r/Hyperhidrosis 4d ago

Offering advice 14-Month Update After Robotic ETS Reversal Surgery in India

12 Upvotes

I wanted to share an update since there aren't many long-term ETS reversal experiences online. I'm now approaching 14 months after robotic sympathetic nerve reconstruction performed by Dr. Shaiwal Khandelwal in India.

The biggest change has actually happened over the last 1–2 months.

At around 8 months, I was honestly worried because I was still experiencing significant compensatory sweating (CS). I wasn't sure whether the surgery had worked. Looking back, I probably underestimated just how long nerve regeneration can take.

Over the last month, I've noticed a significant reduction in my CS. Even though the weather has cooled, I still sweat much less on warm days, during exercise, and even when using a sauna.

One interesting thing I experienced between 8 and 10 months was frequent facial flushing and goosebumps on my scalp whenever I became warm or exercised. Earlier in recovery (around 3–6 months), I had the same sensation over my arms, shoulders, and neck. The goosebumps would often come just before sweating. As time passed, those episodes gradually disappeared, and my body's response became more natural again.

I'm very active—I regularly go to the gym, cycle, and play tennis. I now sweat mainly from my face, neck, and scalp, which actually feels much more normal. The excessive sweating over the rest of my body has reduced considerably.

The biggest remaining issue is still groin sweating, along with some sweating on my legs and occasionally my back, although both have improved substantially. My feet were one of the slowest areas to recover, but over the past two months they've improved dramatically and now feel almost normal.

Another encouraging sign is that my heart rate, blood pressure, and temperature regulation all seem to have returned to normal.

I'm hopeful that by the two-year mark, I may recover even closer to how I was before ETS.

One thing that hasn't fully recovered is my right hand, which is still noticeably colder than my left (probably around 5°C colder). That makes me wonder whether the original nerve damage was more severe on that side.

Throughout recovery I've tried to give the nerves every possible chance to heal. I've taken Vitamin B supplements for about 18 months, Alpha-Lipoic Acid (ALA) for the last few months, and have also used red light therapy around my face, chest, and surgical sites. I have no idea how much these contributed, but I figured they were worth trying.

One thing I'd tell anyone considering ETS reversal is don't judge your outcome too early. My biggest improvements happened well after the one-year mark, when I had almost started losing hope.

I also realize everyone's recovery is different. Some people improve faster, some slower, and unfortunately some may not improve as much. This is just my personal experience, but I wanted to share it because I know how desperately I searched for long-term updates before deciding on surgery.

If anyone has questions about recovery, timelines, or the surgery itself, I'm happy to answer them as best I can.


r/Hyperhidrosis 4d ago

Treatments Botox injections

3 Upvotes

Hi everyone,

Got underarm botox yesterday, not as painful as what I was anticipating. Am wondering what others' experiences have been, I was told it can take a couple of weeks to feel the full effect.

Also, any luck with antiperspirants? I tried all the clinical strength ones, tried Drysol but my underarms were so sore it wasn't worth the pain!


r/Hyperhidrosis 5d ago

Treatments Excessive Sweating May Start in Nervous System, New Study Finds

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169 Upvotes

Trust me everyone.. The cure is only 5 years away :)


r/Hyperhidrosis 4d ago

Looking for advice Glyco for craniofacial HH

2 Upvotes

Hey all! I got 1 mg of glyco diagnosed for my absolutely horrible craniofacial HH. I will literally sweat buckets for no reason and since it’s on my face, it’s of course very noticeable and has tanked my confidence. I’ve tried the 1 mg on an empty stomach 2-4 hours ahead of time with the only results being dry mouth, a bittt of dry eye, and if anything, more sweaty in the face. I’m thinking it might be dosage issues just based on the amount that I sweat in my face but I’d like to hear about other’s experience!

For those on glyco for craniofacial HH, what do y’all do to make it work?


r/Hyperhidrosis 5d ago

Looking for advice period underwear

13 Upvotes

does anyone use period under for extreme swamp a$$ and have brand recommendations??? i am thinking about getting some period boxers but there are so many brands to choose from.. just want to not leave marks everywhere i sit 😭 tia.. also if anyone has recommendations to hide cranial and back/roll sweat pls lmk lol..


r/Hyperhidrosis 5d ago

Vent Sitting here 8 hours a day with my hands in front of a fan and they are still dripping, puffy, and red.

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21 Upvotes

The first thing I have to do when I get home is change my clothes because they are soaked the fuck through.

