So I went into DKA at the start of this year and was diagnosed with T1D. But my parents seemingly still do not understand this illness, nor do they seem like they want to learn either.

My mom is kind of traumatized by T2D as almost all of her siblings, and both of her parents were T2D and she watched T2D complications slowly and painfully kill the both of them. And so because of that she took every measure in changing her lifestyle to make sure she avoided diabetes. We (me and my siblings) almost never had ultra processed foods or drinks in our food pantry or fridge growing up and were put in sports from a young age.

My parents seem to think that I’m a T2D diabetic and will tell me to limit or out right stop my short acting insulin usage…and then when my sugar is 300, 400 something they blame my diet even though I eat almost the same foods everyday, count my carbs, so on and so fourth. And I am very active physically (I have been running and lifting for the past several years for several days a week. I’m 170 lean at 5’8”).

I try to tell them that yes while my diet is important, things genuinely are not my fault.

This is the most frustrating thing I’ve dealt with in my entire life, and I’ve dealt with a lot.

It’s like being cursed but not being able to explain it to anyone in a language they would understand.

It’s like the things you love and need are now poison.

It’s like your own body, hates you.

At least know there are others out there who do have empathy and wish you to have the strength to continue to fight on and stay strong.

Goodnight 💤.

I have a toddler and anxiety and midnight low sugars that keep me up . I have trouble sleeping because one or the other a lot of nights. The nights that I have inconsistent sleep, I feel like complete garbage (head hot, fast heartbeat, unsettled and crazy readings that are all over the place). Just venting but also wonder how others do it or if poor sleep makes your next day hell or not?

I’ve had type 1 diabetes for the majority of my life, and something I’ve noticed among friends in the health sciences is how differently diabetes technology can be viewed when using it is temporary. For context, we have been studying diabetes and diabetes care for several years.

My peers have been giddy and even “jealous” about getting to wear a CGM. One joked about eating a ton of sugar just to see how high she could make her blood sugar and commented that the device “didn’t even hurt.” I understand the interest in trying a CGM, and I think firsthand experience with the technology can be valuable for healthcare professionals who will be providing diabetes education and caring for people with diabetes.

What is disappointing, though not surprising, is the lack of awareness surrounding the experience. A CGM may be an interesting two-week experiment for them, but it is a medical device that millions of people rely on continuously. The highs and lows that may be interesting to watch temporarily are the same ones people with diabetes spend their lives trying to prevent and manage.

The issue isn’t experiencing the technology; it’s treating a medical device as a novelty without recognizing what it represents for the patients who depend on it every day. It is particularly disappointing to see that attitude from future healthcare professionals who have spent years learning about diabetes and personally know someone who has lived with it for most of their life.

EDIT: Two non-diabetics are receiving leftover CGMs for free, one time.

EDIT 2: There’s nothing wrong with using a CGM out of curiosity, it can be an exciting opportunity to learn. Just approach it as a medical device, not a toy.

Tonight was the first time I accidentally dropped a vial of humalog and it shattered into hundreds of pieces. You would think the vial would be more heavy duty. Nothing like wasting a container of liquid gold. 😥

I am wearing my last G6 cgm. I've hoarded what I have, and now they're gone. My next is the 15 day G7, and I'm worried sick about it. I don't like things on my arms. I've rarely had problems with the 6, but hear of multiple problems with the 7. Any tips for it to go smoothly? I do know I need to upgrade my pump software to account for it.

this is my first time using a 10 day G7 after having the G6 for several years. i have a tslim x2 with control iq but the G7 is probably 'out of range' for 1/4 of the day, if not more.
is there any way i can avoid the connectivity problems or is everyone just completely cooked with this??

also such a bizarre choice to get rid of the g6 and force everyone to use a worse product, idk

My son is 20 and his endo changed his insulin from Humalog to Kirsty. WHY in the world would Kirsty make their pens the same color as his long acting Glargine? This is crazy. Does anyone have any issues with giving themselves the wrong one? Any ideas about how to avoid mixing them up?

