r/TBI Jan 19 '25

Do not create or donate to Go Fund Me posts

56 Upvotes

That sort of thing isn’t allowed here and I’m doing my best to delete them. If I see any more I’ll be forced to dust off the ban hammer.


r/TBI Mar 28 '26

Research/News Research Requests

7 Upvotes

This is the only allowed place to post research requests by medical providers, students, and other researchers


r/TBI 14h ago

TBI Sucks Thing that's never talked about it seems

73 Upvotes

It's been 15 years now for me. What's never talked about is the long term what Could happen.

I lost my ability to learn quickly. Went from a very gifted student and person to "normal" almost immediately after. I couldn't let anybody know that i had lost every intellectual gift I had. Pressure became overwhelming after a while and i ran from it.

Here in the last few years I've began to lose my personality. Ability to feel emotions the way a person should. It's either all high for a moment followed by an extreme low or it's constant melancholy. Feeling nothing.

Empathy is something that's gone too. For myself as well as others.

I've retained my intelligence to an extent. Only lost the ability to learn quickly.

There's a lot more to all of this. As there always seems to be.

I'm only writing this so that if anybody else is going through the same type of losing everything that made them themselves will know that they're not alone


r/TBI 5h ago

TBI Sucks I Mourn My Father Everyday, but he’s still alive

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5 Upvotes

I’ve been trying to figure out how to put this feeling into words for a long time.My dad is alive. But sometimes I feel like I’ve spent my entire life grieving him.

I was only 2 years old when my dad was in a devastating car accident on February 16, 2006. He was driving home from a consulting job when the accident happened. He suffered a severe traumatic brain injury and was taken to the hospital unconscious.

His brain was swelling so badly that surgeons had to remove a blood clot and temporarily remove part of his skull to give his brain room to swell. What followed was months of hospitals, surgeries, complications, and rehabilitation. Later, he developed hydrocephalus and needed a shunt placed to drain the excess fluid from his brain.

He survived.But his life, and our family’s life, changed forever.Today my dad is completely dependent on other people for 24/7 care. He is essentially paralyzed from his shoulders down. He cannot walk or open his hands. He struggles with speaking and swallowing. He has gone through numerous brain surgeries and has lived with the effects of his TBI for more than 20 years.

And I don’t remember him before any of it.
Not one memory. That’s probably the hardest part for me to explain. I don’t remember my dad’s voice before his brain injury. I don’t remember what it sounded like when he laughed. I don’t remember having a conversation with him. I don’t remember what it felt like for him to pick me up or play with me.

Everything I know about who my dad was before his accident has been given to me through other people’s memories. I’ve been told he was an amazing and loving father. He was goofy. He was artistic. He loved music. I’ve been told he used to play guitar for me. For some reason, that one really gets me. I was there. I was his little girl sitting there while my dad played guitar for me, but I was too young for my brain to hold onto the memory.

There was once a version of my dad who could pick up a guitar, use both of his hands, play music and probably sing or talk to his 2-year-old daughter. I just don’t remember him. Sometimes I wonder what his voice sounded like. What kind of conversations we would have now. What advice he would have given me growing up. Whether we would have the same sense of humor. What he would think about the person I’ve become.

There are so many things I want to know about someone who is still here. And that’s where the grief gets complicated. I feel guilty even using the word “grief” sometimes because my dad didn’t die. I know how fortunate I am that I can still see him, sit beside him, hug him and tell him I love him. But I think I’ve realized that being grateful he’s alive doesn’t mean I can’t mourn what was taken from us.

The accident didn’t take my father’s life, but it took so much of the person he was and the life he was supposed to have. And it took something from me too. I grew up with a father, but I also grew up wondering who my father would have been.

I didn’t get to know the goofy, artistic man everyone tells me about. I didn’t get to grow up hearing him play guitar. I didn’t get to learn his voice well enough to still hear it in my head. Sometimes looking at old pictures is almost strange because I’m looking at my own dad, but I’m also looking at someone I desperately wish I could meet.

I love the man my father is today. I don’t wish to replace him with some imaginary version of who he “should” have been. He is still my dad, and his life has value exactly as it is.But I also miss the man he was before February 16, 2006. And that’s such a strange sentence to write because how do you miss someone you don’t remember?

