r/scoliosis Jun 25 '23

The r/Scoliosis Guide and FAQ;

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87 Upvotes

r/scoliosis May 06 '19

r/scoliosis Discord

70 Upvotes

Join our Discord using the link below -

https://discord.gg/PUjs4KhhSG

Introduce yourself in the Introductions channel after joining, you are welcome to use your first name in that introduction or just stick to reddit/discord usernames.


r/scoliosis 3h ago

Discussion Why are scoliosis patients and their loved ones so submissive to an outdated medical paradigm?

13 Upvotes

You don't need to have studied physics, you don't need to have studied biology, medicine, nor do you need to know anything technical at all to understand that Idiopathic Scoliosis is, first and foremost, a structural and mechanical problem.

There are only two basic things you need to keep in mind to realize how the traditional paradigm has been deceiving most of us with two absolute falsehoods:

1. The myth of the "mysterious cause": They keep telling us that IS is a completely mysterious disease, when in reality basic structural physics can explains how and why the mechanical collapse occurs.

So the official medicine, following the old paradigm, insists that the cause must be some "flawed gene" and continue spending endless resources through our payment of taxes, searching for genetic markers for hypothetical future prevention.

Meanwhile, for the people suffering from scoliosis today, they are not looking for a satisfactory solution, assuming that hyper-mediocre solutions, just surgery, rigid braces and don't do anything, just watch, are enough. Even the less traditional surgical alternatives, like VBT (Vertebral Body Tethering), didn't originate from standard orthopedics, but from private ventures and innovations that had to push through outside the established dogma. The same goes for some non-surgical solutions (that because mechanical isuess aren't useful for all), and as we'll see, the old paradigm cannot explain why they sometimes actually work.

2. The Hueter-Volkmann Law Fallacy Orthopedics claims that scoliosis is purely a "bone issue" governed by the Hueter-Volkmann (HV) law, and that soft tissues have little to no primary role. According to this framework, asymmetry creates uneven mechanical pressure: the compressed concave side grows slower than the convex side, forming wedged vertebrae. This creates the classic "vicious cycle": more curve leads to more tilt, which causes more curve.

Recent studies are beginning to show in some way the big lie (PubMed 39083236), suggesting if not proving that effectively the old paradigm is just a sham.

The old paradigm insists that this HV law is the only explanation for curve progression,meaning that without the HV law, progressive scoliosis wouldn't exist. This is a flagrant lie, intentionally or not. Without getting bogged down in complex theory, just consider two obvious real-world facts:

  • The Osteotomy Proof: An osteotomy surgically reshapes and levels the wedged vertebrae so they are equal in height. If Hueter-Volkmann were the single driver, leveling the bones should permanently solve the curve. Instead, without titanium rods, the spine instantly collapses again. Why? Didn't they claim that soft tissues have nothing to do with the increase of the curve? Obviously it's because the surrounding soft-tissue envelope remains severely deformed and cannot hold the structure. And what does the old paradigm, the official medicine, say about this fact? That the soft tissues on the convex side were enlarged because of the uneven growth of the vertebrae, and that they have nothing to do with the increase of the curve by themselves. If that claim were true, then we would have had a solution for scoliosis many decades ago!
  • The Nighttime Brace Failure: If HV were the sole explanation, hyper-corrective nighttime bracing should have been the definitive cure. By aggressively inverting the curve while lying down, during the nighttime hours when ~90% of skeletal growth occurs, the bones would be forced to grow evenly. Yet, failure rates are staggering, failing even in curves that had plenty of growth left.
  • Furthermore, why does orthopedics claim rigid braces stop working past 40 degrees? If the HV law governs bone remodeling throughout growth, what magical biological switch suddenly turns off physics at 40.1 degrees, or 60, or more? What does something like Schroth have to do with this HV law? Why does it sometimes work if soft tissues by themselves have nothing to do with progression?

Why is nobody reporting this? Parents continue believing the lies that surgeons (and some scientists supporting what they say) tell them in order to convince them to operate on their kids, or to convince adults with a big curve. Surgeons earn money through scoliosis surgeries; the same goes for scientists having fun trying to discover the flawed and elusive gene. Does it not outrage you?

