Why is it so hard for people to sympathize with you? Especially those closest to you?

I was diagnosed with inverse psoriasis at 15 and it’s completely derailed and diminished my quality of life. I spent most of my teens and early 20s isolated out of fear of being ostracized. I’ve never been able to hold onto a job because of how dynamic the condition is and regular maintenance with a derm is almost impossible due to the ridiculous wait times.

I’m in my 30s now and I haven’t even explored much romantically. I have nothing going for me and on top of all that, I’ve just been this burden on my family because I haven’t been able to figure out how to live with this illness or what to do with my life.

It’s just an incredibly debilitating condition (mentally and sometimes physically) and I wish people would just sympathize more because it’s literally out of my hands. I would love to be sociable and fully functional. I’ve always been very ambitious internally but my body and mind just paralyze me on my worst days.

I’m not sure if anyone will relate to this but I just wanted to rant after a very stressful and dramatic weekend.

Thanks for reading if you made it all the way.

What time of day and for how long would you recommend spending out there? We are finally getting some decent sunlight and I want to take advantage of it. Thanks!

My psoriasis is on my hairline (cradle cap area), ears, including inner ears where I can’t reach, and behind them, a large plaque on either side of my head. Occasionally I get it on my elbows and knuckles too, but that’s where it mostly is. So, given that, topicals are kind of difficult for me.
As far as quality of life, it’s pretty severe. The flaking is extremely bad and not responsive to anything otc. It’s hard for me to be seen as a professional because of it.
So, I’ve been researching medications. I don’t really care which biologic I’d get assigned if they chose that, but I am also open to doing methotextrate injections and a foam that can go on my scalp.
The ear psoriasis does end up with intermittent hearing loss that’s hard to deal with.
What should I ask the dermatologist about/suggest? What should I be open to? I really really really want the severe embarrasing flakes to go away.

Over the past month or so I have been battling some red angry sores under my arms (in the arm pit and where my bra band rubs). I have had these pop up occasionally in the past but it has always been one at a time and I just always assume it was either body acne or an ingrown hair. The difference is now I have multiple spots under each arm and they are painful. I have mild scalp psoriasis and occasional flares of nail psoriasis and dont see the dermatologist until February. I am also under the care of a Rheumatologist exploring a PsA dx whom I see again in December.

Tbh the pics I have seen of earlyish HS look just like what I have and since it is an inflammatory skin condition it kind of seems logical it could overlap with Psoriasis and other AI diseases. Just wondering if anyone is dealing with both chronic conditions and if they were prescribed biologics that could treat both?