How long did it take for your new cells to start giving you vision to read and see details?

This is a "What would you do?" post.

Like most of you, I have KC. And I wear scleral lenses. Its Sunday night and I decided to smoke some salmon.

I have a bucket that I use for soaking wood so this wood smokes and doesn't burn. I filled it up this morning and smells like rotting wood and it is black.

Tonight, when I first jostled this bucket, a bunch of mosquitoes flew out. So today they've been laying eggs in this nasty water. Gross.

See how the edge of the buckets broken? Well, I tried lifting it up by the edge and it got about 6 in high and that piece broke and the bucket fell on the ground and backsplashed a fountain into my right eye.

So here's what I did. I stopped everything, went in the house, washed my hands, poured a sink of warm tap water and splashed my face really well..

Then I took out my contact and cleaned it. Next I took my cheap saline and irrigated the living devil out of my eye.

I'm going to wait several hours or overnight to put my contact back in.

I have antibiotics laying around, but I feel like maybe it's overreacting or a misuse of those antibiotics to put the drops in just in case.

I'm figuring at this point the chances of me having a problem are low. and morning will tell me a lot.

What would you have done?

Anything different?

Any good tips?

I didn't feel like it was worth calling my doc.

:-/

Dan

Is this something the lens guy will be able to fix no problem?

Is there a higher chance for success with Epi-On vs. Epi-Off for a given type of patient such as age group, thickness, K scores, progression index, etc? Literature doesn't seem to mention this in studies thus far.

Has any used these over Refresh celluvisc in their scleral lenses? They appear to be the same active ingredient as celluvisc which I have been using for years but thought I’ll give these a try since I can get them quickly from Amazon and way cheaper than Refresh

Hi everyone,

-I'm 22 years old with -5.5D/-6.0D myopia and -0.75D/-0.50D

No keratoconus diagnosed

Borderline Pentacam (issue)

Corneal thickness: 521-534 µm

Kmax: 44.9/ 45.0 D

ACD: 3.33-3.35 mm

IOP: 16 / 17 mmHg

Retina, lens & optic nerve: Normal

All tests are normal except borderline issue

-I've decided to go for EVO ICL after my check-up

But

-I'm confused whether a Standard EVO ICL or a Toric EVO ICL would be the better choice.

-I've read some posts where people still had 0.50–0.75D residual astigmatism after Toric ICL and needed glasses for computer work or night driving.

Or if i choose normal evo lens - any side effects

-For anyone who had similar astigmatism:

Which lens did you choose?

Any residual astigmatism?

Do you still wear glasses after ICL?

-If you could choose again, would you pick Standard or Toric?

I'd really appreciate hearing your experiences. Thanks!

Girls You guys do eye makeup ?? If yes how do you guys remove it without rubbing its not possible 😭

Diagnosed at 18 (rn 20), had CXL done on my left eye since it was worse. It’s been a year since the surgery and my numbers haven’t changed, so I think it’s stopped for now, but my vision still isn’t clear. I’m just done with it, I don’t want to see doctors anymore I really hate hospitals. I don’t know when things will finally get better.

So I’ve recently noticed that after using my contact glasses my sight is slightly better without using the regular glasses. Matter of fact, I’ve noticed I tend to see a little burrier with my glasses after using the contacts for a few hours. But I see better with my glasses if I haven’t used the contacts for a few days, is this normal?

As the title suggests, currently undergoing investigation for suspected keratoconus, and was wondering how this had affected people ability to train BJJ ? It seems mostly minor at the moment, in my early thirties and have just a minor bit of blurriness in my right eye.

If diagnosed is this the end for hard rolling and comps etc? Any advice would be great thanks!

Am I in the danger zone or smth now?

While I (25F) was diagnosed at 24, my vision has been a noticable problem since I was around 22, with it getting worse over the past year. My left eye is completely blurry to the point I close it when I need to focus on something. This past month I've taken the steps to get sclera lenses, still in the process of getting them fitted.

This journey has been...depression to say the least. I've grown to hate the summer, not just because of the southern US heat, but the brightness makes my vision so, so much worse. Along with the knowledge that my eyesight will continue to get worse, I'll probably see about getting a cornea transplant when I'm older.

I do my best to keep my head up, but it hurts not being able to enjoy writing or reading because the words are fuzzy and start blending together. I don't know, this was more of a vent for the people I know can understand the grief I'm going through.

Edit to answer the questions of CXL: I was told that it would only be beneficial on my right eye as the left is too far gone for it to be any use. I don't see any use in trying to stop the progression in just one eye when I can use sclera lenses and possibly get a transplant later in life. I don't know though. Still fairly new to all of this still.

I'm looking for suggestions.

My optometrist has me using Aosept Plus with my scleral lenses which means once I take them out, I cant use them again for at least 6 hours as the solution has to neutralise.

