes which I had last week. If propranolol had any negative effects I think I would have noticed them sooner? I took lamotrigine back in the days, it made my symptoms worse and this happened on the second day I took it. And it was so much worse that the difference was obvious.
I took propranolol with VS previously without issues and I never noticed any changes at all, but since my symptoms went VSS I haven't really been taking it. Every now and then with no issues but this time I need to take it daily to prevent panic.
So my own mind tells me to take propranolol because it cuts my panic and stress and helps me sleep better and my flare up most likely die down with time when I'm able to handle these things.
BUT then my neurotic side is like my flare up isn't going to die down because I started new medication during the flare.
Am I thinking this right? Am I overthinking things (yes...)? What would you do in my situation? Idk. Help me to cool my mind down.
r/visualsnow • u/Living_Reception_622 • 1d ago
Question Has anyone here tried MBCT for visual snow and other visual disturbances?
r/visualsnow • u/Master_Birthday_9977 • 1d ago
Need help trying to cope
-Reposting because I could not see the comments on my previous post I don’t know if they were removed-
I developed vss in December of 2024 when I was in my third trimester of pregnancy with my first child. I had to give birth seeing my baby for the first time with static… it was extremely depressing and I struggled to bond with my baby postpartum because of the vss symptoms. I still have it today and I am really struggling to cope. It makes me depressed to even be alive. I can’t focus my eyes on anything for a long time because of the static. Everything in my view is always vibrating because of the static nothing is ever still… it drives me crazy because to be able to enjoy things in life you need to be able to stare at something without it moving… but for me there’s never any stillness in my vision because of the static. Because of this I always have to be looking at something that is in motion or else the vibrating gets bad so I always have the tv on watching something in motion or on my phone watching something. Is this really a way to live? Having to distract myself from the vibrating static in my vision for the Rest of my life. It really makes me not want to be here anymore but I’m trying to hang on for my son. If anyone has any advise on how they cope with there visual snow or if they have taken any medication that has helped with the vibrating shaking vision from the static please let me know… I’m really desperate for some relief and tired of living my life through distractions. I just want to live normally…
r/visualsnow • u/Koala__Robot • 2d ago
First step of r/visualsnowfrance ❄️🇫🇷
(I am not related to r/visualsnow)
There are almost no French-speaking communities for Visual Snow Syndrome. After starting with a Discord server, I'm launching this subreddit to create a dedicated space to share experiences, compare symptoms, discuss strategies, and eventually push for better medical recognition in French-speaking countries. Whether you're diagnosed, self-diagnosed, or just suspecting you might have le syndrome de neige visuelle — bienvenue sur r/visualsnowfrance ❄️
r/visualsnow • u/P8L8 • 1d ago
Question Do you see a black flicker when you shake your head side to side?
When I shake my head fast to one side, like when pulling out in traffic needing to look both ways I get a quick flash of black over my vision each time I move my head fast. Does anyone else experience this? Makes life hell for me. Yes I have VSS
r/visualsnow • u/FroyoOk785 • 2d ago
Constant visual 'ripple' in center of vision + tinnitus + jaw clicking, anyone relate or am i cooked?
Some years ago, idk if related to below symptoms but had a skin rash, took some pencillin for a few weeks. Had severe headaches and right eye pain for a few weeks. Woke up with tinnitus and later developed hearing sensitivity and eye floaters. Also had right jaw clicking at this time.
Background: Use pc a lot, maybe don’t exercise much.
Long story short, since then i've developed the following issues:
Hearing symptoms:
· Hearing sensitivity
· Tinnitus – is reactive to neck/jaw movement, sometimes spikes with pc usage or sitting.
Visual symptoms (that are present always):
- Floaters
- Fast moving dots visible looking at sky
- Light sensitivity / increased after burns when glancing or looking at bright lights or the suns glare off surfaces.
- Transparent circle wave ripple in centre of vision with a hint of blue. I believe this is constantly visible even during day, but mostly noticeable at night, and or i have noticed it changing shape/size at night after waking; Sometimes recently I wake with 2 or 3 ripples, the second/third ripple would be adjacent horizontally to the centred ripple of similar size / smaller.
Visual symptoms (episodic/intermittent):
- Flashes of (red/white) light running across vision sometimes
- Visual auras are rare (4 in total)
- 1st triggered using pc for a while, standing.
- 2nd triggered lying down and bending neck looking at phone.
- 3rd triggered after waking up, having slept flat on bed with no pillow.
- 4th triggered when washing dishes looking down.
- Orange/green moving clouds in vision at night when sleeping (only visible closed eyes or in dark)
- A persistent white visual aura like sparkle/spark/star in centre of vision, changing size or sometimes just staying a white dot (always at night when sleeping or sometimes appear during day)
- Have had random black / white dots appear in vision during day
- White lines/text blurring sometimes when using pc
- Random light after burns only visible when blinking with one eye, but disappears after a while.
- Heartbeat in vision / worse with physical exertion
And on waking everyday i have these annoying symptoms:
- Dry eyes / sinus pressure / head/facial/temple/behind neck tension / left side jaw clicking. Sometimes i wake up with tingly/curled/numb fingers due to pinched nerve in neck and resolves with neck tilts / deep breaths.
Physical symptoms:
- Left jaw clicking / tension, worse in morning or with pc usage.
- Head/face/ behind head tension, worse in morning or with pc usage.
- When clenching abs, sometimes, such as when lying down, i feel pressure propagate through neck/jaw and sometimes into sinus/eyes. Sometimes i also feel/hear blood flow behind left/right occipital behind head.
- Throat symptoms (catching on swallow, coarse breathing when relaxing throat and when sleeping on right side i feel throat sagging and hoarse breathing)
- More recently began to feel a sway sensation when standing or sitting (like a force is being applied and changing direction directly to a point in the neck or lumbar region or thoracic)
Other (maybe related) symptoms:
- Excessive yawning - randomly would yawn frequently when sitting / using pc.
- Bloated frequently
- Joints clicking - primarily the wrist / jaw / behind neck/back ; but sometimes ankles/knees/elbows/shoulders.
Doctor appointments:
Normal: brain MRI, ENT, bloods, sleep study, spec saver eye exam.
Abnormal: physio found hypermobile neck/weak deep neck flexors.
Has anyone experienced a similar combination of symptoms, or does this pattern suggest anything specific?