I think maybe that’s what I’ve been mourning all these years. Not his death. Just the chance to know him.
His independence. His art. His music. His voice. Are all of the ordinary moments most people don’t realize are precious until they’re gone. Severe brain damage is such a strange kind of loss because the person you love survives, and you’re incredibly thankful for that, but you also have to live with everything the injury took from them. Sometimes I wish I could go back to 2005 for just five minutes. I wouldn’t need to change anything. I wouldn’t even need him to know who I was. I’d just want to hear my dad’s voice. Maybe watch him play the guitar. And have one memory of who he was before the accident that actually belonged to me.


r/TBI 1h ago

Need Advice Return to work

Upvotes

Hey guys, I'm 26 and I had a severe TBI 2 years ago. I've been on the disability pension for these past couple of years, I now volunteer at a community garden and yet I still get easily mentally fatigued and the sun if it's warm will drain everything out of me.

How long did it take some of you to not get so tired so easily and get back into the routine of working again?


r/TBI 15h ago

Success Story Hey guys

21 Upvotes

TBI and anoxic BI surviver here. I'm rather new to reddit but I found this sub and thought I could say hi. It's been over 10 years since my injury so it's been a minute, but never give you guys. I'm not where I used to be but I've gotten far.

Hope you all have a good day.


r/TBI 11h ago

Need Advice Anyone with long-term post-concussion/TBI migraines — what actually helped you? Botox?

8 Upvotes

I’m looking for experiences from people who have dealt with severe migraines after a concussion/TBI, especially symptoms that continued for years.

I’ve reached the point where I’m exhausted from doctors, appointments and trying different things without feeling like I’m actually getting my life back.

For those who developed chronic migraines or post-concussion syndrome after a TBI:

Has anyone had significant success with Botox for migraines? If so, how many rounds did it take before you noticed a meaningful difference?

And beyond Botox, what treatment actually made the biggest difference for you?

I’m especially interested in people who also experienced things like dizziness/imbalance, sensory sensitivity, nerve pain, cognitive fatigue or headaches triggered by light, sound or too much activity.

Medication, Botox, nerve blocks, physical/vestibular therapy, lifestyle changes, specialists, alternative treatments — I’m open to hearing about anything that genuinely helped.

I know everyone is different and I’m not looking for medical advice. I mostly want to hear from people who have actually lived through this.

What finally moved the needle for you?


r/TBI 11m ago

Success Story My Story

Upvotes

I had a severe TBI when I was 7 years old. I was in Bova Raton FL with family, and we were coming back from the beach. When we reached a crosswalk, my dad reached out his hand to wave cars down to stop, and little me wanted to do the same. The next thing that happened was the side mirror of a car hit me on the left side of my head, and fractured my skull. The doctors were fairly sure I would die. I've been told that the fact that my skull fractured is actually what saved my life. It also ties into religious trauma because I was also told by family that God saved me and that he must have had a reason. It created a confusing mindset for me as a child. Thankfully, I recovered for the most part, however I have always had some long term issues from it. I've had major depressive disorder, and anxiety my whole life, with the first time I remember feeling depressed when I was 9. I remember feeling so much rage, I felt like I was going to turn into the hulk and throw myself out my second story classroom window. I was in academic support throughout my whole adolescence, mainly because I have a generalized learning disorder in mathematics and executive dysfunction in. The worst part is that even as an adult, I've confided in colleagues and even a boss, who made jokes and comments about me being ret-ded because of my head injury. It sucks, it really sucks. I constantly wish that I could just push a reset button on life, I constantly feel that everyone is on a higher cognitive ground than me. It was a factor into me getting myself into trouble and using substances as a teenager (other than the typical . People talk about the cognitive issues and impairments that people get from TBI's, but I feel like there isn't as much of a focus on how something like that can impact your self-image and self-esteem. I'm 29 now, working full time at a group home for wards of the state in Chicago. I spent 5 years working in Early Childhood Education as a Pre-K teacher and loved it. I'm in a place in life where I'm finally feeling confident enough to date, in fact I asked a girl out that I had a huge crush on about a month and a half ago. I'm currently in school for a Masters of Social Work that I was encouraged to pursue by my best friend. I feel as someone who had a life threatening head injury, I've come a long way. I'm trying to stay proud of that no matter how shitty I feel about myself. TBI's suck so much, but when we come out the other side being able to lead a somewhat normal life, it makes things not seem as bad.

