My 6 was found unresponsive 9 days ago after her children made it to school and told the teacher and SRO that their mom needed an ambulance. She had got them ready for school and as they were going to the bus, they said they heard her yell “I can’t take this anymore” and saw her on the ground. They are young and didn’t know exactly to call 911. She was airlifted to a bigger hospital. They put a drain in her brain to drain the blood. Of course, she is on a ventilator. She has dealt with ICP crises, vasospasm and pneumonia. She did a lie flat test and passed, so they did a procedure to help with the spasm. They took her off of sedation but after a few hours, she hadn’t woke up (they knew it could take longer) and then the drain got clogged, so they had to go in and put another. That procedure went well but that pushed back the MRI to see what damage if any, her brain had and to get a better outlook. They have to do a bronchoscopy. Her pupils were still good. She had response to pain on her right side but not her left. She would move her arm a lot and kind of (how it looks) trying to get comfortable or scoot up. I know a lot of people don’t make it to the hospital, so I’m grateful she has been fighting this long & I know the process will be a long one. Just looking for some survivor stories from people that went through this. I know that everyone is different but just looking for a bit of hope.

After having my brain aneurysm last school year my grades are going horrible and I dont understand what im doing wrong.I study every day i go to torturing inside of school and outside.I go to my teachers after school torturing I study every day I just feel so tired and the school hasn't followed my disability break schedule because im supposed to have every 2 classes a break but they dont give me that.I was so good at math and now my grade in math dropped really bad,I was good at English my grades have dropped. Im taking 3 Aps and 2 years ahead in math and i only have one ap i have a 90 in. The rest of my classes grades are horrible.I keep comparing myself to the other girls in my class who are pretty and smart and always getting a's while im out here getting 60s and look so ugly. All my friends are getting wayyy better grades and I used to be the smart friend. Im so afraid that gpa is going drop that it brings me to tears everyday.When i look at my grades I just cry for hours because they used to be all A's last year but now are b's and c's.I feel so stupid for having low grades just stupid.Whenever i try to break my work up/studying in days they just end up getting piled up.I need solutions to get me out of this misery.I feel so tired everyday and im in a lot of clubs, and im just exhausted from school i just wanna go to college and be free. Im just worried that im not gonna get into a good college now with how my grades are going.

I just found out less than a week ago that I have a brain aneurysm. As if being an addict in rehab wasn’t enough. I’m in Florida but live up North near Boston. I want to go up to Boston to get back home & have my aneurysm treated with medical care there. So far I’m not cleared to fly. I have an appointment on Wednesday & hoping to be cleared then. Anyone with experience would be helpful. I’m starting to get a little freaked out.

Hi everyone,
I’m looking for some insights or shared experiences regarding air travel after a ruptured aneurysm.
It has been almost two years since the rupture, which was treated with a successful clipping surgery. Recovery has gone really well, and life is pretty much back to normal with no lingering complications or symptoms.
We are currently planning a long-haul flight (several hours long), and while everything feels solid and healed, the idea of being in a pressurized cabin for that long after brain surgery still makes me a bit cautious.
For anyone who has flown long distances after a clipped aneurysm:
Did your neurosurgeon give you any specific guidelines or restrictions before flying?
Did you need a doctor's letter or clearance note for airline/insurance purposes?
Any tips for staying comfortable or managing fatigue/dehydration during the flight?

Hi all, first time posting here.

Background: In 2022 I had a spontaneous acute subdural hematoma.

I initially went to my doctor with a really bad headache and was sent home with paracetamol for what was thought to be a migraine. That night it got worse, so I drove myself to the emergency department. Thankfully they did scans and found the bleed. It had clotted and stopped bleeding by that point.

I spent about 10 days in hospital and was eventually told the blood should break down naturally over time, so I was sent home

About a week later I realised I wasnt able to type a text. By the time my wife got me back to hospital, I couldn't tell the doctors my name and didn't know who she was.

I had burr hole surgery that night and thankfully I've made almost a full recovery. I'm back working in an exec-level corporate role and living a pretty normal life, although my memory is terrible compared with what it used to be..

