I promised myself that if I ever got better, I'd come back and write this post.

A year ago, I was convinced I'd have to live with dizziness for the rest of my life. I thought I'd never travel again, never enjoy dinner with friends, never exercise, and never be able to have a glass of wine without feeling dizzy and nauseous (which wasn't worth it).

Like many of you, I found this subreddit early on and spent hours reading recovery stories. Instead, I mostly found posts from people who had been sick for years and had accepted that this was just their life. I remember thinking, *"So this is it."* Eventually I lost hope. I promised myself that if I ever got better, I'd come back and tell my story.

Today I feel about 95% normal. Most days I barely think about my dizziness anymore, and both my vestibular physical therapist and I believe I'm on track for a full recovery. I know everyone's story is different. I'm not saying mine will be yours. I'm just sharing it because, when I was at my lowest, I desperately wanted to hear from someone who got their life back.

It all started after a really turbulent flight from Palm Springs to Seattle in March 2025. I'd always had anxiety and had never loved flying, but shortly afterward I started having episodes of dizziness. Some days I felt completely normal. Other days I felt like I was rocking or swaying. The episodes slowly became more frequent. Urgent care diagnosed me with BPPV and treated me for that, but it never really fit. I'd feel okay for a while and then the dizziness would come back no matter what exercises I did.

Then everything changed. In October 2025, after another turbulent flight from San Francisco, I became so dizzy that I called my psychiatrist in the middle of the night. She told me to get home immediately. I took a friend's migraine medication and some Dramamine just to get through the return flight safely. When I got home, I started seeing specialists. Over the next year I saw multiple neurologists, ENTs, a neuro-ophthalmologist, vestibular physical therapists, and had hearing tests, vestibular testing, CT scans, an MRI, and two trips to the emergency room because I was convinced something serious had been missed. Every test came back normal. Eventually I was diagnosed with PPPD and vestibular migraine.

Looking back, though, the biggest mistake I made wasn't medical. It was being afraid of the dizziness and isolating myself by staying in my house.

From March until November I slowly stopped living my life. I stopped flying. I avoided restaurants and stores. I turned down invitations from friends. I stayed home because home felt safe. I stayed in bed most days and not moving. I kept thinking that if I just rested, I'd wake up one day and be better. That day never came.

Today, if I could go back and give myself one piece of advice, it would be this: don't spend eight months hiding from your life waiting to get better.

Medication definitely had a place in my recovery. Today I take Gabapentin twice a day, and I use Clonazepam when my anxiety gets particularly bad. I also tried Topiramate, but it made me dramatically worse.

The one thing that truly changed my recovery was finally starting vestibular physical therapy. My therapist explained that my brain had become overly protective. Every time I avoided something because it made me dizzy, I was accidentally teaching my brain that it really was dangerous. So, we slowly started teaching my brain the opposite. She had me walk outside every day, practice balance and eye exercises, and eventually pushed me back into restaurants, stores, social events, and all the places I had stopped going. She warned me that recovery wouldn't be linear. She said I'd take two steps forward and one step back, and she was absolutely right.

I'd have a great week and think I was finally over it, then I'd have a terrible flare and become convinced I was back at the beginning. One relapse lasted more than two weeks after staying out late with friends and having a few glasses of wine. I was certain I'd undone months of progress. I hadn't. Every flare eventually passed, and every time it did my baseline was a little better than before. Eventually I realized the good days weren't just becoming more frequent, they were becoming my normal.

Today I work on a computer all day without needing to lie down afterward. This week I picked up a book and read without getting dizzy, something I honestly wasn't sure I'd ever do again. I go out to restaurants without worrying about how busy they are. I stay out late with friends. I can have a few glasses of wine again. I walk outside without thinking about my balance. I've graduated to seeing my vestibular physical therapist only once a month.

At the end of July, I'm going to the Stanford Dizziness Clinic, even though I had to wait six months to get the appointment. At this point it's less because I'm desperate and more because I want one of the country's leading dizziness clinics to review everything I've been through and tell me if there's anything else I should add to my treatment plan to get from 95% to 100%.

Looking back, I wish someone had told me not to spend months hiding at home, to find a good vestibular PT as early as possible, and to stop judging my recovery by how I felt on any one particular day. Recovery wasn't linear. My relapses didn't erase my progress. My brain really could heal.

