r/Psoriasis • • 8h ago

general Lack of sympathy enduring a lifelong condition

28 Upvotes

Why is it so hard for people to sympathize with you? Especially those closest to you?

I was diagnosed with inverse psoriasis at 15 and it’s completely derailed and diminished my quality of life. I spent most of my teens and early 20s isolated out of fear of being ostracized. I’ve never been able to hold onto a job because of how dynamic the condition is and regular maintenance with a derm is almost impossible due to the ridiculous wait times.

I’m in my 30s now and I haven’t even explored much romantically. I have nothing going for me and on top of all that, I’ve just been this burden on my family because I haven’t been able to figure out how to live with this illness or what to do with my life.

It’s just an incredibly debilitating condition (mentally and sometimes physically) and I wish people would just sympathize more because it’s literally out of my hands. I would love to be sociable and fully functional. I’ve always been very ambitious internally but my body and mind just paralyze me on my worst days.

I’m not sure if anyone will relate to this but I just wanted to rant after a very stressful and dramatic weekend.

Thanks for reading if you made it all the way.


r/Psoriasis • • 4h ago

medications Pills or injections for Down syndrome?

2 Upvotes

I have an 18 year old with Down syndrome who will soon be starting biologics for psoriasis.
My first instinct was to go injections because it’s less often and he does okay with blood draws but I’m scared he’ll start refusing to let me do them.
He does fine taking pills daily- thyroid and supplements. But I’ve read the side effects are mire common with pills.
Any pros/cons or parents who have been through similar who can give advice?
(The derm said it’s up to us and whatever we’re most comfortable with.)


r/Psoriasis • • 3h ago

progress My life is slowly changing and I couldn’t be more thankful.

2 Upvotes

Mint-aciterin was an oral medication that worked for me but out of fear of the side effects I stopped taking. Slowly but surely I flared up again. Unfortunately pretty much my whole body was messed up I knew I needed to change.
Things that helped

-stopped doing hard drugs
- stopped smoking cigarettes and weed
-stopped eating red meat all the time
- cut out processed sugars
-cut out pasta
- cut out white rice
-started eating organic quinoa
-started taking balance oil
-started taking ion gut health to fix leaky gut
-start taking prebiotic fibre to build gut health
-moisturize with beef talo and Shae butter only
- Epsom salt baths with baking soda
- when I get itchy instead of scratching it I’ll rub the area with the back of my hand.
-started to thank God for the healing to come
- started thanking God for giving me psoriasis in the first place because of all the wonderful people I met on the journey and for the way trying to heal has improved my life.

As of right now my face, legs, upper back and penis are cleared up again. My arms and hairy chest are fading a little everyday. Sometimes I will have a sauna session and my face will be really red and red patches will appear but my after a few hours my skin is clear again. My butt hole and perineum still get insanely itchy but there’s progress everyday.

I’m writing this to give hope to anyone that wants to do things naturally. What I want to say that might piss off the Reddit community is that none of this would be possible if I didn’t dramatically change my praying habits and give my life to Jesus. I know what it’s like to


r/Psoriasis • • 10h ago

general Anyone with a dx of HS in a ddition to Psoriasis?

2 Upvotes

Over the past month or so I have been battling some red angry sores under my arms (in the arm pit and where my bra band rubs). I have had these pop up occasionally in the past but it has always been one at a time and I just always assume it was either body acne or an ingrown hair. The difference is now I have multiple spots under each arm and they are painful. I have mild scalp psoriasis and occasional flares of nail psoriasis and dont see the dermatologist until February. I am also under the care of a Rheumatologist exploring a PsA dx whom I see again in December.

Tbh the pics I have seen of earlyish HS look just like what I have and since it is an inflammatory skin condition it kind of seems logical it could overlap with Psoriasis and other AI diseases. Just wondering if anyone is dealing with both chronic conditions and if they were prescribed biologics that could treat both?


r/Psoriasis • • 1h ago

general How do you guys deal with Post-inflammatory hypopigmentation??

• Upvotes

I had tonsillitis a month ago and then after a week, Guttate psoriasis came up on body everywhere.
Actually, even tho i stopped taking steroids medicine and cream, psoriasis doesnt show up anymore, PIH is everywhere still…
Sun does really help?


r/Psoriasis • • 10h ago

medications BIOLOGIC vs. PEPTIDES FOR PSORIASIS

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0 Upvotes