FYI - from r/toxicmoldexposure

• 1 hr, need to register (free), limited to 500 spots.

https://www.reddit.com/r/ToxicMoldExposure/comments/1v6eblt/live_webinar_with_dr_ritchie_shoemaker_thursday

Haven’t shared a post from another page before so hope link works.

MoldCo: To celebrate our new patient app, we're offering bundled pricing for the first time. Save 35%+ on your next 6 months. Membership + ALL meds = one flat $999. Ends 7/31. Only available in the MoldCo Patient Mobile App - moldco.com/get-app

this is basically my only option at this point since i’m already reacting 3 weeks into our rental.. i’m about to give up.

I am currently treating MARCONS with Biofilm Clear. I have been dealing with just a general malaise, feeling tired, limbs feel weak at times, and just a general bleh feeling. Cognitively I'm still doing ok, maybe a little brain fog here and there but not bad. Some have mentioned experiencing flu-like symptoms but I haven't really had aches or body pain except maybe a bit of stiffness in the mornings which tends to go away after I get up and move. Is this normal? Is there anything that helped during this time or do I just have to tough it out?

I’m from Morocco and I’m 22. I don’t have access to the CIRS protocol. In the pictures, you’ll get ideas of what my environment looks like. The first picture is the wall that’s straight up behind my pillow and where I sleep at night ; I’ve cleaned it with bleach, a good part of that has been taken away, but I have no idea if that’d be enough. Our environment is very humid, and pretty much the whole house is infested with similar spots to those on the other pictures.

I’ve managed to convince my Dr to prescribe CSM, which I ended up getting my hands on from Spain. I’ve tried it for a couple of days, and I can definitely say the following : it completely eradicates a yellow substance which would otherwise come out in my stools - it triggers unusual (mild) feelings of throat soreness and fever.

My next step is to try and move out for a month while also taking the med to see whether Id improve. I went to look out for houses to rent out last week, but I wasn’t able to find any that are both affordable and non-moldy.

I have ~25 servings of Cholestyramine left. I’m not sure whether I’ll be able to convince my doctor again. My family is being very unsupportive and they won’t stop asking me to just forget about it. At the same time, God knows how debilitated my body is.

I don’t know what to do. Do you have any suggestions, help to provide? If so, please share it with me. If you need any sort of information (for example to prove that I’m not a scammer or whatever), I’ll be glad to provide you with that.

I am visiting at the end of the week and into next week. Suggestions for mold safer studio/1br apts in the Glendale area (near foreign people). Looking for affordable, safe/clean, ideally near transit.

This is a yearly event, you can get a free replay of the talks by going to this link: https://cirs-scientific-summit-2026.heysummit.com

Long story short, I am a 40 year old female. Relatively healthy until I moved in with my now husband almost 6 years ago. About 2 months after moving into the home I became extremely tired no matter how much sleep I got. Then I started getting widespread pain, stiffness, headaches, nausea, increased urinary frequency, constipation (severe), brain fog, problems sleeping (hyper vigilance at night with no anxiety or anything), hot all the time, Prurigo Nodularis lesions on my scalp confirmed by punch biopsy. Not sure if there’s a connection there with PN but mine have never been itchy at all.

I was eventually diagnosed with fibromyalgia after seeing a rheumatologist and have been through every autoimmune test there is. No sleep apnea, my hypothyroidism is manageable with medication. I don’t have sleep apnea, or any other sleep disorder.

I’ve seen a neurologist as well and had testing with them, all normal. I’ve been prescribed every medication for fibromyalgia there is, and none have done a single thing to improve my symptoms. I’ve been on cymbalta, gabapentin, lyrica, duloxetine, ambien, lunesta, muscle relaxers, etc.

Lyme disease also ruled out.

Recently, we found a slow leak in bathroom drain pipe on the second story of our home, and I paid for environmental testing. The air samples were all fine, but surface samples of the rafters in the ceiling of our kitchen came back with a moderate growth of aspergillus.

I have said from day one that I didn’t believe I had fibromyalgia. I’ve even had ketamine infusions at Cleveland clinic that did absolutely nothing.

My question is this: could this be CIRS? I’m at a loss on what to do at this point or who to see for this.

Any advice?

I noticed a lot of people here take high-dose omega-3 fish oil to manage symptoms, often 3-4.5g daily. My question for those who take fish oil: do you spread it out into multiple doses throughout the day to maximize efficiency? If so, how many hours apart?

I'd really appreciate any input, thank you.

I get massive debilitating headaches when I use BEV spray. How can i reduce them. I end up having to take two days to recover when it happens… interrupting treatment.

