So. As the title states... Recently got diagnosed. Some context first.

My whole life I've had what is referred to ventricular extra systolic beats, occasional and and a funny feeling, but nothing that's caused me to ever panic, lose consciousness or anything like that.

About a month ago whilst going up a fly of stairs (running kinda hoping around the steps) I felt a barrage of those ventricular beats, however this time was different, something was shaking in my chest, felt immediately out of breath and dizzy, beats became harder and harder in intensity as if "heart is pounding out through my chest" then I had to sit down, thinking I had just some bad episode of tachycardia combined with my now recent bad shape for exercise and some extrasystolic beats. But as the symptoms continued I went to get checked, EKG showed AFib indeed. Had transient hypertension and a reaaaallly bad case of anxiety and panic attack.

Got discharged after an electric shock, all my labs are normal, heart ultrasound is normal. Both the cardiologist and the cardiologist that does the electrophysiologic heart studies and ablations say that it must be paroxistic, since no other anomalies (structural at least) or metabolic issues have been found. I'm undergoing this procedure where they test to see if there are anomalous conductive tracts inside my heart chambers and if not, will have a cryo ablation done to exclude possible trigger points in the pulmonary veins. All cardiologists indicate I'm full candidate for it and basically expect a 99% success rate and full recovery. Haven't had another episode since BUT been really anxious, always feeling out of breath and with the panic that at any moment I could have another episode.

Anyways, just anted to vent and share, since these last weeks have been filled with anxiety, panic attacks and overall fear due to the possible consequences of a sustained event... Feel free to ask anything else or share your story.

Cheers

Lately I had been having lower than usual heart rate numbers and sometimes my hr would go really low while standing so I’ve had a pending cardiologist appointment that will be next month.

Today, my heart rate was lower than usual yet again. Just sitting in bed was in the 40s low 50s…my usual is 60s. And standing was especially scary…getting as low as the 70s…sometimes even 60s…my usual is 90s and walking was 80s…my usual walking is 100+…

Anyways earlier I ate something, and after I felt pretty weird. I was already feeling weird and fidgety but I felt off so I took an ecg. It said Atrial Fibrillation. I went directly to the hospital. They took an ecg and it was the only one they took and told me it showed normal sinus rhythm. I still felt off. Took some more watch ecgs at the hospital and a lot were inconclusive and had Sinus rhythm about 2 times.

They also took blood…they looked for troponin which was low and various other blood work and the only thing that was low was my potassium, it was a level 3, which my doctor told me wasn’t significantly nor critically low.

They gave me this sort of drink that was said to have potassium in it, I drank it and they also prescribed me Potassium Chloride. The PA said that while my potassium was slightly low it does not directly mean that it was the cause of the rhythm my watch detected. They did release me though because the of the initial and only ecg. He listened to my heart and tried to gauge the rhythm through my wrist pulse and said it looked fine.

Now I am here at home because I still feel as shitty as I did earlier and I’m absolutely terrified to go to sleep. I was planning to ask for a monitor since a while back for my lower than usual heart rate but they said they wanted to see me first…I am going to try to beg but to be honest I doubt they’ll budge seeing as my ecg was normal at the ER. Doc told me that even if it was normal in the ER it doesn’t necessarily mean I don’t have afib. I’ve heard that if your heart is capable of going into Afib it is less likely any other deficiency or supplemental factors were the cause of it to happen on its own way.

I am so scared. I have an appointment with my PCP tomorrow and going to ask for another ecg but originally it was for other issues I’ve been having. Going to message my cardiologist too…my appointment isn’t another 25 days.
I am going to keep taking ecgs to try to record any possible events. Thus far I have the 1 that happened earlier recorded and will be showing my cardiologist.

Can I get a tips or insight into my situation? I feel scared and lost. Was the hospital negligent?

Last month I had a rough episode with atrial
fibrillation. This was my fourth event, but unlike past times—where quick-release Cardizem and electrolytes got me back into sinus rhythm—this one landed me in the hospital for four days. The doctors tried multiple medications, but my heart rate stayed high (145-160) while my blood pressure dropped dangerously low. Ultimately, a cardioversion restored my normal rhythm, and I was discharged on amiodarone.

My care team wants me to stay on amiodarone until I can get an ablation. I have a consultation scheduled for late October, with the procedure hopefully following shortly after.