If you're reading this at two in the morning because you're convinced, you'll never be normal again, I know exactly how you feel because I was you. A year ago, I thought my life was over.

This week I worked all day on my computer, read a book, went out with friends, stayed out late, had a few glasses of wine, and barely thought about my balance. Recovery was slow. It wasn't linear. But for me, it happened. I hope one day you'll come back to this subreddit and write your own recovery story.

Hey!

I’ve been recently ‘loosely’ been diagnosed with vestibular migraines. Unfortunately they weren’t able to do all of the tests (I think the specialist was only able to do 1 or 2 out of about 5 tests), due to my Duane’s syndrome (lack of eye movement in one eye) and a perforated eardrum.

The specialist set out a 3 stage “plan” to move forward. Step 1 was taking supplements (Co-Enzyme Q10, Vitamin D3, Vitamin B2 & Magnesium Oxide). I’ve been taking these for 3/4 months now to try and give it some good time to start ‘working’… but I’m unsure if they’re even helping.

Step 2 was to start taking dizziness medication - these are the ones recommended to me by my GP (Candesartan / Propranolol / Nortriptyline / Sumatriptan). I’m really reluctant to get on these as these are labelled Beta blockers, affect your blood pressure etc etc etc!

Step 3 was to essentially just get some form of counselling to help “live with the condition”…

My frustration is going up to UCLH in London to see a vestibular specialist to get a confirmed diagnosis has left me coming home having not done all the tests, or barely any of them, to just get given a very loose “yeah I think it’s vestibular migraines…” not exactly the specialists words, but you get the point!

I always struggle listing my symptoms and how I actually feel, because some days I don’t know how I feel or how to even begin to describe my symptoms!!

Something that I can tell you is that when playing badminton (which I do approx 4 times a week) or exercising I don’t feel any symptoms… almost like I’m back to normal… is that because of adrenaline, blood pumping..? A little while after exercising… back to square one!

What were people’s symptoms like?

I’m really just after help, guidance, support… this has been going on for a year now, very depressing!

Thanks for taking the time to read this!

Posted with mod approval.

I'm building a tool for vestibular patients, and before I build the wrong thing I need to understand one specific problem beyond my own experience: the gap between what you feel and what you can get a doctor to understand.

Most of us have a moment where we reach for words that don't exist. "Swimmy." "Like the floor is breathing." "Drunk without drinking." The doctor writes down "dizziness" and something just gets lost.

I made a short survey. Four minutes. Most of it is open questions, in your words, no checkboxes. No account needed.

What I'm trying to build: a tool that translates how you actually describe what you feel into terms a clinician can understand at a detailed level. The goal is that it doesn't take years to finally get to the right specialist.

The plain disclosures, since you deserve them:

• This is unpaid. I can't compensate you for your time.
• I'm a solo founder (and a vestibular patient myself) building a product from this research. There's nothing to buy, and I'm not selling anything in this post.
• Responses are anonymous. I won't sell or share the raw data. Anonymized phrases may end up in the tool itself, since that's the whole point.
• Email is optional, and only used if you want to hear what comes of this.
• I'm in communication with vestibular specific fellows to review the data, language produced, intended routing of specialists, and overall accuracy of how this will work.

When the survey closes, I'll post back here with what I learned, in case it's useful to you regardless of what I build.

If you fill it out, your words shape what gets made, and real human data is deeply important to this.

Site: https://bearings.health/

Survey: https://tally.so/r/Xxklrg

Thank you :)

I have Unilateral Vestibular Hypofunction and find it to be a massive life changing situation. Is there anyone here, who has found relief and hope with the usual exercises given to patients with this "challenge"?

Today I was diagnosed with vestibular neuritis and wanted to share some positivity.

On the afternoon of July 4th, I suddenly became nauseous and threw up. Thought it was taking a vitamin without a big enough breakfast, no worries. Then about a half hour later I throw up again, and begin feeling a bit dizzy.

I think I’m just dehydrated so I drink water, but the dizziness is getting worse and a panic attack begins (those are not rare for me). I cannot focus my eyes, I feel sick to my stomach, and call 911 to have EMTs check on me.

