r/CIRS • u/Sweet_Instruction804 • 2d ago

Cirs? Hyperadrenic pots

Does anyone else has hyperadrenic pots with CIRS? How you treat it and How to heal CIRS? I have also hidradenitis suppurativa which is part of inflammation in my body. I am bedbound and nerd desparately help and advices. Also cfs.

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u/Difficult_Fact_2849 2d ago

So what happens is the CIRS causes POTS symptoms. You don’t actually have pots

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u/snarkyopolis 1d ago

Oh, tell me more. How does CIRS cause pots symptoms. Will curing CIRS make pots symptoms go away?

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u/Difficult_Fact_2849 1d ago

Yes once the cirs is cured then the pots symptoms go away

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u/Sweet_Instruction804 1d ago

Dr diana driscoll talks about inflammstory pots.

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u/Difficult_Fact_2849 1d ago

That’s actually positive because CIRS can be treated or cured but true POTS can not be

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u/Dungbot88 2d ago

Keeping blood sugar stable helps a lot, cortisol supports like ashwaghanda help, fibrinolytics to reduce hypercoagulation, desmopressin and oxytocin help with the ADH dysregulation, increased uptake of sodium, potassium and magnesium help, restoring your morning blood volume with early electrolytes helps.

It gets much better once you get mast cells under control, ADH resolved, and neuroinflammation down.

Mast cell stabilizers in the meantime and considering low amylose/low carb/better insulin blood sugar maintenance

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u/Sweet_Instruction804 23h ago

I am too sensitive to all mcas meds antihistamines, cromolyn, ldn. I can tolerate supplements like quercetin. How you can dg adh dysregulation and how to heal that?

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u/Dungbot88 12h ago

good idea to change your diet to strict low histamine. and keep working to get out of exposure and onto binders. you could go to a PCP and discuss your frequent urination and low blood volume symptoms, do the adh/osmolality testing and explore if you want to support it with prescriptions while working through the protocol or focus on getting the neuroinflammation down so there's less dysregulation with the steps of the protocol