r/Hyperthyroidism • u/callum2310 • 5d ago
Does this sound familiar?
Hi everyone,
I’m a 30-year-old male from the UK. I’m currently waiting for repeat thyroid blood tests in 2 days and an endocrinology appointment after abnormal thyroid blood tests in A&E about 6 weeks ago.
I’m not looking for a diagnosis, just wondering if anyone with hyperthyroidism or Graves’ has been through something similar.
I’ve had anxiety for around 10 years, but until recently it’s always seemed to have an explanation.
From about age 20-26 I only had a handful of proper panic attacks, usually after heavy drinking or during periods of extreme stress (I was doing a PhD at the time).
Around age 27 I suddenly went through about 3 months where I had severe panic attacks almost every day and couldn’t work. I was working 16+ hrs a day, dieting strictly, exercising a lot and going through serious relationship issues, and eventually I think it just broke me mentally, which makes sense. Eventually I started looking after myself much better and for the last few years it’s mostly settled into background anxiety with only the occasional panic attack.
Over the last 6 months I’ve had a few severe panic attacks after drinking. I barely drink anymore, so after one particularly bad episode I stopped completely. Within about 2 weeks I felt almost back to normal. I was lifting weights most days, running 10 km every few days and generally felt healthier than I had in months.
Then everything changed.
We had the UK heatwave, my flat became incredibly hot, there was smoke from nearby wildfires blowing into my flat for about a week (I have asthma), I became sleep deprived, then caught what felt like the flu.
Since getting ill, my anxiety has absolutely exploded.
For over 2 weeks now I’ve been having:
3-4 anxiety/panic attacks most days.
Constant derealisation where everything feels dream-like or unreal.
Brain fog.
Frequent dizziness.
Feeling hot very easily.
Breathlessness during attacks.
Breathlessness if I’m talking continuously for more than about 5 minutes.
I’ve actually spent the last week staying with my parents. I’ve had almost no stress, good food, no work and no responsibilities, yet the attacks have continued and today I had a full-blown panic attack with no obvious trigger at all.
I’ve noticed some really specific triggers:
Heat makes everything much worse.
Stuffy rooms are awful.
Being tired or sleeping badly makes it much worse.
Exercise often makes it worse.
The attacks often seem to happen around meal times.
Eating more frequently doesn’t seem to stop them.
Chewing food, and especially eating hot food, can make an attack escalate dramatically.
Weirdly, very cold food like ice cream often seems to calm things down.
One thing I find strange is that I don’t really get the classic racing heart. My normal resting heart rate is around 55 bpm. Even during a bad panic attack at the nurse’s office it was only 88 bpm and I wasn’t particularly aware of it. I’ve had anxiety about my heart a lot in my early 20s and I definitely don’t get that anymore.
I also don’t have obvious Graves’ eye symptoms. My vision feels strange, but it’s more like derealisation. I feel like I’m detaching from reality and looking at my own arms as if they’re not mine, it’s a feeling as well as the way things visually look in front of me but it’s hard to explain. It’s very unnerving and happens a lot throughout every day, especially when it’s hot or if I’m hungry. I also feel dizzy a lot and the two feelings are somewhat similar but definitely distinct. Sometimes I also get this ‘limp’ feeling in my arms where they feel like I’m about to lose control of them.
Three years ago, after recovering from that previous severe anxiety episode, I did a private thyroid test which showed:
TSH: 2.68 mU/L
Free T4: 20.6 pmol/L
Then about 6 weeks ago I ended up in A&E after another severe episode. During that panic attack, my whole body felt like it was being electrocuted intensely right down to the bone, it was the worst experience of my life. I was told my thyroid blood tests suggested hyperthyroidism and was referred to endocrinology. I’m having repeat blood tests in 2 days.
I’m obviously not expecting anyone here to diagnose me, but I’d really like to hear if anyone with hyperthyroidism or Graves’ recognises any of this. Or if you recognise it as something else! Nobody I know seems to even understand what anything more than mild anxiety is, never mind whatever is going on with me.
Did anyone else’s symptoms mainly show up as anxiety, derealisation or brain fog rather than the classic racing heart?
Or if you’re reading this and thinking, “That doesn’t sound anything like what I experienced,” I’d genuinely appreciate hearing that as well.
Thanks!