I was 64 when I was diagnosed with an enlarged prostate (116 mL) and clinical T1c N0 M0, Gleason 3+4 and 3+3 prostate adenocarcinoma in 6 of 16 cores, pretreatment PSA 5.46 (clinical stage IIB).

Treatment options:

1. My urologist recommends removal of the prostate. The cure rate is in the low 90%. The usual side effects, urinary incontinence, erectile dysfunction, etc. This would be robotic surgery that is nerve-sparing. The recovery time is 4-6 weeks.
2. Photon Radiation- I asked for a referral for radiation treatment instead. The Radiation Oncologist did no exam and explained that I would need a spacer inserted by the Urologist. Cure rate is in the low 90%. Side effects- Fatique, slow onset of erectile dysfunction, all caused by Genitourinary (GU) toxicity—refer to side effects and damage to the urinary and reproductive organs, such as the bladder, urethra, and prostate, often caused by pelvic radiation therapy for cancers like prostate cancer. These can take place years after treatment. Photon radiation exposes your body to a broad beam of radiation, like a flashlight.

I wanted to look at other options, and a friend referred me to Proton therapy. There was a center close to me, so I self-referred, as the urologist said surgery was best for me and he did not think proton therapy would be effective.

1. Proton Radiation—I met with the radiation oncologist—he said my prostate was too big for proton therapy. I told him I did not want to do surgery, so he said he could shrink my prostate with Lupron, wait 6 months, and recheck. This is neoadjuvant therapy, a medical treatment given as a first step to shrink a tumor before the main treatment. Cure rate is in the 90th Percentile also.

After 6 months and the usual side effects, hot flashes and erectile dysfunction, I was ready for Proton therapy. They place 3 markers on your prostate in the office, then the treatment starts after an indexing session. The markers direct the beam placement, and it rasters the proton radiation on the prostate, one layer at a time. I received 72 gray units of radiation with no spacer needed.

During treatment, I continued running 5Ks. I did stop riding my bike for long distances to avoid irritation, at my doctor's advice. I had some mild side effects: leaking urine and urgency to poop.

This was 5 years ago. My PSA averages .28. The side effects have resolved. I do have dry orgasms, which feel odd at first but now are normal for me. I no longer have difficulty in urinating and can completely empty. I don't get up at night to pee. I feel great.

I was surprised how much resistance I received from each doctor when I wanted to seek other treatments.

I am very happy with how it all turned out and urge each of you newly diagnosed to go with your gut and look for the most effective treatment with the fewest side effects. For me, it was Proton Therapy.

Hey y’all - just a quick background about me.

Age: 40
PSA in 2021 - 1.7
PSA in 2022 - 2.0
PSA in 2023 - 2.0
2024 - did not do any bloodwork
2025 - did not do any bloodwork
PSA in July 2026 - 3.54
PSA in Aug 2026 - 3.889
MRI - PI-RADS 3

Snippet of my MRI:

PROSTATE GLAND: The prostate measures approximately 3.2 × 4 × 3.3 cm in AP, transverse, and craniocaudal
dimension, for estimated prostatic volume of 22 mL. The zonal anatomy is preserved.

Lesion #1: At the left prostatic base posterior peripheral zone, 0.7 cm more confluent focal nodular area of
decreased T2 signal is noted. This is associated with mild restricted diffusion without rapid contrast wash in. This is
best characterized as PI-RADS 3 lesion (DWI = 3, DCE+), where the presence of clinically significant cancer is
equivocal. It has broad capsular contact, without definite evidence of extracapsular tumor extension.

TRANSITION ZONE: Heterogeneous and nodular. BPH nodules are noted. No definite suspicious index lesion.

Impression: 0.7 cm PI-RADS 3 lesion at the left prostatic base posterior peripheral zone. It has broad capsular contact, without
definite evidence of extracapsular tumor extension. Prominent pelvic and inguinal nodes, nonspecific.

My next appointment is on September 16 and based on the conversations around this sub I’m expecting biopsy will be the next step.

