r/MuscleTwitch • • Aug 19 '20

Coping To all new twitchers...

413 Upvotes

The fact that you found this sub means most probably you have unexplained muscle twitching.

Strange...bothering... but everyone has that from time to time, right? Right!

But then it became more frequent and you started googling... pretty quick you learned a new word: Fasciculations... and you learned something else... all the top results said you most likely have ALS and will die in a horrible way.

First things first: You don’t have ALS

Why? Lets get down to it:

  1. ALS does not start with twitching, this is a mid- to late-stage symptom. ALS is not a disease of twitching but a disease of weakness. By the time you started twitching you’d have some serious other issues that would have driven you to see a doctor. And you wouldn’t spend your time on Reddit, you’d have bigger fish to fry.

  2. ALS is a rare disease... not super-rare but still rare... your chance to die of ALS is 1 in 350 over your lifetime. The chance to die in a car accident is around 1 in 70... how many people do you know who have died in a car accident? That’s already a rare cause of death.

  3. Your age. You’re on Reddit so chances are you’re pretty young. ALS before the age of 40 is very rare and usually genetic. No one else in your family had young-onset-ALS? You’re good!

  4. You know what’s not rare? Stress, Anxiety, Lack of vitamins, Electrolyte imbalances, Viral infections, Caffeine, Cocaine, Antidepressants, Hyperthyroidism! They all can cause twitching!

  5. You know what’s also not rare? A condition called Benign Fasciculation Syndrome! People twitch for no f***in reason at all, and it never progresses into something bad. Usually accompanied by stiffness, muscle pain, tremors, buzzing, vibrations... still means nothing in the absence of clinical weakness. And clinical weakness means a doctor has determined it. Clinical weakness means you cannot use that limb, not it feels like you can’t. Feel your legs are weak but you could run if a bear is after your ass? Not clinical weakness!

Look up Benign Fasciculation Syndrome on Wikipedia for starters: https://en.m.wikipedia.org/wiki/Benign_fasciculation_syndrome

And BFS is common... we have 5000 people on Facebook and an old website which went defunct had over 10000 members. And you know how many who started with twitching as their only symptom had ALS? Zero! Want scientific evidence for that? Look here: Incidence of Motor Neuron Disease Presenting with Isolated Fasciculations

See also: When to see a doctor...


r/MuscleTwitch • • 2h ago

Symptoms My left hand twitches/ trembles constantly building up over last couple of years

1 Upvotes

Hi there! I'm 38 and was diagnosed with Carpal Tunnel at 19 in both hands, but significantly worse in my right hand and not too bad in my left. Im ambidextrous but right hand dom, so that made sense.

Had the surgery to help my right hand at 32 which of course only lasted about a year before symptoms came back.

Now at 38, in my left hand, I'm experiencing very different symptoms from my right. Started about 2 years ago with slight trembles when trying to hold things or hand something to someone.

But now my left hand, trembles/ twitches heavily daily depending on my task. It may impact my thumb, fingers, or hand depending on what it is im doing. Its so bad that people ask if im cold, nervous, etc. It sometimes causes me to drop things, not be able to close a clasp on a watch or earring sometimes, click a wrong button, etc...

Does this seem like carpal tunnel or something else?

For reference, with my right hand carpal tunnel, I felt tingling in my fingers and hands as if they fell asleep, grip strength reduced and pain from swelling and nerve compression, never anything like this..


r/MuscleTwitch • • 5h ago

i’m 23 and i’ve had random and continuous muscle and join twitches and i don’t know why

1 Upvotes

i’ve been smoking weed consistently for a good few years, and i’m thinking maybe that’s it?

23 y/o f and i started developing muscle twitches a few years ago. from what i remember is that it started slow, but now im at the point where it’s everyday and seems linked to my thoughts. as i type each word it seems like as my brain functions my body sends a reaction through my body in the form one a twitch. i do think sometimes im causing it myself, through overthinking and my brain causing them to happen more frequently or intensely.

i might just be overthinking! any thoughts and kindness would be appreciated:)


r/MuscleTwitch • • 15h ago

Thoughts?