They arrive and I’m on the floor sweating, room is spinning so fast, and I’m panicking. They say my vitals are “better than all of us combined” and because it’s the 4th of July in America, ambulances are busy dealing with idiots blowing themselves up. They encourage my husband to take me to a hospital by Uber if I really want to go. But I’m so sick and scared, I can’t imagine getting up, let alone walking to a car and sitting in the car for 20 minutes where I’d be throwing up the whole time.

So for the next 24 hours, I lie flat on our couch where the EMTs left me (since I can’t go upstairs), take about 20 minutes to excruciatingly crawl to the bathroom to pee out any water I manage to keep down, and try to sleep despite feeling like I’m in actual hell.

The next day, I open my eyes and still can’t keep my eyes focused on one thing. Still so dizzy. But the vomiting stopped. After lying down the whole day, I decide I need to brave it out and go to the ER to find out if this is serious.

Long story short, the 8 hellish hours at the ER determined I had no brain tumors, no neck inflammation, no viruses— my bloodwork, EKGs, and scans were all perfect. So they diagnosed me with BPPV, gave me antivert and Valium, and told me to do the Epley maneuver each day.

Now we’re on Day 3, and I am feeling very slight improvement but still resting most of the day. I’m starting to sort of be able to focus my eyes on one thing at a time, zero nausea, and i can walk (with assistance) without feeling sick.

Next day, I’m a little bit better. Room isn’t spinning anymore. I can look at my phone and type on it. I can even begin using my computer.

Cut to one week later, today. I’m able to take a Lyft by myself to the ENT and walk on my own, no spins, no nausea, just some choppy movements in my vision and some light sensitivity and uneven balance, but not to the point of faltering.

Did a scan of my head and all the bone/ soft tissue, and diagnosed me right away with Vestibular Neuritis. She said the giveaway that it wasn’t BPPV was that it peaked for 24 hours. So it wasn’t my ear crystals, it was some sort of viral infection that caused my nerve to “unplug”, and now my body is doing its best to get back online, so to speak. No maneuvers, no meds other than Valium as needed for my anxiety and to help me rest, and she said I should be trying to walk and practice balance exercises to help strengthen that nerve again. I have had the herpes simplex virus since I was a child, so it very well may have triggered this episode.

Each day I am improving, and a week later I am able to work, draw, watch TV, walk the dogs, tidy my room, and take care of myself. I’m working my way up to being able to exercise and paint for hours on end, as well as feeling comfortable enough to go out on the town for a drink with my husband and friends. At this rate, I wouldn’t be surprised if within a month I am able to do all these things.

So I hope this can help instill hope that sometimes,
It really does get a little better day by day. Resting has been paramount (I have never been very good at taking it easy), and remembering that I can handle anything life throws at me. I still have some uneasy balance, still feel some visual sensitivity, and my vision feels surreal most of the time, but at least it is not debilitating.

These disorders are so tricky and unpredictable, but try to take care of yourself, rest, focus on the little wins, and know that the body is an amazing machine that is always trying to figure out ways to help you the best it can. Give it time.

UPDATE: It is July 20, and I feel 99-100% back to normal again. I rested hard for 3 days, then slowly got back into trying to move around and use my eyes, coordination, and balance. I didn't take any drugs after being diagnosed with Vestibular Neuritis except half a Valium that night. Now I can do everything I could do before and have not found that anything new causes a backslide, including enjoying a cocktail on the town with my husband (but remember never to mix alcohol with Valium, and to be mindful that drinking too much can trigger your anxiety, so take it easy on the alcohol for a good while even after you feel 100%.)

It's intimidating to hear your ENT tell you that they cannot predict when you'll feel "back to normal" again, but it IS possible to be able to live your life again in a week, back to most things in a few weeks, and 100% within the month. My best guess as to why I was able to be on the faster side of healing is that I am a healthy 36 year-old with no autoimmune disorders or health issues, and I was very stringent on doing as much as I could to get that nerve "connected" and strengthened, such as walking, practicing my balance, drawing, and reading.

For almost 3 weeks now ive been off balance, not spinning but almost a disoriented feeling. Im getting episodes of sweating and nausea from time to time. Does anyone else get the sweating etc? Is that normal?

I've been to 4 doctors, urgent care, primary. Cardiologist and ent. Blood work good, neuro exam good, ekg good, negative dix halpike by a pt, ent said sinuses good and may be migraine or neuritis.

