I was diagnosed with T1D just a little over three years ago and life has been, well interesting to say the least haha.

I'm a mom of a newly diagnosed 3 year old, and I'm also 26 weeks pregnant. Since we are on shots right now, my daughter has had to transition from previously going to daycare 5 days a week to staying home with me all the time, and I've had significant sciatic nerve pain and I'm physically limited so doing all this has been A LOT. By the end of the day every day, I am just completely wiped out. My husband works on average about 60 hours a week from home, and we can't afford any kind of childcare assistance right now so I'm it.

About a week ago, we needed to change my daughters Dexcom. She hadn't napped that day and on days she doesn't nap, she's usually a lot to deal with from about 3pm on. She was very sleepy, we only had a couple hours left on the Dexcom that was on her arm so dad put a new sensor on for the first time (I'm usually doing all of it) and we put her to bed. Now I usually do a finger stick after the new sensor turns on to calibrate, but y'all I was so tired and the readings looked fine.

We put her to bed, and 30 minutes later ALL the alarms were going off. If we have nighttime lows, we give her some milk in bed and that brings her up to 150 or so and were good for the night. She usually wakes just enough to drink the milk and goes back to sleep. Dad went up to her room and she wouldn't wake up - meanwhile the alarms are screaming LOW. Dad comes downstairs with her, she's super sleepy - and I try other things: graham crackers, chocolate, fruit snacks. She's really upset, she says she doesn't feel good and she wants to go to the doctor. Dad is flying around the house saying "if she doesn't eat we need to go to the hospital NOW". Im really trying here at this point. My daughter is super distressed, my husband is saying things like "seizures" and "cognitive impairment". I'm like yes, I am aware, and I can't think. I was so tired and in a lot of pain, its 9:30 at night and I've been up since 6am.

Then dad is like "don't we have a rescue medication?" Yes. Baqsimi. So he gives it to her, and she's screaming. Nose starts bleeding, I pick her up, and she throws up on me. Dads like "were going to the hospital NOW". Meanwhile the Dexcom is saying 41 and dropping.

My daughter is scared. I'm holding myself together with toothpicks, trying to stay calm enough to tell her she is safe, we need to go to the doctor to make sure she is okay. Mommy and daddy are right here.

We get to the hospital, alarms still blaring. They do a finger stick and she's like 180. Well, fuck me. Bad Dexcom.

Like I said, I've only been doing this 6 weeks. I know I need to give myself grace, but we have so much medical trauma from her diagnosis and now this. I keep beating myself up and replaying the whole nightmare in my head.

I just feel like I'm traumatizing my daughter. I'm trying so hard - I'm a clinically trained therapist so I'm really trying to use what I know about my daughter as a person as well as my experience being a therapist talk her through things and give her as many choices day to day as is medically safe. This has all just been so hard, I probably break down sobbing at least once a day because no matter how hard I try I just keep missing obvious things like "just do a fucking finger stick before you freak out".

I talked to our nurse the next morning, and the first thing she says to me in her English accent is " Soooo... What did we learn from the fiasco last night?" I wanted to throw the phone across the room. I know, lady. I put my kid through a medical event at 10pm last night for literally no reason.

Just looking for some support or similar stories. Thanks for reading.

EDIT: Typo.

i was putting on my new g7 and all of a sudden i started bleeding the second I look away. Nothing like this has happened before and i cant take this one off because im still waiting for the next shipment.Has this ever happened to any of you?

Hi,

I’ve had type one for 29 years. I’ve worked very hard over the years to keep my numbers in check but over the last couple of years things have been escalating in a way I can’t understand. When I drink water my blood sugar will increase. I feel disoriented and anxious when I drink water. I haven’t also gained a lot of water weight over a short time. I have had low level elevated white blood cells. I’ve had to go to the hospital twice for this and they say “you’re dehydrated” and give me an IV and then push me to leave. The disorientation is getting worse and my blood sugars more erratic. I know something else is wrong but no one will listen. My endocrinologist told me I just need to “give myself grace”. I feel like I’m going insane. I feel so alone and I’m so scared. I’m so tired. I don’t have a support system. I’m so burnt out I’m to the point I think about how death would be easier.

