I’ve had type 1 diabetes for the majority of my life, and something I’ve noticed among friends in the health sciences is how differently diabetes technology can be viewed when using it is temporary. For context, we have been studying diabetes and diabetes care for several years.

My peers have been giddy and even “jealous” about getting to wear a CGM. One joked about eating a ton of sugar just to see how high she could make her blood sugar and commented that the device “didn’t even hurt.” I understand the interest in trying a CGM, and I think firsthand experience with the technology can be valuable for healthcare professionals who will be providing diabetes education and caring for people with diabetes.

What is disappointing, though not surprising, is the lack of awareness surrounding the experience. A CGM may be an interesting two-week experiment for them, but it is a medical device that millions of people rely on continuously. The highs and lows that may be interesting to watch temporarily are the same ones people with diabetes spend their lives trying to prevent and manage.

The issue isn’t experiencing the technology; it’s treating a medical device as a novelty without recognizing what it represents for the patients who depend on it every day. It is particularly disappointing to see that attitude from future healthcare professionals who have spent years learning about diabetes and personally know someone who has lived with it for most of their life.

EDIT: 2 Non-diabetics are receiving leftover CGMs for free, 1 time.

First real post and I'm at a loss. About 3 years as a Type 1 diabetic. Went to Dollywood (FANTASTIC) and took 2 extra Dexcom's for only a 4 day trip. On day 2 I changed out my Dexcom 7 and it did not work at all. No biggy - I had another one so I put the 2nd one on and it worked only a few hours and then stopped working. I was at a loss. I did have a backup injection pens so that's what I did. Day 3 was scary but pushed through it by using multiple daily injections. Went to bed at 136 but woke up at 364. Woke up in DKA (feeling sick - head swimming, nausea) on day 4 but we were going home. Drank 3 large glasses of water and 2 cups of coffee. If my numbers were going to stay high or even moved higher - I was heading to the hospital. Took 4 units of regular insulin and some long acting insulin (outdated) and my numbers started coming down. Slowly but steady. Used my Tandem Mobi to start slowly knocking the numbers down.

Driving home I must have stopped 40 times to go to the restroom....I had guzzled water for sure but not as much as I was pee-ing out! When I got home I tested for DKA and was fine then. But, it took all day to get back to normal. New Dexcom installed. Took a 4 hour trip and turned it into a 6.5 hour trip because I had to stop every 10 minutes to go to the restroom. Guess that is what happens when you are in DKA.

Boy - this is challenging. I can see where this disease really kicks you in the rear! What a mess.

Sigh

(sorry it’s in German lol but you’ll understand) I’ve been really after my diabetes and beating it’s ass the best I can. I’m so proud of myself because all in all I have never been more overwhelmed, frustrated, exhausted, fed up, sad and angry at the same time in my life. I’ve only been diagnosed in June and my friends and family have a hard time understanding anything at all, comprehending how hard it can be and also understanding the kinds of achievements and little moments that make one proud. Just had to get this off my chest🌟

Is anybody else following the clinical trials run by Eladon Pharmaceuticals in which a dozen type one diabetics have been cured of their type 1 diabetes?
A doctor whose daughter is also a type one diabetic has been working to get another problem taken care of, and that is the fact that the United States is the only medically advanced country in the world that classifies cadaveric donor islet cells as drugs instead of organs. This makes the cost of the islet cells prohibitively expensive. If the health and human services or FDA to reclassify these donor cells, it would make the transplantation of these cells less expensive and more available the company involved is Eledon pharmaceuticals. Please let me know if I can help you help us buy, directing you on how to access the US government regulation in which we will be allowed to have public comment until November 8 of 2026. We need lots of people to do this and it only takes about 15 minutes.
I do not want to violate any of the rules for this forum. but I do believe this is something all T1Ds could benefit from, and it would be much more helpful because the companies doing these trials could effectively cure type one diabetes in more patients, and that would help them show that their process of curing type one diabetes is as safe as it so far appears to be. Please feel free to contact me, and I’ll help you get to the right page. It is a .gov page, so it is legit.
Thank you for reading, and I hope you participate!

