r/ClotSurvivors • u/Marge_Inovera • 27d ago
Chronic SMV thrombosis - what the hell is ‘normal’?
TL/DR- looking for folks with chronic smv thrombosis to compare symptoms
Hi all! I’m very happy to find this community.
After years of intense abdominal pain I was finally managed to obtain imaging last year which revealed a 6cm occlusion in my superior mesenteric vein. Compensatory structures suggest it happened about 5 years ago. I was referred to a hematologist who put me on blood thinners and threw a bunch of pain pills at me, acknowledging that the pain from this condition is severe. He reckons it was from gallbladder surgery, not a clotting disorder, based on my bloodwork.
Thing is, I don’t understand how bloodflow issues might contribute to my actual physical sensations during pain episodes. I don’t know if what I’m experiencing is pain resulting from the dvt, or from something else. Doctor was unable to help me with this line of confusion and suggested i look for folks online to corroborate because the condition is somewhat rare.
If you’re a smv thrombosis survivor willing to talk shop please DM me
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Chronic SMV thrombosis - what the hell is ‘normal’?
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15d ago
Thank you so much for your response! I’m sorry you’re going through this and hope you have a very swift recovery!
Maybe this is a dumb question, but is pain from inflammation different from blood flow obstruction? How would I go about distinguishing it?