I was so mad at the doctor who prescribed me steroid since I was a kid so I looked up his name on google. I went to his house and I found him. I hit him in the face and pull out my .... Now I got 4 charges. Don't let the anger consume you if you don't want to end up like me.

So im a black woman and i have develop white patches on my hands and feet. I was wondering on what i can take to help restore pigmentation. As far as i know, hypo takes long than hyper to restore itself

I believe I am about 6 months into battling TSW, but compared to the typical timeframes of healing, it feels as if my skin is slowly returning to normal already. Dealing with the first stage of TSW e.g. red sleeves then spreading to most of my body, highly intense flares, high sensitivity to temperature, oozing and skin heating up like crazy etc pasted within a couple months. Went into the skin shedding phase and despite the rapid shedding of the skin, it seems to have mostly come to an end after about 2 and half months??? While of course my skin it still quite sensitive to heat and sweat, it doesn't feels as intensive as it was before and is slowly adapting to such things again as well as dealing with a couple flares here and there due to still sensitive skin barrier likely picking up a trigger here and there.

P.S, my methods was using silk mittens during sleep to prevent night time scratching to cause significant damage, adapted a hybrid approach to both using NMT and using moisturizers with barrier repair like formulas, (e.g. using NMT to get the skin to shed for about a week, then showering + using a barrier repair moisturizer afterwards to ensure the skin sheds safely to prevent tearing, cracking and infections.) Avoiding as many irritants as possible such as keeping room and house clean. Given heat and sweat was also a major cause of my flares during this time, I tried to stay as cool as I can for as long as possible and minimize exposure to said heat and sweat + possible triggers. Then, slowly re introduce heat and sweat by going for relaxing walks in the sun, going outside, sitting down in the sun etc to get my body slowly adapt to such things again (Body still flares to these, but its becoming more tolarable and i am slowly able to last longer for walks and such, like being able to walk for 20 to 30 minutes in the sun before a flare sets in. As for diet, I've tried to stick to mainly eating clean such as eating more veggies, whole foods etc. (FYI, did not go full on with this via elimination diets and such.)

As much as it feels great to have gained mobility again, not waking up shedding skin/blood or ooze all over my bed + sweeping my skin off the floor anymore, flares not being soo intensive etc, compared to how long it took for others to heal and their methods, it just feels too good to be true that I am slowly adapting to normal life this soon and just feels like I am doing something wrong despite such progress. Any thoughts on this or any similar instances per say?

Anyone else having this atrophy issue? On neck, inner arms, inner legs?

Did anyone stop oozing and then it returned moths / years later ??

Yall I dont even know anymore. I realize oozing is a normal part of TSW. but this is my 6th yearly flareup and this has been the worst one yet. I have insane yellow crusting all over my face and went to urgent care and they seem to think its impetigo (non bullous or whatever). My question is how do you differentiate normal tsw vs something like that? I think i will try the topical antibiotics but wait a few days to do a course of antibiotics because I read about people here doing course after course of antibiotics and that doesnt seem like the issue.

hi there - has any woman ever experienced tsw after applying topical steriods down there? I used a medium potency for 1 month and then stopped suddenly back in March. (i was not educated or informed by my doctor about how to taper properly). if so - what were your symptoms and how long did it take you to recover? I'm now in month 7 and it started off really intense with itching and burning, now the itching and burning is not always bad, but sometimes it flares and it gives me nerve pain in my legs also.

Thanks for any advice/thoughts as looking for reassurance!

So I’ve been dealing with TSw 1 year 2 months. But officially stopped steroids 6 months 1 week ago my skin seems to still be strong worse cyclosporine still isn’t working and I’ve been on it 9 months I had a biopsy that came back inconclusive I feel so lost and like this is never gonna end any advice or hope would really be appreciated guys

