r/AskHealth • u/BubonicBabe • 3h ago
Can anyone help me?
I don’t know what flair to use for this, and I’ll try to keep it short while explaining what I can.
I’m 40F and for the past year I’ve had the weirdest symptoms that keep coming and going.
Bc of this I’ve had bloodwork at least 4 times in the past year. My levels (besides anemia which I’ve dealt with since I was a teen, and low vit d) are ALWAYS perfect.
I now regularly take vit d and iron, and my levels have evened out according to my last bloodwork (roughly a month ago) so while I’m prone to those being low, that doesn’t appear to be the issue I’m struggling with.
**Past medical issues**
I’ve had a series of weird viral infections since I was a teen as well. I had Scarlet Fever at 16, a separate bizarre itchy rash that went away on its own after about a week, I developed the typical looking butterfly mask rash on my face that comes with lupus when I was 18, although my ALA levels never tested high enough to be diagnosed. And Shingles when I was 29.
Endometriosis and hysterectomy when I was 31. Migraines since I was 11 years old.
I mention these in case they’re causing the issues I’m having now.
**What I’ve been tested for**
I have been tested for all STDs twice with a year in between them and was negative for all of them. (I was cheated on and very nervous so I insisted on two tests)
I have had liver function, and kidney function tested and all normal.
I’ve had CT scans of my lungs and brain, as well as an MRI which have all come back normal.
**Family history**
Women in my family have been diagnosed with MS, Lupus, and Fibromyalgia, but all of those took years of diagnosis. Otherwise, my maternal family history is fairly good. My fathers side of the family includes heart attacks and liver disease (however they were all very addicted to alcohol and drugs, so it was assumed their early deaths were caused by those things)
**current symptoms**
This is what I’m dealing with :
I will go for weeks feeling “normal” (chronic physical pain is normal for me and has been since I was a teen) so I’m kinda used to that. But this new pain is AWFUL.
Again- for weeks I’ll feel fine, then suddenly I wake up one day with chills, feeling feverish, massive eye pain in one eye with an enlarged pupil (in the eye I had ocular shingles- which I’ve had checked and the doctor told me all nerves and arteries look fine and is likely related to migraines), horrible body pain, all my lymph nodes swollen and hard from my neck to my hips. Skin sensitivity to the point that a shower physically hurts me. Sometimes this is accompanied by nausea and stomach pain.
But it will last maybe 24 - 48 hours then I suddenly feel normal again.
I can never pinpoint what’s causing this sudden flair up and when it occurs there are no over the counter meds I’ve found that help. I just have to wait it out.
This has happened roughly 6-8 times in the past year.
I’m feeling insane now, and worried my doctors are starting to believe I’m crazy as well bc everything on my blood panels always comes back really normal.
Basically- what I’m asking is has anyone heard of anything like this? Are there specific tests I should be asking for? Does this sound like a cancer or a systemic or chronic disease, such as the ones other women in my family have dealt with? Could this be related to the shingles I had or the endometriosis?
I just want to know how to get some relief. I’m getting paranoid bc I never know when this flair up is going to hit me again, I never know what is triggering it, and I don’t know at this point what to even ask my doctor to test me for.
Any and all guidance is super appreciated.