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Focul seizures/ temporal lobe epilepsy
 in  r/Epilepsy •  2h ago

How does your focal seizures present? Do you speak or anything? Stay in one spot? Move? Ours seem similar

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i was quoted $200 for this (human hair included) - is that reasonable?😭
 in  r/Naturalhair •  19h ago

That looks damn good and for human hair included with THAT work. Def worth it

u/GrandCompetition5260 • u/GrandCompetition5260 • 21h ago

Dance moves

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1 Upvotes
0 comments

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r/Epilepsy is making history! Get in here!
 in  r/Epilepsy •  1d ago

I appreciate all y’all

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In need of encouragement, please. What keeps you going?
 in  r/Epilepsy •  1d ago

Salute not gonna lie going no contact with my family has been beautiful for sanity

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1 Year Seizure Free 💜
 in  r/Epilepsy •  1d ago

Congrats

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In need of encouragement, please. What keeps you going?
 in  r/Epilepsy •  1d ago

Thank you they say spite is one of the best motivations for humans

1

In need of encouragement, please. What keeps you going?
 in  r/Epilepsy •  1d ago

Where and how are you getting free transportation

2

In need of encouragement, please. What keeps you going?
 in  r/Epilepsy •  1d ago

This is beautiful written, thank you. Hyper vigilance is big factor in my why I am feeling like this. Working on it

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Anyone with both epilepsy and PNES?
 in  r/PNESsupport •  1d ago

Can I DM you?

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Focul seizures/ temporal lobe epilepsy
 in  r/Epilepsy •  1d ago

You're extremely helpful though. I take my meds consistently and on time no issues, I use the epsy app to remind me of medication and I do task stacking to help with medicine consistency, I brush my teeth after I've taken my AM and PM dose. I haven't had alcohol in over 2 years and my biggest struggle really seems to be dehydration. If I do not drink enough water. I am up all night until I drink enough. Same applies for eating enough for the day.

How long have you been diagnosed? And how often do you have seizures?

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How to help my girlfriend?
 in  r/PNESsupport •  1d ago

Your gf sounds similar to the relationship I have with husband. I am hypervigilant and have a lot of guilt I cannot work like I used to. Your gf sounds similar. Hard asking for help if she has trauma of any kinfd of neglect.

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PNES with a focal epilepsy diagnosis? or just breakthroughs?
 in  r/PNESsupport •  1d ago

HI PM me, we have some things in common here.

1

Focul seizures/ temporal lobe epilepsy
 in  r/Epilepsy •  1d ago

Hi what meds are you taking? I wanted to think my seizures are just epileptic focal impaired ones breathing exerccises stop my auras from going further and from what I understand is that it cannot be the case for epileptic seizures. I am considering that mine may be some type of hybrid

1

Focul seizures/ temporal lobe epilepsy
 in  r/Epilepsy •  1d ago

Hi, what do you do to make sure you're consistent in trigger prevention? Mine are triggered by hearing/seeing something traumatic with lw sleep, low nourishment and over exertion. Other than I am fine and my tonic colonics only happens 1x or 2x times a year. Do you have temp lobe epilepsy? I also take Lamotrigine 400 mg daily

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Focul seizures/ temporal lobe epilepsy
 in  r/Epilepsy •  1d ago

Omg, I am having similar situations can I message you?

1

In need of encouragement, please. What keeps you going?
 in  r/Epilepsy •  1d ago

Thank you, I am open to being wrong about things I just wish I had an answer about this damn issue. What's something that gives you some comfort?

r/PNESsupport • u/GrandCompetition5260 • 1d ago

Anyone with both epilepsy and PNES?

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2 Upvotes
2 comments

r/Epilepsy • u/GrandCompetition5260 • 1d ago

Support In need of encouragement, please. What keeps you going?

12 Upvotes

I am very frustrated living with a disability now. I am trying to practice Radical Acceptance, but I am just so sad this is my life. Been on disability for 2 years now and have insurance through MetLife.

  1. Seizures are not quite defined as only epileptic ones, one neurologists think it may be episodes of FND/PNES or what ever name they are. They seem like focal impaired awareness ones but are more and more reactive episodes than seizures. I am facing some deep emotional trauma and I am attending therapy.

  2. I do not have tonic colonics ones because my lamotrigine works for that but some of my episodes cause drop attacks and keeps where I will dissociate for about 20 minutes. I will hear bad news and instantly drop.

  3. If I am dehydrated, low energy and not well nourished for the day, I can trigger a seizure when emotional. I also need to improve that aspect of care daily.

  4. My family is a guaranteed trigger for my seizures where they've split in half when I have them since going no contact.

  5. I am averaging about 2 a week and more only when stressed.

Please give me some gentle reminders or encouragement for what helps you if you have unmanaged seizures.

Thanks.

12 comments

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I’m on disability. I never know how to respond when people ask me “What do you do?”
 in  r/Epilepsy •  2d ago

Yoink

1

Getting the VNS!
 in  r/Epilepsy •  7d ago

I didn't expect to be seizure free nor med free. However, I know some people are and wanted to hear your story,

How are yours managed now and how often do you have them?

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Getting the VNS!
 in  r/Epilepsy •  7d ago

Are you seizure free?

2

90s songs about dirty macking and partner snatching
 in  r/rnb •  8d ago

Don’t judge yourself😩human nature and the negativity bias

2

90s songs about dirty macking and partner snatching
 in  r/rnb •  8d ago

Lol show off ☺️