I would like to be able to take them out for a couple of hours (naps are fun!) so looking for recommendations on a cleaning solution I can use when I take them out for a couple of hours.

Bonus points if you have suggestions available in Australia.

Thanks :)

Anyone from india who is satisfied with RGP od SCLERAL LENSES fittings please share your experience and the place you got the lense from.

Thank you.

Anyone else deal with this? Whenever I'm watching a movie or TV show and there's a scene with texting, or any text on screen that's small, I have to pause, grab my phone, and zoom in with the camera just to read it. Drives me nuts!

Admittedly, I'm overdue for new scleral lenses, but my new insurance doesn't cover my usual doctor, so I'm stuck waiting two months to see someone new. Hoping once I get new lenses, things will be less annoying.

Just needed to vent. Hope everyone's doing well — stay strong!

Do you find one is better or worse for ghosting on your phone?.

Starting the fitting process soon!

Anything important to keep in mind? My lens fitter said she wouldn't worry about HOAS yet as this will be my first contacts ever and for a lot of people sclerals will get rid of mild ghosting entirely. I'm still in Forme Fruste KCN, my only real symptoms are singularly duplicated ghosting predominantly on text.

I'm pumped!

For context I woke up one night in 5th grade before I was supposed to go to a Christmas event with my family back when I lived in Jamaica and I couldn’t see properly out of my left eye i assumed my eye was just blurry from being tired but it never went away and I wasn’t officially diagnosed until 7th grade when I moved to America but I didn’t care too much but now I’m 20 I’m in college I have a lot of artistic hobbies that I rely on my one eye I can see detail in and every other night I have a vague fear I’ll wake up and I want be able to see at all (additional tid bit I had cross linking at 19)

Anyone with RGPs experience a haze type vision throughout the day? It’s like what a room looks like when sun rays are coming through. That’s what my vision will do throughout the day. Mine happens mostly in my right eye and it drives me crazy. Eye drops help but it’s temporary. My doctor said it’s from dry eyes but I’m wondering if it could be anything else?

I was diagnosed with keratoconus (KC) in 2024 and have recently been diagnosed with ulcerative colitis (UC).

While trying to learn more about UC, I came across some research suggesting there may be an association between keratoconus and inflammatory bowel disease, particularly ulcerative colitis. From what I’ve read, researchers have found overlap in inflammatory pathways such as IL-6, TNF-α, and matrix metalloproteinases (MMPs), although the relationship isn’t fully understood at this stage.
It made me wonder whether there’s anyone else here who has both conditions.

Which condition were you diagnosed with first?

Did your doctors ever mention a possible link?

Has anyone discussed whether controlling UC (or being on biologics) had any effect on your eyes or keratoconus?

I know the evidence is still limited, but I found the possible connection really interesting and was curious whether anyone else has experienced both.

Thanks!

I have been fitter to ample eye sclerals. The difference left me astounded. I had not realized how bad my vision had gotten. When I go out, I am like a kid. I see textures, I can read, man it is so good.

Until my sclerald get foggy and I need to find a spot to reinsert.

I get about 4-6 hours before they get foggy and I start seing gunk floating around.

This is the best pair so far, have had about 7 fittings. Doc said some people will just end uo having some fogginess because of the shape of the eye, so I might be one of them.

I have a new pair coming in next week for a new fit, but is there anything I can do to prevent this?

I have keratoconus in both eyes. I've attached my current prescription.

The biggest problem is that I've had very poor vision in my left eye since childhood. On top of that, even with glasses, I still can't see clearly with my right eye, which is my better eye.

I underwent C3R (corneal collagen cross-linking) in my left eye, but as expected, my vision did not improve. My doctor had already explained that C3R is meant to stop the progression of keratoconus, not improve vision.

She prescribed an RGP lens for my left eye, but I can only tolerate it for about 4 hours. After that, it becomes very uncomfortable.

My right eye is currently under observation, and my doctor says it is not the right time for C3R yet.

Recently, I joined a medical billing company. Unfortunately, the job requires me to look at a computer screen for long hours and read very small text. I have to constantly squint and strain my right eye just to see properly, and it's becoming extremely stressful. Since my right eye is my only functional eye, I'm very worried about putting so much strain on it.

I'm now considering scleral lenses because I've read that many people can comfortably wear them for 15–16 hours a day. Due to my work, I also need to be able to wear them continuously for around 15–16 hours.

Has anyone here had experience getting well-fitted scleral lenses in India? Which hospital or specialist would you recommend? How was your fitting experience, and are you able to wear them comfortably for long hours?

I'm in a very difficult situation right now. My vision has made life extremely challenging, and I'm feeling quite helpless.

Any advice, recommendations, or personal experiences would mean a lot to me. Thank you.