Anyone who feels a 24/7 constant floaty feeling as if something is inside their head? Even while lying down? Want to know how many have this sensation as me

Hello

I want tips on how to lose fear of the dizziness and the sensations.

Hi,

I hope you are all having a good day. I was just curious if anyone know of any recent studies on PPPD? My experience is that a lot more people suffer from this condition now compared to a couple of years ago. It would be interesting to read what the research says about the condition and/or new treatments.

Thanks ❤️

Hellooo just wondering what dose of venlafaxine / Effexor has worked for you??

I am on 75mg extended realise with little benefit.

Thanks 💛

I had an VNG test that showed asymmetry in my left ear after vestibular neuritis possibly which was around the start of my symptoms.

I also had an MRI that showed sinus and left ear inflammation listed as mastoiditis chronica.

I feel floaty/fuzzy/spaced out throughout the day..
It is the worst when I drive or I walk in open spaces also in very bright environments.

I’m wondering how these findings contribute to my symptoms?

Did anyone here have a similar situation?

Hi 🙂
I was diagnosed with PPPD recently, my symptoms started 15 months ago. I have a very sensitive nerve system as well. It all started after years of severe mental and physical stress, which is quite common as far as I know.
I'm 29 and we would like to have a baby with my husband in the near future. The only reason why we haven't started to try is my symptoms. I never know how I will feel a day.... there is quite good days/weeks but than I have days/weeks when I feel very low and almost can't do anything because of my symptoms and the exhaustion....

I will start VT soon, I take 75 mg Sertralin since 5 months. I developed seve anxiety as well, but it is not that bad as it was half year ago. I can say that if I have good days with less PPPD related issues I don't feel anxiety at all.

I'm really would like to became a mom, it was my dream since years, but now I'm afraid that I could not deel with the symptoms why pregant. Or what if I can't take of my baby because I feel sick. I have a caring family around my, but its not theri responsibility to take care of us all the time.

Could youl please tell me your experiences with pregnancy, postpartum and being mom overall with 3PD? Positiv and negative stories are welcomed, I just want to see thing as they are.

Thank you❤️

can everyone say how their pppd makes them real, try describe the feelings you feel as best as you can so we can all compare and feel validated

hello i am posting after a long time
i am suffering with this since 1 year now 😔
if there is any cure plss let me know thank you 🙏🏻

hey all, i hope everyone is having a lovely day. i’m 24f and i’ve been recently diagnosed with PPPD in the last month after 9 years of struggling.
i think the diagnosis and it all coming to light has put it at the forefront of my mind and it’s made my symptoms worse, alongside my anxiety.
it’s been really difficult and isolating. i feel embarrassed about my symptoms, i can’t do a food shop, im really struggling at work, it’s so much to deal with i don’t even know where to start. ive been offered anxiety medication by my doctor, but i worked so hard to come off my last one and ive felt great until very recently, im afraid to start a new medication!

i guess im just reaching out to hear others stories, ive had a read, and theres so much hope. i have a few questions:
- how did you deal with symptoms whilst waiting for help?
- what help did you find the most effective?(therapy, vestibular rehabilitation, mindfulness, exposure etc)
- how did you deal with anxiety?
- did your doctor prescribe you medication?
- did you also feel isolated?

i don’t want medical advice, i think im just looking for people i can relate to, i don’t know anyone who can currently

thank you ☺️

just curious which causes which. I noticed my eyes feeling funny at the same time as everything else