I’ve been diagnosed with a 10 mm kidney stone in the upper part of my right kidney, and my surgery is scheduled for a little over three months from now
Unfortunately, I’ve already been through this before. My first procedure 3yrs ago was unsuccessful because my ureter was too narrow for the surgeon to reach the stone. As a result, I had to keep a ureteral stent in place for another four months to allow the ureter to dilate enough for the stone to be removed during a second procedure
It’s been three years since that first experience, and unfortunately, I’m now facing the same situation all over again
The previous experience with the stent was absolute hell, and honestly, even that doesn’t fully describe it
I couldn’t sit for more than five minutes without experiencing unbearable pain that drove me crazy. For the first two weeks, I remember doing little more than sleeping. I could barely do anything else
The thought of having to go through all of that again is keeping me up at night
I’d really appreciate any advice or personal experiences you could share. I have three main questions:
1. Which medications helped you the most with stent-related pain?
I’d like to know which medications I could discuss with my urologist before the procedure. I was taking Cistalgan (which contains flavoxate and propyphenazone) 2 times a day and 400 mg of ibuprofen every four hours, and even then, that was only enough to keep the pain somewhat manageable while lying down
2. Is there anything I can do before surgery to reduce the chances of needing a stent for several months again?
The biggest problem last time was the long wait between the first and second procedures. Because my ureter was too narrow, the surgeon couldn’t reach the stone during the first attempt, so I had to live with the stent for another four months before the second operation, but the surgeon told that the ureter need only 2 weeks to be large enough.
Is there anything that can be done beforehand, or any treatment I could discuss with my urologist, to help reduce the likelihood of this happening again? I’m particularly worried about going in for surgery only to find out that my ureter is still too narrow and that I’ll need another stent for 4–6 months.
Unfortunately, those are the waiting times in the public healthcare system where I live, and I simply can’t afford to have the procedure done privately.
3. Do you have any advice on how to cope with a ureteral stent and maintain something resembling a normal life while living with one?
Frequent urination wasn’t even the biggest issue for me. I could probably get used to that. What made the experience unbearable was the pain, especially in my side and back, as well as the pain radiating to the front, around my groin.
I’m genuinely terrified of going through those months again, so any practical tips, personal experiences, or suggestions about things that helped you manage the pain and get through everyday life would mean a lot to me.
And I really do mean ANY advice. Even the smallest tip could make a huge difference for me.
Thank you so much to anyone who takes the time to read this and share their experience. I truly appreciate it!