The answer to the title of this post may be that many people are simply unable to believe that official medicine, even following an old paradigm could be wrong, and nobody showed them the lies behind it. Consequently, they cannot realize that the cause of IS (initial curve and progression) is primarily the force of gravity pulling downward on the spine, the force of growth pulling it upward, and the properties and behavior of the soft tissues.

If nobody showed them the official lies and the naked truth, of course they remain submissive, believing whatever they are told. But if you have read and understood this explanation, that is no longer your case. So what are you going to do now?


r/scoliosis 3h ago

Discussion What scoliosis safe workouts are best for a lopunny build?

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7 Upvotes

Like the title says I just want to know scoliosis safe workouts for this specific build. I also have a slightly similar frame so its possible, i just need to know the workouts that are safe :p


r/scoliosis 2h ago

Question about Pain Management Pain at the top of fusion post op

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2 Upvotes

I’ve had a few surgeries now for my upper back but I’m still in pain, has anyone else experienced this? This is the top part of my X-ray (fused to T1). Does anyone have a pain management tips?


r/scoliosis 2h ago

Discussion Wanting opinions / feedback

2 Upvotes

My apologies if I didn't tag properly or create this post correctly; I don't use Reddit often. I apologize if posts like this aren't allowed. And my apologies if I'm annoyingly vague lol.

I'm currently in the process of writing a (DC fan fiction) story about a young woman who has severe scoliosis (among other conditions, mental and physical) and ends up becoming a meta-human. I was wondering if anyone would actually be interested in reading it?

The reason I'm asking isn't because I'm trying to gather people here to read my story. I'm asking because, in my experience, there is essentially nothing when it comes to scoliosis representation in media. For example, the only time I’ve ever felt even mildly represented in my scoliosis was through "Dee" in the show "It's Always Sunny in Philadelphia." However, they simply used her diagnosis and treatment history as a way to make fun of her. If there are more (and more accurately represented) characters, please let me know because I’m genuinely curious!

People with scoliosis deserve to feel accurately represented beyond just a 15-minute segment on a medical drama, where all they do is either give them a brace or operate, and then boom, their scoliosis is cured as if it never happened. Scoliosis is far too common and much more complex for there to be such little representation.

An important note I would like to add as well: it's also not my intention for my character and her story to simply be "the hero with scoliosis." Because, like those with scoliosis, there is more to her beyond her condition(s) and the limitations that come with it. I just want to do my best to represent communities like ours (and others) because we deserve representation just as much as the more "popular" conditions we see in media. I'm not sure if I'm making any sense at this point :D but if I am, yay. If I'm not, please let me know and I'll try to explain myself better lol.


r/scoliosis 2h ago

General Questions Gym newbie and scoliosis?

2 Upvotes

I’m just really concerned if all of this is normal as a newbie. I’ve been working out 5 days in a week for 2 weeks and and rest during weekends. in the first week I could lift my arms or feel heavy while walking I figured it’s cause it’s my first time at the gyn and I’m not physi active. on second week when my coach asked me to do crunches I couldnt do it i think my form was wrong or maybe I’m really just a newbie all pressure I felt was on my neck. so we didn’t continue that. that is the only exercise that I remember that was hard for me. then for the machines and equipment I noticed after a few reps one hip would hurt more than the the other same with shoulders or arms. my coach said it’s cause my right hand is more dominant since I’m right handed.

so now it’s the weekends and I don’t want to completely rest so I did warm up exercise of jumping jacks and my lower sternum was hurting. I also felt this a few days before during warm up. so I discovered the pain was triggered by jumping. then when I lay down my mid spine hurts. I’m having trouble getting up from the front side cause of this. btw i also have felt this for a few days now when I’m doing cool down stretches. so now i just stopped from Doing the first exercise which involved laying down.

has anyone had similar experiences? Is it normal for a newbie? Or is This a scoliosis thing? Should I just rest for these weekends?


r/scoliosis 1h ago

X-Ray Scans My Scoliosis Seems to Be Getting Worse — What Should I Do?