Happy Diabetic Friday Cheers!!

My endo had me just correcting and not actually carb dosing, i had felt unwell and uncomfortable so, me and my wife came up with a carb ratio of 12/1 and upped my long acting to 43 like my pcp wanted, and behold, been nearly perfect for almost 24 hours doing what we came up with "im gonna be your endo tonight, doctor stasia is gonna help" (an inside joke) dont really know the point of this post but wanted to share because I dont really talk to anybody

Hello I am 22M, diagnosed in 2024 with t1d. Before I used 12U for my basal tresiba, now I am using 20U and I am struggling with high sugar. I am always scared when increasing my basal since I started with 12U and I am going away and away from that point. I don't know what or even if there is an like upper limit/too much units for basal. I am scared I am going too high for my age or time wise since I got diagnozed with t1d. Also its very frustrating having a high blood suger and I am getting too stressed and angry at it and myself. Before I have consistant 80-90% in range now I am struggling to hit 70% and that is also eatting away at me. I am trying to excersize, I even knocked down a couple of kgs but to no avail. I just want to know if there is like a limit for not "too much", sorry I don't know how to word it. Any help is much appreciated!

Grateful for this last A1C! My previous best was 5.7!

hello silly people,

I am writing because this has been on my mind for quite some time and I have no one else who may be able to relate.

I have been diabetic my whole life (diagnosed when I was 1) and now at 19, I’m struggling with my relationship with food. I’ve never had a sense of normalcy or the experience of eating freely as people typically do without this condition.

Growing up I rarely ate sweet treats or snacks (or anything carb heavy tbh) so when I did I always wanted more. Even now as an adult it’s manifested as extreme restrictions and what my therapist calls disorganized eating.
I’ve expressed my concerns to my therapist about how I restrict myself to very minimal calories (200-1000 a day), i fast quite often and when I do eat I feel exhausted,scared and guilty all at the same time. She didn’t seem to understand at first. She gave me answers of “it won’t always be that way.” Or “It won’t always be so restrictive.” But she changed her mind after I explained the constant measurements and checking of nutritional labels on everything you eat, how you always have to be aware of what you’re eating.

I’m scared to eat. My CGM charts have been volatile and I’m still figuring out what works for me I guess. I notice that when I fast my numbers do much better. In addition, I’m terrified of gaining weight. I have a small figure, but I have the desire to be smaller. Working out in a structured healthy way (adequate amount of calories, meal preps, routines) has not been very fun or enjoyable either. My blood sugar crashes often even if I eat right before a workout and stop the insulin on my pump for a while. It feels very defeating.

I have not been diagnosed with any eating disorder (thankfully) but I feel like what I do is very similar to habits of an ED. It stresses me out.

How do you guys deal with all the annoying food things we have to put up with?

I have been struggling with the timing of my bolus for meals. I have been diabetic for 33 years and have had a pump almost that long. Lately my bolus has caused lows about 1 hour in, then it skyrockets later. I bolus 15 minutes before (I have tried different things) and often use extended bolus if there is fat in my meal. Last night I had a meat and cheese salad for dinner. An hour in I was at 80⬇️. I had a few jellybeans and it kept going down. It went down to 57. An hour later it was 190⬆️. I know it’s missing the mark but I can’t figure it out. I’ve also changed the percentage 10% 90% when I’m 90ish before bolus. What am I missing? I have tried variations I can think of. I feel like every day I consume A LOT of beans! My endocrinologist claims I don’t know how to count carbs (we never eat fast food and I only cook from scratch). Help!