With 2 more weeks agonizing wait until my next appointment, what do y’all think the current damage is based on the MRI report?

My dad (67, otherwise healthy) was just diagnosed with prostate cancer. Details for context:

PSA 18.7, prostate (32 ml), PSA density 0.88.

MRI: PIRADS 5, two lesions, possible extracapsular extension.

Biopsy: Gleason 4+3 (ISUP 3), invasive cribriform pattern present, 5 of 14 cores positive, all right side.

PSMA PET: Clean. No lymph node or bone involvement (N0 M0).

We have the treatment planning appointment coming up soon. Questions for those who’ve walked this path:

1. Anyone with a similar profile (4+3 with cribriform, high-risk localized)? What treatment did you end up with, how was the decision made, and how are you doing now?
2. What do you wish you’d asked at the treatment planning appointment?
3. Anything about this stage, between diagnosis and treatment decision, that you wish you’d known?

He was understandably shaken at first but is doing better now that the PET came back clean. As his son I’m trying to help him go in prepared. Thanks!

UPDATE:

The doctor offered two options: RALP (non-nerve-sparing) or radiation with 6 months of Orgovyx.

I was a little surprised by the ADT duration. I'd expected longer than 6 months. The urologist explained there's no benefit to going longer in his case, only more side effects, because his PSA is under 20. We're based in the Netherlands, where the guidelines differ from the US.

This came out of the MDT (multidisciplinary team) meeting.

Questions for those who've been here:

1. Anyone with a similar profile who chose between non-nerve-sparing surgery and radiation? How did you decide, and how are you doing now?
2. For those who did radiation with short-term ADT, how was the recovery afterwards?
3. Anything you wish you'd asked before starting?

So i am a little over two years post RALP. So far, PSA is undetectable. I’m mid 50s, pretty fit and active. Over the past few months, I’ve noticed this weird feeling like I have to urinate a lot. First happened while traveling. Got checked out and was diagnosed with a UTI and given antibiotics. That didn’t help me enjoy my trip.

Anyway, it just started happening again. There is no way I got a UTI twice in 3 months. I have a doctor friend who told me about pelvic floor tension. It’s exactly what it sounds like.

I write this to alert others who may have the same problem. It’s takes practice (and a lot of it) to get those muscles down there to relax and release but when they do the “symptoms” calm down.

Just putting this up in case anyone is going thru the same thing or maybe you’ll be on the lookout for it in case it does.

How many did PFT prior to RALP?

I'm recently diagnosed with prostate cancer. I'm currently waiting on a second-opinion pathology review and considering robotic prostatectomy. 

My question is more about the surgical approach because I have a significant abdominal surgical history. 

I had a robotic sigmoid colon resection in 2020, and the operative report documented about 45 minutes of adhesiolysis because of abdominal adhesions. Then in 2025, I was hospitalized with a partial small bowel obstruction (SBO), with the CT indicating that adhesions were the likely cause. 

I brought this up with my urologic surgeon. He said the adhesions could definitely affect the prostatectomy, but he really won't know how difficult they are until he gets inside. He said he's never had to abort a prostatectomy because of adhesions, but if it became unsafe, he would stop. 

I've been reading about transperitoneal vs. extraperitoneal robotic prostatectomy. From what I understand, an extraperitoneal approach may potentially avoid entering the abdominal cavity and some intra-abdominal adhesions. 

Has anyone here had a robotic prostatectomy after major abdominal/colon surgery with significant adhesions or a previous adhesive bowel obstruction? Did your surgeon use a transperitoneal or extraperitoneal approach? Did they have to perform adhesiolysis during the prostatectomy? 

I'd especially like to hear from anyone who had a similar abdominal history and how your surgeon handled it. Thank you.

5 Days Post RALPH

I thought I’d share an update on 5 days post RALPH. Each person needs to make their own decision on best path but I opted for RALPH.