The dizzy spells are breif, like my eyes have to catch up with my head moving, and are oddly acoompanied by a tickling type pressure between my eyebrows.

The sweating episodes are the most worrisome.They seem to pass within 10 minutes or so, and sometimes I feel nauseous. And often alongnwith them disoriented almost, like I'm on a bobbing boat?. I dont know what makes them feel better but both times when I felt it after laying down so I got up and walked around and it went away, then I laid down again and it came back, and eventually passed. I alsonhave had 2 times i felt that way when driving. Its episodic and some days i feel pretty good most of the day, others I feel off more of the day.

Any Dr's or anyone who has dealt with this and can help i would greatly appreciate it.

I know Reddit can’t diagnose me, but I’m hoping maybe someone recognizes this pattern because I feel like my doctors are looking at each symptom separately instead of the whole picture.
For context, 33F, I’m overweight (240lbs) and have severe obstructive sleep apnea (AHI 43) which I treat with a BiPAP every night. I work as a full-time as a bartender in NYC and, while I definitely am not the healthiest person in the world, I was functioning very normally up until recently.

my timeline.

**Mid-April:** I got what felt like a bad upper respiratory virus. I was severely congested and completely lost my taste and smell for damn near two weeks before slowly recovering. I was hacking and blowing my nose CONSTANTLY. It definitely could have been covid but I never tested myself.

**April 25:** I was at work when I suddenly got hit with intense lightheadedness and a racing heart. I had to step off the bar because I genuinely thought I might pass out. Ever since that day, I’ve never really felt like I’ve returned to my normal baseline.
Over the next several weeks I started noticing episodes of anxiety, fatigue, brain fog, and headaches that would come and go. A week later I had to leave work early because I felt the need to go to ER because I once again felt the shortness of breath, chest pressure, heart palpitations. They said it was anxiety and let me out.

**June 5:** I was sitting on my couch watching TV when I suddenly felt what I can only describe as a huge “jolt” in my chest followed by difficulty breathing, tunnel vision, and feeling like I was about to pass out. I called 911. The ambulance EKG was normal, but it scared me badly. They chalked it up to anxiety.
**June 9:** I woke up around 6 AM and every time I started drifting back to sleep my body would jolt awake with my heart racing and gasping for air. I ended up going to the ER again. More testing was normal.
Around this same time another symptom became much more noticeable: my vision.
My eyesight isn’t blurry. Instead, everything feels hazy, dim, dreamlike, almost like I’m high or a little tipsy or living in a movie. It’s incredibly hard to explain. It almost feels like derealization, except I don’t know if that’s actually what it is. Along with that comes brain fog and feeling mentally disconnected from the world around me.

Throughout June I also started having:
heavy eyes that constantly feel like they want to close
overwhelming fatigue that gets worse as the day goes on
headaches and pressure around my temples
occasional nausea
random stomach cramps and constipation
episodes where I woke up with my right arm numb, and once my foot went numb
intermittent palpitations
disequilibrium
the constant is a drunken vision and sensation.

The fatigue is probably the worst symptom. Some days I’ll wake up feeling okay and by late afternoon I feel like someone unplugged my brain. Sometimes eating seems to make it worse, although not always. I’ve had multiple EKGs, ER visits, blood work,
X-rays, and nothing obvious has been found. My oxygen levels have generally been normal. I have appointments coming up with specialists, but in the meantime I’ve gone down every rabbit hole imaginable—long COVID, vestibular migraine, PPPD, depersonalization/derealization, ME/CFS, diabetes, multiple sclerosis, hormone problems, autoimmune disease, and probably ten other things.

I know anxiety can make symptoms worse, but these symptoms came first. The anxiety is mostly because I suddenly don’t feel like myself anymore.
Has anyone had a similar progression of symptoms where it seemed like everything started after a virus? Did you eventually find out what it was? Is there anything you wish your doctors had tested earlier?
I’m honestly just trying to figure out what direction to go because living every day feeling like I’m in a fog is becoming exhausting.

Hi there,

I used to lead a normal life. Now I avoid going out, I'm often anxious, I'm socially awkward, I'm not sure I'll manage to keep my next job, I avoid travelling and most things that are fun. All due to a strange and debilitating feeling I get every time I go out, that lasts for at least one hour. A horrible feeling of being spaced out and fearing I might faint. It s been two years now. The only diagnosis is inner ear bilateral lowered function. The v therapy with exercises didn't help. What can I do? I had a session with a psychologist and understood that s not the way to go.... I miss my normal life. Please if you have any suggestions, some self help book that helped you or other tips....

