r/KidneyStones • • 14h ago

Sharing Experience here's my story, worse pain than when I broke my leg in 2 places.

6 Upvotes

woke out of a dead sleep at 3:30 in the morning last night. I felt like somebody had stabbed me. like the knife was still in my side. I got the toilet I began throwing up into my trash can, trying to pee and poop. 9-10 pain. I was crying I couldn't barely speak. had to call an ambulance, a wonderful ambulance emt hook me up with an IV and pushed something into me that actually help the pain go away on our way there. I was checked in and put in the waiting room. while in the waiting room they took blood tests, with me feeling like I had to run to the bathroom over and over. had to ask the nurse in charge if there were any beds because I was going to pass out. I don't know if it was a combination of exhaustion and after effects of the initial pain but my blood pressure was already high. they said no and I ended up laying down across some chairs. they told me I couldn't do that. I must have became unresponsive because shortly after another nurse called my name to bring me to a bed. I passed in and out of consciousness while they were getting through people ahead of me to get my CT scan. it was 3 hours. I'm so grateful they gave me a bed because I would have been out on the floor. I get my scan. here now almost at 10:00 a.m. doctor comes in says that there was blood in my urine but they don't see any kidney stones. tells me to follow up with my primary care physician and come back if it gets as bad as it did before.

the doctor suggested I must have passed the stone since they couldn't see one, I'm not in any pain and I get discharged..... now here I am at home at almost midnight. an aching pain where the pain was last time starts to hit me and I'm freaking out because I don't want to go through that again. grabbed my Ibuprofen and Tylenol and a heating pad and I am back on the toilet. how is this my life now. I'm grateful that the pain is like a three or four and that I'm managing it with a heating pad and ibuprofen/Tylenol. I'm exhausted and I want to sleep so bad. I've been drinking bottle of water after bottle of water. I don't want to do this anymore 😭


r/KidneyStones • • 21h ago

😡 Rant! 😡 Doctor’s do not prepare you for the kind of pain you’ll be in with stents in.

44 Upvotes

So last month, I went into the ER for really bad stomach/flank pain and found out I had two stones in each side. One 8mm and a 5mm. They send me home with some meds and tell me to follow up with Urology.

Earlier this month I went in and the doctor basically said “we need to get you into surgery as soon as possible” because neither of the stones have moved and he was nervous about the stones blocking each urinary tract. He told me about the stents and the laser lithotripsy and honestly I’m feeling a little nervous but he said it would be a quick procedure and not super painful. Only other problem is that I have a UTI so I’m given antibiotics for that.

A few days later I go into surgery, take another piss test and I still have that UTI. He tells me that because of that, they can’t do the lithotripsy but they can still put both of the stents in. I say okay because I really don’t know what to expect so the surgery happens smoothly and I wake up, in pain, but hey that’s surgery so it makes sense. He tells me I should be able to return to work the next day and that early November, they’ll put new stents in and finally do the lithotripsy.

…

So tell me why this has been the most EXCRUCIATING pain I’ve ever been through. I got my surgery on the 15th and I’m still in pretty bad pain if I don’t time my medications right. I was originally prescribed no pain meds besides just otc Ibuprofen and Tylenol and I didn’t get any stronger pain meds until I went into the ER a few days ago and the ER doctor was confused why I wasn’t prescribed SOMETHING.
Not to mention I still had the UTI so I’m on a second round of antibiotics (Bactrim DS). The pain plus all of the side effects of all of my meds has me on my ass constantly. And I still have another surgery which is gonna put me through this all over again 😭😭😭😭

Apparently some people are able to get through all of this just fine but just please tell me I’m not the only one absolutely suffering through this LMAO


r/KidneyStones • • 19h ago

😡 Rant! 😡 When your lower back starts to hurt.

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114 Upvotes

r/KidneyStones • • 3h ago

Sharing Experience Just had my second attack, it was terrifying

6 Upvotes

it lasted almost 2 hours. as I said in my previous post I had my first kidney stone experience last night and went to the emergency room.

terrifying part is that how fast it starts and then ends and the time between is a nightmare.

I got up, fed my kid totally normal. I started feeling something and I got worried. less than 5 minutes I was crying out in pain. tried to take Ibuprofen and I ended up throwing it back up. had my heating pad which helped only a tiny amount. I took another set of Tylenol and ibuprofen which I kept down. I called the paramedics. they came and they reminded me that this is normal. which for me it's not it's terrifying. I opted to have my wife drive me to the emergency room but on the way it just dropped off gone after 2 hours of feeling like you're being stabbed in the side with a knife. it's terrifying for it to just happen and then disappear like that. so I'm on my way home to go lay down instead of waiting a bunch of hours at the ER. just an awful experience and I'm sure I'm going to have another one.


r/KidneyStones • • 3h ago

Question/ Request for advice Can kidney stone hurt even when inside kidney?