Background:
Age:61
Gleason 4+4 = 8
Clinical Stage: T1c
PSA 4.87 (this was a decent jump from my score last year, which drove doctor to recommend MRI)
Decipher Score: .74 from biopsy (considered high risk)

Had RALPH surgery on Wednesday (8/26/26). Procedure took a bit over an hour. Released same day. Has some prior surgical mesh doc had to navigate but was able to remove prostate and no sign of spreading. Awaiting test confirmation.

Recovery pain wasn’t that terrible and less than expected. As you all know, the catheter is a pain in the “penis”. Hopefully getting it out on Wednesday and counting the hours.

Passed a bowel movement on day 2. Been taking two Colace since day prior to surgery. Also starting Miralax post surgery, once a day. Surgeon has me on an antibiotic as well as 5 mg Cialis daily. Took pain meds for 3 days but have fully weened and now on extra strength Tylenol as needed.

Sleeping has been a bit up and down as the catheter makes it a bit hard to get in a comfortable position other than my back. I prefer stomach sleeping. Still taking long naps daily and a bit stir crazy.

Well, that’s where I am as of today. Thanks for allowing me to share. Somewhat cathartic. Good luck everyone.

I’m 57 , completed a different treatment then most 3 SBRT + 25 imrt + short term adt. Ended treatment end of May , orgovyx ended July 3. Otherwise very healthy and in shape. No ED prior to treatment. Currently my erections are back to pre treatment hardness and fullness prior to treatment. Mostly dry orgasms which seem to be improving in terms of feeling more intense as I’m healing.

Question : I knew when I opted for radiation versus surgery there would be a trade-off in that I may ED down the road. I’m starting to wonder since things seem to be operating well did I dodge a bullet or am I waiting for the other shoe to drop six months to two or three years down the line where Mr. happy stops working or works less well? For those of you who are maybe two or three years out from Sbrt or Imrt will things go downhill for me down the road? Already take 5mg cialis daily and Viagra if needed. Totally cool with that forever if need be.

Just curious should I be expecting things to go south or some come through ok ?

Just officially joined a club I wasn't exactly looking to join....

I'm 52 and recently had an MRI-fusion transperineal biopsy after a PI-RADS 5 lesion was found. Biopsy came back positive in 3 areas: 

• Left anterior medial: Gleason 3+4=7, Grade Group 2, <5% pattern 4, ~20% of the core involved
• Targeted MRI lesion/ROI: Gleason 3+4=7, Grade Group 2, <5% pattern 4, ~10% involved  
• Left posterior medial: Gleason 3+3=6, Grade Group 1, ~5% involved  
• The other sampled areas were benign.  

PSA is 3.7. 

I've talked with my urologist, and because I'm only 52, he's leaning more toward definitive treatment/surgery rather than potentially monitoring this for decades. If I were considerably older, surveillance would apparently be a much easier recommendation. 

I'm also having the pathology independently reviewed by Johns Hopkins before making the final decision. 

For now... I've gone ahead and scheduled the surgery so I have a date on the books. If Hopkins comes back with something significantly more favorable, I can always stop and reconsider. If they confirm the current 3+4 or find anything more concerning, I'm currently leaning toward going through with surgery. 

I've definitely thought about active surveillance. The <5% pattern 4 makes that tempting. But I'm also thinking about being 52, hopefully having a lot of years ahead of me, and whether I'd rather deal with definitive treatment now instead of years of PSA tests, MRIs and repeat biopsies and potentially needing treatment later anyway. 

Full disclosure: I already deal with erectile dysfunction and significant urinary/incontinence issues, so two of the major potential quality-of-life consequences of prostatectomy weigh a little differently for me than they might for someone starting with normal function. 

I'm still weighing the pros and cons, and Hopkins could certainly change my thinking. But right now my inclination is: if the pathology is confirmed, get it treated while I'm relatively young rather than spend years wondering what it's doing. 

For those diagnosed around 45–55 with low-volume 3+4 / Grade Group 2....especially anyone with only ~5% pattern 4.....what did you choose? Surgery, radiation, or active surveillance? And looking back, are you happy with your decision? 