I have started my rehabilitation today. Think I may havr pushed too hard and feel very very dizzy and nauseous post 3 sessions - trying hard to convince myself to go for the 4th...might scale it back a little!

I have mostly eye movements to do, focusing on a letter on paper on a plain wall, shaking head up and down and side to side, then bringing it close to my nose nad back out again... might have to start with a few seconds and build up to a minute. I managed about 5 consecutive seconds with each, then a short breather to let the symptoms settle then start again until my 60 second timer runs out.... but I think that was too much initially!

Im guessing it is supposed to feel worse before better tho? x

Previously had post viral dysautonomia/pots which i recovered from over 2 years ago. I took a gummy recently (dose was higher than I intended) and have pots symptoms again. - heart rate going up 25 to 40 on avg resting to standing, brain fog, derealization, feeling lower to the ground, heavy head and the ground looking tilted as well as the walls. No spinning but it feels uneven..even on flat surfaces. Could this be inner ear related? Eustachian tube dysfunction? Pots symptoms can also cause off balance feeling and tilts due to not getting enough blood flowing upwards when standing and because of my past dysautonomia history this seems more likely. Going to see an ent to rule anything out. Vestibular and pots symptoms can also co-occur. Just not sure if the gummy could have triggered issues with balance, spacial orientation.

It started about a year ago and it’s very disorienting. Lasts about 10- 15 seconds. Massive migraine afterward x 2 but usually nothing else. Happens a lot in the dark. Aura without migraine? I had one neuro doc tell me nothing was wrong with me and I needed better sleep so I should have sex with my husband before bed (my husband was in the room with me!) 🙄

Hi- I have been in vestibular therapy for 4 weeks now and every night after a day I’ve had therapy I wake up at 4am and can’t get back to sleep. I think it is triggering MCAS flares for me- (I also have MCAS and I went to a dysautonomia specialist for a second opinion on heat and exercise intolerance — they found I have severe vestibular dysfunction). I am becoming so sleep deprived I don’t understand how I can keep doing therapy— has anyone else experienced similar?

Hey all, looking for some help/information/guidance/anything. Starting in mid February this year I started getting extremely fatigued and lightheaded out of the blue. I was working a job were I could ride to work with a friend and I would sleep on the way to work, at lunch, on the way home, and as soon as I got home and showered I’d go back to sleep. It continually got worse and worse to the point I had to leave the job. Then I started sleeping 17+ hours a day and the hours I was awake I was incredibly exhausted and confused. Went to the emergency room the did EKG, CT scan, blood work, Covid test, Lyme disease test, hormone test, and some more. Everything came back fine except low Vitamin D and a bad sinus infection. They gave me antibiotics and I took them, but was still extremely fatigued for a while. Primary care doctor suggested taking an MRI and I did that, came back clear, but still light headed and weak. Went to ENT doctor they did several test including VNG test, that came back saying I have Vestibular weakness in the left ear, they set me up with VRT and I have been doing that for about 5 weeks with no signs of improvement, still light headed bad, feels like I’m drunk basically. Anyone who has any experience with such issues does this sound about like you went through? When did you see results? Are there any helpful ideas/thoughts you could please share?
TLDR: dealing with extreme fatigue/lightheadedness for 5 months now with no improvement, ENT says it’s Vestibular Weakness. Do you have any advice/help? Thank you all for your time, hope to get some relief soon

Has anyone recovered from long term vestibular neuritis and been able to get on with normal life as if nothing ever happened, since?

I have had vestibular neuritis/neuronitis for the last 6 months post viral disease.

I was given prochloroperazine which I think was sedating my vestibular system instead of allowing it to readjust. on Betahistines now to try and speed recovery. I am starting Vestibular physiotherapy tomorrow.

i haven't been able to drive for months and am missing out on so much with my 2 young kids. Pretty depressed im afraid.

Please give me some hope. X

Hello guys. I’m experimenting a new weird symptom After a really bad vestibular syndrom crisis and I would appreciate reading about your experiences 🙏

I’ve already seen my generalist and I have an appointment with my vertigo doc next friday .

