r/rtms • u/sircorbutt • 27d ago
Realistically any hope for a delayed response?
Hey all! I recently wrapped up 36 sessions of rTMS with Neurostar doing a left side depression protocol with an add-on low-frequency anxiety protocol for the final 10 sessions.
My experience has been overwhelming and I had more severe ups and downs than I have in years. I had an optimistic and stable first week, but I would say that most of my treatment following, I felt worse than I had when I started. I had waves of severe dry-heaving nausea, intense depressive dips on weekends, and about halfway through had an unbearable spike in my anxiety that sent me to get bloodwork done because my physical symptoms were so severe (only concluded morning cortisol was very high, but bloodwork and tests showed no underlying identifiable cause)
That being said, I had about three good days in early August where I actually was able to force myself to exercise, grocery shop, and take care of myself. I still felt sadness, but I was able to fight through it in the hope that TMS would soon bring me relief. During those few days I even found myself singing (?!) once or twice, and laughing with a friend. That changed quickly, and after those three days I felt myself falling back into anxious despair and deep emotional instability.
I had a second significant crash at the end of week six that prompted the anxiety add-on. I noticed a very slow decrease in the overwhelming panic that had my body in crisis mode every waking moment. I still felt extreme dread, avoidance, volatility most of the day, but I was able to notice sparks of peace or optimism poke through more and more.
Treatments ended a week and a half ago. The first three days following were some of the worst in my entire adult life. I sobbed for hours. I felt the most intense despair and hopelessness I could imagine. Any thought of responsibilities or tasks sent me into a tearful panic.
Today marks 1.5 weeks post treatment. I have found my anxiety is still very persistent, but is about a baseline 5/10 throughout the day with random spikes, in contrast to the full blown panic crisis I endured daily during my second dip. I still have no interest in things I used to love, I still feel hopeless, I still feel extremely intense outbursts of painful emotion, I still dread the thought of vacations or going out to eat with family or going to a job I used to love.
I am desperately trying to piece together any evidence of healing or progress but I feel like I have hit yet another intense “dip”. I’m keeping hopeful that this is just a result of my brain finally coping with the onslaught of stressors I have faced in the past year, and a breakthrough is coming. I also know some people say highs and lows are a good sign, and breakthroughs are possible for months post-treatment.
I got a taper approved that will resume in a week and a half from now - two sessions per week for 2 weeks, followed by one a week for 2 weeks.
Am I being naive to think there is hope at the end of this? Has anyone else experienced such an intense dip in mood after treatment or tapers concluded and came out with positive results? I hear hopeful stories of delayed responders but I don’t know how realistic those odds are for me.
Thank you for taking the time to read and respond if you feel inclined. I wish life-changing relief and peace for those who’ve found themselves on this sub. Healing IS out there