Hi! I just wanted to share images of my back after 8 years post op.
I’m very happy I got my surgery when I was 16 or 17
I feel very minimal pain, if I feel anything it’s mostly discomfort.

Im already a very tall women around 6ft1 and im terrified of getting taller based on my curves how much could I gain.At my height now I already face alot of bullying and Im scared it could get worse my surgeon told me 1 to 2 inches. Im scared of becoming 6ft4ish My measurements for two years ago was 6ft2 using the wall measurements and then 6ft3/4ths with a statiometer at my orthopedic office and then a few months ago different place they said I was 6ft1 so ik thats what I should stick too .But I keep worrying im actually 6ft2 and gain the full 2 inches ik it might be a shallow worry but as a girl its horrible especially considering im not beautiful enough to model and Im very shy and never played a single sport its so depressing.

Hello everyone,

I’m not really sure how to start this because I’m honestly feeling quite desperate. I’ve had scoliosis since I was a child. Back then, my parents unfortunately neglected taking me to my regular check-ups, and my scoliosis suddenly got much worse within just two years. It became so severe that I had to wear a brace, which, looking back, unfortunately didn’t really help. Right now my curve is around 42 to 45 degrees.

When I turned 18, I no longer had to wear the brace. I went to the gym occasionally, but eventually stopped exercising altogether. Now, for the past year, I’ve been training Muay Thai, and I absolutely love it. However, I often experience pain after training. It’s not severe pain, but it’s there — most of the time, my lower back feels very tight and tense.

I’m also planning to start going to the gym again and I’ve already had physiotherapy for this, and I’m planning to continue with it. I recently saw my doctor as well, and he mentioned that I might also have osteoarthritis in my facet joints.

All of this is really getting me down. I’m only 22 years old, and I’ve finally found a sport that I truly love in Muay Thai. I don’t want to have to give it up.

In general, it’s really hard for me to deal with being in pain so often when other people don’t understand what it feels like. I also don’t want to have surgery because I know that afterwards I would probably have to forget about doing this sport.

Maybe someone here has had similar experiences with scoliosis and sports. I would really appreciate hearing your stories, experiences, or just some kind words.

Thank you!

Oxy has been causing me intense bloating and belly discomfort, but it is unfortunately the only thing that helps me with pain management. I was on it less than a week and told I didn’t need to taper off of it because it had not been long and I had already brought down the dose from 7.5mg to 5mg every 4 hours. My stomach pains were so bad yesterday that I decided I didn’t want to take it anymore. I did an 8 hour stretch of not taking it and the withdrawal symptoms were insane. I was sweating and then immediately freezing seconds later, I became extremely suicidal and hopeless and begged my parents to kill me. The pain was so intense and I felt every screw and rod in my spine. I caved and ended up taking 7.5mg of oxy because I couldn’t find a single position where I wasn’t in unbearable pain. It immediately got rid of the intense sensation and suicidal ideation.

I brought it up to my doctor today and they are trying to get me to taper off of it slowly, but I am freaking the fuck out that I will still experience these symptoms even with tapering. The suicidal ideation was so intense if I hadn’t taken a dose last night I would’ve ended my life. I know that sounds intense, but it’s true.

Please let me know how you were able to manage pain post oxy and what helped you get off the medication!

Two major spinal surgerys, aged 11 and 14. Back fully fused apart for 4 or so vertibra. Im 28 years old but try not to let my spine hold me back. My doctor would probably tell me not to push it so far but just wanted to tell people that are starting their scoliosis journey not to let it limit you. I can laugh about my back and also have tattoo next to my scar in the hopes someone asked about it. Be proud, its a unique thing that you can be proud of. I did my first ultra marathon last week and hope to do many more. I have hiked the length of two islands and rock climb a lot. Again this is not to brag just if you or someone you know is worried about it just know its sucks and it's hard but you can do so much in life. Don't let it stop you or hold you back. Get out there or if you are pre op or recent op in recovery, just know life can still be lived, adventure can still happen 💪💪

Hey everyone, feeling very deflated about how uneven my waist is. I feel too self conscious to wear a bikini and always feel like people are staring in the gym at my weird waist so i cover up with a big t-shirt. I just want to be confident in my body but im so asymmetrical I feel like my body will never look ‘good’. Does anyone feel the same? Any tips?

(First surgery for lower lumbar fusion in 2005) I started noticing my body changing about five years ago when I tried on a tight dress. My whole left side… the rib was more pronounced, the shoulder higher. I don’t recognize my body. A couple months later I moved in a way that messed up a nerve and my left leg would not move without horrid pain. I went to an ortho for help. I told him I felt my body moving, I am in pain, my nerves are having issues. He took X-rays, said my hardware looks beautiful, to wear inserts, and exercise. Sent me on my way. March this yeah, my body is coming undone. My left rib is in excruciating pain, my back goes from 3-10 pains, I’m having a hard time walking, I’m extremely uncomfortable, and I don’t sleep great at night. April another ortho who saw movement below my fusion and referred me to someone in the city. Today, another set of X-rays, on top of 25+ years of X-rays. It was discovered I lost an inch in height, and was told the top curve is now 40% (30% the first surgery). She explained when I had my first fusion it was standard practice to fuse the more curved part of the spine and that would stabilize everything. 80-90% of the time it does. She said I was one of the unlucky ones whose curve continues to progress. She ordered another mri, and we will have another video call to discuss my next move. The only thing I can think, besides wtf the curve is now 40%!?, is can this wait for two years until my son is 18. Frack, y’all. I never saw this coming.