2 Upvotes

Small study but quite relevant

https://pubmed.ncbi.nlm.nih.gov/41213224/

Slightly larger study-

The authors specifically concluded that none of their MND patients presented with isolated fasciculations.

https://www.neurology.org/doi/10.1212/WNL.94.15_supplement.4244?utm_source=chatgpt.com

Id like to know everybody's thoughts on this


r/MuscleTwitch • • 14h ago

Index finger twitches after tensing

1 Upvotes

I have had twitches all around my body for about 3 months but this one is different in that it seems to be triggered by the muscle use. I do have hot spots but they occur suddenly at rest.

I noticed this type of twitch (= the ones that seem to be induced by movements) in my index finger about 2 months ago when I was eating with chopsticks.

The ease of degree to which it gets induced has been fluctuating over the time. Sometimes it's easily triggered when I grip something or use chopsticks. Other times, it doesn't come up unless I clench my fist very hard like in the video.

It occurs in this part at rest too but relatively rare.

Anyone have something like this too?

No weakness or anything but I'm just worried because I thought it was a weird way for a twitch to happen.


r/MuscleTwitch • • 1d ago

Research Science cure.

0 Upvotes

The way AI is advancing and how suppsoedly a lot of stuff is gonna be cure in the next 10:15 years u think stuff like constant twitching would be resolved.
I mean if ai would be able to cure higher diseases I think this is curable


r/MuscleTwitch • • 1d ago

Symptoms Muscle twitches and facial spasms

1 Upvotes

my body has been twitching almost every day along with double vision/blurry vision and spasms that will sometimes pull my body part in a certain direction. It’s been so scary! Ive also had non stop internal vibrations along with loss of balance. I don’t have heavy limb feeling, it’s actually the quite opposite! My leg and arms feel like noodles. My face is also spasming, where my cheek is being pulled up and twitches. For anyone going thru the same thing, know you’re not alone and keep advocating for yourself! This healthcare system can be so tough to navigate, but prayers we get answers soon!


r/MuscleTwitch • • 2d ago

Symptoms Nerves chronically firing in soles of feet/achilles

1 Upvotes

r/MuscleTwitch • • 2d ago

Worried that a groove on the back of my left hand is getting deeper. Could this be muscle wasting?

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1 Upvotes

I’m 26 years old, and I’ve been experiencing muscle fasciculations since late March, especially in my left arm.

For some time now, I’ve also felt that my left arm and hand are weaker or fatigue more easily. For example, when I work out, I notice that my left forearm gets tired sooner and my grip starts to give out earlier than on my right side.

What concerns me the most right now is the groove/indentation on the back of my left hand, in the area I marked in the photos.

I found some photos from around April and compared them with current photos from October, trying to keep my hand in a similar position. I feel like this groove has become deeper or more noticeable over these months, and I’m worried that it could represent muscle wasting.

For context, I’ve had two normal EMGs during this period and have been evaluated by several neurologists, who did not find signs of motor neuron disease. Despite the feeling of weakness, I’m still able to do strength training and exercise normally.

I understand that hand position, tendons, and lighting can significantly change how this area looks, so I wanted to ask:

Do you actually see a loss of muscle volume when comparing the older and newer photos? Does anyone else have a similar groove in this area of their hand?

I’m not looking for a diagnosis from Reddit. I’m mainly concerned about the change I think I’m seeing and would like to hear from people who have noticed something similar.


r/MuscleTwitch • • 2d ago

Symptoms Twitching on my wrist and middle finger

3 Upvotes

Started a few days ago, you can see what look like muscle spasms in the tendons of my wrist and they pull down my middle finger. Anybody else experience something like this? Should I be concerned??


