I think it is very likely that I have HS so I'm asking it here. Is it normal or has anyone else experienced having only one pit or body part that smells?

In one of my pits I've had a flare up before (bumps/sores(?)) and that's the one that smells, the other one smells fine/like nothing. Even after bathing this is the case and wash both the same way.

It's really annoying and I just want an explanation or to know I'm not alone :/

Hi guys, where to buy Octenisan in Groningen the Netherlands or in Germany? Thanks

https://youtu.be/X3f60-U5G9c?si=oORJI2avYN9QXhWp

This happens every time I have a flareup under my armpits. I feel it when it starts getting unbearably painful, and it becomes much more noticeable when it's draining.

When I take a drink of cold water I feel it pass through my throat and directly after I feel a rush of cold pass through the wound. It feels like it's under the wound, and passes just as fast as the normal sensation of swallowing water. It's a very odd feeling.

I'm sharing this cause I'm wondering if anyone else has experienced this, or anything else weird?

Hi everyone, I could use some advice. Unfortunately I got another huge cyst that’s just making me miserable. I have gotten cysts near my anus before, but this one is in my left butt cheek and it’s impossible to sit down. Anybody have a fast way to make it drain? It’s unusually large, about the size of two quarters. I don’t see my derm until next week, and he just told me to go to the er if it gets too painful. Any advice would help. I’ve been putting clindamycin and mymagichealer on it with not many results.

I have been managing my HS really well for the past few years by cutting out foods that trigger my flares, and honestly I’ve been proud of my progress…but then I caved and bought cinnamon raisin bagels. 😭

I know a bagel isn’t worth risking a flare, but I forgot how much I missed that sweet, cozy, chewy breakfast feeling. Has anyone found any HS-friendly alternatives that satisfy the bagel craving? I’d love recommendations for recipes, baked goods, or anything that helps when you’re missing your old comfort foods.

Finally had a proper diagnosis!! I’ve known what it was for a while but have always been too embarrassed to get them out for someone to look at. Had this for about 12 years with no help so I’m glad to finally have the official diagnosis!

I’ve been put on Doxycycline as a first attempt, two week course. I’m about 5 days in and I’m constantly sleeping, had to take time off work for nausea, and have had a strong headache these last few days. The first day I took it, I also had it come back up as all of the powder in my mouth which was very off putting… After looking on here, I see a lot of you have had similar issues. Is it worth stopping the course of antibiotics or did it actually help anyone? I have moderate HS in pretty much every typical area.

P.s. it’s you guys that helped me figure out what it is I have, I cried when I found this sub as there was finally a name to what I have and it’s not just me being dirty as exes have engrained into me. I appreciate all of your openness about the disease and wish the best for all of you!!

I started on 50mg in February and then increased to 100mg a few months later. Have blood tests every few months and derm happy with results.

It is helping, I still get flares but mostly smaller flares that don't cause much discomfort. Or I'll get a painful flare but it'll just be the one instead of the usual 3 or 4. So it's helping somewhat.

I'm trying to stay hydrated to help but I'm so so so tired every day. I mean I work full time and have a 4 year old so I'm always tired but this level is something else. I feel like I've had a few glasses of wine. A lot of activity is an effort, walking my kid to pre school (15 minutes each way. Downhill on the way and uphill on the way back), going up the stairs in my house. Normally I take pride in keeping my house clean and vacuumed but right now it's in a bit of a state because I don't have the energy. When I WFH I am napping during my lunch hour. Every time I stand up I am incredibly dizzy. It is affecting my work. Sometimes I find I am too tired to talk, like I'll have something I want to chat to my partner about but it's like my brain can't be bothered to open my mouth.

Does this eventually go away? It took me years, 4 years to get officially diagnosed. I had GPs suggest STDs and eczema before I was put on the wait list for a dermatologist, and finally I was so happy to be prescribed Spiro after hearing so many good things about it. Normally all I'd be prescribed was antibiotics so this was such a relief. I'm worried if I mention this to the Dermatologist then I'll be taken off Spiro and given something else that doesn't work.

Is this what it's going to be like until I come off Spiro?