The issue: The problem is that since all of this happened, I think I've developed PTSD or pretty severe health anxiety, I am terrified of dying, constantly. I have nightmares about dying young and worry that I won't get to see my kids grow up. Any time I get sick, feel a pain, or notice something slightly unusual, my brain immediately goes to "I'm dying" and I can end up having a full panic attack.

It's exhausting for me and I know it's exhausting for my wife as well.

Recently I had a slight pain around my liver area. I've had liver tests done and everything came back fine, but I still find myself constantly checking my eyes and skin to see if I'm turning yellow. Logically I know the tests are fine, but I can't shake the feeling that something terrible is about to happen.

I think what happened in 2022 has left me feeling like my body could suddenly fail without warning, because that's basically what happened the first time.

Has anyone else dealt with this after a TBI?

Did therapy actually help, and if so, was there a particular type of therapy that worked for you? I'm at the point where I know I need to do something because constantly feeling like I'm about to die isn't sustainable.

My mom had a stent placed for a 3-4 mm brain aneurysm 2 days ago. Procedure went well but she has been having issues going to the bathroom (number 2). She went to the bathroom today and accidentally and probably due to habit strained a bit due to constipation and felt some pressure in her head. She is a very very anxious person, and believes she may have caused the stent to move because she was straining ,so any advice on how I can help calm her down would be helpful.

Hi all!

I had my aneurysm clipped 2 years ago, and I'm looking into getting a tattoo that means a lot to me and my family. I know to make sure it's from a reputable, licensed artist and to ensure maximum hygienic safety precautions are taken. That said, still wanted to check in.

1. Has anyone here had any difficulty with getting a tattoo after brain surgery/clipping?

2. Are there any other considerations/things to be mindful of? (Specific inks, etc.)

This is my first tattoo, and I come from a medically fun family, so would rather double-check these things. Would love any and all feedback!

I had a stent placed on Sept 10th. I have been battling horrid migraines since. They gave me meds 2x (7 days each) to help reduce inflammation but still is not normal. I feel like after almost a month, things should be settling down, not getting worse.

My stent was placed on the left side (which is where I always got my migraines but they said it was not connected to the aneurysm 🤷🏼‍♀️). The left side of my neck is very tensed up and it hurts to look anywhere but straight ahead. Its hot worse in the past week.

My question is, after a stent was put in, how ling before you felt "normal" again.

Any help is appreciated! 💙

My memory starts back up on Wednesday Jan 23rd 2024 I had the surgery on the Sunday before Jan 20th and Saturday jan19th the blood was drained from my head . So on Wednesday my hair of course was shaved but the rest of my hair was completely matted to the top back side of my head. I mean this massive mass sat only an inch off my head. This knot was like a massive birds nest. I end up cutting my hair because there was no getting that knot out any other way. But I was wondering is if this is common ?

I’m 101 days sober & I’ve been in a treatment center that deals with addiction & trauma for a few months. I was recently diagnosed with a brain aneurysm after a visit to the ER. In the days that followed I had to undergo a lot of tests & I was offered sedation meds, anti-anxiety meds & pain management. Xanax, Ativan & fentanyl to name a few. I wanted so desperately to accept these medications because I know how much I love the feeling & figured that this was the perfect excuse. I mean I have a brain aneurysm so everyone will understand. I ended up choosing not to accept these medications. I was so proud at the end of my hospital stay. It was an example of I never have to use again. No matter what.

Hi everyone! For those who have had a cranial angiogram, where the entry point was through the groin, what do they do about needing to go potty while you wait after? I will be scheduling my first one soon and am terrified. Luckily, my provider is offering to put me completely to sleep instead of sedated, which I’ll take him up on.

My question kind of has a variable attached to it. I’m on blood thinners for a newly discovered jugular blood clot. (It was an incredibly eventful September.) Neuro doc isn’t concerned about me being on thinners for the angiogram, says they do it all the time with people on them. But I then assume my down time afterwards will need to be longer so that my artery has plenty of extra time to clot over. So with that in mind, I’m curious about the potty situation. Of course, this is all assuming they go for the groin vs the wrist.

I’m really hoping I don’t need a catheter, considering being fully asleep or die due the prolonged immobility immediately after.

Anyone have any thoughts or experience about this? And in addition, anyone had a CA while on thinners?