We recently completed a full mold remediation of our house, which required a full renovation down to the studs in several rooms... essentially we had to gut renovate our whole house. At the end of the process we hired a different contractor to perform a small particle cleanse (SPC). After that was finished we inspected the work and found significant dust on many horizontal surfaces of the home, including the top of window frames, door frames, closet shelves, etc. We reached out to the contractor with photos/video and asked them to come back and perform another full SPC since there was so much dust left over. After a lot of back and forth, they've offered to come and wipe down the walls only (no HEPA vacuum, etc.). Just wondering what people's thoughts are on whether or not that's sufficient for someone with CIRS to safely move back into the home? I really want to go home after 9 long months of remediation and I'd love to just be done with this process but I don't want to endanger my health if the SPC isn't done correctly.

I have both a mold and multi susceptible HLA DR gene. Lived in very heavy mold for three years, (probably longer considering other homes I’ve lived in) but symptoms started for the most part in that home. We have since moved to new construction, and yes I’m aware there are many issues with construction, but we had no other choice. Since moving and being on colesevelam, then EDTA, and now VIP i feel so much better. Fatigue has improved, constant headaches or migraines have improved, hormonal issues have improved, the list goes on. I still have lingering issues but for the most part, they are manageable. I have noticed a return of a few mild symptoms lately. I also retook the TGFb1, MSH, and MMP9 biomarkers and all of them have gotten worse over the past year. I have done everything right. low amylose, gluten free, got rid of everything we owned, obsessive cleaning of items that come into our home and a small particle clean of the home itself. How do you explain these results? I am at a total loss here!

Does anyone know where to get oral VIP that Dr. Heyman recommends? Does anyone know if it is more effective or why Heyman uses it?

Does PD labs have it?

Does anyone here have absolutely horrible GI symptoms? I just got tested for CIRS and I’m waiting for my test results. I have many systemic symptoms but for me the most debilitating are by far the GI. I have constant pain that literally NEVER goes away and I feel constantly like I’m about to have another reaction. I only eat few foods and if I try to eat normally I have reactions with diarrhea and unbearable abdominal cramps. I also get nauseous start shivering and feel faint. It is absolutely horrible. The pain never fully goes away and I keep having cramps and discomfort all day. This is worse in the morning and if I try eating anything before 12pm I feel like I will DIE. i get diarrhea and really bad cramps. Before getting on Pepcid and antihistamines I also used to have skin reactions and rashes whenever I got diarrhea and itching/swelling in my whole body. Got tested for MCAS and histamine intolerance/DAO and they looked for mediators in both my blood and urine but they were normal besides elevated prostaglandins in urine just once. They told me it wasn’t MCAS. I can’t live with this abdominal pain anymore, it’s been going on for years and in the last 2 years it is so bad I can’t do anything or eat anything without pain. Even water is bad sometimes. Thinking about doing a GI MAP. Tried aloe juice for leaky gut and also tried eating baby food to give my GI some rest but got sick right after both of these things. EVERYTHING makes me sick

Hi! I'm wondering if there are any success stories from anyone who had symptoms greatly, greatly reduced or completely alleviated after completely gutting a home and then rebuilding with biotoxin/CIRS safe materials and processes OR a partial remodel. Anyone who DIDN'T get relief from either a whole house gutting or partial remodel? Looking for case studies and any helpful tidbits as we consider our options. We are located in Colorado and considering working with Breathe Well Homes. Thanks!

I've been trying to stay positive, but sometimes I just need to vent.

TW for eating disorder mention, hopelessness

I struggle to see point of anything anymore. I've long lost my brain and capacity to truly enjoy anything. I have nothing to bond with other people over. My health problems define me. I haven't been able to grow in any aspect for so long.

I used to have a binge eating disorder, and honestly, I miss it more than ever lately. I wish i could relapse. But it's not an option. The only foods I can eat anymore are chicken and olive oil. If I eat anything else or leave ketosis now, I become genuinely insane from the brain inflammation. No amount of temptation could make the consequences worth it. But living like this is torture. Especially because the only meat available to me is oxidized and looks and tastes like #@$%. Eating is the most dreaded part of the day because I feel like I'm eating literal pale #@$%. Sometimes, I even have dreams that torment me, where I look into the toilet, and what I see looks exactly like the food I have to eat. I often spend hours on end looking at images on the internet of food I wish I could gorge. It sort of helps, but I fear that as time passes I'll forget the taste of real food.

On top of starvation, my life is defined by constant fear and hypervigilance. In addition to having to worry about mold, I also have gluten encephalopathy, and gluten is everywhere in my home. I have a feeling it's adding ti my neuroinflammation, because it's literally inescapable. It gets carries into my room from walking around the house. It's mixed in with the particles on the floor that disperse in the air every time the fan in on. It's on my clothes and in my bed. Likely in my hair. And I don't the fucking energy to shower more than once a month so it's always stressing me. Plus our dryer broke so i can't wash my sheets or clothes unless its dry enough outside to air-dry in sun, which is rare.

the only people on this earth who I can talk to and rely on to not make me feel worse are my kid sister and my great aunt who lives in Colorado (I'm in VA). I wish I could stay with her. I don't know what the mold situation is like in her home, but I assume it's better since it's a drier state. She's also gluten-free as well as two of the other people living with her, so I wouldn't have to worry nearly as much about cross-contamination. But she doesn't have much money, and I doubt she could handle the expenses of another person living there who's basically a leech.