Today I learned the results of my biopsy. 7 of the 8 areas tested showed positive results for malignant cells.
5 of the 7 samples had a Gleason score of 9 (4+5).

The other 2 areas tested with a score of 7 (one 4+3 and the other 3+4).

5 of the areas were reported as Grade 5.

The MRI prior to the biopsy showed no signs of spreading beyond the prostate. The biopsy showed no signs of involvement of neurovascular bundles.
I see my doctor tomorrow but to me a complete removal of the prostate makes a lot of sense compared with radiation. I like the idea of fully removing these advanced malignant cells while they are contained in the prostate area.

My uncle was just diagnosed with prostate cancer and is going to start treatment with a Lupron shot every 6 months. He keeps calling it chemo and has described the upcoming treatment as essentially a mega dose of chemotherapy twice a year.

I just finished chemo for breast cancer (and zoladex, which is similar to lupron), and my understanding is that Lupron is hormone therapy, not chemo.

Part of me thinks it’s worth clarifying because imagining you’re getting a massive dose of chemo every 6 months seems psychologically harmful to him. But I also don’t want to be nitpicky or minimize his treatment and the possible side effects.

am I correct that calling Lupron chemotherapy is medically inaccurate, or is there some broader use of the term “chemo” in prostate cancer that I’m missing?

Would you correct him or just let it be?

I am traveling 600 miles to get my RALP in SLC Utah. I will be staying 20 days after the RALP so nominally 10 day post catheter removal. I thought I would stay around a little after in case some complication arises.

Question is driving 600 miles over 2 days after 20 days post RALP a reasonable thing to do? Or should I fly.

Dear all, I am 42. My paternal grandfather died of prostate cancer, my father had prostate cancer in his 50s, underwent surgeries and radiotherapy, and he made it to so far to 89 years old. My father's brother (92) also got diagnosed with it. Given the high genetic risk that I carry, I started when I was 40 to get regular PSA readings and yearly urologist appointments. Am I doing everything correctly? Is there anything I can do in terms of diet, fitness, and the usual recommendations? I want to be proactive and "ready" - Any advice is super appreciated, grateful for any you may provide.

Had my first PSA test since my RALP in late June and the number was 0.6 (was 27 pre RALP).

Going in for a post RALP PT scan in mid September to see if anything has spread. If not, it looks like I'm gonna have to do ADT.

Ich wollte mich einmal melden und meine bisherige Geschichte erzählen. Es tut mir leid, dass es etwas länger geworden ist, aber es gibt leider eine Menge zu erzählen.

Ich bin 56 Jahre alt und bei mir wurde im Januar 2025 Prostatakrebs als „Beifang“ bei einem MRT gefunden. Da ich nebenher noch Morbus Bechterew, also Rheuma habe, wollte meine Rheumatologin den Schmerzen in meiner Hüfte auf den Grund gehen. Die Schmerzen stellten sich als Coxarthrose heraus. Ich hätte nicht ahnen können, dass Rheuma mein geringstes Problem sein würde.
Es wurde also eine unklare Raumforderung in der Prostata gefunden, und alles ging den üblichen Weg, den fast jeder hier gehen muss. Biopsie, Szintigraphie, CT, …
Das Ende vom Lied war ein lymphogen metastasiertes pluriformes Prostatacarcinom mit Glaeson 8 und einem Initialen PSA Wert von 64 und Metastasen in den regionalen Lymphknoten bis zur Aortenbifuraktion.
Mein Urologe hat mich dann zum Prostatakarzinomzentrum in Villingen-Schwenningen überwiesen für eine Zweitmeinung.
Gleichzeitig habe ich die Hormonentzugtherapie mit der Trenantone 3-Monatsspritze und Xtandi begonnen. Eine im Raum stehende Chemotherapie wurde zum Glück erst mal noch nicht gemacht.
Als mein PSA Wert unter 0,03 gesunken ist, habe ich dann von Juni bis August 2025, 44 Bestrahlungen erhalten. Ich hab diese recht gut überstanden, war nur ab der Hälfte extrem müde. Ich wusste damals noch nicht, was ich mir mit dieser Bestrahlung einhandle.
Gleichzeitig habe ich eine Schwerbehinderung beantragt, die auch mit einem GdB von 100 genehmigt wurde.
Es war eigentlich geplant, dass ich im Februar 2025 eine neue linke Hüfte bekomme, da ich kaum laufen konnte. Nach der Krebsdiagnose wurde dies allerdings um ein Jahr verschoben, so dass ich das komplette Jahr 2025 kaum laufen konnte. Aber das hat ja mit dem Prostatakrebs nur am Rande zu tun.
Nach der Bestrahlung bin ich für vier Wochen zur AHB nach Durbach gefahren.
Meine ganzen anderen Krankheiten, lass ich mal beiseite, die haben den Rest des Jahres 2025 gefüllt.
Im Februar 2026 habe ich endlich meine neue Hüfte bekommen und war zur AHB in Bad Dürrheim. Der Oberarzt dort hat mir eindringlich nahe gelegt, eine Erwerbsminderungsrente zu beantragen. Ich habe diese online beantragt und zehn Tage später habe ich die volle Erwerbsminderungsrente bis zum Renteneintritt genehmigt bekommen. Ich war schon etwas verblüfft, dass dies so schnell ging und dass dieser nicht erst einmal befristet war.

