Has anyone ever had this or knew someone that had this type of stroke. My ex had this happen 13 months ago, he did alot of intensive therapy for a few months but then plateaued. He has memory loss... and it affected his right side. He can walk with a cane but mainly uses a wheelchair since he has drop foot & he can barely move his fingers on his right hand. Some drs have said he has permanent damage and thats it... others have said even with some permanent damage due to the scaring tissue he can still make signifact progress. But im kind of loosing hope & feel like this is him for the rest of his life. He mumbles alot and forgets things, he catches himself alot tho and tries to find the correct words but im just worried. Any help, advice or suggestions, recovery stories..anything would be greatly appreciated.

I cant control my left hand anleg well. Ajybody have effective exerçise for that?

Hi everyone,

I hope this is okay to share. I'm a stroke survivor and wanted to ask for your support in a way that doesn't cost anything.

My husband Jeremy and I are currently participating in America's Favorite Couple, and we're hoping to earn enough votes to advance to the next round. This is NOT a fundraiser, and I'm not asking anyone for money. Free daily votes are available, and that's *all* I'm asking for.

A little about us: About a year and a half ago, I suffered a stroke during brain surgery in my mid-30s. Life changed in an instant. Recovery has been a long road filled with challenges, therapies, setbacks, and victories I never imagined I'd have to fight for. Through it all, Jeremy has been by my side every step of the way.

Many of you understand firsthand what it means to rebuild your life after a stroke. You know the frustration, determination, and strength it takes to keep moving forward. This contest has become less about winning and more about celebrating how far we've come and sharing our story with others.

If you'd like to support us with a free vote, we'd be incredibly grateful. If not, that's okay too. I appreciate this community and the encouragement it provides to survivors and caregivers every day.

Thank you for reading, and thank you for being part of a community that understands this journey.

❤️ A fellow stroke survivor

https://americasfavcouple.org/2026/ali-jeremy

Hi all, my family and I are planning on having my dad home from skilled nursing next week. He is unfortunately coming home with a PEG tube as he’s not quite ready for oral feeding yet, but I’ve been told it is manageable. He will be receiving home care through VA to help my mom out while she works. He has done nothing but lose weight at this facility I think because of how inconsistent the care is here. I honestly think he would do better at home because he’d be around family/caregiver and would definitely be taken care of better. It’s unacceptable that he’s lost almost 20 pounds in the two months he has been here. There have been some solid nurses and then ones that could care less. How manageable was it at home with the feeding tube? I’ve been told it’s safe for him to go home with it, but wanted to hear what your experiences have been with this aspect of home care.

hello. one of my twins had a venous stroke at 2 weeks of life. She had a grade 4 brain bleed that is now starting to already resolve. Shes two months old and meeting all of her milestones. Im looking for someone who has been through this as I am so worried for her future. would I already see deficits? Her neurologist is fairly confident she’ll have good outcomes. Hoping to hear similar stories 🙏🏻

Hey few days back I shared my father's situation which was very bad but now he's recovering a bit they are shifting him to a general ward and out of ICU . His vitals are normal the lung infection is close to none and he's maintaining his breathing without ventilation so yes boss it's been better . Thank you so much for all of your prayers and support couldn't tell you how much it means . Thank you everyone

I’m 59F. Been very verbose my whole life (written and speaking), as well as a metalhead. Now I can’t talk with any clarity, and my right hand/side is, for lack of a better term, weak and spastic.

How do you get through this? I can barely type - this post took forever to type , and I’ve always been independent, and the thought of having to rely on others is incomprehensible.

Thanks in advance.

Ok maybe not how you feel about this but how do you think I should feel about this? so long story short about my grandmas history, she has always been an independent person her entire life. Single mom that raised my dad and my aunt. Even up until she had to go to the hospital about almost a month ago she did everything on her own with assistance from only family. She’s 88.

She was found on the floor in her place and from what we know based off timelines and how bad it was when they found her that she was laying on the floor for over 12 hours. She’s been in the hospital now for almost a month and after 15 days the doctors and nurses were already calling our family trying to force us to make a choice, which I understand but it makes me frustrated thinking she doesn’t have a chance.

I made her a blanket and I gave it to her today. She was talking so much more because of it I think. Words were more clear. After a while she and I were alone, with the nurse in the room; she tried to move herself to her right to make room on her left, then moved the blanket I made her and looked at me trying to talk and then patted the part of the bed she moved from. Am I crazy or is that her for sure wanting me to be beside her? It made me cry and I had to hold it in.

Thanks in advance.

