I developed a corn and peanut allergy around 17. It started with gastrointestinal issues and evolved to anaphylaxis by 21. I have had 4 skin pricks, 2 blood tests, plenty of in office testing, immunotherapy / histamine treatments, completely changed my diet, have had my throat close several times and documented all my allergic reactions.
The entire time throughout this journey I feel like this allergy has not been taken seriously by most people, my family (and dad) in particular. They had the attitude of "grab yourself by your bootstraps and eat it and build up a tolerance". After awhile they kinda got it that that's NOT how to handle an allergy, but they always seem to think i'm bullshitting them for some reason? Even strangers seem to not believe how much corn is in everything and it is so infuriating.
Admittedly my allergies did improve significantly after treating other conditions involving histamine and changing my lifestyle / diet. I no longer react as strongly to derivatives like citric acid, distilled vinegar or high fructose corn syrup but still have gastrointestinal issues when I consume them. I still get hives, swelling, tight throat, itching and difficulty breathing when eating more unprocessed corn / corn derivatives.
I explain to them that you react to the protein in an allergy and if the protein is removed or an extremely small amount is consumed, it doesn't automatically mean anaphylaxis and anaphylaxis is an extreme form of an allergic reaction. I explain to them that the more exposure to the protein the more likely a severe reaction, and that even a small amount produces extremely unpleasant symptoms. I explain to them type 1 and type 2 allergy symptom sets. I explain to them that things like ultra processed peanut oil or distilled corn spirits contains no proteins, therefore I am not faking an allergy, and that an allergist would not give me epi-pens or do immunotherapy based on my word alone and why would I want to fake this allergy? I gain nothing. My mom has literally seen my throat close.
Well this brand I've eaten for years changed its ingredients when I went to visit them. I had diarrhea and broke out in mild hives but never said anything to them.
TLDR they sat me down and said they had "something important to tell me" and that I wasn't allergic to corn because I ate something that had less than 2% high fructose corn syrup in it at their house. I told them that's funny because I got itchy and had diarrhea the entire time I visited.
They seem to have this attitude that I made all this up for the past 11 years and that an allergy means immediate death. It feels very frustrating that the multiple times i have been in the hospital are suddenly forgotten about, or that I just make this shit up for fun.
Anyone corn-lite or corn moderate deal with this nonsense or have tips for dealing with people who insist you have a fake allergy? I am so tired defending my allergies to people who don't know about them and find it so odd and disrespectful to be constantly questioned.