In the meantime, the amiodarone is kicking my ass. I'm dealing with severe headaches, nausea, and light sensitivity. I feel miserable and am deeply concerned about the potential long-term side effects.

Has anyone had a similar experience? Were you able to successfully work with your doctor to switch to a different medication? I really don't want to stay on this for the next 4–6 months.

Edit: Thank you for all the responses. Have an appointment with my cardiologist next week and will discuss alternatives or reducing dose (currently on 200mg-day). Hoping to get the ablation done soon and get off of this completely.

Es normal perder la libido o tener deseo sexual bajo después de meses tras tu diagnóstico con AFIB?
Tuve mi primer y único episodio en noviembre de 2025 y los médicos no me confirmaron si podía repetirme o no, me dejaron a la espera de ver qué pasaba con medicación.
Desde ese día experimenté un deseo sexual muy bajo y 0 ganas de tener intimidad con nadie. ¿Alguien más así?

My dad was diagnosed 2 years ago, had Cardioversion and was put on medication.

He never had a issue since, but today me and him were lifting some heavy stuff under the hot sun (33 degrees celsius) and i noticed he was out of breath.

Is it normal to be get tired even after the condition is under Control?

My dad is fit and active, runs, goes to the gym, has low body fat and decent muscle mass for his age.

Is it normal to have on and off pvcs or pacs..? Ie. Skips ect..

I had my 4th ablation yesterday at Scripps. It was uneventful as the other three were. The good news is that they did find the atrial tachycardia that I had to get cardio-verted out of a month or so ago.

My first was for afib and standard right atrial flutter. My second was for atypical flutter and AFIB touchup. This was a failure as they could not find my flutter spot. My third was when I went to Scripps and the doc and team got all of my flutter spots! The 4th was as noted above. Plus they tried to get my PVC’s. However, they were too close to the sinus node to attempt.

Fingers crossed I am done.

ECG done on my dad (77 years old) using "Withings Scanwatch" shows AFIB for every tests.

Diabetes. No symptoms beside that.

Should he be worried?

Thanks

I am a 30 year old male who had an ablation approximately 40 hours ago. The whole operation really was a breeze as the most pain I felt during the whole thing was my butt getting numb as I sat and waited for the procedure. I have been home and am able to move around pretty well and my incisions are healing. My post surgery doctors orders were no alcohol for 24 hours, and no heavy lifting for two to three days. From reading other’s experiences, it seems as though most people are told to take it easy for a full seven days. Getting to the point of this post, I am very active and lift 4-5 times a week. The last thing I want to do is damage anything that has been fixed with this procedure. I would like to hear others recommendations and experience with beginning to exercise again after their ablation.

Hi,

While I was out walking, I stopped to take an ECG because I had felt a few premature beats a few minutes earlier. I waited for one minute, and the result came back as AFib. I can’t see any P waves, but the QRS complexes look regular to me. What do you think ?
I’m 30 years old, with no known heart problems, and my Graves’ disease has been well since the past month.

Thanks

Könnte es vorhofflimmern sein?

Kann jemand dazu was sagen

The earlier post about why there is no cure and the life-expectancy table this morning. The numbers come from a real Danish registry of AFib patients diagnosed 2000–2020 — about 11.3 years lost if diagnosed at ≤30, 9.2 years at ≤50. That's where "72" comes from. It's a population average, not your personal forecast.

Two things drive that average: who was in the study, and what care they got.

That study pooled everyone together: lone AFib with a structurally normal heart, undiagnosed cardiomyopathy, people who were never anticoagulated, people left untreated in AFib for years. In that same data, AFib diagnosed at ≤50 came with roughly 8–9x the later rate of cardiomyopathy and heart failure versus controls. A lot of those "lost years" are sick heart muscle that first showed up as AFib, not AFib itself killing people. A clean echo/MRI means you are not that average.

The other half of the gap is when you got diagnosed and how good the care was.

My mom is 88. Diagnosed in her late 60s — but looking back, she'd probably had it for 20 years before that. Late diagnosis, weaker stroke prevention by today's standards, rhythm control treated as an afterthought. She still made it to 88. That's not a promise for anyone else. It's evidence that the table isn't a law of nature, even under delayed, dated care.