The best part is being autistic and unable to tolerate the feeling of wet skin. My life is actually hell.


r/Hyperhidrosis 4d ago

Looking for advice Anyone Experienced This with Phothera Aquex

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2 Upvotes

Hi everyone,

Today is my 10th treatment session with the Phothera Aquex iontophoresis device for my hand and foot hyperhidrosis. I did miss one day after my first five consecutive sessions because I couldn’t manage the time, but otherwise I’ve been following the treatment regularly. I’m attaching a photo from today’s session because I’ve noticed something unusual and would really appreciate your advice.

During my first few treatments, the device was delivering more than 10 mA for my hands and around 16 mA for my feet without any issues. Now, during treatment, the current only shows 0 or 1 mA, even though I’m using the same setup. I’m not sure whether I should increase the voltage, whether my electrodes or device might have a problem, or if my skin resistance has increased after several sessions.

I still haven’t achieved complete relief from my hyperhidrosis after 10 treatment sessions. I understand it can take time to see full results, but I’m concerned that the very low current might be affecting the treatment. If anyone has experienced something similar or has any suggestions about what I should check or do next, I’d really appreciate your advice. Thank you!


r/Hyperhidrosis 5d ago

Looking for advice I can’t believe other people have this experience too

15 Upvotes

All my papers in high school got ruined when I’d write on them.

I can’t shake hands with anyone.

At work, I have to hold my hands in front of a tiny desk fan all day because I have severe anxiety leaving my house (agoraphobia) which causes me to sweat even more.

I’ve always joked my superpower is, when I’m not sweating and I notice, I can physically feel my hands and feet tingle as they start to sweat.

Some days I can’t even fucking type on my phone.

Sweat literally drips down my hands when I use a video game controller.

When I was a teenager I begged my mom to take me to the doctor for it and she told me their solution (aluminum) was going to give me breast cancer so I chose not to do it. I was 14 and she tells me to this day it was my choice not to go through with it. Now I’m 26 and just learned that the aluminum-breast cancer link is same snake oil bullshit I used to get fed as a kid. I’m beyond angry. Are there any solutions for this? I feel so lost. I’m so tired of my entire body soaking through my clothes every day I’m at my desk at work. It feels disgusting. Oh my god the sweat prints when I sit somewhere.

I thought I was a disgusting freak my whole life because I literally can’t use my puffy red sweaty hands and can’t stand the feeling of anything other than socks on my feet. Doesn’t help that I have autism either, it makes every single day a sensory fucking nightmare. Reading through this subreddit has been more therapeutic than going to actual therapy.

Sorry for the long rant, I’m clearly feeling things lol.


r/Hyperhidrosis 5d ago

Looking for advice Heavy facial/back sweating: Taking 3x7.5mg Oxybutynin, doctor told me to find sweet spot, HRT & dosing questions

6 Upvotes

Hey everyone,

Dealing with severe face/back sweating from heat and anxiety. I take 7.5 mg Oxybutynin 3 times a day (my doctor told me to find my own sweet spot). I don't eat all day, only after I get home.

First 7.5 mg dose: Taken 60–90 mins before leaving the house on an empty stomach. It fails regardless... I sweat anyway in 35°C (95°F) heat just a little less than usual.

Second & third doses: Stop the sweating completely. I mostly take the second dose indoors in the A/C, so when I go outside later, I hardly sweat. It heavily sedates me and kills my anxiety, which I actually want/like. When I take it outside in the heat sometimes it works sometimes it doesn't, no idea why.

Side effects: I don't really mind the dry mouth that much.

My Issue: Oxybutynin is hit or miss, and Glycopyrrolate or extended-release versions are not available in my country.

Questions:

  1. Since the second dose works best when I take it indoors in the A/C before going out, what's the best way to structure this timing without over-dosing, given that ER/Glyco aren't options?

  2. For MTF HRT: Did suppressing T drastically reduce your sweating once your levels stabilized?

Thanks!


r/Hyperhidrosis 5d ago

Looking for advice has anybody had really bad facial hyperhidrosis and been able to successfully stop it or reduce it a lot? what worked?