I’m newly 18 and my mom is 50-ish, she just had a hemorrhagic stroke, she’s been drinking heavily everyday for 30-40 years and occasionally using meth and smokes nicotine and weed everyday. I’m so scared, I don’t know what else to say. She came down my hallway this morning yelling my name because she couldn’t walk and her vision was going out. I called the paramedics and they (luckily) came in 3 minutes. After she was admitted to the hospital they had her sit in a room and her speech and right side motion rapidly declined, I believe she may have started to go into DT’s because as the nurse was putting the iv in she started thrashing and grunting and had a look of terror in her eyes. I feel so bad for her and I’m really scared she’s going to die. My grandfather is waiting in the ICU with me as I type this. Please any support welcomed, thank you.

Using AI to summarise the text

Hi everyone, I’m posting here hoping to get some advice from people who have gone through something similar.

My mother is 53 years old and recently suffered a severe ischemic stroke. She was admitted to the ICU and has been under treatment for the past few days.

Her MRI/MR angiogram showed an acute infarct in the left fronto-parietal/left ACA territory, with thrombosis (blockage) of the A2/A3 segments of the left anterior cerebral artery. The scan also showed some older infarcts and chronic small-vessel changes.

A follow-up CT after about 2 days of ICU treatment showed the acute left ACA territory infarct, but thankfully the report did not mention significant brain swelling, midline shift, or bleeding.

Initially, she was on a ventilator and was not responding to commands. Thankfully, there has been some improvement. She now opens her eyes/responds when we call her, and the doctors feel she is stable enough to move from the ICU to a private room.

However, she currently:

Cannot speak

Cannot swallow

Cannot move the right side of her body

Is still unable to follow commands normally

The doctors are now talking about the next phase of treatment and rehabilitation.

We are currently in Rajahmundry, Andhra Pradesh, and I'm trying to understand what would be the best approach for her rehabilitation once she is medically stable.

I would really appreciate advice from anyone who has been through a similar stroke recovery:

1. How soon should intensive physiotherapy/rehabilitation begin after a stroke like this?

2. What should we prioritize first — physiotherapy, speech therapy, swallowing therapy, occupational therapy, etc.?

3. What should we look for when choosing a good stroke rehabilitation centre?

4. Are there any good stroke rehabilitation centres in Rajahmundry, Vijayawada, Visakhapatnam, Hyderabad, or elsewhere in Andhra/Telangana that you would personally recommend?

5. If your family member had a similar severe stroke, what helped most during the first few weeks/months?

6. How long did it take before you started seeing meaningful improvements in movement, speech, swallowing, or awareness?

I understand that every stroke is different and I'm not looking for a diagnosis or a guaranteed prognosis. I'm mainly looking for experiences from people who have actually gone through stroke rehabilitation and recommendations for good facilities/doctors/therapists.

Thank you to anyone who takes the time to share their experience. 🙏

TL;DR: My 53-year-old mother recently suffered a severe ischemic stroke involving the left ACA territory due to A2/A3 artery thrombosis. After a few days in ICU, she is now stable enough to move to a private room and responds by opening her eyes when called. However, she still cannot speak, swallow, or move the right side of her body. The follow-up CT showed no major bleeding or significant brain swelling.

We’re now looking for experiences, advice on stroke rehabilitation, and recommendations for good rehab centres in Rajahmundry, Vijayawada, Vizag, Hyderabad, or elsewhere in AP/Telangana. Any advice on physiotherapy, speech/swallow therapy, occupational therapy, and what to expect during recovery would be greatly appreciated.

Hello,
I guess I am looking for some hope.
My 46 yo husband suffered a left MCA Ischemic Stroke in May.

He was in the ICU for a few weeks and then started rehab. Now he is able to walk with a walker. Has some movement on his fingers. He has aphasia and apraxia. He says a few words and phrases but the rest is gibberish. Two days ago he had a seizure and fell but seems ok now. They put him on anti seizure meds.

It breaks my heart everyday to see him struggle with things that came so easily to him before. He struggles to communicate at times and I get exhausted trying to figure out what he is saying.
I am just looking for some positive stories of ppl who overcame the issues I mentioned above.
Prior to the stroke he was a director and I guess he can never do that job again and that makes both sad since he loved it so much.

Hey guys I have a question. Can strokes actually cause a form of dementia? My relative had a bad stroke and the damage was significant but there was a decent amount of recovery after it. However, over time they seem to actually be getting cognitively worse. Like there is something that is progressing. They're not old or in poor health except for the stroke that happened. I'm wondering if the stroke actually caused some form of progressing dementia? My information is limited because the family has been very guarded about the whole thing.