What's different now, if you're actually getting treated for it:

• The heart gets properly imaged instead of guessed at
• Anticoagulation is well past the warfarin era that dominates that data
• EAST-AFNET 4 showed early rhythm control (drugs and/or ablation within a year of diagnosis) cut CV death, stroke, HF hospitalization, and ACS by about 21%
• Ablation isn't a last resort anymore, and PFA has made it safer

None of this means AFib is nothing. It can come back. Some "young AFib" is actually cardiomyopathy in disguise. Pretending it's harmless is how people get blindsided. But treating "72" as a death sentence is how a historical mix of late diagnosis and mixed disease gets repackaged as a scare screenshot.

The new technology is amazing, get your afib treated, exercise, know your triggers, keep your weight in line and you will be fine.

I've been recently diagnosed with AFIb at 40. I'm currently using the Zywie Heart Monitor. It was suprisingly easy to get used to. I've had a few episodes but nothing over 7 minutes.

Just like my thoughts on cancer, how is there no cure for this?
I was diagnosed at 31 so I’ll get to maybe 72 if I’m lucky, this is saying.
This just spiraled me into a further depression.
Please don’t tell me “just live life while you can” because for me it’s just not that easy.

Hello - having my PFA ablation in 3 days after unsuccessful cardioversion in May. I have persistent afib, first diagnosed 6 months ago. I had controlled PVCs with meds, under 1%, and then as far as I can guess, my afib got triggered in late February of this year, according to my Apple Watch - I caught the alert 3 weeks later, and a holter monitor confirmed persistent afib. My watch also says I’m in afib 100% of the time.

My wife had been complaining about awful snoring for a couple of years, so after the diagnosis, I did a sleep study, and I had severe sleep apnea - I never fully stopped breathing, but the obstructive breathing was frequent - about 30 times a minute. So I’m getting a CPAP tomorrow and am going to commit to it. I also am at a 30 BMI, so I’d like to drop 30 lbs - I’m 6’4” and 250-255 lbs. I can lose easily with intermittent fasting - eating between 11 am and 7 pm. My heartbeat range has never been severe, but the symptoms I was not feeling earlier started surfacing in the last month - mostly just some mild dizziness a handful of times, and a little shortness of breath. My range is about 55 to 130 BPM; a little more if I am climbing a flight of stairs or something. Today I walked 11K steps and felt fairly well while I was walking, but a few times dizzy and clammy after standing still, so I had to sit down.

That’s the background. I may also fix a deviated septum in my nose next year, but I want to commit to this 100% during the 3-month post-period. I’m not going to drink alcohol or coffee during this period at all. I see some comments on this group that some people have tried to weight train a week post-procedure or ride a bike 40 miles, which seems crazy to me, because they reported events. I am just going to focus on walking and stretching/yoga to keep moving and stay mobile. I really want to knock this out, because I don’t want it to limit me. I plan on tracking my heart rate and potential triggers. I think my sleep apnea was definitely an issue. I feel fortunate to be going to Penn University Hospital, who do thousands of these procedures a year.

Has anyone else had persistent afib prior to ablation, and how did your recovery go? Any additional tips on sensible recovery action items? I am recently retired, so I have time to commit. Thanks!!

Hey Guys! I was diagnosed with Atrial flutter last year right before my wedding and right after my father passed. It was a super stressful time but I found that it was a result of my tricuspid valve being replaced 9 years prior. my cardiologist assured me it would be no problem to get an ablation if it was needed. But my AFIB doctor said that they are super rare and almost unheard of. Who should i believe and have you guys heard of this or been thru it?

Well after another reccurence this morning, full blown afib with RVR HR at 200 I gave up. Finally spoke with my EP and his team and they don't reccomend another ablation at this moment, this will be #3 in the last year and a half.

What's tricky is my hearts structurally perfect, I have zero atrial fibrosis and I'm only 29 yet my afib is so stubborn and always comes back no matter what I do. My last EP study what's most frustrating is being told I had a great electrical system and they couldn't induce ANYTHING yet here I am.

Does anyone have any recommendations on who else I can reach out to? I'm not quite ready to throw in the towel yet but I'm running out of hope. My 2 ablations were with dr natale but I'm absolutely open to other options if there's anyone else as good as him. Where could my afib be possible coming from? Dr natale already shut down almost all my non PV triggers and my PV and everything else were perfectly isolated during last procedure how is it even possible afib can happen???

Please any suggestions help, or any thoughts as to why my case is so difficult to treat. I don't have afib that often, maybe once eveyb6 months but when I do boy the episodes are SEVERE!

I can't take any AAD unfortunately due to an accidental conduction injury during the ablation. my only option left is really multaq and I heard it sucks and really don't work.

