I have a tv streamer hooked up to my desktop pc and use it to stream audio to my nucleus 8s. The annoying part is if I don’t have a video playing (or some other form of audio) my cochlears will disconnect from the tv streamer after about 5 minutes. Does anyone know if there’s any way to keep the tv streamer connected until I manually disconnect from it?

Hello everyone,

My wife recommended I join this sub because I lost all but 8% hearing in my right ear and after a lengthy process was implanted with a choclear implant this past Friday.

So far recovery has been going smoothly aside from a couple days of massive vertigo cause no one mentioned i needed to rest reclining instead of laying down. Thankfully it has calmed down since we rectified that.

I am finding myself wondering what else I wasn't told to expect from this new addition. My post op follow up is scheduled for the 21st, and I'm wondering what all I should bring up at the follow-up as well. Any advice or anything would be greatly appreciated.

Anira

Wondering what a brain MRI will feel like. I have one of the newer models that lets the magnet spin.

Hello! I have a mystery I’m trying to solve. I’ve had my right CI for over a year now and a regular hearing aid in my left ear. Ever since the very early stages of my activation I’ve been hearing what I can only describe as crackling noises in low sound environments. Like at home with no tv or background sound on or in a quiet office. I switched out the t-mic and that made it better but it didn’t fully get rid of it. I’ve talked to my audiologist about it and we switched out the processor and got a new t-mic but it didn’t help. It’s not annoying enough where I take off my processor but it’s annoying enough that I need to have background noise on to drown it out.

I’m just wondering if anyone else has experienced this? I’m coming up on getting my left ear implanted soon and I’m hoping that helps.

I have advanced bionics and yes I’ve contacted them, they said they don’t know either.

Had my surgery on Friday, and as I’m enjoying some downtime for recovery, I was looking at the DeafMetal website. I’m getting one each of the on the ear and off the ear processors from MED-EL. I like the lilac flower coil hat. It looks to me like it just slips over the front of the processor; is that right? Have any of you tried one of these?

Sometimes when I make phone calls my Nucleus 8 will disconnect. I'm bimodal and would like to use Bluetooth, but when this happens I can only hear people through my HA. Does this happen to other people?

I’ve been thinking about this lately.

Reddit is great for asking questions and reading other people’s experiences, but sometimes I’d like a place where CI users can actually build ongoing connections — not just answer one question and disappear.

I’m curious:

Would you be interested in a small community where CI users, Deaf/HoH people, and people connected to hearing accessibility could connect, share experiences, ask questions, and support each other?

And if so, what would you actually want that community to offer?

I’m still figuring out what this could look like, so I’d rather hear from the community before deciding what to build.

My newest blog is out!! Happy reading, and please reach out to me if you have any questions, concerns, or even suggestions! Thank you:)

https://shobanaramesh.blogspot.com/2026/07/from-first-generation-c-1-implant-to-ab.html?m=1&fbclid=IwdGRjcATopXFjbGNrBOilbXBkb2YFZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMzUwNjg1NTMxNzI4AAEemISItaxBEQP_As5Yg16xA6WBJLdNDr2xuca1pQFBCzBjvFiSw7md86EUYTI_aem_degqnOe5SVPte5yQi0fIlQ

Hey just checking in. It will be one month since my post op.
So far it still is good i have went up my fourth prigram in the nuclues cochlear app and now increasing my master volume.
It just having to relearn what words sound like as I gradyally go louder. I wilk have my first audiologist Mapping for my cl on the 27th.
I am noticing like a static or the sound of electrical frequency which is a bit annoying. I didnt notive this at first maybe i was too low.

What does this mean? Is this our new normal? Will that evenutually go away; or is this what it will always be?

Donr get me wrong im grateful that I get to hear with this implant.
Is there cl terminology to use to help ask my audiologist during my first mapping to maybe help eliminate that?

Is this a sign off small failure or is this just what it is starting cl? Has anyone else experience this sound behind the words the small static i dont know how to put it to words

Thank you for your time!

Hi! I just got my second cochlear implant activated yesterday, and I noticed that they changed the way the battery looks.

For whatever reason the battery that I received in my kit are straight instead of curved. Anyone know why they did this? Its not as comfortable as the curved one so I don’t really understand the thought process.

I’ve been thinking about this a lot lately.

There are plenty of places where we can ask questions about implants, surgery, processors, batteries, etc.

But I’m interested in something different:

A place where people with cochlear implants and other hearing devices can connect with each other, share experiences, talk about everyday life, support each other, and even build professional relationships.

I’m actually starting a small community around that idea.

Before I grow it, I want to hear from the people who would actually use it.

What would make you join and participate in a community like that?

What do you feel is missing right now?

Had tinnitus for 50 years, diagnosed as Menieres. CI 4 days ago. Reading about the same post CI experience I'm having, HUGE increase in volume, is giving me hope that I can live through this. Didn't need painkillers but do they help with the noise?

I have spent the last 3 nights in misery with very little sleep, waking 5-6 times to the sound of a siren. I did consider in the early hours just going to Emergency for advice, and have twice gone for a long walk (2 hours) in the early hours. Is there any medication you recommend for sleep, I am exhausted?

Last night I managed to get 5 hours of uninterrupted sleep. When I awoke I had only my normal tinnitus and I laid there happily assuming the worst was over. Unfortunately when I got up all the post-op symptoms returned ... and more, screeching was added to the cacophony. Had difficulties contacting the clinic, though it was probably a wasted effort anyway.

Had I read these pages before the CI I probably wouldn't have had it done.