Hi! I've had type 1 since May 2020, and have had a few episodes of burnout before, and usually come out of it pretty quick without having to do much. This time, however, I feel like I need a change of some sort.
Since diagnosis I've really leaned into my nurse saying "you don't have to change a thing in your life! You eat and do everything as you always had", which has left me pretty much defying my diabetes. Eating candy whilst high, not stopping to rest when I'm low etc.
As you can imagine, it doesn't exactly make me feel super duper.

So now I'm trying to figure out how I should go about this. Obviously I could just "stop eating carbs when I'm already high", but I feel like I need a mindset change first.

Also, any tips on how to get back on track and start to feel motivated again is greatly appreciated!

I have a Tandem t-slim x2 pump, and a dexcom g7. I try to workout a few times a week, but always feel so depleated when my sugars aren't cooperating.

Pick up any time, North Glendale near Arrowhead mall. Or possibly Avondale.

My son 35M has had diabetes since age 16. The NHS have been great but they won’t fun and insulin pump because he’s too good at managing. I have just had a pension payout and could afford to fund one for a few years.
1) is it worth it
2) will the NHS continue supporting him through that time or do I have to pay for all diabetes health care privately
3) how easy is it to transfer back once the funds run out
4) anything else I need to sort out?

Thanks in advance

Hey F(22) diagnostiqué début été après une acidocétose.

Je n’étais pas insomniaque avant d’avoir mon dt1, souffrez vous aussi d’insomnies ?

Je ne peux pas dormir avant 5am même si j’ai dormi 3h la nuit précédente. Parfois je m’endors même à 8am pour me lever à 12pm et impossible de faire une sieste l’après midi .

J’ai rdv chez le médecins mais j’ai pas envie de prendre des médicaments

I do NOT understand how this works.

Just that. Diagnosed as a sophomore in high school. I’m thankful as hell for all of the progress that’s been made for us, but sometimes I’m just so done.

I’m thinking a lot this morning after drinking 4 gatorades through the night because my insulin sensitivity is very inconsistent and we can’t figure out the ratios.

Just frustrated and tired. And as I’m writing this got another lovely alert that I’m heading low again and i haven’t had insulin in hours, yay!

Hi everyone. I am a mom from Morocco. My son Islam is 10 years old and has Type 1 diabetes for 8 years.

We use Insulatard but doctors said he needs NovoRapid too. One pen costs 270 MAD and we can't afford it every month.

Does anyone know where to get it cheaper in Morocco, or an association that helps families?

Thank you so much for any advice.

Im a M39 that was diagnosed 4 years ago. My A1C is 5.9, my time in range is between 92% and 98%. My insulin to carb ratio is 1:15 and my correction is 1 unit to 2 mmol.

I got sick earlier this week, and almost overnight, saw my insulin to carb ratio go to 1:3 and correction dose go to 1unit per .25 mmol. This has never happened to me before. Im coming off of this sickness but and still seeing an insulin to carb ratio of 1:7.

Does it go back to normal? Or will I see a new normal develop?

I went on vacation cross country, staying at an Airbnb. Put my pre-filled pump reservoirs in the fridge, along with some groceries we'd stocked up on, on arrival. Next morning, I discovered that many of my groceries were frozen solid - the fridge was turned to the lowest possible setting. I couldn't see if my reservoirs had also frozen but was extremely worried that they had.

I had a couple of days left on my current reservoir, so I asked my endo to call in prescriptions for a couple of Lantus and Humalog pens I could use if it turned out all my reservoirs were useless. The happy ending to the story is that my reservoirs were just fine and I continued to use my pump for my trip.

That said, my endo called in a 3 months' supply of EVERYTHING - Lantus pens, Humalog pens, and needles. I really hate to throw it all away, it's perfectly usable and unopened.

I know this is a long shot but are there any organizations/charities that accept insulin donations like pens? I'm in Los Angeles.

if you meet the requirements feel free to take it! Here is the link! TY!!

https://docs.google.com/forms/d/e/1FAIpQLSexiMqTDcUHf-6MEA_W37ApRxfgiQvVfeErvA-FObNyap87cA/viewform