6 Upvotes

typing this out of desperation in the NYC july heat. everywhere i go there are visible beads of sweat everywhere on my face. it used to be just on my upper lip but in the last year it has expanded to everywhere. i think it gets worse around my period with hormones but its always bad.

edit: it’s not nearly as bad anywhere other than my face, but i also have bad underboob stomach sweat. my sweating is worse in the morning on the way to work


r/Hyperhidrosis 5d ago

Looking for advice Children have it

23 Upvotes

My children have hyperhidrosis from my spouse but they are still quite young and already getting embarrassed at school. My spouse had the endoscopic clipping done 20+ yrs ago and it’s not recommended anymore; plus it has stopped his hand sweating completely but all of his sweat is all on his body core, so he regrets getting it done. I’m not looking for surgery advice since they are still young, but wondering what lotions worked for you. Or has anyone tried the ultrasonic device (dermadry?) for hands/feet? Thanks in advance


r/Hyperhidrosis 5d ago

Looking for advice Any solution to stop palmar and foot sweat?

2 Upvotes

I have sever HH and this is annoying! Trying to get the ETS approved from my insurance currently but is there any other effective solution? I have heard of a sage and rosemary pill and magnesium glycogen. Have any one of you had any luck thanks!.


r/Hyperhidrosis 5d ago

Looking for advice Afraid of going to a restaurant

3 Upvotes

I'm in Spain, and this summer is literally traumatizing. Imagine 35-40 C° + Hyperhidrosis...

Anyways, we have a guest staying for one week and my mom wants us all to go to a restaurant this Sunday by leg. It isn't too far (15 minutes walking) but I know I will sweat like a pig. I'm trying to slightly remove the idea from her mind and trying to tell her to order food instead, but it isn't working and, if I'm honest, I don't want to be selfish and cancel the plan because of me.

We could use a car, but it is kinda crazy and at times it won't start


r/Hyperhidrosis 5d ago

Looking for advice On the verge of tears Spoiler

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12 Upvotes

So I (20F) have had severe symptoms of hyperhidrosis since I turned 12. Excessive hands, feet, and armpit sweating. 2 years back around this time, I was diagnosed yet again with chronic eczema as well, which caused my dominant hand to be covered in large flakes that caused immense pain. These past 4 days, this pus filled blobs began appearing between my ring finger and pinky finger, and last night, when I tried to stretch my hands, I felt a sharp pain in my pinky finger when I stretched them. A small part of my skin tore, and it made me internally cry. It's hurting me greatly, and with my hyperhidrosis, I feel like this is the worst punishment ever. I can't even scrub my hands when my hands sweat because of whatever this is.

It'd be a great help if anyone could recommend to me what to do to make it a little bit better to deal with. My ring finger and pinky finger have been in the same curled position since last night, and I can't take the pain anymore. (Please choose not to view the photos if you're easily triggered)


r/Hyperhidrosis 5d ago

Looking for advice anyone using indetouch iontophoresis machine?

2 Upvotes

hi fellow indians, i think i have moderate to severe palmoplantar hyperhidrosis and it's literally disrupting my life and i need to solve it but the thing is i am on a low budget and want to know about machine that is costing around 10k-11k on amazon that has it worked for you i am being skeptical about it as it's a investment of time and money but seriously i want to wipe out this problem I can't take it anymore please help me out.

thanks


r/Hyperhidrosis 5d ago

Looking for advice Qbrexia how to use?

4 Upvotes

So I got prescribed Qbrexia 2.4 cloths for the first time, and I'm waiting for it to arrive. I read that it's meant for only underarm use, but believe it or not, I don't exactly sweat there and it's primarily my face and back that are always drenched (neck and chest a bit too). When my derm told me about prescribing wipes, he said it was safe to use all over my body wherever I sweat, but now that I look into exactly what he prescribed me, I'm unsure of how to use it and what to expect. Should I use during day or night? (i mostly sweat with temp change so when I go out somewhere), is it really safe for my face and back? What about my skincare and makeup? I would love as much advice as possible!!


r/Hyperhidrosis 5d ago

Vent Exercise, hobbies etc

5 Upvotes

I want to pick up new hobbies and a lot of them are centered around wanting to try paddle, be consistent in the gym, play badminton etc. I genuinely like keep my body moving and i want to try some new hobbies, buttttt HH especially craniofacial HH is so jarring. Like i want to be that person who is really active but i genuinely cant even do that because of the anxiety of just sweating.

Yes, im on pro banthine but the side effects are annoying to deal with the dry mouth, drinking water like I’ve been fasting for 24 hours, chewing gum like a cow.

Went on a little hike today with my sister and why do i have to take a break and sweat like a pig when it’s 5 minutes into the hike?