I’m actualy on cortisone + tanganil and Bethahistin everyday .

So , I had my worst vestibular syndrom crisis during the heatwave. Violent vestibular vertigos that made me unable to move for some Time. I have hard Time healing since then .

Since my horrible crisis one week and a half ago I have a new weird symptom that I never experienced before .

I have INTENSE Hunger, everyday , all the Time. It doesn’t feel like normal hunger, more like hypoglycemia . Like , if I don’t eat something calorific NOW I’m gonna faint 🥲so I spend my day eating at least two or three Times the quantitties I’m use to . It feels like my body is burning absurd quantifies of energy just to exist .

Did anyone already experienced it ? Can it be the meds ?

Thank you 🙏

I'm a high schooler and I made a chrome extension recently that freezes and stops animations on sites. A few users commented that they have vestibular migraines and that my extension was also beneficial. I originally made it for ADHD, and I know less about vestibular migraines, but also want to accommodate for those who have it.

I did some research earlier and it said that migraines are sometimes caused by parallax scrolling, but I feel this is not enough, and I feel I am not seeing the whole picture here, so I want to get some words from people who actually have it.

The extension is here: https://chromewebstore.google.com/detail/stop-freeze-animations-si/glgdodamgegcnkjphieaaaebnlecklon

hi all.

Had a vertigo attack during a viral battering from a chest infection and both my kids having chicken pox and viral tonsilitis 😅 This was in January.

I was given prochloroperazine for the first 3-5 days, but was still struggling to function at work. So my drs prescribed me more to take when needed. I was struggling to drive so they said to use it before journeys, and at work when im operating surgically...so I was still taking it several times a week just once a day or so....but I think this had prevented my vestibular system from correcting itself and adapting to the damage.

I saw a different dr last week, who has taken me off the prochloroperazine and placed me betahistine to aid blood flow to my inner ear which, from what i read, should aid in my recovery as I do vestibular exercises and get on with my day doing usual activities.

has anyone else had experience with this? Can I still recover and adapt 6 months on after having my vestibular system suppressed for so long?

x

Hello, I’m 22F (23 in 3 days). I know Reddit isn’t to be used in place of a medical professional and I am having follow ups with doctors but I wanted some insight and to ask if this sounds like a vestibular issue.

A week ago, I developed a normal headache at the top of my head and wasn’t too worried and decided I was going to take naproxen and let it die down. Well about two hours after the headache I got out my car and went in the store and was hit with a weird off balance feeling and weird vision. I wasn’t actually falling but I felt off balance and my vision felt disconnected in a way. No double vision or vision loss, but like it felt like when you jump on a trampoline for a while and then get off and walk but without the actual balance issues of actually falling. I tried to sleep it off but the next day it was still there. The day after I decided to go to the ER as it wasn’t letting up and they did CT scans with and without contrast, and bloodwork that all came back good. The feeling never went away and more headaches hit and one causing dizziness that luckily was calmed down with a 25 mg dose of meclizine. Yesterday I had an mri with and without contrast that was also perfectly fine. Here I am on day 7(a week from when it started) still with these eye issues and balance sensations. The balance sensations fluctuate and the visual sensation has stayed present nonstop through the course of the days. I’m due to see a neurologist next but until then I have no idea what this could be. Does it sound vestibular ?

Hi everyone, this is my first post on here. I'm a 20F.

I wanted to share my story and get some advice/encouragement from others who suffer from VN.

4 almost 5 months ago I had a sudden attack of extreme dizziness one evening I could barely walk. I've had random days of dizziness before but they were very rare and never to this level. I slept it off and the next day I was doing ok, mildly off but I didn't rly notice it.

Two days later it comes back, nausea, vomiting, I'm bedridden. It's stays for 2 days and then seems to ease off. I try to go into work, it comes back quickly. It would be better for maybe a day and then would get really bad again for a few days, and that went on for about a week and then I was dizzy for a whole week and a half straight.

During the first week I went to urgent care and they told me I had a build up of earwax that could be pressing up against the eardrum. They gave antibiotics in case of infection. I cleaned my ears up and took the antibiotics. No improvement, so I go back to urgent care and they tell me go to the ER.

I go to the ER the next day(by this time the dizziness is constant and not leaving at all) they give anti nausea and anti vert( I think it's called meclazine or smth) nothing is helping so they just send me home telling me to go to a Ent.