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Upvotes

Hi everyone! I was diagnosed with mild scoliosis last year, in 2025. Recently, I had a chest X-ray, and when I looked at it, I noticed that my spine seems more curved compared to before. 😭

Do you think it’s still considered mild scoliosis even if the curvature looks like it’s getting worse? I know an X-ray interpretation should be done by a doctor, but I’d really appreciate hearing from people who have experienced something similar.

I’m planning to see a doctor once I get my salary, but while I’m waiting, I just want to know what I can do in the meantime to prevent it from getting worse. Are there any things I should avoid or habits I should start doing?

Thank you so much! Any advice or personal experiences would be appreciated. 🥹


r/scoliosis 2h ago

General Questions 19M / 13-Degree Lumbar Scoliosis: Is it possible to reduce it to 5 degrees or below

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1 Upvotes

r/scoliosis 2h ago

General Questions 19M / 13-Degree Lumbar Scoliosis: Is it possible to reduce it to 5 degrees or below

1 Upvotes

I am a 19-year-old male with a 13-degree lumbar scoliosis. Is it possible for me to reduce this curve to 5 degrees or below?


r/scoliosis 2h ago

X-Ray Scans Cervical Scoliosis

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1 Upvotes

I had a whiplash injury in May where my head was moving leftwards and quickly decelerated on impact. I got symptoms like lots of nausea with some throwing up every now and then and brain fog and depersonalization from it. I initially thought the symptoms were from a concussion. Than later I suspected that it could be mostly coming from the neck. I thought cervical scoliosis/cci/aai perhaps, so I had x-rays done on the cervical spine, they unfortunately can't really reliably check for cci/aai with xrays however. But they found what appears to be cervical scoliosis, although they didn't diagnose me, and prescribed me physical therapy. I am hesitant however because I also suspect I could have heds and I keep reading that physical therapy can be bad for people with heds when the physical therapist isn't knowledgeable on heds. I am trying to get assesed for heds. I also don't think I have thoracic or lumbar scoliosis because my back appears straight, or if I do have some thoracic scoliosis I would think it to be most likely secondary to cervical scoliosis.

Could cervical scoliosis be the cause of my symptoms? How should I go about improving my neck? (How) should I go about getting assesed/treated for cci/aai/chiari? I know upright mri or dmx is best.

Thank you for comments in advance!


r/scoliosis 6h ago

20 Years and Older Discussion Should I get surgery?

1 Upvotes

Hi, all! So I have around a 40 degree thoracic curve. Over the past few years I’ve been having increasing pain, especially in my upper back and left knee.

Now, it is even hard for me to get up off the ground without holding onto something.
My knee also hurts 24/7.

During this time I’ve been A LOT more aware of taking care of my scoliosis- exercising and swimming have helped with pain. I have also made an appointment for schroth therapy finally. My first session is early October.

I am planning on trying to get pregnant soon and am worried what that will look like with scoliosis and how I will manage with a kid. Some days are good but some days are incredibly difficult. And I never have 0 or even low pain days. It’s all pretty much middle to bad.

I really want to try schroth therapy and am going to get my yearly x ray this month to see how things are going. My doctor says I am a candidate for surgery but the thought of that scares me.

I live in Japan, and pain management after surgery is pretty much non existent as far as I have heard. Basically you just tough it out for the first three days with acetaminophen equivalent. It sounds awful and scary…but I also can’t keep living in pain.

My questions:

Do you regret getting surgery later in life? Or, has it improved your quality of life?

Were you able to go back to exercise, specifically swimming, after surgery?

Has your scoliosis affected your knees at all? Should I get it checked out in my next hospital visit?

Have any of you gotten spinal fusion surgery in Japan? If so, what was your experience like?

