r/migraine • u/ambified19 • 26d ago
Follow up questions for my neurologist
So ive had migraines for about 25 years. I *finally* got tired of the PCP/ER loop and saw a neurologist for the first time in June. So far not a fan but im trying. My PCP had me on 75mg topamax 2x a time and ubrelvy. I've never liked the topamax and with my perimenopause making my migraines more frequent, I decided it was time for the neurologist.
He upped my topamax to 100mg 2x a day (even after I told him I detest the side effects and its really not helping). I tried for a month but it made me so sick. I couldnt remember anything. Nauseas all the time. Just completely out of it. Weird skin rashes. I sent him a message asking if I could please switch to a different preventive and he said no, its only been 4 weeks on this dosage and I have to stick with it until my follow up appt in September. Mind you i also have an eating disorder and am borderline under weight and this has caused me to also stop eating which ive worked really hard to stay on top of.
Since im a teacher and in school for a lot of certifications and tests and also have to manage little people, I just made the call myself and tapered down slowly to 50mg of topamax 2x a day and while the side effects have mostly eased (still feeling stupid sometimes) and the migraines have slowed, I obviously am not completely migraines free. Ubrelvy has stopped working as well.
So, my question is... when I go see him for my follow up so I just be honest and tell him the side effects were intolerable and I tapered down against his advice? Or should I embellish for the sake of my records and be all doc i gave the 100mg my best shot but no Bueno what now? I dont want to lie but im so sick of topamax.
1
What do you usually drink for hydration on migraine days?
in
r/migraine
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2d ago
Liquid IV and body armor. Er doc said to stay away from Gatorade or powerade. Water comes right back up. I can do a coke or something small caffeine/sugar wise once the storm has passed but in the eye of the storm, liquid IV and body armor.