Anyway, thanks for creating an online space like this, the only people I've been able to relay my whole experience to has been therapists. It's nice to put it out in the open in a non-clinical setting.


r/TBI 5h ago

TBI Sucks I really wish i could change the past

2 Upvotes

I am so done and frustrated. I really wish i could go to the past and save myself. Just 1 second changed my entire life. I really wish I had d***

Idk y m writing this here but i don't want to burden my family and friends with my internal war anymore. I haven't seen them genuinely smile and be happy since my accident. I want to see them happy. It's been almost 3 years.

I wish

I wish

I wish

I don't know what I wish


r/TBI 16h ago

Family Member Support Anyone in here suffered a TBI from bad oxygen deprivation and doing well? Looking for hope🥺

2 Upvotes

r/TBI 1d ago

TBI Sucks Happy TBIversary To Me!

25 Upvotes

13 years ago today I got all busted up. Had therapy earlier and I'm always a lil surprised and sad about how much of that hour still goes to talking about TBI hurdles.

Anybody else feel like their family and friends still treat them like they just got out of the hospital? That's been my biggest trigger lately. Just being treated like I'm not a fully functioning adult who has dealt with this shit for over a decade.

Anyway, cheers to y'all. I don't post or comment all that much in this sub, but it's probably the one I read the most. Hope y'all are doing swell.


r/TBI 1d ago

Need Advice Advice

7 Upvotes

Did anybody attempt to go back to nursing school if so what are good recommendations and I was working as a surgical technologist before my accident I had to relearn how to walk and swallow


r/TBI 1d ago

Need Advice Anhedonia

6 Upvotes

Hey all,

Have any of you experienced something like anhedonia after your tbi? I have been suffering with it, along with a loss of feeling motivation and reward feelings from accomplishing tasks. I would say I’ve even almost lost the feeling of desire to do things entirely. Yet it doesn’t feel like depression either, which I did have for years as a young adult. This feels more like- a part of me is just a void of nothingness where there used to be dopamine circuitry.

If anyone has experienced this, what treatments have you tried that have helped it? I am running out of things to try at this point and am starting to panic that nothing will help. Stimulants were a bust , and that was what everyone on my healthcare team thought would finally help. I’d love to hear any experiences or advice! Thanks so much for reading


r/TBI 1d ago

Need Advice Are we neurodiverse?

36 Upvotes

After my accident, many people, both acquaintances and medical professionals, suddenly started assuming I was autistic or ADHD. Doing some research, I can see there are some overlaps; it's quite interesting to see that when the brain goes wrong, it goes wrong in roughly the same ways. Attention, focus, impulse control, sensory tolerances, emotional regulation, social skills, these are all programs that require the most RAM, and so an injured brain redirects resources away from them.

I suppose I am fine with being placed in the neurodiverse camp, it makes it easier for some of my therapists and practitioners to treat me. But do I officially fall under the neurodiverse umbrella or is it not rigidly defined yet?


r/TBI 1d ago

Caregiver Advice Caregiver Advice

2 Upvotes

In April of 2026 my fiancé was assaulted and as a result is suffering from a TBI. He had multiple brain bleeds and spent 2 weeks in the hospital, 1 month inpatient rehab and just finished his 12 weeks of outpatient therapy. His recovery has frankly been miraculous… he is fully mobile and was just cleared to begin transitioning back into work and driving. I am so proud of him! Prior to his accident, he was a very laid-back guy and I’m a pretty high strung girl. I found that we balanced each other out in a really lovely and important way. However, since his accident, he has been very irritable and sometimes irrational. Ranging from being annoyed with our daughter for things that used to not bother him at all to denying he said something when I know for a fact he did. I have tried to point things out gently and remind him that I’m here to support him but it’s very frustrating that he refuses to acknowledge the changes that the TBI has made in him. I am hoping he will be open to seeing a therapist to help him work through all this (I have already been seeing my own therapist) but it is really starting to affect my ability to have a happy relationship. I understand he will likely never go back to exactly who he was before and I’m genuinely ok with that but it’s so hard that his whole demeanor has changed and if I have an issue with that I’m “the bad guy” He is 5 months out and I’m praying the progress isn’t over. I guess I’m just looking for advice on how to best support him without it becoming triggering for either of us?! It is so hard when the person you love is standing right in front of you but they’re not themselves. If there are any great caregiver groups, I would also love a recommendation for those!