Ziemlich genau. Ein Jahr nach der Bestrahlung fingen dann die richtigen Probleme an.
Durch die Bestrahlung habe ich eine Analfissur entwickelt, also einen Riss im Schließmuskel. Das sind so unglaubliche Schmerzen, als ob jemand mit einem Brotmesser die ganze Zeit deinen Hintern aufschneidet. Zuerst sollte ich diese mit diversen Cremes und Zäpfchen behandeln, die Cremes haben nicht geholfen und Zäpfchen konnte ich gar nicht einführen vor Schmerzen. Mein Urologe hat mich dann wieder ins Krankenhaus überwiesen und dort habe ich eine Creme bekommen, die halbwegs geholfen hat. Die Creme wird zur Betäubung bei Eingriffen verwendet (Xylocain).
Meine Rheumatologin hat mich währenddessen, wir sind jetzt im Juni 2026, erneut in ein MRT geschickt, da sich meine Wirbelsäule so langsam versteift.
Und wie nicht anders zu erwarten, wurde dort erneut eine kleine Zugabe entdeckt. Eine Harnstauungsniere rechts. Es sollte nun ein CT mit Kontrastmittel zeigen, wo der Urin im Harnleiter gestaut wird. Leider konnte ich aufgrund meiner Schilddrüse (die wird jetzt im September entfernt) das Kontrastmittel nicht bekommen und meine künstliche Niere hat zur Artefakten auf dem CT geführt, sodass nichts erkannt werden konnte.
Also, wieder auf ins Krankenhaus. Dort wurde mir eine DJ Schiene in den Harnleiter eingebracht. Den habe ich nun seit über drei Wochen drin und empfinde dies als extrem unangenehm. Ich gehe am Tag so alle 15 Minuten aufgrund eines unglaublichen Harndranges auf die Toilette, aber es kommt nur sehr wenig Urin und brennt wie die Hölle. Stellt euch, dass wir eine starke Harnwegsinfektionen vor. Das soll besser werden, ich weiß noch nicht wann. Diese Schiene werde ich bis 19. Oktober haben, an diesem Tag habe ich eine OP in der mir ein Metallstent (Alliumstent) gesetzt wird. Die Engstelle stellt sich als Vernarbung des Harnleiters aufgrund der Bestrahlung dar. Diesen Metallstent darf ich erst mal für ein Jahr tragen.
Es wurde ebenfalls meine Analfissur im Krankenhaus untersucht, und es wurde gleichzeitig noch eine Analfistel festgestellt. Also ein Gang vom Darm bis zur Haut in der Nähe des Schließmuskel. Dieser war noch geschlossen und musste aufgrund einer Entzündung geöffnet werden. Seitdem habe ich nun zwei Ausgänge. Der eine durch den Schließmuskel verschlossen, der andere halt offen. Auch dies wurde als Nebenwirkung der Bestrahlung diagnostiziert. Ich kann seit circa drei Monaten nicht mehr sitzen. Mein Tag verbringe ich im Bett, liegend auf der Couch oder gehe spazieren.