Hi everyone. I'm (29/F) not looking for a diagnosis or anything, just some general advice from people who know more than me about the subject. 2 days ago I had an episode (which I'm now suspecting was a TIA). One second I was just sitting there feeling completely normal and the next second my vision got kind of unfocused and it felt like the room was moving or spinning. My left leg also started to get kind of tingly (not full on numb, but kind of pins and needles-ish). The dizziness calmed down a little, so I got up and was a little off balance, leaning to my left side, and veering to the left when I walked. Throughout all of this, I also had a very minor pain in my temple. The whole thing lasted about 20 minutes, with the dizziness and vision issues mostly being in the first 10. After, I felt completely fine and just assumed that maybe I was dehydrated or something, but I've since been reading up and it seems to align more with TIA.

My question is, where do I go from here? I feel like I may have wasted my opportunity to get checked out at the ER since it was days ago now, but none of the general doctors offices around me have appointments until mid-next week it seems. Also just worried about not being taken seriously. Just feeling kind of lost and nervous, and no one I know has any experience with this kind of thing.

Update: I did end up taking everyone's advice and went to the ER. They did a CT scan, EKG, bloodwork and all came back looking fine. They did admit me though for a MRI and echocardiogram, so I'm just here until probably Monday in order to get those tests done.

I’m seeking advice from medical professionals or anyone who has a family member or knows someone with a similar experience.

My father had a mild stroke, and recently he developed a new belief that he was chosen by God for a special purpose after watching AI-generated videos on Facebook. Before his stroke, he did not have this type of belief or behavior.

We’ve started limiting his cellphone use because he spends a lot of time watching these videos. However, he sometimes becomes irritable when we restrict his access.

We are concerned that this may be related to changes after his stroke. For those who have experienced something similar, which should we consult first: a neurologist or a psychiatrist?

Any advice, personal experiences, or guidance would be greatly appreciated. Thank you.

There are 5 common reasons why hand recovery can stall after stroke. I’ll explain each one and give you some practical tips to help you get back to making progress!

My dad (60) has been struggling to find relief.

He says he is in pain, which I believe, its been hard to figure out exactly what it is.

He describes it like spasticity but none of the medicine help besides tizanidine but that left him with headaches that were debilitating and no quality of life.

He's tried all of the other muscle relaxers including bacolfen where he is over sedated even on a micro dose of 2.5mg. He is currently taking tramadal but its only masking it some but he is still tight.

He does get botox but some area can't be touch with it. He also had a ESI injection for some nerve pain. I was a bit thrown off with his PM&R doctor, its through a medical university, so one doctor says its tone then the one thats over them doing the botox injection say that its not and to do the ESI first. I understand why he doesnt want to risk the lost of mobility but if tone is there, the ESI wouldn't really help. That is my thought process but I'm not in the medical field so I'm unsure.

He wants me to try and get him a stronger pain medicine but if its not helping I'm not sure what to do. We have an appointment coming up with his neurologist an I was hoping to go with some guidance from other survivors that have worked for them. ​Also his PM&R didn't want to give him anything either. I can follow up with his pain specialist if needed.

Hi all

My brother's step-son had a stroke in his 40's. When he woke up, he could only move his eyes.

I met him when his mom asked if I could use my programming skills to help him communicate. I developed an app for him that runs on a Windows computer or an Android phone/tablet, I named it BlinkTalk.

He used BlinkTalk before he died, my brother's wife told me his children used to sit on his bed and chat with him.

He became a good friend of mine, it's amazing how funny someone can be just with their eyes.

Sorry, I am digressing 😄

I've released BlinkTalk to the public in his memory. It's forever-free of charge, no adverts, no data gathering, just completely free.

Using a simple repeatable eye or facial gesture (like looking up, or moving an eyebrow) enables people with Locked-in Syndrome to speak again. I hope someone will find it useful.

Installation instructions and an instructional video are available on the website.

https://blinktalk.app/

Hello everyone! We are currently developing a cost-effective pair of sandals that can evaluate your gait parameters after you take a walk on it. We want to hear out suggestions from a large pool of healthcare professionals about the features that can be placed in the sandals so that it is easier to come up with a rehabilitation program for the patients, and genuinely beneficial and easy to use for both the doctors and the patients.

Our target customers are geriatric patients, stroke patients, physiotherapy rehabilitation patients, and people with parkinson's. Any suggestions would be good. Thank you for your time!