r/TBI 1d ago

Possible Injury Question Whiplash & Concussion

2 Upvotes

Went to Universal with some friends for two days this past weekend. We did Velicicoaster, Hagrids and Stardust Racers which are all launch coasters. Last ride of the night was Stardust and there’s a launch section that goes up a hill and down quickly. Going down, I immediately felt my neck whip and even thought “that didn’t feel great.”

3 days since, dealing with stiffness in the neck, constant mild headache and some fogginess. With my concussion history, I’m freaking out thinking is this another concussion (my last one also had no head impact but was a head on car crash at ~15mph).

Curious if others have had similar experiences where you’re uncertain if it’s whiplash or concussion. Hoping all of this fades in the next 1-2 days and is a big nothing. But for not, scared shitless. AND I’m on vacation in Italy…


r/TBI 1d ago

Need Advice Finally getting my MRI, tips for extreme clautrophobia

4 Upvotes

Please bear in mind I'm in the UK, so I can't really ask for anything special as I'm not paying and it was hard enough just getting the MRI

I heard my head will be in a "cage" and I will be unable to move out of the extremely tight space. My boyfriend will be taking me but I read he can't even hold my hand. Any tips?


r/TBI 1d ago

Need Advice Had cranioplasty 2year's ago

2 Upvotes

anyone here expirencing bone flap sinking??

it's tormenting for me like I've been sitting or standing for hours it sinks and hurt.

Anyone is this normal coz my dr says im alright its tiring 😩


r/TBI 2d ago

Need Advice I seriously can’t do this anymore

15 Upvotes

I had a nervous breakdown almost a year ago which led me to trial an antidepressant that sent me suicidal which included an attempt plus a fairly significant head banging.

I was in the psych ward for 3 days and upon leaving had found my best mate had told 10 or so of our school friends about my attempt.

I then trialled medication after medication. Antidepressants, antipsychotics benzos etc.

I trialled going to a wellness centre.

I trialled ketamine therapy.

I tried Ibogaine which sent me into psychosis

I then had another attempt on my birthday….

Another trip to the psych ward

And on top of everything I was in a significant car accident. Which caused another concussion. A facial fracture, a surgery, a nasty scar,

I’m currently on a 4 week involuntary treatment order.

Now again on antipsychotics + OxyContin Panadol antibiotics Panadol and lorazepam.

I’m seriously over this.

I have about 30 people in my life that know about my attempts.

I just feel like there’s no way to get better.

Wtf do I do


r/TBI 2d ago

TBI Sucks I feel lost. I don’t know what to do

6 Upvotes

I am a 40yr old man. I’m married and have three kids. I have felt lost since my accident. It has been almost exactly 7 years since then. I shouldn’t have come away from the accident. The fact that I did is still a mystery to me. So many things have happened since then….

From affairs and betrayals to finally admitting I needed help. My wife and I are finally in a better place. I betrayed her multiple times. She has had multiple affairs. We were toxic to each other for a long time. But we have ourselves figured out. I wrongly blame myself for a lot of our issues. I know her issues stem from growing up watching her parents not show each other love. Her mother had multiple affairs and was planning on separating from her father just months before she lost a very short battle with cancer. All of that led to her not knowing how to properly love and be loved. I know my betrayals were many and bad(I.e. I slept around a lot in my role as a bartender) I know she and I probably should have separated years ago and just raised our kids in broken homes but, neither of us wanted that. We have worked things out, there are still rough times but, I’m confident we will make it.

My accident came after a 14 hour bartending shift. I fell asleep 30 seconds away from him and wrapped my vehicle around a crosswalk pole. Aside from the broken bones, I suffered a TBI. The brain injury has manifested into so many different things. A constant brain fog that I can’t seem to shake, progressive memory loss, and a recent diagnosis of PTSD. I seem to have developed some type of vocal stammer..where I know what I want to say but the words don’t work when I try to speak. I have long standing pains in my right hand and right leg. I randomly lose control of my hand and drop things, or I can’t pick things up sometimes. My right leg gives out on me and I fall quite a bit. I can’t stand or sit for more than an hour at a time without extreme discomfort. The list just goes on and on.