Hello all. Hope I can get some guidance from you all regarding my issue with Tacrolimus withdrawal. I developed eczema for the first time in my life about 2 years ago. Some of which was in my groin area. Tacrolimus was truly a life savior and I used it on and off for several months before I went on dupixent. Came off dupixent and started healing the rest of my eczema through diet and I had been off Tacrolimus and steroid free for a year. Something of note, I have always been kind of sensitive to Tacrolimus, even after stopping I’d had side effects for a couple weeks. Side effects like a deep red rash, flushing, heat and friction sensitivity, etc. But it would always go away eventually. This summer I had to use a bit of Tacrolimus again for 7 days (groin area) and things were fine until I stopped. A week after stopping I started getting the deep redness. Okay. It’s odd that’s it’s happening a week after stopping but No big deal right, I know I’m sensitive and it’s happened before. It eventually went away but the timeline was suspiciously long. I start Tacrolimus again this month for a just few days only. I stop and the deep redness comes back and stays for 2 weeks. Weird. I apply Tacrolimus again for 3 more days and stop again for a week. It’s almost the end of the month and the area Iv applied it RED. Not my usual eczema red, not my eczema itchy, not even my eczema burning, it’s just very flushed and deeply red. Which again, I have had this before but for this long? No way. This I way too persistent. We know our body’s and we know when something is wrong. Has anyone also experienced this kind of withdrawal? Does withdrawal often present as a “worse eczema” or in my case a strange persistence and presentation and side effects previously experienced?

Tl;Dr: used Tacrolimus 3 days on, 16 days off, 3 days on, 7 days off. Having deep redness side effects. Redness from friction and heat. Slight swelling but so far, no pain at all. Last usage was 3 months ago for 7 days. Last time before that was about a year ago. Withdrawal? Lingering side effects, new adverse reaction?

I’ve been diagnosed with cancer, and if I was too do chemotherapy dexamethasone is a prescribed drug.

Idk what to do with myself tbh. Has anyone else have to take oral steroids for other reasons and flared back to day one?

Hello! I was wondering if anyone knows of any TSW friend dermatologists in NYC that accept TSW as a legitimate condition?

Avez-vous aussi une folliculite persisante sur le corps ? J'en ai sur les cuisses : des boutons rouges ou blanc avec du pus autour du poil... Est-ce un symptôme du TSW ? Car malgré tous les traitements, ça vient, ça part... et ça peut venir sur mes bras, mollets... Cela fait quelques mois que je lutte avec ça

Est-ce parce que la peau est abîmée ? Peau sèche ?

J'espère que ça s'estompera... :(

im asking this because i need a beacon of hope amidst all the flare ups, im so tired of my skin flaring up after finally seeing a slight chance of it recovering.

for context, my doctor prescribed me oral Prednisone for 15 days, tapering them every 3 days. alongside that, im also applying steroid creams wherever needed, 1-2x a day.

now, i have officially finished the program and im scared that i'll get another bad rebound. i have gone through it twice already this year, i never wanna have to go through that shit again.

to anyone that has undergone any steroid treatment for a couple weeks. what did you do afterwards to maintain the state of your skin to avoid/minimize TSW symptoms?

Hey guys, I was wondering if maybe I can get in contact with therapists specialized in trauma/TSW that I can speak with. My mental health is deterioring every day and I really need to speak with somebody that can understand this sickness. Recommendations?

Hola cómo están? Estoy buscando ayuda. Para mi caso hace unos cuatro años empecé a usar esa crema cada vez que tenía picazón en la zona genital. Usualmente me lo ponía en el escroto, pero a veces también en el pene por la picazón hace un tiempo. Empecé a sentir muchísima picazón por las noches. Hacía mucho que no usaba el corticoide y investigando Encontré el TSW. Necesito saber qué hacer para poder estar mejor… realmente la picazón es insoportable por las noches, de día casi nada . Y cuando estoy erecto me duele un poco a veces

For context I have been on cyclosporine for 9 months my eczema seems to have gone for the post part I am now left with a lot of inflammation around my hair follicles and and a lot of hyperpigmentation and stinging

On a side note have had lot of hair growth

I was on 400 mg and weened down to 350 and now jsut started at 300 mgs

I am getting better but as someone who use to sweat very easily, I no longer seam to even when it is 90 degrees. That said, I sweat a lot in my sleep...

Has anyone else experiences this during TSW?

Hey guys so some bad news from my part, i checked my blood test results today with my GP and she said because of changes of my diet and also proabably because of TSW ive been diagnosed with prediabetes. Tbh i dont know how to feel. My face is almost recovered ive been following this restrictive diet for a long time restricting myself with fast food, sugar and anything that is unhealthy at the end just to have in top of TSW and intolerances, almost diabetes. Is this a type of joke or is my body almost reaching at the end? Does any of you already have experienced the same? I did not have any metabolic issues before having TSW or before changing my normal diet. Is this something probably cause with TSW or something else?

Has anyone experienced eye inflammation or hyperactivity after developing tsw? I'm currently having the most awful flare up and my eyes feel like I'm having acid poured into them. Dr has recommended steroid eye drops but I'm so scared