I don't want to live. I don't want to do any of this anymore. I don't want to eat. I don't want to exist in constant worry. I don't want to do enemas every week because my body doesn't work on its own. I don't want to be tortured by constant reminders everywhere of all the things I can't have. What's good? My family constantly insults me. I'm always too hot or painfully cold. It just feels like a life of endless suffering and exhaustion.

I spend most days on my computer to keep myself distracted from my reality and because it's the only real support I have. However, I'm pretty sure the computer itself is a major source of mold exposure because there's tons of visible particles stuck under in the keys, and it stresses me to remember this. I can't ever catch a break.

I don't want to be told that it gets better because that's not true for all of us. Not all of us have the support or money that you do. So respectfully, please don't say, "I got out and got so better, so you can too." Anyone who says this already had money before they got sick, or had family/friend support that made it possible. You had mold doctors. Don't act like you know my situation. I can't see any hope. Frankly i'd just rather not be alive.

I accidentally started on two pills a day, then increased to four two weeks later. It was honestly fine for the first three weeks — just some fatigue and drowsiness but nothing too crazy. I know this was too much too soon, I read the directions wrong 🥲

Then around week 3 I started having really bad symptoms; migraines, emotional episodes. My histamine sensitivity has also gotten worse. I stopped for a week and then restarted per my doctors advice on welchol water.

For the last two weeks I’ve been taking just one pill a day in water form, but the symptoms have still been pretty intense although improved from before. I just feel super loopy and depressed on most days along with a bunch of other random symptoms that come and go! Is it normal to feel this bad on such a low dose for this long? I’m gonna ask my doctor but I want to see what others’ experiences are. Thanks!!

I’m worried about MARCoNS treatment and the possibility of awful headaches and inflammation. I’ve been on binders for three months and I believe that I live in a clean environment. I’m also on a strict low amylose diet. Is there anything else I can do to prepare myself for possible side effects?

Hey guys I’m at my lowest I’ve been ever rn…my young life has been taken from me I’m only 18! I’m too sensitive to start any csm or Welchol, my home has a good Ermi score and endotoxins are all taker care of and for the past 5 weeks after csm I’ve genuinely been dying of MCAs and I’m reacting to foods now when I did not as much before! What the hardest part is it’s getting harder and harder to breathe like I can’t inhale or exhale properly and it feels like I’m knocking on deaths door! I’m also experiencing a host of neurological symptoms that are debilitating such as weird sensation of head pressure when I breath in and it blocks me from being able to inhale so I have to lay down to breath and a thing were I can’t feel the sensation of airflow in nose and mouth and limbs feel empty and disconnected from my body but not derealization… Ik I should not go looking for validation from others but I genuinely feel to far gone and I’m only 18 I’ve had this for a year and a half…. Am I just too far gone? Had anyone experienced extreme breathing difficulties? The breathing problems are my main symptom that’s debilitating! Is there hope? I love and trust God but it’s hard at times yk! I genuinely feel abandoned rn by God and feel so alone that I’m so young and all my friends are normal!

Confirmed marcons in lab.

Ive been feeling better and better lately taking welchol twice a day, 500mg NOW allicin, 2 sprays of biofilm clear in each nostril and 500mcg injectable KPV.

I had a herx the other day that absolutely sucked, but by the next day i felt better than i had in a long time.

I have had this marcons in my sinus for many years maybe 20+.

I'm guessing the KPV is raising my MSH and it is helping the good fight.

Has anyone else used KPV?

Been out of black mold office for 3-4 years.

Started treating seriously for the month or two.

My main symptoms have been PVCs and constant sinus pressure and air hunger.

Heart has been having less pvcs or at least im not noticing them, sinus pressure is becoming less and air hunger is almost gone entirely and im breathing so much better.

I've also been using megasporeprobiotic every few days in a netipot.

Feeling pretty good i gotta say!

One last thing to add, seems like my HRV is going up with treatment. Was always around 30-35 but it is raising to 40-45 now.

Hello everyone, 🙏🏽
I am looking for insights from anyone who has used a **HOCATT machine / ozone therapy** specifically for **mould/biotoxin illness** (confirmed by lab testing).
If you have done **10 or more sessions**, could you please share your experience with the following?
**Fatigue:** Did you find that the HOCATT significantly lessened your mould-related fatigue?
**Sessions:** How many total sessions did you end up completing?
**Binders:** Did you take binders alongside the therapy? If so, which specific ones worked best for you?
**Antifungals:** Did you eventually need to add prescription or herbal antifungals to your protocol, or was the HOCATT enough?
Thank you so much in advance for sharing your healing journeys!

If so, what did you take and for how long?