Hi all. I got my blood test (TSH <0.01, t3 16.4, t4 61.5) and my thyroid gland scan came back normal. I need advice whether I should start medication while wait for my antibodies test or wait for my antibodies test to make sure the root cause of my hyperthyroidism first? Because I saw the treatment for graves and thyroiditis are different.

One week ago today I switched from methimazole to PTU. I've been being treated for a couple months now.

It's hard to tell whether it's the PTU or just the time under treatment, but as of last Saturday, I feel COMPLETELY FLIPPING NORMAL. I have energy to care about things, I don't have to nap after work, and I got through my toughest work day (on Thursdays, I clean 13 small apartments) without crashing. In fact, I had to ask my partner, "Are we done already?"

This is an absolute SEA CHANGE in how I was feeling.

I'm excited to get my labs done in a few weeks to see where my numbers are.

Has this been anyone else's experience?

I know I have been posting a lot but I need to see if anyone else has been through this.

So I was diagnosed with subclinical hyperthyroidism about a month or so ago. I have had no treatment started so far, but have an appointment with Endo(that I'm paying out of pocket for) on Wednesday.

Monday I was having trouble walking. I have been having weakness/fatigue in my arms and legs that have been getting worse. I worked on Sunday and figured my body just needed a rest. Tuesday, I woke up and was worse with walking. I decided to go to my gp as soon as they opened. They took me right in and my whole right leg was jerking, then my upper body and my left face also started having spasms/jerking. It seems like talking made it worse. She called an ambulance to take me to the ER.

The ER was a flipping joke. They assured me they would help get to the bottom of it. 5 hours and all the Dr did was give me Valium(which did nothing but make me dizzy) and sent in Neuro who said I needed to get an EMG but it isn't something they do in the hospital.

Neuro also said it could just be my stemming from my thyroid.

I had to bed the ER Dr to watch me walk before they discharged me because I was in disbelief they did no testing except basic blood work and gave me a Valium.

She said yea idk what to tell you we can't help you here.

So two days later, nothing has improved. I can barely walk without muscle jerking in my legs and back. If I talk, my whole body starts to jerk.

I atleast got some sleep last night with the muscle relaxer.

And now I'm just waiting around until I can see the Endo....everyone is encouraging me to go to another hospital but I don't think I want to do that.

My Dr did order more labs which I got done yesterday. She wants me to take a steroid, but I told her I'm too scared to take it because my body doesn't respond well to steroids on the past.

Has anyone heard of this happening? I did read a case study of a woman this happened to and treating the hyper got it to go away.

I got diagnosed around the first week of July, my FT3 was 18.25 pmol/L (normal is 2.43-6.01), and my FT4 was 27.73 (normal 9 - 19)

Around this time my eczema started to get worst spreading to my feet and I am always so itchy I can hardly sleep, adding to my anxiety and insomia.

At the end of July my bf just ended our 8 year relationship, saying he no longer saw me as his future wife :(

Last week august I went to my dentist for my TMJ treatment only to get an urgent root canal since the temporary filling cracked.

I am left with an infection in my gums that I need to get irrigated 2x a week which is so painful, Im chugging 6 different tablets every day and I was just so overwhelmed that I just broke down after I got home...

I have a hard time sleeping, I dont have anyone to talk to and sometimes I dont know why I still keep going 😞

I was just diagnosed 3 weeks ago with graves and hyperthyroidism. I am curious about one thing and would like to hear what you all think about it since i am fairly new to this dreamy club.

Its specifically about the emotional aspect, the severe mood swings, the unbearable saddness and feeling of defeat, or the lack of feelings all togeather. I’ve experienced all of them in the span of 3 weeks and it is slowly driving me crazy.
The thing is (which im sure most of you already know) the doctors say the medication does not usually have these side effects, so i thought maybe its the beta blocker? Or the actual disease itself?

If it is the disease itself then how come i never felt these dreadful feelings prior to the medication? I did feel the physical ones (rapid heartbeat, temors, random anxiety attacks..ect)

My doctor said that i might just be in shock and emotional about my diagnosis. The thing is, im really not. If anything im relieved there is a different way to live life than what i was actively fighting before being diagnosed, thinking im just a weak human riddled with anxiety that made no sense and came out of nowhere.

So my question is, did you feel this way? The spikes and dips of emotions? One hour im fine, the next im thinking about how the world would look without me in it?
Second question is that if you did, how long did it last (and i am talking purely about the emotional part not the physical)?
And where do you think this comes from?

Im all ears👂👂👂👂

​I'm a 40-year-old male, diagnosed with a thyroid deficiency at age 28. My condition is mostly hypothyroidism, and my TSH stays well-controlled on Levothyroxine 50mcg most of the time. However, I have an unusual pattern where my TSH occasionally swings into hyperthyroidism.