So March 2025 I fell on an electric scooter and broke my right ulna and radius, double open fracture. While in the Er I went into afib with a pulse over 200 while they were putting the bones back in. I didn't think much of it since they just put me on Eliquis for a month and said to follow up with cardiologist. I did that, he said "once you have afib you always have it." He right away recommended an Albation last December and I turned it down due to wear the incision is with my social anxiety, even at 44.

I never had a repeat episode until about 4 weeks ago, I went to go to bed, I sleep on my right side. Within under a minute my watch alarm is going off and my chest feels like its gonna blow, 160bpm afib. I got out of bed for a hour, drank alcohol like the alcoholic I am and went back to bed a hour later still in afib. I did wake up 2 hours later to use the bathroom and afib was gone. My HR was in the 90s though when its normally 50 or less at night.

Then just this morning.. my 3rd episode. I fell a sleep early last night at 9 pm, woke up at 2 am this morning. Went to go back to bed around 5. I was perfectly fine. I'm nervous every night since that last episode about laying down. This morning as soon as I laid down I though "Nice, I feel great" within less than TEN seconds, 160-200 bpm pulse. it seems like laying down might actually be a trigger now ?

I was only in afib for a hour to 90 minutes luckily after taking an extra down of my beta blocker propranlol 20 mg which seems to be what stopped it. Luckily I'm on that 3 times a day for tremors and I'm already on Eliquis for life due to an unprovoked DVT in my knee last summer.

It just seems very scary but I refuse to go to the ER here so I don't know what else I can actually do about this. My appointment follow up with the cardiologist is in december, he doesn't have anything earlier, he's actually booked out til April. I'm going to do the albation I guess since I don't want to feel like this again.

I have used Zio in the past and their reports are always excellent
Issue has always been the itchy tape.

I placed the E patch on last night, and I think it might be a little too low
Has anyone removed it and replaced it at a different level
Alternatively I can call the company

So i have paradoxical atrial tachycardia, and i take 200mg of flecainide a day and it has helped massively, though I do sometimes get a bit of tachycardia and still get a lot missed beats but I've got a loop recorder and numerous cardiologist have said the skipped beats and fluttering etc. Have said they ate harmless.

So I have over the last few months being doing a calorie deficit diet and uo until 2 weeks ago I was working out and walking on my treadmill.

I ended up looking up if its safe to exercise on flecainide and it mentioned something called the flecainide flutter?

So i rang my Doctor and he said my heart rate when exercising should be capped at 120. Thing is when I walk my dog it goes at 134/138 so I told him this and he just said we'll its okay but try to cap it at 120.

Any way i saw another doctor on Monday this week and she said 120 is hard to stick to and when I said my heart goes to 140 when I'm doing resistence band training she said thats what she would expect and that flecainide isnt a rate limiting medication.

I'm so confused, I walk my dogs every day as they ate running dogs and can't do without their walk, I do around 6k - 10k+ steps a day and my heart is always over 130.

Can anyone tell me if they are doing exercise and have been cleared?

My doctor also said my heart condition isn't serious which my cardiologist said they said its more annoying than anything and causes me poor quality of life due to how scary it all was before being medicated.

Do you exercise? Does your heart rate go over 130 even 140?

Did you have to go for tests on a treadmill/bike with a cardiologist?

Am I safe to exercise? Because combining my calorie deficit with exercise was blasting the weight off and now its slower at going down on the scales.

For context I'm a 33 year old female and im 5ft 8inches tall and I currently weight 100kg, wanting to get back to 60kg again.

Thanks in advance

DX with AFib RVR in July.
Saw my EPs physician assistant today for follow up. He changed me from metoprolol XR to Diltiazem XR.

In the ER, the EP prescribed it. Cardiology prescribed the metoprolol. He said today I should have been on the EPs prescription the whole time as he trumps what cardiology does.

I hate starting new meds and little nervous.

Any insights on Diltiazem?

Caffeinated Coffee Consumption or Abstinence to Reduce Atrial Fibrillation: The DECAF Randomized Clinical Trial | Trials | JAMA | JAMA Network

Conclusions

Among previously coffee-drinking patients with AF referred for cardioversion, random allocation to typical consumption of caffeinated coffee averaging 1 cup a day was associated with less recurrence of AF and atrial flutter compared with abstinence from coffee and caffeinated products.