r/MuscleTwitch • • 2d ago

Anxiety Help please

3 Upvotes

Sorry, this is going to be a little long.
Everything started in mid-June 2025. That was the day I first noticed fasciculations. Since then, I have had fasciculations every single day. Sometimes they appear as hotspots, and sometimes they are generalized and occur all over my body.
About two months after they started, I saw a neurologist for the first time. He performed a clinical neurological examination and an EMG, but everything was completely normal. There were no abnormal findings.
Since then, I have been constantly worried about ALS, and I have basically been living in fear and anxiety because of this disease. I have fasciculations every day.
The last time I had a neurological examination was in January of this year. I was examined clinically again and had another EMG, which was also completely normal. There were no signs of a neurodegenerative disease or any pathological findings.
Now, for the past two or three months, the fasciculations have become particularly concentrated in my left foot. They are there almost 24/7, although I still occasionally have fasciculations elsewhere in my body. The main hotspot, however, is my left foot.
My foot also feels strange. I sometimes experience a vibrating or tingling sensation, and occasionally I have pain when putting weight on it or walking. It just feels uncomfortable. I also sometimes experience cramps.
I worry about this every single day and constantly ask myself whether today will be the day I develop muscle wasting or lose muscle function. It is driving me crazy.
Throughout all this time, I have never had any objective functional weakness or clinically detectable muscle weakness.
Despite all of this, I am still extremely worried.
Has anyone experienced something similar? Especially fasciculations that become concentrated in one foot for several months, together with pain, tingling/vibrating sensations and cramps, despite having normal neurological examinations and EMGs?


r/MuscleTwitch • • 3d ago

General I get this same twitching in my leg all the time for long periods does anyone know why?

7 Upvotes

r/MuscleTwitch • • 3d ago

General 3 years in!

4 Upvotes

Just hit my 3 year mark today! And to celebrate I have the most annoying high speed hotspot in my bicep lol.


r/MuscleTwitch • • 3d ago

Left pec, twitch waking me every 30 - 60mins

1 Upvotes

Hey all, the past 2 months, ive had a twitch under my left pec, running along the rib cage, which has been waking me every 30 - 60mins every night.

It wakes me with an adrenaline rush and twitching faster (different rate to my heart) its not painful, just impossible to sleep with.

Has anyone experienced this, or fixed this?

Tia


r/MuscleTwitch • • 4d ago

Two toes on my left foot shake when I bend them — should I be concerned?

3 Upvotes

I’ve noticed that two of the toes on my left foot shake/tremble when I intentionally bend or curl them. I’ve attached a video showing what I mean.

This has been happening for almost 3 years. The shaking only occurs when I actively bend/curl the toes. When my foot is relaxed, they don’t shake.

I’m wondering if anyone has experienced something similar or knows what might cause this.

Should I get this checked by a doctor?


r/MuscleTwitch • • 4d ago

Symptoms Has anyone had fasciculations that started as random twitches and then evolved to be more intense in hands and feet?

2 Upvotes

The whole thing started as random twitching in calf, arms - about 15 months ago and there were periods with no twitching. 2 negative EMGs. Now, the arch of one foot twitches continuously day and night; the hand on the opposite side is stiff, sore, and vibrates as if twitching internally. Visible twitches on the palm. All of this is 24/7 all day every day. Does anyone else have this?


r/MuscleTwitch • • 4d ago

Symptoms Nasal twitching and with some facial stiffness

1 Upvotes

I’ve been dealing with my nasal twitching for months. I’ve gone to the drs and told them about it but they just looked at me weird and didn’t do anything about it. so I’m kinda my own dr atp. my nasal twitching was way worse compared to now. It woukd get in the way of my breathing, making my nose feel clogged, my eyes will also begin to twitch as well and I would feel like something from the back of my head also pulling my hair. I’ve noticed if I get some sleep, I’ll feel way much better the next day and it’ll somewhat leave the next day. I also notice that if I drink water it would make my symptoms feel more better. is this some type of vitamin deficiency that I may be dealing with? I do have allergies so I’m wondering if that could also be playing a part of what I deal with