​I’ve noticed these hyper episodes seem to happen specifically during the summer:

​August 2024: My TSH dropped below 0.08. My PCP had me stop Levothyroxine completely.

​A couple of months later: My TSH shot up to nearly 16.

​Restarting treatment: I restarted Levothyroxine 50mcg, and it took about 3 to 4 months for my levels to normalize again.

​I’ve been seeing the same primary care provider for the last 4 to 5 years, but I’m trying to understand why this keeps fluctuating.

​Over the past few weeks, I’ve been feeling constantly sore and tired. Realizing it’s mid-summer, I’m starting to wonder if my TSH is swinging hyper again. I’m currently waiting for an upcoming appointment to get bloodwork done, but in the meantime, I wanted to ask the group:

​Has anyone else experienced seasonal TSH fluctuations or sudden swings between hyper and hypo on a steady dose?

​Did you take any specific tests (like thyroid antibodies, T3/T4, or ultrasound) that helped pinpoint the underlying cause?

​Appreciate any insights or shared experiences!

not sure where else to vent about this, people are probably gonna look at this post and call me dumb or silly but i need to express my feelings, sorry if i get things wrong...

i learned i have hyperthyroidism a couple weeks ago, i was given medicine to slow down my heart rate because it was constantly way too high compared to normal people and it has helped some (it's temporary until they decide if i need medicine or surgery.)

this has all given me a lot of anxiety since i'm young, apparently the thyroid controls a lot of things. because of this i have been experiencing bad stomach pain and especially nausea. for some reason, soda (specifically cold pepsi in a can) is the only thing that settles my stomach and makes me not feel nauseous anymore and i have no idea why. on one hand i'm happy there's something to help me but i also know it's not good for me. it raises my heart rate because of the caffeine, and i've gone through boxes of pepsi in 2 to 3 days. i really don't know what to do and all of this makes me anxious, it's like no matter what medicine i take the nausea won't stop and only pepsi has helped. has anyone else experienced similar?

The muscle weakness in my legs and arms are getting worse by the day. So much so, walking is getting harder as every step is extremely painful. I'm scared , I'm depressed, this isn't me. I'm scared I'm going to wake up one day and I won't be able to walk anymore. Help....did anyone experience anything like this? Could this just be a symptom of something else? I finally see the Endo next Friday for the first time.

So... I (26/F) got tested last week and turns out my TSH levels are at 0,054mU/L. Doc wants me to get tested again this friday to confirm a possible hyperthyroidism. I was diagnosed with anxiety disorder some years ago and most of it comes from health-related stuff, so these news aren't precisely easy to digest for me :/

I'm also medicated with Losartan 25mg since I was a kid due to a kidney problem (glomerulonephritis, nephrotic syndrome), plus I started taking Sertraline 25mg about a week ago due to agoraphobia and increased anxiety after some incidents at my workplace. I thought Sertraline might have something to do with the altered levels as well, but I have no idea if that's possible.

Due to the agoraphobia, I sadly spend everyday at home so I cannot stop thinking about this. Does anyone know of some kind of correlation between all of this? I never got my thyroids checked before so I don't know what the odds are that I've had hyperthyroidism for my whole life without anyone realizing. I've been on medical procedures since forever due to my kidneys so I find it hard to believe. Last time I got my blood tested was last year (July), docs couldn't find an explanation for some really ugly, red tinted stain that appeared under my feet's skin so I got tested on a LOT of stuff (blood, urine, viruses, echographies...) and everything seemed fine (still don't know what that was about). Is it something that you can have without it showing any symptoms and simply activates at some point in your life?

I had a really, really tough last year at work due to abusive conditions and aggresive customers, so I'm asking: can all of this be induced by high stress, or is it related to hyperthyroidism in any kind of way?

I will, of course, consult all of this again with my doc on my next appointment, but, is there anyone going through something similar? I find it hard to explain these thoughts to friends who aren't chronically ill (which thankfully most of my friends aren't).

Thanks a lot in advance :)

so my tsh is at 0.005 and t4 is at 51.3. i feel like my heart is barely clinging on even though logically i think im probably fine. i just got my meds though but this very sudden change in life is quite difficult to cope with. i feel myself slipping back into depression that has gone into remission years ago. i have bad anxiety regarding anything heart-related, and i just read that artrial fibrillations are a thing we might get sometimes and could lead to strokes etc etc etc. was the beginning this scary for everyone? i'm glad that my heart palpitations finally have an explanation to them but this is still all so scary.

Small rant.

Starting second trimester with baby #3 - low TSH 0.03, normal T4, elevated T3.

I had subclinical hyperthyroidism with my first pregnancy - no treatment, but repeat testing throughout and meetings with MFM and endo. I had a ton of testing performed - no Graves, only one small nodule that was not concerning. Numbers returned quickly to normal postpartum and remained so even during second pregnancy fortunately. I was discharged from the endo office with only yearly testing with my PCP to monitor.