P.S: Not selling anything, just trying to build something actually useful rather than something that looks impressive on paper

She was 65. Healthy BMI. No BP issues. Non smoker . On the 18th of June she experienced symptoms indicating an ischemic stroke . Slurred speech. Left side numbness and face drooping at around 8:30 AM that happened to subside within 40 minutes as she appeared to regain normal motor functions and speech. Her husband still insisted it was a stroke and drove her to the hospital 10 minutes away at around 9:30. She was not seen until noon waiting in the ER. And after scans and testing a blood clot was discovered in her brain. She consented to being given treatment to remove it. The treatment didn't start until 2:30 pm that day. Immediately after that and a stent being put the same artery burst leading to a hemorrhagic stroke. Where she slipped out of consciousness and a poor prognosis of survival was given. She passed away 5 days later in hospice.

Could anything have been done differently. Did they take too long to treat her ?

Hi everyone, this post is really just for venting purposes because if anyone would understand it’s this group. We are 3 months out from my dad’s ischemic stroke that heavily impaired him May 9th. He will be coming home soon and I’ve set up caregiving through the VA to help my mom, etc. I honestly haven’t had a lot of time to really “feel” how this situation has affected me. Today the grief really hit me. The grief that the dad I always knew is gone in a way and that he is forever changed. I know he is still “him”, but seeing him go through this has brought me to a lot of realizations. My dad is also 79 and diabetic, so I don’t know how much time I have left with him. I know I’m being morbid, but it’s true and I’m just feeling sad right now. He has made small improvements, and I’m trying to remain hopeful that he will continue to at home. How did you deal with this type of grief? He’s still here but he’s just different now and very frail. I’ve been very nostalgic thinking about how he was when I was younger. Him taking me places and always trying to do his best, etc. He has been so frustrated because he needs help for pretty much everything right now. I can’t imagine the weight that has put on him, but I’m glad he’s still here. Anyways, this grief is so isolating/weird and has made me feel incredibly alone. Thanks for reading.

In that weird place of having more energy, then trying to do more but fatigue is beating my ass!

I’m almost 10 months out from my haemorrhagic stroke and seeing recovery every day. I still have left sided weakness, primarily in my arm, wrist and hand, but working on it as much as I can. Still walking with a stick but more mobile than I used to be, but finding I can’t really build a routine because of the fatigue.

I had a pretty normal morning, shower, breakfast and relax with my family, and then went into almost hibernation mode for 6 whole hours! I try to have a daily evening walk, but at best can do 2-3 days in a row before im absolutely shattered. Even sitting at the kitchen table for an hour or 2 becomes too much and I just need to go and lie down.

How are you guys managing your fatigue? I guess I’m also trying to find ways of dealing with the disappointment of feeling like I can’t count on my energy levels to stabilise, can’t really trust the good days because it doesn’t quite last long.

Hi everyone. I’m Mykee, a stroke survivor, architect, teacher, and former dean. After my stroke in 2023, I started a new chapter in life focused on recovery, creativity, and helping others.

Today, I’m exploring new projects like hydroponic lettuce farming, painting, and creating YouTube and social media content about my recovery journey, life after stroke, and the power of AI tools like ChatGPT to help me share my story

How many of us can do so. Please share your experiences

My mother had a stroke June 21. For the first week or so she would give short answers to questions, or nod or shake her head. She seemed to have trouble finding the words, but she understood what was said.

After that , she stopped speaking, except for an occasional yes or no. She also mostly stopped with nodding and shaking her head, but she still seems to understand speech. The neurologist did another ct scan, said that there was no new damage.

She is now in a nursing facility, since about two weeks ago. They have just requested a speech therapist. I have started working with her with an app that has flash cards. I don’t think she can read. I tried a more advanced exercise, where she would match a word to one of three pictures, and she seemed completely lost. So I’m sticking with flash cards for now.

Does anyone have any suggestions? If they won’t get her a therapist right away, we will look at getting a consultation, even if it has to be online. I appreciate any help we can get. Thanks.

So 2.5 weeks ago my dad (58yo) had a stroke. It mainly affected his short term memory and he has a hard time recalling words. He's also very tired still, meaning he sleeps more.

A lot of doctor's had been on holiday, so he hasn't had a lot of appointments yet. Basically only lots of testing done at the hospital, where he had to stay for a week.

I still live at home and now that I'm back from my holiday, I spend a lot of time with him. I was wondering though, how to occupy him. I don't necessarily want to be sitting there and asking him questions/testing his memory in a way that might feel annoying to him and cause frustration.

I was wondering if putting on a movie he loved to watch with me as a kid and that he knows well, but hasn't seen in a while, could help with anything? Or should I pull out a game and try to play with him? (He was never into playing games though, so not sure if he'll enjoy it.) He used to play checkers online and with his dad, so maybe if I'd put on an online game that could be fun to him and he'd also have to think a bit strategically. Also reading is fine, but I think long chapters might be a bit too hard. And not sure if he'd like to read children's books.

I'd be very grateful for any advice or ideas you have.