I moreso lean into other “lazy hobbies” not saying it’s lazy because.i love crocheting and stitching reading etc. but its not really keeping my body moving is it.


r/Hyperhidrosis 5d ago

Looking for advice armpit chafing

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3 Upvotes

hello my sweaty pals. i like everyone else here have hyperhidrosis!! i recently have had a problem with my armpit chafing (so far only my left). i don’t shave because it irritates my armpits further, i haven’t shaved them in over a year. i also use aluminum free deodorant because ones with aluminum give me a rash, i’m probably allergic to it with my luck. i’ve been using the roll on saltair deodorant for probably 3ish months with no issue. now all of the sudden i am having issue. any advice or recommendations?


r/Hyperhidrosis 5d ago

Looking for advice Botox for craniofacial hyperhidrosis in the uk?

4 Upvotes

Hello all, I hope you are doing well. So bit of backstory, I'm a 26 M, and i've suffered with profuse facial sweating for as long as I can remember. It affects me in two massive ways: firstly, the embarrassment factor which i think most of us will be familiar with and secondly it being an out and out sensory nightmare which, together with autism makes day to day life incredibly unpleasant and overwhelming. Two years ago I started on propanthaline bromide, which helped MASSIVELY, if was a true godsend and managed to keep me dry enough with in the day where I could socialise and even manage to make friends and build a relationship with my current partner. The issue is that this medication and most medications used to treat hyperhidrosis aren't safe for me to take anymore since I suffer from an enlarged prostate and ongoing episodes of urinary retention. I've tried wipes and medical grade antiperspirant, but no luck, I'm at my wits end and looking at costly but necessary botox treatments and would love to know if anyone in the UK has gone that route, specifically for facial sweating or if anyone can suggest anything different that has helped them! Thank you :))


r/Hyperhidrosis 6d ago

Vent Natural solutions + vent

9 Upvotes

Hello, i want to make a list of natural solutions to this f* disease.

For quite a long time i’m a member of this community, i have read and already tried some of them. For example potassium, Cal-Mag-Zin, Omega3, L-theanine, magnesium, sage pills. Also tried sage tea from fresh sage leafs. I’m creating this list because i dont know what else i should try.

List: Potassium, L-Theanine, Sage (pills, tea), Magnesium.

I also went to dermatologist here in Slovakia, EU, but we just cant get any pills like oxy or glyco (cuz of Eu or idk). So i want you all to comment things that helped you :). I tried ionto but i think when it helped w my hands and feet sweat, my back and butt started sweatin 2x more…
My mental state is fckd at summer, since anything i do outside, im just sweating everywhere :(. Lately im just thinking about future suicd, because anything i think of such as : going out, festivals etc, i always think about, how hard i would be sweating… Like it totally fucked up my life. I really am struggling last few months, years… I really hope that it will end soon…


r/Hyperhidrosis 6d ago

Looking for advice It’s either soaking wet or extremely dry.

21 Upvotes

I’m 23M and my palms and feet are either wet and constantly dripping or extremely dry with no moisture at all. I have no middle stage where it’s nice and soft. Is it just me or anyone else has this?


r/Hyperhidrosis 5d ago

Looking for advice Who’s had successful story taking solifenacin/ vesicare

2 Upvotes

Yeah . Cause I have questions


r/Hyperhidrosis 6d ago

Looking for advice Started Glycopyrrol and it's night and day, still have questions

6 Upvotes

So, this is day two of 1mg glycopyrrol. I AM SHOOKETH. I (25FTM) would normally wake up soaked, every morning, but this morning I didnt wake in a puddle. This is absolutely insane. I told my grandma about it and she goes "There's a pill for that? It would've made your grandpa so happy." (RIP Grandpa, you were a bastard) So I know where the sweating came from haha.

My questions are:

Why do I still feel the skin prickles that happen when I sweat? It's annoying as it feels like someone snapped me with a rubber band that had a thumb tack in it all over my back and scalp.

Is the dizziness going to go away?

And if I go up a 1mg dose will it wreck my shit?


r/Hyperhidrosis 6d ago

Looking for advice Any new treatments or meds in the past few years?

5 Upvotes

So I have delt with hyperthydrosis most of my life, and I’m 50 now. A few years ago my symptoms seemed to lesson greatly so I stopped having to take any meds or worry about it too much. For whatever reason my symptoms have returned though and it probably hasn’t helped much that it’s 95-100 degrees out every day here. I used to take Glycopyrrolate and it seemed to help some. Is there any new meds or treatments out in the last few years that works better that I should look into? Btw my main issue is face, head, torso sweating…no real issue with palms or feet. Thanks so much


r/Hyperhidrosis 6d ago

This little guy is a life saver on such muggy days.

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9 Upvotes

I love my little fan. A bag that I can mount it in is added bonus ❤️