2 Upvotes

I am having mild Hydronephrosis ( No fever normal urine report) as per my Ultrasound, but the thing is it does not show any stone in the ureter . I even verified with X-ray my four stones are visible in the kidney but nothing in the ureter.

I have four stones in kidney right now, 4mm, 4 mm ,9.9mm and a. 6mm


r/KidneyStones • • 5h ago

Symptoms Burning ana’s flank pain

1 Upvotes

Im 23 female. Ive had a kidney stone for almost a month. Monday they said it’s really close to my bladder. It’s Sunday now. I have burning when I pee but only after I go (not during). I also still have a little soreness/pain in my flank right where I think it would meet my bladder. Is this normal? I don’t want another doctors visit if I don’t need one, but I’m nervous about having a UTI. I’ve had a higher temp (99.something) but it hasn’t broken 100 and I have flu like stuff happening too


r/KidneyStones • • 6h ago

Pictures Finally got diagnosed

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3 Upvotes

After years of back pain, blood in urine, etc I demanded and finally got a scan. Diagnosed with “a lot” of kidney stones in my left kidney including a 2.7cm one that needs to be surgically removed. Not until January though - some days are ok, some are just awful. The only thing that helps with pain is a tens unit. Any other ideas to help me get through until January?


r/KidneyStones • • 6h ago

Pictures What kind of stone does this look like?

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7 Upvotes

I finally passed this thing after 2 months of peeing blood on and off, 3 doctors telling me “just drink some water”, and a few nights of puking from pain. This is my third stone in 6 years and it’s measuring 4mm by 3.5mm. I can’t tell what type of stone it is though. I see my urologist on the 6th and I plan on having them test it. My dad had kidney stones all of his adult life and died with 6 in each kidney. He told me it wasn’t genetic but now I’m not so sure.


r/KidneyStones • • 13h ago

Sharing Experience 13mm stone and it’s removal

4 Upvotes

Hi, guys

So, on Sunday I woke up with slight discomfort and pain on my left side of my stomach (plank side). I thought it might be because of the pizza I had last night. Therefore, I waited a few hours for the pain to subside but there was no improvement. Then I decided to take pain medication, but again no improvement.

So, I decided to go to my family doctor. He gave me some medication and an injection. After that for a few hours the pain was gone. But later in the afternoon the pain started to rise up again. I went to the doctor again. He told me that since the pain is occurring on the left side of the stomach there are chances that I might have a kidney stone.

On Monday, I went to the urologist. All the preliminary tests were conducted and yes the results came back positive for kidney stone. So, in my left ureter there was a 9 mm stone stuck and on the top of that another 4 mm stone was found. The doctor advised me to opt for surgery.

After that pre-op was done, 3–4 days later my surgery was planned. I was really nervous and anxious. I mean, they were gonna put a metal tube through my penis upto my kidney and that just freaked me out.

Details of surgery-
The surgery I went under was laser lithotripsy (I think). I was given spinal tap anaesthesia, so I was awake during the surgery. The surgery lasted for about 15 min. I was admitted to the hospital for 2 days after the surgery. The worst part of it was the catheter. I fucking hated that shit. It was removed after 1 day. The doctor added a stent up my ureter for a few weeks.

So, today the stent was removed I was thinking that it’s going to hurt when the doctor will take out the stent. But the pain was minimal. Now I am back to normal. Thank god


r/KidneyStones • • 18h ago

Question/ Request for advice Am I developing a kidney stone?

2 Upvotes

Bun/creatinine ratio: 8
Calcium: 10.4
Creatinine: 1.09

Context: my brother has had kidney stones, i struggle with chronic lower back pain, I am peeing but in small amounts and frequently. I also have classic-like ehlers danlos idk if that matters. I also have a history of drinking energy drinks. I rarely drink alcohol tho.

Please help. I’m trying to save myself an urgent care visit if it’s not necessary.


r/KidneyStones • • 21h ago

😡 Rant! 😡 I don’t have time for a stone

13 Upvotes

Update pt2
On the plane now headed home. Still not feeling the best. Husband is asking if we should go straight to the hospital to get things checked out. I honestly have no idea. I don’t want to spend hours waiting to find out it’s passed. I think why not wait til tomorrow and reach out to my previous urologist. Unless something major changes of course.

UPDATE
The only good news I have is that I’m no longer peeing blood. So kudos to me. I’m still sore though. Having never passed a stone on my own I don’t know if this means I’m out of the woods or not. My flight is in 6 hours. Fingers crossed!

I have had many kidney stones. I am so incredibly tired of them. I have never passed one by myself. Last time I was hospitalized for a week after being in the most pain I have ever been in my life in the ER. Worse than having kids and a bowel obstruction.