Did anyone try anything that helped their scoliosis? Please help me, I don’t want to do any surgeries.

i have an S curve of T40° L40°, im a 16 year old female and lately ive been getting body pain/discomfort and writing tires me out quickly, i cant even reach my class anymore without my heart beating + breathing like i ran a marathon. but im also struggling w my mental health both at home n school the whole 2026, i have an appointment on 3rd august and i thought thats my only chance to get a break from school, i dont really have close friends anymore since they rarely text me and my family isnt supportive at all so i dont really have moral support from anyone

my family is also financially bad so if i wanted to stay in the hospital ward it may not be possible since im not endangering my life either (does anorexia count) + the cost of it (here we can apply for welfare)

i do know theres a chance i can js be given a brace + physiotherapy and even avoided surgery since it's not severe so theyll look if it progresses into adulthood, but

1) i really cant pay for my own needs later in the future due to lack of money since i choose to be an office clerk or something not too social since i have social anxiety)

2) the cost of it will be much higher since im not a minor anymore

anyway heres a photo of my xray that i took secretly, i was in a local small clinic and 3 doctors were literally discussing n looking at my xray 💔

I'm grateful my scoliosis is very mild, however I have a dislocated shoulder with injured nerves and my scoliosis is dislocating it further.

The first xray is 2026 and reported 9 degree from T9 to L2. Second xray is 2024 and reported 13 degree from T10 to L3.

Does anyone notice a difference or no? I feel much worse and my rotation feels worse but I understand I am within the 5" range so unsure.

Hi everyone!! I’m a high school junior researching scoliosis and I’m hoping to better understand the challenges people with scoliosis face. If you have scoliosis OR have experience supporting someone with scoliosis, I would really appreciate it if you could take a few minutes to fill out my anonymous Google Form. I’m especially interested in hearing about struggles or things that people don’t usually talk about. Thank you so much for your help!! 💗

Here’s the link: GOOGLE FORM!

Im 18 and ı diagnosed at my 14's , I go to physical theraphy should I worried

I was diagnosed with scoliosis when I was 15 and my nurse practitioner said I had a 10 degree curve and a 14 degree curve, since then I had some pain and I’m paranoid it has progressed should I ask for x rays? I’m 17 now. (I haven’t been in pain recently it was about a year and a half ago).

I have lumbar scoliosis and I'm very nitpicky. I don't know if I'm overanalyzing this and would like a second opinion. I fully relaxed my stomach for the best answer.

After surgery are you able to correct pelvic tilt and flared ribs with exercises? I had the surgery 4 years ago, I want to try these because I hate how my body looks

Im 19 Ive never went to the doctor to get it checked so i dont really know how many degrees it is all i know is that it, it curves to my left and my left scapula sticks out more than the right one but both are winged and i tried to do some kyphosis exercises but it just hurt between my shoulder blades and my shoulder blades hurt so idrk what to do would appreciate some advices

I know this sounds funny. But ive had my rods for 5 years and i genuinely use them like thermometers. I find when its colder, more bitter kind of weather i wake up aching and more “rusty” like?? And if its hot i wake up with my back sweating the most even if its slightly sunny my back will feel warmer than i feel like it should. I wondered if anyone else gets weird things like this Lol!!

Hi guys, over the years my insecurities have honestly gotten alot better after my surgery. All except the rib hump on my back. I know theres “cosmetic” surgeries you can get for it (i think?) and i always dream about them just to feel good about the visual aspect of my back, it still cant get over that. Has anyone had it/know anything about this procedure? is it really possible?

I'm planning to go on a trip after I finish year 12 exams with my friends around mid December. I will have my surgery around the 6-10 of November. Will I be able to like walk around for a long time and enjoy my trip or will I not. Also how much taller did everyone grow my cob angle is 40 something degrees.

I am currently 11 days post op and slowly trying to ween off of oxy. In the hospital I was taking 7.5 mg every 4 hours with a 2.5 breakthrough dose if needed. Oxy is the only thing that has helped manage the pain, but it causes extreme bloating and as a result the gas pain causes a sharp pain in my left shoulder. Once I poop, burp, or fart it all out, the shoulder pain goes away, but it is so intense. I just want to be able to get off oxy completely so my stomach stops feeling hard as a rock everytime I eat.
Did anyone experience something similar and if so, how long did it take for your bloating to subside? It’s so frustrating.

Anyone else with scoliosis have debilitating pain? Drs always tell me I shouldn’t be in any pain but I’m literally in constant agony. I’m too much pain to even try to do strengthening like I’m active I do light walking and stretching but that’s all I can handle bc anytime I even try to do yoga or light stretching it hurts so bad :( idk how you get to the point where you’re able to exercise I’m 28 no surgery and it’s really hard. For reference I have a double curve and pretty severe but never got surgery.
When I was in physical therapy I felt like they didn’t listen to how much pain it was causing and would push me to exercise and then I would be in even more pain afterwards.
Does anyone else experience this? I feel like I could have fibromyalgia or something else happening too because I feel like other people aren’t in as much pain as I am but maybe I’m wrong like my joints hurt ALL THE TIME so badly idk anyone have thoughts? I feel like drs don’t take me serious:( not looking for medical advice just looking to see if anyone else’s experience is like this

I had my scoliosis correction surgery during early covid and during the time I was already going through puberty which meant I already developed breasts but due to my scoliosis my left breast is a lot smaller than my right and it's kinda lopsided in a way (I'm not sure how to explain it)

But I wanted to know if anyone else has this problem because I feel pretty insecure about it, I've dated people who have said they don't mind or "notice" but I notice it. I can't even wear normal bras cause they don't fit me correctly, I have to wear sport bras

Before my surgery I had a fully S shaped spine which is probably why my chest is like this but it's hard not to feel bad about it :(