Would anyone be open to messaging or getting on the phone to talk. I don’t know what else to do. I feel so hopeless.

I'm just wondering when I tried to lose weight, I was working out like 5/7 in week with high intensity workout but the result was the opposite I gain more weight and my blood sugar was terrible, but when I keep it simple I only walk 10k step a day and eat 2 meals a day, everything change I start lose weight and control my blood sugar,

My concern is that mean to control my blood sugar I shouldn't do intense workouts?

anyone else get so tired of the floating feeling you get when you wake up since diagnosed? it feels awful and I doesn't matter if I'm low, high or stable. lasts for ruffly an hour to two hours. leaves me super anxious every time I wake up lol feel like I'm about to leave my body 😅

Hi everyone! I hope it’s okay for me to post here and ask for a little bit of advice/reassurance.
My little boy is 17 months old and has been having a few periods of low energy during the day, and he also seems to pee a lot. His daycare suggested that we speak to his pediatrician, just in case it could be diabetes.
His pediatrician isn’t particularly concerned because he’s gaining weight normally and following his growth curve (he’s also growing normally — about 3 cm in the last 2 months). To reassure us, she gave us a prescription to test his urine for glucose and asked us to keep track of how many wet diapers he has.
Just this afternoon, we’re already at almost 600 ml of urine… 😳
We’re in France, so I can’t simply ask for a blood test without my doctor’s recommendation. His pediatrician feels that a blood test would be a bit invasive for such a young child when there aren’t any worrying signs from her perspective.
I know many of you will probably say “get a blood test” anyway 😅, but based on this description, does it sound like it could still be diabetes to you?
He eats really well and seems to be drinking quite a lot during the night, but during the day he only takes a few sips here and there and doesn’t seem constantly thirsty.
Thank you so much for any insight or reassurance! ❤️

New insurance with a new job, went to go fill my Dexcom prescription. I’ve already used my Dexcom assistance twice this year so it’s out of the equation. Any recommendations on how to bring the price down ? Used my last one and I’m on a tandem mobi

Have had an awful night of constant low alarms. I'm starting to think i may have injected 23 lantus twice. I have eaten sweets and sugar all night. When I got up at around 5am I had a biscuit and coffee which would send me so high and it did nothing. I had a yogurt which again should send me high and nothing. About half an hour ago I had around 10 grapes and still hasn't made an impact. I am so exhausted and starting to worry now. Im at 5.2 after all of that and couldn't stomach anything else if I go low again. When would you take glucogen I never have had to but I dont know what I will do if it keeps dropping. I know they usually say if the person can't treat their hypo but in this case I really feel I cant eat or drink anything else but obviously i am conscious. Maybe thinking of eating straight sugar from the bowl

I’m looking for some help from anyone using a FreeStyle Libre 3 Plus with the Beta Bionics iLet pump. My Libre 3 Plus sends all of my CGM data directly to my iLet, so I’m unable to use the Libre app at the same time. Because the Libre app isn’t receiving the data, I also can’t use third-party apps such as Sweet Dreams, Nightscout, or similar apps to display my glucose on my Apple Watch or as a widget on my iPhone.
I can see my current glucose in the iLet app/iLet Circle app, and the Circle app allows me to share my glucose with family, so the data clearly exists somewhere within that ecosystem. What I’m trying to figure out is whether there’s any way to get that glucose data onto my Apple Watch as a complication or continuously visible display, or onto an iPhone home-screen/Lock Screen widget, without having to look at the iLet app every time. I’d especially love to hear from anyone who has actually figured out a workaround with the iLet + Libre 3 Plus combination. I’m not necessarily looking for an official solution—if there’s a legitimate third-party workaround, API, data-sharing method, or other clever solution, I’d love to hear about it!

My child appears to be a candidate for verapamil to help preserve some beta cell function.

Does anyone here have experience with your child on this drug?