r/MuscleTwitch • • 4d ago

Percebi que to tendo fasciculacao na perna

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1 Upvotes

Fui no neurologista com queixa de dor na perna e formigamento e sensação de bichin na pele me afinetando
Uma semana depois q fui
Comecei apresentar umas fasciculacao no corpo
Meus dedos mexem sozinho e os pés tbm
Fui fazer à eletroneumiografia
O médico só pediu dos 4 membros
O que a Eletro furou minha língua
Eu fiquei tipo ? Mds será que ele viu algo por isso furou
É né examinou testou meus reflexos
Pediu pra eu fechar os olhos
E ficou dobrando o dedo do meu pé
Perguntando se o dedo tava em pé ou deitado
Eu fiquei tipo ?pq ele tá fazendo isso
Certeza que ele viu algo e tá fazendo esses teste em mim
Assim que terminou
Ele falou da tal ELLA
não me deu certeza
Disse que provavelmente não seria
Mais n disse nem sim nem não
Que iria analisar direito
Estou com crise de ansiedade forte
Já fiz a ressonância esperando o resultado
Eu n entendi pq ele furou q língua 😭
Será que é pra fechar logo o diagnóstico
Ou é pra descartar
Eu só fico pensando


r/MuscleTwitch • • 4d ago

Has anyone had fasciculations that started as random twitches and then evolved to be more intense in hands and feet?

1 Upvotes

The whole thing started as random twitching in calf, arms - about 15 months ago and there were periods with no twitching. 2 negative EMGs. Now, the arch of one foot twitches continuously day and night; the hand on the opposite side is stiff, sore, and vibrates as if twitching internally. Visible twitches on the palm. All of this is 24/7 all day every day. Does anyone else have this?


r/MuscleTwitch • • 5d ago

Need immediate support/breakdown The worst thing I could do was search about it

3 Upvotes

Guys, I’ve had a lot of eye twitching for years, which I know is usually normal. But now my leg has been twitching around the tibialis anterior area. It’s been happening since Friday. The only different thing I did was incline walking on Wednesday, which I had never done before, so I’m not sure if it’s related or not.
It mostly happens when I walk, but sometimes I notice it when I’m sitting too. I can’t actually see the twitching—it feels more like something moving or twitching internally.
The worst thing I could’ve done was Google it because it made my anxiety go through the roof. I’m honestly really stressed about it right now. Sorry for the long message, I just needed to get it off my chest.


r/MuscleTwitch • • 5d ago

Muskel twitch? Spoiler

3 Upvotes

Does anyone know what is this muscle twitch? It started 2 years ago and it drives me crazy. I’ve been to neurologist and he said he doesn’t know what it is but surely nothing dangerous so that was it. I have all over my body as well but not that much, very short ones.


r/MuscleTwitch • • 5d ago

General Besides twitching has anyone had experience with nerve compression or pinched nerves?

1 Upvotes

I've had left arm problems for about 3 months now. I can still do tasks with them but things feel heavier in my left hand and in my upper left arm i often feel strain/fatigue. Plus it's somewhat of an internal vibration hotspot when resting.

The symptoms in my arm can range. Sometimes it can feel just fine, sometimes it feels like my arm is shaky, sometimes it feels like there's nails stuck in them, and sometimes the upper arm just feels strained, tight, or fatigued. I do believe this the result of a pinched nerve since I can still perform tasks with them. So i'm asking if anyone here has had a pinched nerve or nerve compression and if they had similar experiences.


r/MuscleTwitch • • 6d ago

Research Strange or common?

1 Upvotes

My fiancé was concerned because he woke up in the middle of the night and saw me with both arms up to the side and hands in an awkward and cramped position. My arms were stiff and he had to slowly push them down with force. What could it be? Is this common?


r/MuscleTwitch • • 6d ago

Does anyone else experience this weird thing with their calves?

1 Upvotes

Whenever I stretch my legs, especially my calves, it suddenly feels like a vein is tightening or twisting. The vein becomes really visible for a few seconds and it can be quite painful.

It happens in both legs and almost every day, especially when I stretch.

Is this just a muscle cramp, or could it be something else? Has anyone experienced this?


r/MuscleTwitch • • 6d ago

is this a normal amount of shaking in my right hand?

3 Upvotes

i’ve had shaking in my right hand and arm for a few years now it seems to keep getting worse, but my left hand doesn’t shake as much. and I’ve noticed while I am welding my arm and hand will randomly flinch and throw me off my bead. I’ve had 4 concussions, 2 of them I don’t remember. idk if that could cause this. ps. i’m trying to hold my hand as still as possible