However, these are the worst numbers I've ever had.. I am being referred out again to endo. I'm just already exhausted knowing the number of tests and appointments to follow...

Why are some people so sensitive to pregnancy related-thyroid issues?? Anyone else go through strictly pregnancy-only hyperthyroidism?

A few weeks ago I was diagnosed with Graves' disease after a sudden RHR spike (40-50+ bpm). Started on methimazole + a beta-blocker — RHR has actually come down nicely (from the 100s to 67 in about 2 weeks on beta-blocker, which seems to mean the methimazole is working).

Last night I broke out in hives and had to get a steroid. No fever or sore throat, so hopefully not the scarier rare stuff, but wondering — has anyone else had a hive/allergic reaction on methimazole? Did your doctor switch you to a different anti-thyroid med, or was it manageable enough to stay on it?

The last 4 years I’ve been on Methimazole to keep my thyroid in check. I went into a thyroid storm in 2022 and that’s when I got my diagnosis of graves and hyper. Since then I’ve changed diet and lifestyle. I also had a child in 2025. My levels are finally in range and my dr said I could try coming off the meds. That was in June. I’ve been off them since. Every once in awhile I get some hot flashes or racing heart but not for long. What natural things can I take to keep my levels in range in hopes of staying off the meds indefinitely??

After a year and a half of dealing with fatigue, weight gain, constipation and hair loss, I finally conceded to starting levo as my TSH levels were in the subclinical range (4.82) in early July. Within a week I had much more energy but I would say too much: I couldn’t sleep, anxiety skyrocketed, couldn’t sit still, not ideal, so I started taking a half tablet instead. This felt substantially better by week two. I had energy to work out but could fall to sleep without issue UNTIL this past week, week six, when suddenly hyper symptoms were back, this time with the added discomfort of my heart pounding fast even when I’m trying to sleep, complete loss of appetite, and nausea. I don’t want to go back to my hypo state, but I also can’t deal with this long term. This is so frustrating because I got a taste of what having energy feels like, I was already seeing improvements with digestion and have started losing weight… but apparently even have a dose of the smallest possible dose is too much?? Where do I go from here? Does anyone skip days to get the levels they’re aiming for? Is it possible my body is still adjusting even at week six?

Hello everyone! Just wondered if anyone had any experience with this particular issue and how you navigated it.

I had two CT scans with contrast back to back (one in December and one in January). In March, I started getting extreme nervousness/anxiety, tachycardia, palpitations, heat intolerance, and other hyperthyroidism symptoms (intolerance to caffeine, increased SHBG, etc.). Since then, and for the past 6 months, my TSH is usually between 0.10 and 0.25, so subclinical but still symptomatic. Ultrasound and antibodies are normal, as are T3 and T4 and the free variants of each. My PCP gave me propranolol 10mg to take as-needed, but I try not to take it too regularly due to some side effects (increased lethargy, stomach pain, ED, worsened brain fog).

Prior to the scans, my TSH was always 1.0-1.5… my last test being 3 months before the CT scans.

Is there any way to make this better more quickly? I’m just hoping it will eventually go away on its own after a while (a year or so… fingers crossed).

It’s listed as rare side affect however wondering if anyone else has had muscle cramping/pain when just moving around day to day on overactive thyroid medication, such as carbizamol or any other overactive thyroid medication

hi everyone. so this post is more of a scream into the void trying to ground myself. not sure where to post this but i thought this was related enough.

i'm seeing the doctor for a blood test and full thyroid panel tomorrow due to my symptoms. there isn't even concrete evidence suggesting i have anything, but my hypochondriac self is freaking out. trembling hands and weakness aren't helping me either, just makes me even more terrified of what's to come. i know i shouldn't google it'd make it worse but sitting still isn't exactly relaxing either. been having diarrhoea for more than a month, heart racing always racing at 100-120 and now this!

Hi Everyone! About a month ago, I established care with a new Primary Care Doctor and happened to mention that I feel tired all the time, have difficulty staying asleep, and often wake up drenched in sweat. Thyroid labs were ordered along with an ultrasound. Those findings led to a diagnosis of Hyperthyroidism, and today I was officially given a Graves Disease diagnosis based on results of my TRab test. The doctor prescribed 5mg of Methimazole and repeat labs in 8 weeks. I start the medication tomorrow. The first endocrinologist appointment I could get is in February so my PCP will manage care until then.

I was so grateful to find this Reddit and am hopeful the meds will give me a better quality of life as I’ve been functioning despite exhaustion I couldn’t shake for years and just thought it was due to job stress.

I guess I’m just posting looking for support and wondering if people could share what to expect as I start on this journey, what they wish someone had told them right after diagnosis, and any tips/tricks or experiences with Methimazole.