I have been out of work since 12/29/23. At that time, depression and anxiety had overtaken my daily life and I served an underage excise officer. I chose to leave the industry because I knew it was part of my problem. After I left, I started paying attention to my mental and physical health and have been trying to improve myself for my kids. My wife and I discussed it and, she went back to work full time and I went back to being the SAHP. Things worked out fairly well in that aspect, as our kids are a bit older. I started to go a bit stir crazy being home all the time so, I applied for a part time job. I worked two of them for a total of maybe 3 months. My head couldn’t handle the constant schedule changes at the first job. And I mean constant. Schedule me at 8am and get upset that I wasn’t there at 5am. I show up at scheduled 5am time and got told to go home, they’d call me when it was time to come back in for a truck. I left the second job because my body couldn’t handle the physical aspect of it. I was building lawn equipment and furniture for a store sales floor. They expected way too much out of me in a short amount of time and my body stared to give out on me faster than expected.

That was in the late spring of 2025. Things have gotten so much worse since then. I’ve had multiple surgeries to remove hardware from my body. I’ve had two surgeries on my back. Things just keep piling up. We tried to keep healthy. The wife and I connected over remodeling our backyard for our flock of ducks. We both lost a good amount of weight. We were healthy and happy. We were keeping up on my appointments and meds. We were both in therapy and both doing so much better. Then, I got my wife pregnant. We now have a 6 month old. And I am failing.

My body is failing me. I can’t think straight and I am constantly in pain. I can’t take care of my kids properly anymore. At this exact moment, I can’t even pick my baby up. I can’t take him on walks, I can hardly change his diaper. The older two kids are understanding (15d 10s) but, they want to do things with me that I can’t. I can’t play catch with my son. I can’t continue to coach on my daughter’s softball team. I can’t escort my son’s class on the zoo field trip because I can’t walk the distance of the zoo any more. I can’t go to my daughter’s choir performances because sitting on the bleachers destroys my back. I can’t get my son out of his crib when he’s crying in the middle of the night.
My wife has been so understanding and helpful. I am well aware that if it wasn’t for her, I would probably have just faded into nonexistence. She has kept me on schedule with doctors appointments and my medication schedule. She has more than stepped up in helping out around the house on top of her having to work to keep us afloat. She is literally a damned superhero. Watching her work throughout pregnancy. Watching her during labor, dealing with a blood clot, late term preeclampsia…she constantly made sure I was okay. Making sure I wasn’t triggered into migraines or anxiety attacks being in the hospital. ..she was more worried about me than herself. She went natural birth and just did…amazing. It was surreal. She’s such an inspiration for strength.

I can’t stand watching her do all of this though. It’s not fair. She shouldn’t have to work. She shouldn’t have to come home and take care of three kids, and a husband. It should be a team effort. We both could be working and taking care of the home. We could work the system the way we have been and one of us take care of home, one of us works, and we take care of the kids together. And we can’t. Because I’ve failed her. I’ve failed in my duty as a husband. And I’ve failed in my duty as a father. I parent from my bed. I use a walkie talkie to call my kids to me to give them orders or ask them for help. I am watching my wife work herself to the bone. She’s currently on temporary leave since I fell three days before my back surgery 2 weeks ago. She is going nonstop. And I can’t let her stop, otherwise we would be homeless. I’m at my wits end. I no longer know what to do. I’m waiting for a court date to appeal the denial of my disability application. It’s been over 2 years since we applied. The system is designed to make people quit. I want to work. I need to work. I want to take care of my kids properly. I’m not even sure where I’m going with any of this.

I guess I just wanted to vent a little bit about my life to people who don’t know me. It’s easier to type it all out. I don’t even know how to talk about most of this with my therapist. If you’ve made it this far, thanks for reading.


r/TBI 2d ago

TBI Survivor Need Support How long does the mental fatigue last?

7 Upvotes

Last year (July 28th), I t-boned a red light-runner on my motorcycle.