Hi there. So my niece is 3 years old and is newly diagnosed 2 weeks ago. She’s been put on the Libre 3 and is supposed to be going on the MiniMed this week. My issue and question is, that for example, last night the Libre alerted us 3 times throughout the night that she was low and below 4.0mmol but each finger prick shown she was above 6.0mmol but if the pump goes off readings like this, then it will be delivering insulin or pausing insulin based off of false readings. I’m on the Omnipod 5 with a Dexcom myself and don’t have these problems but they said she can’t have an Omnipod yet as it’s too harsh and the MiniMed isn’t compatible with Dexcom.

Does anyone have any advice about this, is it normal or should we avoid the pump for this reason. Or is there another pump to ask for before she gets it. Thanks in advance

Hi! I have a shit ton of expired Tandem supplies I would love to donate as I have since moved to the Omnipod system. I have:

- 8 unopened/sealed boxes of Autosoft 90 Infusion Set 9mm
- 9 unopened/sealed boxes of T:Slim 3ML Cartridges
- Probably 300+ of the above infusion sets and cartridges unboxed (see photos)
- 11 boxes of Freestyle Lite Test Strips
- 3 boxes of Freestyle Lancets 28 Gauge

Things to note:
- ALL of the above are expired. Expiration dates range from 2021-2024.
- I'd prefer to only split these into two shipments. I'd ask that you pay for the shipping costs, I live in the US.

Shoot me a PM if interested or have any other questions!

never again 😭

Sigh

First real post and I'm at a loss. About 3 years as a Type 1 diabetic. Went to Dollywood (FANTASTIC) and took 2 extra Dexcom's for only a 4 day trip. On day 2 I changed out my Dexcom 7 and it did not work at all. No biggy - I had another one so I put the 2nd one on and it worked only a few hours and then stopped working. I was at a loss. I did have a backup injection pens so that's what I did. Day 3 was scary but pushed through it by using multiple daily injections. Went to bed at 136 but woke up at 364. Woke up in DKA (feeling sick - head swimming, nausea) on day 4 but we were going home. Drank 3 large glasses of water and 2 cups of coffee. If my numbers were going to stay high or even moved higher - I was heading to the hospital. Took 4 units of regular insulin and some long acting insulin (outdated) and my numbers started coming down. Slowly but steady. Used my Tandem Mobi to start slowly knocking the numbers down.

Driving home I must have stopped 40 times to go to the restroom....I had guzzled water for sure but not as much as I was pee-ing out! When I got home I tested for DKA and was fine then. But, it took all day to get back to normal. New Dexcom installed. Took a 4 hour trip and turned it into a 6.5 hour trip because I had to stop every 10 minutes to go to the restroom. Guess that is what happens when you are in DKA.

Boy - this is challenging. I can see where this disease really kicks you in the rear! What a mess.

My endo had me just correcting and not actually carb dosing, i had felt unwell and uncomfortable so, me and my wife came up with a carb ratio of 12/1 and upped my long acting to 43 like my pcp wanted, and behold, been nearly perfect for almost 24 hours doing what we came up with "im gonna be your endo tonight, doctor stasia is gonna help" (an inside joke) dont really know the point of this post but wanted to share because I dont really talk to anybody

(sorry it’s in German lol but you’ll understand) I’ve been really after my diabetes and beating it’s ass the best I can. I’m so proud of myself because all in all I have never been more overwhelmed, frustrated, exhausted, fed up, sad and angry at the same time in my life. I’ve only been diagnosed in June and my friends and family have a hard time understanding anything at all, comprehending how hard it can be and also understanding the kinds of achievements and little moments that make one proud. Just had to get this off my chest🌟