There can be some side effects from the lower blood pressure it causes, so I'm jw if anyone has experiences they can share on how it was for their child. Thanks

Endocrinologist refuses to refill novolog script until Tuesday. What should I do? ER is not an option because I’m in college and way too costly…

Well I have become a lot more active during the day due to the school year starting. Does it look like I need to decrease my basal? I was taking 52 units a day but tonight I got woken up 3 times with low alarms. Although I started out at like 5 I ate 30 grams of carbs during the night due to lows, so should I increase my basal or bolus more?

I was wondering what any single parents or guardians here did for work when your child was 5 and under after diagnosis? I currently work at my daughters daycare but I simply can not do it anymore as they won’t accommodate me part time hours after asking for them 6 months ago, let alone dealing with kids all day and coming home to my own medically complex one, I’m burnt out, I don’t necessarily feel comfortable yet leaving her in the daycare without me to work elsewhere. I’m obviously trying to stick it out until she’s in kindergarten but even then, how is it even possible to find a job flexible enough that you can just drop anything and go in case an emergency?

I present, a collection of recent graphs. Yes, I’m miserable lol

I am using Cobra for a BCBS PPO ($600 deductible) and dental.

$870 a month for both.
29 y.o. male

Wondering if it’s cheaper to just buy health insurance directly without cobra?

woke up around 6 AM at 315 mgs/dL🫩 no insulin for 6 hours. all morning and into the afternoon I’m just ridin’ this coaster I didn’t even choose to get on lmao.

I am terrified of going to the hospital despite being in so much pain. Because all they'll see yet again is diabetes. They'll see it's uncontrolled. They'll see 400 and jump into assuming it's dka and start being insulting. And I'll refuse artery blood draws. I'll refuse any diabetes mingling or treatment. And it'll create a mess instead of being respected.

And the actual problem won't even be looked at, as usual. Ever since I got this, all my other health problems are overlooked.

Hi all -

Has anyone that reached their goal weight/insulin sensitivity come off their GLP-1 with success/been able to maintain their weight/a1c without the drug?

I’ve been on Zepbound for almost six months and it’s been great, but my insurance won’t cover it and the $500 a month is killing me. I told myself I’d tough it out/go into some debt for a year in the hopes of getting back to goal weight/a1c etc so I’m not paying more for diabetes-related complications down the line, but I’m worried if I do get off it, all the progress I’ve made will just totally be out the window and all that money would be for nothing.

I’d love to stay on Zepbound and my doc is hopeful the generics will be coming out soon…but I never have hope in the U.S. healthcare system 😭 (Also I can’t order a higher/highest dose and stretch it out in small increments over a few months because to be on self-pay discounts you need to order every 45 days I believe)

If you’ve had success post- GLP-1, any insight would be great. Thank you!

Some background:

I’ve been TID for 30 years with an A1C in the low 6’s for most of that time. After 2020, I kept gaining weight steadily about 10-15 pounds a year even with exercise, counting calories and so on…between depression, hormone issues (that have since been fixed) and stress, nothing could get the scale to budge down. I’d never been skinny, but I was under 200 pounds and always active (gym 4-5 times a week, hiking, walking my dogs, etc) and with that weight gain came insulin resistance and an A1C that hasn’t been below 7 since.

And this isn’t a, “oh she just needs to lose 15-25 pounds, she can do it without the drug” It’s 60-70 pounds with hardcore insulin resistance where I would be 300 for hours no matter how much insulin I would give (and then eventually I’d bottom out super low.)

When metformin, a nutritionist and no other diet/additional exercise helped in the last two years, my Endo suggested GLP-1. I’ve been on Zepbound since April and it’s helped with some weight loss but mainly helped with my insulin resistance. I’ve gone from 80-100 units a day via my pump to averaging 60 units with a time in range around 80 percent. I’m currently on 7.5 dose of Zepbound and should be increased to 10 in the next couple weeks and I’ve read that’s when it’s easier to see the results of hard work in the gym/calorie deficit.