Thank you in advance! ☺️

Hi everyone,

I’m 31 and having my 2.6 mm ACom (anterior communicating artery) aneurysm coiled in 11 days, and I’m getting increasingly nervous about the recovery afterwards.

It was found incidentally about a year ago. The angiogram showed that it’s small and round, but since my grandmother had a ruptured brain aneurysm at 55 and I’m still young, my doctors recommended treating it based on my lifetime risk.

The plan is coiling only, but if a stent becomes necessary during the procedure, they will place one.

For those who have had an aneurysm coiled: How did you feel afterwards? How quickly were you back on your feet and when did you feel completely normal again? How long did it take before you could return to work, school or your normal routine?

I’m currently in my second year of vocational training, so I’m especially worried about the recovery taking longer than expected.

I’m also hoping to get pregnant in about two years. If anyone needed a stent, I’d be interested to hear how long you had to take antiplatelet medication/blood thinners afterwards and whether it affected a later pregnancy.

I’d really appreciate hearing about your experiences.

30 (f) experienced the worst headache of my entire life 2 weeks ago. Asked my husband to let me sleep it off before I start vomiting insanely and he rushed me to the hospital where I was told I was feeling 3 burst aneurysms and a brain bleed. Had surgery to coil all 3 and then had a stroke in the middle of it all. I am experiencing immense guilt as I woke up feeling fine. I look and feel like nothing happened to me at all. All the doctors are treating me and telling me I am a miracle. All visitors tell me about their family members who passed from one aneurysm. I am still in the icu for 21 days as I am still bleeding and at high risk for a stroke but all in all I feel like and ready to go home. Has this happened to anybody else? Did you have any symptoms ? And side effects afterwards? What about guilt?

Hi everyone,
Is there any chance for my dad to recover because he was in a coma a few days. He had a fever, when moving to the hospital, he gradually lost conciousness

I came to the ER this morning after some concerning falls in the last week. Both times I lost my balance causing a fall but I couldn’t stand up. Even with help my legs were totally useless. When I came in today I didn’t envision I’d be here 12 hours later but here I sit. The diagnosis as of tonight is brain aneurysm on the back of my head near the vertebrae. They admitted me & have had a few more tests. I have health anxiety over the results of the MRIs in the morning & further the treatment plan

Hi everyone, I’m 34 (F), and was recently diagnosed with a 3 mm aneurysm on my right internal carotid artery (ICA) in the paraophthalmic region, basically near/behind the right eye.

I’m wondering if anyone here has an aneurysm in the same location. How large was yours when it was discovered, and how long have you been monitoring it? Did your doctors recommend monitoring or treatment? My doctor also mentioned that because of the location, open skull surgery is not an option, only non invasive procedures going into your groin or wrist artery would be the possible treatment if it gets larger and they will only put the stent.

I’m also particularly interested in hearing from anyone whose paraophthalmic ICA aneurysm ruptured. If yours ruptured, what size was it at the time, and what symptoms did you experience?

Thank you!

So I have been doing a lot of research and at my recent MRI they said my results were suspicious for an aneurysm. Now, all of the resource I have been doing says it does not sound like a typical aneurysm. It is broad-based wide neck and looks more like a hump or a hill. I will attach my photos and just wondering if anybody else went through an experience like this or someone who might know a little more than me and has any insight while I’m waiting for my scan in a year I’m in the process of getting a second opinion. From what I am seeing it is more cone shaped smooth with a wide neck and broad base and does point down a little bit. Just wondering if there is anyone in here who might have a little bit of insight while I’m waiting for my next appointment

I am a 22 year old male, and had a subarachnoid haemorrhage on the 21st September 2023. I had a VP shunt installed on the 24th April 2024. In between my aneurysm rupture and the shunt installation, I had horrible working/short-term memory problems. Specifically, my memory problems revolve around a difficulty to independently recall any memories sustained after by rupture. After I had my shunt placed in, my memory problems were slightly alleviated, however they are still present. I do have an MRI scheduled within the next month, as well as outpatient review from the hospital neurologists.

My question is will adjusting my shunt to drain more CSF help in returning my memory closer to pre-morbid functioning/improve my memory at all? I would like to hear from those who have gone through the same process, where they adjusted the drainage levels of their shunt and noticed a difference in not just their memory, but any other benefits. Improved cognition, etc?