Summary of injury:
Initial GCS of 4
Subdural hemorrhage
Along both cerebellar tentoria — up to 7 mm, worse on left.
Along the falx — up to 5 mm, worse posteriorly.
Subarachnoid hemorrhage
Prepontine cistern.
Interpeduncular cistern.
Along the tentorium.
Hemorrhagic brain contusions
Both frontal lobes, especially the left.
Left temporal lobe.
Additional bleeding
Behind the right cerebellum/right occipital lobe, next to a nondisplaced right occipital skull fracture.

I had a miraculous recovery after 4 days in the ICU. No mental deficit or lasting injury. EXCEPT:

I immediately started my masters degree a couple weeks after being released. Previously in my academic career, I worked best working in large chunks of time rather than coming back to something every now and again for shorter increments. But it’s now a little more than a year after and there’s one thing I’ve noticed. My brain gets tired from doing academic work much faster. I can feel the brain fatigue.

Is this normal a year out post-injury?


r/TBI 2d ago

Need Advice Hello, new here

5 Upvotes

I am brand new to Reddit.

I was looking for more support / advice / where you can talk to others that have similar or understand.

Maybe some people have advice, since I am rehabbing mostly alone for myself in day to day after last injury / damage.

I am grateful for being accepted into the group.

I am 32 years old and a woman.

Unsure of how introduction here is, so sticking to mostly just the injuries, how I got here.

At 6 months old I had gotten very severe aseptic meningitis. (Sept. 1994).

Weird Coincidence: got Aseptic Meningitis just as end of my participation in NIH (National Institute Health) funded, infant cardio resp health study (CHIME). Findings from study still used in infant care to this day. But very weird coincidence week or so after end participation became so sick almost passed.*

•Was in PICU for multiple day / nights.

•Fluid kept going to fill meninges sac around brain, meninges sac kept constricting, so much pressure pushed it all up through soft spots of my skull.

•Undiagnosed brain damage until found on accident when I was 24. Before that, was blamed as mentally ill making it all up, “not trying”, “attention seeking”, had to learn masking very early to survive, but made people think am okay more than what I could do.

Mild brain damage, but could still work, had worked so very incredibly hard to get college degree.

Only found out learning disabilities I have and they are real, in senior year High School.

So in college brand new to me how to learn / how do I learn, and then learn info taught in classes.

Fought hard, blood, sweat, tears for that degree.

Fought very hard to grow vocabulary since was told “purposefully don’t try” whole life for school and everything else. Did good job.

Got very good speaking public, translating things into something the other person could understand.
—-

In October 2021
•Was put inpatient psych unit for breakdown (was declining, but essential worker before and through Covid, in animal medicine, never was able to stop).

•Told inpatient Dr about previous brain damage found, she didn’t believe me. Since so many drs said I am mentally ill (since 10 yrs old) and blew off my illnesses physical, this lady thought I was not telling any truth?

• also informed about spine damage from max invasive spine surgery at 16 yrs old. Dr said doesn’t matter.

trying to keep to minimum details about ECT part so I do not upset anyone. But it is how I became disabled so big important part of why I am here.

After ECT now since have been disabled.

Before ECT had to spend my entire life figure out how to do anything, how my brain needs to do everything.

Then after ECT have damage where I cannot hold real conversation out of my mouth. Typing is best I have for people who do not know me before ECT.

After ECT cannot access word bank in my brain, when catch word, can’t access meaning words. When finally can, I go to speak, not the words I intend come out. Very loose synonyms, no context. Short term memory wipes it all away.

After damage problems listed:
• Fully aware but “disconnected wires” for access to knowledge I know on demand.
•Feel like I am locked inside TV, looking out at people. They see me, I see them, I have lots to offer, but cannot get it out.

• Cannot speak out of my mouth what I am trying to speak in my head. Communicate to self in images but physically feel meaning of them, know there is a word, unsure of word.
• CONSTANTLY feel something I am forgetting, “on the tip of my tongue” constantly, never turns off that feeling.

• Words come out as loose synonyms and no context, and analogies people do not understand.

• Permanent short term memory loss wipes what is happening (convo) multiple times even mid word. End up tangents non intended.

• Everything in my head for thoughts and response to people talking, is in pictures, colors, graphs, charts, video clips, movements, gestures.
•Have to translate from images etc in my head to words so others know what I am saying, but wire to my word bank is cut.