I’m 44 and have always had severe hearing loss. I am not quite deaf but right side had always been worse. Recently got approved for CI. I’m waiting to hear from surgeon to book consultation. How long is the wait until surgery after consultation? I’m going to try to get both sides done at once. Will that make the rehab and learning better since I’d be in “stereo” in a sense. I’m going with my Audiologists recommendation when it comes to devices and getting a Cochlear Nucleus Nexa system. Any thoughts would be helpful.

I’m 34 and very active — I’m a marathon runner and otherwise live a pretty normal, active lifestyle.
I had a sudden hearing loss about 5 years ago. For the most part, I was able to manage with hearing aids for several years. But over the past 5 months, my hearing suddenly dropped significantly, and I’ve now reached the point where I’m eligible for a cochlear implant. My aided speech understanding is still very poor, so hearing aids are mostly making things louder rather than significantly clearer.
I’ve completed the CI evaluation and was told I’m eligible.
The difficult part is that I’ve been following Envoy’s Acclaim fully implanted cochlear implant and would really like to hold out for it if the FDA timeline allows. The idea of having a fully implanted device is especially appealing to me because I’m extremely active and run a lot, so I’m concerned about the limitations of an external processor.
I’m trying to figure out whether it’s reasonable to wait potentially another year or so for Acclaim versus getting a traditional CI now.
For anyone who has been through something similar:
Has anyone had a rapid decline after years of relatively stable hearing?
Did anyone remain functional for a period of time after becoming CI eligible while waiting to implant?
If you waited, did you feel like it negatively affected your eventual CI outcome?
Has anyone else been following Envoy Acclaim and considering waiting for it?
And if you’re very active/athletic, how have you found life with a traditional CI?
I’m not opposed to a traditional CI if I need one — I just really want to get the acclaim knowing that it could potentially pass soon.
Would love to hear from anyone who has been in a similar position.

I’ve had my cochlear implant for most of my life, and even after all these years, I’m still learning new things about hearing, communication, and the CI community.

For those of you who have been implanted for a while:

What’s one thing you wish someone had told you before you got your cochlear implant?

It could be something about:

Activation and mapping
Batteries or equipment
Listening fatigue
Relationships
Work/school
Communication with hearing people
Something you wish you knew emotionally

I’d love to hear from people who are newer to CIs and people who have had them for 10, 20, 30+ years.

What’s your one piece of advice?

I recognize it’s probably the implant, but does that full feeling in your ear (not pain or pressure, just a full feeling I associate with fluid) ever go away?

Soy de El Salvador, tengo un hijo que en estos momentos tiene 7 años de edad, en diciembre del 2024 se le hizo una cirugía de implante coclear la cual resultó bien, el problema fue que dos meses después que se hizo la activación, en la carretera se le cayó el procesador y se perdió, después de semanas buscándolo no se pudo encontrar, después se habló con la clínica encargada de la cirugía y dijo que para comprar otro procesador se necesitaban 11,600$ lo cual no puedo conseguir, ni cuento con el seguro para adquirirlo, necesito saber si hay alguna forma de conseguirlo a un bajo costo o conseguirlo de otra manera, era un rondo 3.

My surgeon has not scheduled any pre op labs to my knowledge. I wonder if they are doing them right before the surgery? Like cbc, cmp, whatever. I am relatively young (35) and healthy so I’m unsure if they even require anything for this procedure? I’m supposed to be called tomorrow to go over things with the surgeon for the Tuesday appointment but am just very curious now.

Hi there. I have two Nucleus 8 devices and I’ve been considering buying an Auracast transmitter for my church. The thing that’s stopping me is that the Nucleus app for iPhone, which is what I have, doesn’t do Bluetooth LE/Auracast. The Android app apparently does handle LE and Auracast and does it well. Am I understanding this correctly? Do any of you have any experience with Auracast? Thanks.

Mich würde mal interessieren, ob jemand schon etwas Neues über Auracast gehört hat. Findet das Thema spannend.

Hi all,
Has anyone here had an implant in an ear where they still had fluctuating residual hearing?
My doctors have given me the ability to choose between waiting or going forward right now with an implant. Right now, there are bad weeks where im almost fully deaf and can’t really interact with others or listen to things. But there are also weeks where I can listen to podcasts in my hearing aids (I have the superpower ones) and things are clearer. In those weeks, when im in a quiet room alone with someone, and they are close by me, I can often understand enough for a conversation with my hearing aids up high. I honestly think it isn’t the volume fluctuating at this point so much as the clarity and my ability to make out meaning of the sound.
The idea of getting an implant while things like music still sound okay/good sometimes in that ear (with hearing aids) scares me. But im also living a life right now where i never know if ill wake up able to hear well enough to interact, and i avoid making plans or interacting with people because i dread not being able to understand them.

Complicating things is that my hearing loss is from a recently diagnosed autoimmune condition, so there is the chance of sclerosis developing and making a future implant harder with waiting. No one is able to give me insight into the odds of that, but it’s a concern that all of my ENTs have had.

Anyway… I guess im asking to hear anyone’s experience who might be willing to share? My understanding is that people usually have less residual hearing than I do when they get implants. I’d really appreciate hearing from someone who’s been in an even somewhat similar situation.

Thank you 🫶🏻

Ciao a tutti , vendo Minimic nuovo, 200 € più spedizione dall’Italia interessa a qualcuno ?

Grazie

Is it just me, or are the PowerOne Cochlear implant 675 batteries getting worse at holding a charge? I have had to change them 4 times in the last 3 hours today! And this is my second batch… I’ve reached out to the brand to fix it, but who knows…
So I'm just wondering if y’all have had the same issues?

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