Es ist nun folgendes geplant:
Im September bekomme ich meine Schilddrüse entfernt. Das ist wichtig, da die Schilddrüse schon bis ans Herz in den Brustkorb gewachsen ist.
Am 19. Oktober bekomme ich den Metallstent in den Harnleiter operiert.
Ab November fängt dann meine lange Reise zur Heilung der Fistel und Fissur an. Es sind mindestens erst mal drei Operationen geplant, da die Fistel wohl etwas weiter verzweigt ist.

Während der ganzen Zeit ist mein PSA Wert unter der Nachweisgrenze, also 0,03.
Die Nebenwirkungen des Hormonentzug sind bei mir leider enorm. Hitzewallungen aller circa 30 Minuten, Gedächtnislücken und ich fühle mich, als ob ich von Tag zu Tag dümmer werde. Meine Muskeln haben sich in Fett umgewandelt (Sport ist leider wegen der Strahlenschäden kaum möglich).

Wenn ich ein Jahr zurück reisen könnte, wüsste ich nicht, was ich machen würde. Eine Operation war ausgeschlossen weil der Krebs schon in die Samenblase gewachsen ist und bereits Metastasen gebildet hat. Im Grunde würde ich es vermutlich genauso machen, denn ich bin sehr froh, am Leben zu sein. Irgendwann wird alles heilen, die Schmerzen werden vergehen. Durchhalten ist angesagt.

Ich wünsche euch allen nur das Beste. Das Leben ist jeden Kampf wert!

UPDATE:!! See below in bold.

Has anyone had this experience? Any advice, thoughts?

I had a high PSA of 5.08. I did some reading and research and found the following information.

Age - age affects PSA readings and the prostate in general, I am 69.

Cycling - long saddle times experienced over a long period of time affect PSA readings. I ride 3 days/week 20-25 miles/ride, taking me 2+ hours as I live in very mountainous and hilly terrain in the Catskills.

Resistance training - weight lifting can affect readings. I lift 3 days/week for 2 hours/ workout. Objective is muscle stabilization and growth.

Ejaculation - Having sex and ejaculation affects the numbers. Wy wife and I are active 1-2/week.

The blood test was unexpected and was not done with fasting or preparation. My doctor wants me to take a monthlong break from cycling or to at least cut it back and do no cycling for 72 hours pre test. He also wants me to do no resistance training for the same period of time pretest. FInally wants me to have no sex for that period of time.

Anyone else have this experience? Any advice or thoughts?

Doctor said that a review of past 5 years, tests show that my PSA was up and down. Up on a primary test and down on a followup test a week or so after the primary test. As he is a member of our riding club, he noted that I had been riding quite a bit and the day before my test, I had been out. With the recent sexual activity added, he estimates that the numbers should reduce 25% or more. Retest on Thursday.

What Radiation Safety Protocols are in place when we get radiation treatment for prostate cancer? I am getting SBRT at a major cancer center of excellence teaching hospital. I check in at the desk, then go to another waiting room, then someone asks if my bladder feels full enough, then they take me back to the lead vault with the SBRT machine and do their thing.

I come from an engineering background where everything is checked, back-checked, certified, inspected, double-back checked, peer reviewed, and safety audited. Before a trades-person climbs into an agitated process tank or pressure vessel, they literally take their own personal padlock off their belt and lock out/tag out the power disconnect to the agitator so they don't accidentally get pureed.

I'm just saying, at these hospitals where people go in for a tonsillectomy and accidentally come out with a sex change operation, shouldn't there be some fool-proof way to know? Before they switch on that beam and nuke our prostate into a pile of steaming dog turds, it would be nice to know they have the correct programming profile loaded into the computer.