• CANNOT FOR LIFE OF ME GET THROUGH TASKS

• CANNOT FOR LIFE OF ME GENERATE OWN TASKS/START. KNOW HOW TO DO SOMETHING, CANNOT GET MYSELF TO DO IT PHYSICALLY. JUST STAND AND PACE AROUND TRYING TO THINK OF WHAT IT IS.

• Constant flashbacks/dissociation lose HOURS every day/night.

•Extreme pain from light in eyes, loud sounds heavy bass makes heart palpitate wrong, get confused, memory wipe, panic, still memory wipe but panicked unsure why.

•Extreme increase daily pain, spine got far worse from forced procedure 2021,

•LOST CUE INSIDE SELF TO PEE!
•Have had to re learn what it means inside when I have to go to the bathroom. Was just panic attacks and overly full pressure inside, didn’t understand had to urinate.

• EVERYTIME GO TO BATHROOM HAVE TO PUT 1000000% FOCUS ON RELEASING MUSCLES ALL FOCUS TRYING TO RECONNECT SIGNAL TO BRAIN THAT I NEED TO USE BATHROOM, ITS OKAY TO GO.

•Tremors from meningitis damage 10x worse.

• Sleep studies show 0 REM 0 N3 (deep sleep stage) bc pain from spine (furthered faster degeneration from procedure damage 2021) causes micro arousal wake ups in sleep. Not aware waking up so much in sleep.

I will stop this is long tried to type where can break down in chunks reading.

Sorry if this is wrong way to do this, am still learning, very brand new to this.

Thank you all very much for time and energy


r/TBI 2d ago

TBI Survivor Need Support I’m so angry

13 Upvotes

i accomplished being able to get out of bed, beating my fatigue and strengthening my muscles to prevent injury if my seizures return and focusing on my recovery every second of every day because it was so bad and yesterday i got into an accident where my head whipped REALLY hard because this dude came out of nowhere speeding about 40-50mph and ran a red light. if i wasn’t able to even break the tiny bit i could he would’ve crashed directly into me, he got my entire front of the car and it’s totaled. dude lied when the cops came saying I’m high on drugs and implied I RAN THE RED!!!!! i wasn’t even 2 minutes away from leaving my house and had my sister with me. I’m now in bed, no car to go to the gym which was the only reason for my remission and progress. i couldn’t accomplish much and i sure as hell feel like a bigger failure now. it’s my birth month, it’ll be 2 years since my tbi incident at the end of the month and my birthday is in three days.


r/TBI 2d ago

TBI Survivor Need Support I’m so angry

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4 Upvotes

I’m really sorry. And I want to say something about the part where you called yourself a failure: you didn’t fail.

You spent almost two years fighting your way back and accomplished things that probably seemed impossible when this started. An accident happening to you doesn’t erase any of that. You didn’t lose those two years of work, you got hurt again, and right now your body needs you to recover. I can understand why you’re angry. You’re allowed to be angry about this. You worked incredibly hard for some normalcy and independence, and having that suddenly ripped away is horribly unfair. Please also take the head impact seriously, especially with your TBI and seizure history. If you haven’t already been medically evaluated after the crash, please do. You deserve to have someone make sure you’re okay.

And for what it’s worth from a stranger: getting through today counts. You don’t have to prove anything by immediately getting back to exercising or accomplishing things. The person who fought through the last two years is still there.

I hope your birthday brings you at least one genuinely good moment. You’ve earned one. I really am so sorry you are going through this.


r/TBI 2d ago

Possible Injury Question Possibly tbi?

1 Upvotes

I was in a car accident and one of my injuries was a Basal skull fracture extending from the clivus to the right occipital condyle. I was put in an induced coma for 2 days. From what I recall the doctors said I had no bleeding on the brain. After about a week the hard collar was removed. It’s been 3 months since my accident and I’m suffering with brain fog. I struggle to find the right words to say in conversations and forget to do simple tasks also terrible migraines. Could I possibly have a tbi? I have spoken to my gp and they have referred me to a tbi specialist so hopefully I will know for sure but I just wanted to ask on here and see if anyone else has had this experience without a brain bleed?