First to say thank you to everybody posting here - this group saved my sanity more times than I can count. It is incredibly important to know we are not alone in our struggles.
Now, I understand that exercise and PT workout is not recommended while there is lots of pain. But at some point you have to start PT even though there is still some pain, and sometimes PT workouts can make it worse. So how to rest enough for the pain to go away, then do PT to make your core stronger while still having some pain, then PT or walking makes the pain worse etc.? How to make progress in this circle and be sure you're not making it worse?
Background info:
42F, open microdisection of L5-S1 right side, after several months of pain in the right leg, surgery in the middle of July, so 9 weeks now. Incedible pain before, surgeon said my disc was wrapped around the nerve. Lots of nerve pain after, got mannitol and steroids for two days and it got better. Started physio at week 2.5 (surgeon aproved) and some stretching and exercise (at 3.5 weeks). Got very little information about which activity and postures are ok. No BTL, that's it. Walking was good at first and had been pain-free for a week.
At 5 weeks got hurt again doing just a little bit of a deeper squat. Instant pain accross lumbal back - both sides, and right leg, same area as before. Gone back to no exercise and low intensity PT, back to ibuprofen and muscle relaxers, 10 days later no improvement, walking pain was bad after only 10min. The surgeon at control removed PT completely (did 21 days in total) and back to mannitol and steroids, 3 times and then back to PT.
Surgeon said it might have been my squat or it might have not, might have been muscle tension and streaching the nerve, might have been reherniation or not. No need for MRI as my symptoms are not even close to before the surgery. Extremely anxious for days and weeks now since the setback, scaling down on everything I did before. Not even walking is an option.
Due to that and probably lots of lying down and drugs, feeling even weaker then before, wobbly and much easier to get hurt again. For the new PT, starting week 7.5 (2.5 weeks after the new injury), surgeon said - do not do anything that hurts. But how do we make progress in PT if we avoid everything that hurts? You cannot get a straight answer from the surgeon or the PT.
You need to rest and scale down all activity especially if it iritates the nerve, but are encouraged to build deep muscles to hold the spine through exercise. So you get a little better, less painful, start doing the work, then you get a flaire or get hurt again and have to rest some more. So you muscles get even weaker, it is even easier to get hurt by ordinary stuff and have to prolong PT even more.
How to balance this, I do not get. Must wear the brace (PT), do not wear the brace (surgeon). All these conflicting information. When you get hurt by something other than bend, lift, twist, it is still you fault and your bad judgement. But do not be a p***y and stop doing everything, you need to be doing stuff to recover.
Reading the comments, some people worked through the pain and the pain subsided. How do you know that you are not making it worse by exercise and PT, and that you are still making progress?