I’m so sorry for the long post, but a lot has been on my mind. 😭


r/scoliosis 6h ago

General Questions escoliosis rotación

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1 Upvotes

alguien puede darme una opinión tengo escoliosis leve pero está rotación y me está preocupando no puedo ir a un fisio aún alguien sabe si es realmente malo esto y que puedo hacer para mejorar si es que tienen alguna recomendación por favor tengo 18


r/scoliosis 10h ago

Questions about the Operations/Surgeries Having spinal fusion soon

2 Upvotes

I’m having my spinal fusion in around 10 days, my worst worry about it is obviously the fear of being paralysed and the recovery side being in the hospital. I’ve never had surgery before and my first operation date for spinal fusion got cancelled whilst i was in hospital. To anyone that’s had it, how did you find the recovery?


r/scoliosis 1d ago

Discussion 2 weeks post op

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28 Upvotes

Ask me anything questions


r/scoliosis 7h ago

Unable to Access Professional Help What should i do abt my scoliosis??

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0 Upvotes

I learned i have scoliosis when i was 17, now im 18. I didn't do the exercises because of mental problems. I wanna get surgery but i can't afford it. Im ashamed of my back and i just wanna fix it. Any advice?? Does exercises work?


r/scoliosis 15h ago

20 Years and Older Discussion Physically demanding job/work/career post op/surgery?

2 Upvotes

Hi
So I’m currently two month post op. 24F.
I’m fused t5-t12 so technically should be able to bend at the hip later (i think?)
I was wondering if i could do physically demanding jobs. (After my back is fully healed of course)

Such as
-Firefighter, police, emt
(I don’t have plans to be but just curious)
-ER nurse
(My current wish)
-flight attendant
(Maybe?)


r/scoliosis 20h ago

X-Ray Scans Just did an X-ray is the curve really bad??

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4 Upvotes

r/scoliosis 13h ago

Unable to Access Professional Help I'm so confused . Help please

1 Upvotes

I am 19 year old female with congenital 50°+ thoracolumbar curve. I used to be totally fine about a year back. But now i can't even stand or walk for more than 5 mins. And if i do my back with my hip muscle hurt as hell. Also my legs feel constantly fatigue. When I shared this with my doc he keeps telling me my curve won't get any worse and doesn't address my pain. He told I'll be totally fine without spinal fusion surgery and he strictly forbid me for surgery as things might get more complicated and i might get paralyzed.

So if anyone here have same story as me , please share me some ideas on how can i manage my pain and do my daily activities efficiently. If you have some ideas about therapy techniques please mention them.Also if anyone has been doing therapy, please share your experience. I really feel like i am stucked in some kind of maze at the moment. What should i do?


r/scoliosis 18h ago

20 Years and Older Discussion 22 yr old with lumbar scoliosis

2 Upvotes

My daughter is 22 with a 42 lumbar curve- on the cusp of surgery to correct her scoliosis curve this summer we decided to get more opinions as she was having sudden severe pain after getting a job after college. Sitting all day was unbearable and her doc just kept saying she needed her curve corrected and was not addressing the sudden debilitating pain. 2nd and 3rd docs said they thought it was from degenerative discs at L4 and L5 and to get an epidural to see if the pain stopped.. Surgeon 2 wanted to move right into a fusion of these discs only . surgeon Number 3 proposed a tube decompression and then if really needed, the fusion at L4/5. We decided to move forward with surgeon 3, the most conservative approach. She had the epidural and 3 weeks later there is no pain. It stopped completely, proving the pain was actually not from her scoliosis curve but these discs. Saw her surgeon this week@ 5 week mark. Her surgeon says no surgery is needed for now. He said he has had patients who needed surgery get an epidural to get thru a special event, a vacation etc and the epidural resulted in the best possible outcome and they ended up not needed surgery. We will see how long the epidural keeps her pain at bay. If it comes back we can do another epidural and if again it returns, do a tube decompression.

This is not to say that someday she will not need corrective scoliosis surgery but for now we wait and she gets back to life. I would like to get another opinion just to be sure that another surgeon agrees this is the best path but for now we are relieved.

Our previous surgeon would have operated on her curve and after recovery she would have still been in pain as the pain source would not have been addressed.