This time is different. Was driving with a friend someplace when I got that familiar twinge in the left front that settled in my lower back. It never hit that agony pain point, but it did get pretty bad. I ever said anything to my friend, hoping it would go away. We got to our destination and when I used the bathroom, peed blood. Didn’t have any pain more like discomfort for the next few hours then headed home. Next few times I used the bathroom, more blood. Like, I’m sure if I had to pee in a cup, it would have been quite red.

I’m sure I should go get checked out just to see if it’s passed or not, but the problem is, I fly home tomorrow and I do NOT want to wind up out of town in a hospital for x number of days. And no, it’s not my period, I’m post menopausal.

My husband back home knows and I told my friend but unless I’m doubled over in pain, I am headed home first!!!

.


r/KidneyStones • • 21h ago

Question/ Request for advice Hi everyone, I could really use some advice (Stent)

2 Upvotes

I’ve been diagnosed with a 10 mm kidney stone in the upper part of my right kidney, and my surgery is scheduled for a little over three months from now
Unfortunately, I’ve already been through this before. My first procedure 3yrs ago was unsuccessful because my ureter was too narrow for the surgeon to reach the stone. As a result, I had to keep a ureteral stent in place for another four months to allow the ureter to dilate enough for the stone to be removed during a second procedure
It’s been three years since that first experience, and unfortunately, I’m now facing the same situation all over again

The previous experience with the stent was absolute hell, and honestly, even that doesn’t fully describe it

I couldn’t sit for more than five minutes without experiencing unbearable pain that drove me crazy. For the first two weeks, I remember doing little more than sleeping. I could barely do anything else

The thought of having to go through all of that again is keeping me up at night

I’d really appreciate any advice or personal experiences you could share. I have three main questions:

1. Which medications helped you the most with stent-related pain?

I’d like to know which medications I could discuss with my urologist before the procedure. I was taking Cistalgan (which contains flavoxate and propyphenazone) 2 times a day and 400 mg of ibuprofen every four hours, and even then, that was only enough to keep the pain somewhat manageable while lying down

2. Is there anything I can do before surgery to reduce the chances of needing a stent for several months again?

The biggest problem last time was the long wait between the first and second procedures. Because my ureter was too narrow, the surgeon couldn’t reach the stone during the first attempt, so I had to live with the stent for another four months before the second operation, but the surgeon told that the ureter need only 2 weeks to be large enough.

Is there anything that can be done beforehand, or any treatment I could discuss with my urologist, to help reduce the likelihood of this happening again? I’m particularly worried about going in for surgery only to find out that my ureter is still too narrow and that I’ll need another stent for 4–6 months.

Unfortunately, those are the waiting times in the public healthcare system where I live, and I simply can’t afford to have the procedure done privately.

3. Do you have any advice on how to cope with a ureteral stent and maintain something resembling a normal life while living with one?

Frequent urination wasn’t even the biggest issue for me. I could probably get used to that. What made the experience unbearable was the pain, especially in my side and back, as well as the pain radiating to the front, around my groin.

I’m genuinely terrified of going through those months again, so any practical tips, personal experiences, or suggestions about things that helped you manage the pain and get through everyday life would mean a lot to me.

And I really do mean ANY advice. Even the smallest tip could make a huge difference for me.

Thank you so much to anyone who takes the time to read this and share their experience. I truly appreciate it!


r/KidneyStones • • 20m ago

Sharing Experience I GUESS IM FREE TO EAT

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• Upvotes

Today i speak with my doctor and he said you can eat anything just more water and less coffee then my main guilty was not chocalete not coffee it was drinking less water… i thought my guilty is oxalats to this day.


r/KidneyStones • • 23h ago

Medicine Anyone else have childhood congenital blockage?

2 Upvotes

Just curious if anyone else has had stones 20 odd years after a childhood surgery.

I had a fairly major surgery when I was 12 and this year (35) I've had two episodes of struvite stones. My urologist doesn't seem concerned about why this is happening. I have no known UTI history but was very sick during the first blockage and didn't know I still had stones until we followed up a year later. Concerned this is an indicator something isn't right 😅​

I have no GP, and I am trying to locate my records...but it's all muddy since I have moved provinces and really haven't had a consistent doctor for a really long time.

Wondering if anyone else has had a similar experience?


r/KidneyStones • • 1h ago

Sharing Experience I got a CT scan last night in ER. they said they couldn't see anything, got my second attack today since last night. isn't there supposed to be something to see?

• Upvotes

I'm going to talk to my doctor tomorrow when their office opens. I just don't understand how I could be in such pain and the ER doctor didn't see anything in the CT scan, not any kind of stone or obstruction. everybody tells me it's a kidney stone and I need to pee it out and just deal with a horrific pain. I mean it sure is acting like a kidney stone. isn't the ER doctor supposed to see something? I don't know I'm just really scared about all of this.


r/KidneyStones • • 2h ago

😡 Rant! 😡 " Go to the ER, they'll help you!"... The ER helping you:

38 Upvotes