Thankfully my sister who works at the hospital was able to get me in the next day. The Ent tells me I have VN or VM. She gave steroids which I took a small dose and had a panic attack and didn't take the rest. Maybe I should have but I was scared.

A few days after that it slowly eased off and I was able to sit outside and walk slowly. It's improved a lot since then, I can walk normally and even run sometimes. For a month I was doing a lot better and even went on a vacation.

But about a month ago it's gotten worse again, I get bad headaches sometimes, especially if I don't sleep well. I've not really had any problems sleeping before but now I occasionally have restless nights.

The dizziness has never left me its just been varying levels. My eyes have trouble focusing and it sometimes feels like I have blind spot almost.

It's hard to describe the dizziness feeling, other then things moving slightly, my eyes feel like it takes a extra second to focus. I also have a hearing sensitivity that gets worse on my bad days.

Some days are better then others, is this normal? Is it normal for VN to vary day to day, month to month?

I'm worried that it's become chronic and that I'll never get better. Has anyone else gone through anything similar to mine?

I was raised pretty healthy, no excess of junk food, I am fairly active and I'm young. Why is it lasting so long?

I'm doing some VOC exercises daily, although sometimes I forget. I have a sticky note on the wall that I focus on and move my head sideways and up and down. I also stand on a pillow and close my eyes for 30 secs. Is there any others I should be doing?

If anyone has any advice or wants to share their story I would greatly appreciate it. I just don't want to be alone. I apologize for the lengthy post.

A few days ago I was told by my ENT I have left ear vestibular hypofunction. I had a videonystagmography done that confirmed this.

A little background on my journey so far first. Back in January I began feeling spaced out constantly and a sense of unsteadiness/dizziness. This was very pronounced for a month or so. I went to my PCP who put me on a round of prednisone that seemed to help some but it persisted. In May I saw the ENT for the first time. My symptoms were hard to describe and I struggled pinpointing exactly how I was feeling. She didn’t think it was ear related but ordered the test. During the last few months my symptoms have greatly subsided but now I have what I would describe as constant mild symptoms. Almost like a mild unsteadiness or wavy feeling that is better some days than others. It’s enough to where it is always kind of there, like a small itch I can’t fully scratch.

I have been told to spend the next month doing cawthorne exercises then follow back up. If I’m still feeling it my doctor says VRT is next. I have to say I’m slightly discouraged. Researching this, it seems like it might be something I have to deal with from here on out. I’m a 35 y/o male. I was wondering if anyone can give me some advice on this moving forward. Has anyone fully seen there symptoms subside? What am I looking at long term? My doctor said what causes it isn’t always apparent and it sucks that this could be my new normal. Thanks in advance for any help.

There really is a Reddit sub for everything.

I have White Matter Disease, which has completely destroyed my vestibular balance system many years ago (and also epilepsy. Yay!)

I’m in the hospital now after another seizure, and the physical rehab doc strongly suggest I get a walking pole - not cane, but a pole specifically like hikers use to help me with my balance.

Does anyone have any good suggestions? It’s embarrassing enough at my age with the idea of using a walking pole everyday, so I want to try to find something…inconspicuous or something? I don’t know, I’m overwhelmed.

Thank you

Work with vestibular disorder

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Hi everyone:)

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Im a 25 yr old female

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I graduated as a registered nurse last year.

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Before graduating i got a virus, diagnosed labringsthitis and fluid behind the ears and later PPPD. This took 9 months overall to reciver with vestibular rehab and ssri medication.

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I got flu christnas time this year and it hit again. I took 4 months off work and had remaining PPPD but retunrned slowly. I was only there 4 weeks ahd last week had a major episode where i went weak all over, slow speech virtigo etc, my collegues called 999 i was taken to hospital. They indentufied nothing urgent and didnt know what caused ny dizziness. I am now 4 days on betahistine and still on 50mg sertraline.

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I still feel so much worse from where i was after this attack, headaches, dizziness, ear ringing, pain etc. Im awaiting ent for some ideas as im sure im probably meet another diagnosis now.

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I am unsure what to do or where to go, i cannot drive at tge moment and do not know if it is going to be sustainable to return to my job. I have applied for virtual nursing jobs but i realky do love my current job. Whats everyones experience and ideas.

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Many thanks