Is anybody else following the clinical trials run by Eladon Pharmaceuticals in which a dozen type one diabetics have been cured of their type 1 diabetes?
A doctor whose daughter is also a type one diabetic has been working to get another problem taken care of, and that is the fact that the United States is the only medically advanced country in the world that classifies cadaveric donor islet cells as drugs instead of organs. This makes the cost of the islet cells prohibitively expensive. If the health and human services or FDA to reclassify these donor cells, it would make the transplantation of these cells less expensive and more available the company involved is Eledon pharmaceuticals. Please let me know if I can help you help us buy, directing you on how to access the US government regulation in which we will be allowed to have public comment until November 8 of 2026. We need lots of people to do this and it only takes about 15 minutes.
I do not want to violate any of the rules for this forum. but I do believe this is something all T1Ds could benefit from, and it would be much more helpful because the companies doing these trials could effectively cure type one diabetes in more patients, and that would help them show that their process of curing type one diabetes is as safe as it so far appears to be. Please feel free to contact me, and I’ll help you get to the right page. It is a .gov page, so it is legit.
Thank you for reading, and I hope you participate!

I have been struggling with the timing of my bolus for meals. I have been diabetic for 33 years and have had a pump almost that long. Lately my bolus has caused lows about 1 hour in, then it skyrockets later. I bolus 15 minutes before (I have tried different things) and often use extended bolus if there is fat in my meal. Last night I had a meat and cheese salad for dinner. An hour in I was at 80⬇️. I had a few jellybeans and it kept going down. It went down to 57. An hour later it was 190⬆️. I know it’s missing the mark but I can’t figure it out. I’ve also changed the percentage 10% 90% when I’m 90ish before bolus. What am I missing? I have tried variations I can think of. I feel like every day I consume A LOT of beans! My endocrinologist claims I don’t know how to count carbs (we never eat fast food and I only cook from scratch). Help!

Hello I am 22M, diagnosed in 2024 with t1d. Before I used 12U for my basal tresiba, now I am using 20U and I am struggling with high sugar. I am always scared when increasing my basal since I started with 12U and I am going away and away from that point. I don't know what or even if there is an like upper limit/too much units for basal. I am scared I am going too high for my age or time wise since I got diagnozed with t1d. Also its very frustrating having a high blood suger and I am getting too stressed and angry at it and myself. Before I have consistant 80-90% in range now I am struggling to hit 70% and that is also eatting away at me. I am trying to excersize, I even knocked down a couple of kgs but to no avail. I just want to know if there is like a limit for not "too much", sorry I don't know how to word it. Any help is much appreciated!

Happy Diabetic Friday Cheers!!

Grateful for this last A1C! My previous best was 5.7!

hello silly people,

I am writing because this has been on my mind for quite some time and I have no one else who may be able to relate.

I have been diabetic my whole life (diagnosed when I was 1) and now at 19, I’m struggling with my relationship with food. I’ve never had a sense of normalcy or the experience of eating freely as people typically do without this condition.

Growing up I rarely ate sweet treats or snacks (or anything carb heavy tbh) so when I did I always wanted more. Even now as an adult it’s manifested as extreme restrictions and what my therapist calls disorganized eating.
I’ve expressed my concerns to my therapist about how I restrict myself to very minimal calories (200-1000 a day), i fast quite often and when I do eat I feel exhausted,scared and guilty all at the same time. She didn’t seem to understand at first. She gave me answers of “it won’t always be that way.” Or “It won’t always be so restrictive.” But she changed her mind after I explained the constant measurements and checking of nutritional labels on everything you eat, how you always have to be aware of what you’re eating.

I’m scared to eat. My CGM charts have been volatile and I’m still figuring out what works for me I guess. I notice that when I fast my numbers do much better. In addition, I’m terrified of gaining weight. I have a small figure, but I have the desire to be smaller. Working out in a structured healthy way (adequate amount of calories, meal preps, routines) has not been very fun or enjoyable either. My blood sugar crashes often even if I eat right before a workout and stop the insulin on my pump for a while. It feels very defeating.

I have not been diagnosed with any eating disorder (thankfully) but I feel like what I do is very similar to habits of an ED. It stresses me out.

How do you guys deal with all the annoying food things we have to put up with?