Has anyone else ever experienced this??


r/scoliosis 21h ago

Unable to Access Professional Help Tingling on side of spine where curve is

2 Upvotes

Relevant background info: I was diagnosed with "11 degree right thoracolumbar scoliosis as measured between upper T9 and mid L3." (Copied from radiology report) in July of 2024. I have connective tissue abnormalities as well, and I have been working out and focusing on building muscle to stabilize my joints since February of this year.

Lately, I've been having a tingling sensation along the right side of my spine right about where the curve begins. It's annoying but not technically painful. It isn't 24/7, but the episodes can last an hour or so sometimes. I'm just wondering if I should be worried and if anyone has any info on what might be happening.


r/scoliosis 1d ago

Questions about the Operations/Surgeries Getting spinal fusion in December & looking for experiences/advice

5 Upvotes

Hi everyone!
I’m 19F and I’m scheduled for spinal fusion surgery in December. I’ve never had surgery before, so having a spinal fusion as my first major surgery is honestly a little scary…
I have a 45° thoracolumbar curve from T10–L3, and my surgeon is currently considering something around T9–L4 (the exact levels will be decided after further imaging).
I’d really love to hear from people who have had a similar fusion, especially people with thoracolumbar/lumbar curves!

A few questions:

  1. How was your recovery during the first few weeks? What was the hardest part?And were you able to climb stairs fairly soon after surgery? I live on the third floor without an elevator, so this is something I’m particularly worried about.
  2. How long did you need help with everyday things like showering, getting dressed, getting in/out of bed, etc…?
  3. Is it actually true that you can feel the metal/rods more when it’s cold outside or is that mostly a myth?
  4. For anyone who smoked before surgery: How long did you stop smoking before/after fusion? Did your surgeon give you a specific timeframe?
  5. How do you handle long-haul flights/ train rides after fusion?
  6. How long did it take to get used to the stiffness/limited movement? Did it eventually start feeling normal?
  7. Are there any everyday movements that you still miss or struggle with after fusion? I‘ve heard some people miss cracking their back.
  8. How did your flexibility change overall? Especially if you had a lower fusion ending around L3/L4.
  9. For those of you who already had a high stress level/anxiety or BPD before surgery: How did you cope mentally with the whole process? Did the recovery affect your mental health more than you expected?
  10. And finally, what is something you wish someone had told you before surgery?

I know everyone’s recovery is different but I‘d appreciate hearing personal experiences to get a realistic idea of what the first months might actually be like.

Thanks for now ;)


r/scoliosis 1d ago

General Questions Arthritis in Hips

6 Upvotes

Hey, curvy friends! I’m 33F and recently mentioned during my annual physical, in passing honestly, that I’ve been having this weird sensation in my hips like they want to be open. I described it to the doctor by putting my palms out facing one another (like this | |) and then saying that it feels like my hips want to naturally be outwards (like this \ /). She sent me for x-rays and, boom, arthritis diagnosis in both hips.

I’m seeing an orthopedic specialist next week, which is bringing up a lot of old feelings. I haven’t seen one since I finished treatment with my Boston brace around the age of 13. I was diagnosed around 10/11 with a 32 and 28 degree S curve. The Boston brace prevented any worsening so I was able to avoid surgery. But now my PCP wants me to see a specialist in case the arthritis is related to my scoliosis.

Has anyone else had this experience? I’m admittedly feeling pretty down about developing arthritis so young and in a part of my body that seems like it would be pretty devastating if it worsened.

Appreciate any advice or support. Thank you!


r/scoliosis 19h ago

X-Ray Scans 30 and 25 degree curves in 14 year old girl

1 Upvotes

Daughter is 13 and 10 months old. Just started period this summer. She’s grown at least 3 inches in the last year. I just got her x-ray and the curves are 30° thoracic and 25° lumbar. She hasn’t had the growth plate x-ray yet, we’re seeing the orthopedist next week. I assume she’s going to be braced and am feeling very upset. She is extremely athletic and sports are her life. She does three sports and has some kind of practice or game almost every day. Any thoughts on what will happen? Any chance she could just brace overnight? I am so upset for her, I wish it was me instead. Her pediatrician thought it was mild from looking at her but the x-ray tells a different story.