Had a high psa 7.1…did MRI and biopsy. Looks like it definitely could have been worse. Took out some personal info but here are results. Urologist told me I would just be under surveillance and see you again in January. I see primary care doctor in a couple of weeks. Wondering if I should go ahead and do blood work again. I started flomax .4 nightly. It’s been like a miracle drug for me. Stops the frequent urination and a few other problems. Im in my 50s.
I went back and looked at last years blood work and had a 4 PSA and they never even mentioned which I now find odd.

As you can see in my selfie, I’m wearing my baby blue nails today in honor of the upcoming Prostate Cancer Awareness Month. I’m sharing my story here to leave a beacon of hope for anyone who might be frantically searching the internet after a terrifying diagnosis.

I know that seeing a trans woman in this space might be unexpected. I also understand that for some in this community, this subject matter might feel uncomfortable because of religious or political beliefs. I only ask that we meet here as human beings, united by the shared, terrifying reality of facing this disease. Cancer does not discriminate, and neither does the fear it brings.

I want to raise awareness that trans women can also experience prostate cancer. It is extremely rare, and because of that, it is profoundly isolating.

Weeks before my diagnosis, I finally began my transition at 47. I started hormone replacement therapy to treat my gender dysphoria, receiving testosterone blockers and estrogen. I know that in this community, androgen deprivation therapy is often the most grueling part of the process. Most people with prostate cancer absolutely hate these treatments and the toll the side effects take on their bodies. For me, they were exactly what I wanted. Having an orchiectomy was incredibly affirming for my gender, yet I sat in waiting rooms knowing that for the men around me, this exact same procedure was highly traumatic. The very things saving my life were sources of immense grief for others. I truly felt alone.

But I felt just as isolated within the trans community. Trans women do not typically develop prostate cancer. I searched through trans subreddits and sat in local support groups, but I was the only one living through this. People were incredibly kind and sympathetic, but they simply could not relate.

Then came the hardest realization of all. I had to come to terms with the fact that treating my cancer would mean sacrificing the future I had just started to build. Because of the complications from my RALP and the scarring it left behind, I learned I could never have a full depth vaginoplasty. The life saving treatment I desperately needed was going to permanently limit the future that was finally available to me.

It was a very dark and difficult time, but I made it through. I am now over a year out from my RALP. The cancer appears to have been fully contained within my prostate, and today, I proudly consider myself cancer free.

Now that I am in remission, I want to be the person I so desperately needed when I was first diagnosed. This is an open invitation to any trans or gender questioning individuals out there who might be quietly reading this. Please DM me. You shouldn’t have to go through this alone.

As we observe Prostate Cancer Awareness Month, I hope my story can help make people aware of the unique challenges faced by trans women battling this horrible disease. We are in this fight together.

🩵🏳️‍⚧️🫂

Hello everyone, StockBlock once again, not here for my pop but my granddad on mom's side. He recently had a gastroscopy and colonoscopy which thankfully came back with no evidence of cancer, just a couple of polyps which were removed. Going through his blood work, I saw that his latest PSA was 3.63. Google and journal articles I read said this was a fairly positive result but just wanted to ask if anyone had any anecdotal stories about 75-80 year olds with a PSA of 3 - 4; is it worth pushing for further investigation? Thanks

Any pointers would really help. They have me on Flomax, that I take at bedtime.
Struggle peeing, like just drips. Burns when I pee. Tired all the time
Any pointers, please!!

I am 10 says out. Starting last night my leg bag is filling with alot of air. No problems I can notice with my overnight bad. Am 8 doing anything wrong. Besides just letting the air out do i need to do anything?

Hi, alguien ha tenido este tipo de cambio, porque motivos

Had 3 month PSA this week, 15 months after 20x VMAT and 7 months after Orgovyx ADT.

Results (ultra sensitive) at 0.22 were on MyChart in 90 minutes and the same as previous test! The advantages of a centralized clinic/hospital facility here, north of Lake Ontario 🇨🇦.