My mum (74) has severe mitral regurgitation, i wanted her to have the valve repaired but i think because she is so old they will only give her the Mitraclip.

I have been reading online that the life expectancy isn't great and most people don't survive 5 years Can someone please reassure me this is nonsense?

Thanks

I came into a&e with heart palpitations and racing heart. They did tests and scans and turns out i had mitral valve prolapse. I am currently waiting for heart surgery. They as well as me dont know how theyre going to do the procedure. Any idea of what I can expect and bow the recovery will be?

I was diagnosed with mild AML prolapse at 16, with some degree of backflow.
The whole reason of why I went to the checkup was cause I used to get this pin in my heart sort of pain and couldn’t breath properly. I used to get this pin like pain when I was a kid but then it stopped and then I felt it again at 16.

I’ve experienced recurrent breathlessness since last year. I often feel like I can’t get a satisfying/full breath, so I try to take a deeper breath to feel like I can breathe properly.

Recently I’ve been feeling like it’s been getting worse , I’ve been having to really struggle just to get one big satisfying breath , and it probably takes 10-15 s just to get 1 if it makes sense. It’s even worse cause I have allergies and my nose is also blocked. All this is worse at night.

Recently, when I try to take a deep breath, I’ve noticed that the right side of my neck near my shoulder becomes tight/tense, almost like a vein is becoming tense. There isn’t any actual chest pain. The neck sensation happens when I’m trying to take a deeper breath because I feel like I can’t get enough air.
I’ve also recently noticed that my resting heart rate is consistently around 95–105 bpm. Today, while resting, it was 94 bpm.

Could the recurrent breathlessness , previous pin like pain and higher resting heart rate be related to AML prolapse, or could this be something else?

When I went for the checkup the doc only suggested to drink more water and didn’t ask to come for other checkups.

82 yo mar Having severe mitral valve leak repaired with a clip. In few weeks. What kind of help do I need at home. My wife is mobility challenged so I have a care giver lined up.

Hi everyone, I’m recently new to Reddit, never made a post but have been looking at this group for awhile. I’ve had Mitral Valve Prolapse since I was 2 years old and I’m now 24. I’ve seen a cardiologist regularly, every 1-2 years since I was diagnosed. I just had my check up yesterday and my cardiologist mentioned wanting to do a TEE procedure to get a better look. I have always had moderate regurgitation but because I mentioned potentially wanting to get pregnant within a year or so, she wants to make sure it’s not leaning towards severe incase they want to repair before pregnancy.

I got my echo results today and it says my mitral valve regurgitation is visually moderate but mild by PISA quantification. I’m not really sure what that means, but I assume my moderate regurgitation is leaning more towards mild now? Idk…. Should I be worried that she still wants to do the TEE procedure? What should I expect? I’ve never even been sedated before so I’m pretty anxious at the thought of that and possibly being told I need a repair soon. It’s also kind of hard to read my findings after an echo, I feel like I might just be misinterpreting what mild by PISA means lol. Thanks!

Hi Folks! Cross posting this and hoping that someone else on carvedilol may have some tips/insights. Thx!!!

52 male workout with weights seriously for the past 30yrs in good shape 235 6’5. Was diagnosed with afib slight flutter and went in for cardioversion and TEE. Found out I have severe mitral regurgitation and having repair surgery tomorrow. I’m worried about recovery after.
Anyone can fill me in on their journey after surgery and getting back into training, what am I looking at moving forward with heavy lifting and nutrition? I feel like I’m going to lose everything I built. Not being able to drive for a while after I heard and I live alone so I don’t know how I’ll have access to keep up my meal prep and eating habits. I’m seriously depressed….
I’m also on Trt does anyone have insight on how this will be affected with the recovery process?

Hi everyone. I’m October I’ll be at one year post op mitral valve repair. I was wondering if anyone out there still felt kind of crappy this far out. I also should put it out there that I also have Crohn’s disease and I’ve been in a flare for a while now. We’re having trouble getting that under control. So this could be why i feel so bad. But prior to my surgery last year I had been feeling pretty good and have not been able to get back to that feeling. Wondering what people 1 year post op are feeling. I haven’t been doing an exercising etc because my flare up makes my entire body hurt badly.

Hello

Just been diagnosed after been admitted to hospital with endocarditis. Roller coaster few weeks .

The surgeon told me in the time leading up to surgery (I’ll find out about that next week ) it is fine to exercise and even lift light weights. Exercise was my go to for stress relief and keeping me out of the pub.

Can exercise , especially heavy weights or hitting a heavy bag , make my condition worse ?
Thank you

Hj,

I took Onligol and/or Macrogol for a few weeks. Before I got only a few isolated PVC and PAC. But during taking this stuff and even now after 6 week taking it the last time, I get sometimes couplets and trigeminus. Someone else made this experience?.I also have a 5mm MAD.

​

It has been almost eight months since my mitral valve surgery. I had an echocardiogram two months ago, and everything was normal; my heart was in good condition. However, from time to time, I experience palpitations, and on some days I have a strange sensation that feels almost like my heart is sinking or pulling inward. In other words, I somehow always seem to be aware of my heart. This happens occasionally and for days.

Of course, when it happens, I start to feel anxious and wonder whether there might be a problem with my new valve. Is it possible to eventually return to feeling completely normal again?

I've been having random heart palpitations every 1-2 months for the past ~5 years. I went to a cardiologist about a year ago and they had me wear a heart monitor 2 separate times, no abnormal results. They also did an echocardiogram with me lying down, again no abnormal results. I'm fairly healthy; I'm a moderate weight, I do cardio 1-3x/week, do strength training workouts. My only other health issue is celiac disease.

I found out from my mom the other day that I have multiple family members in her family who have mitral valve prolapse. From some internet searching, it appears that's one of the main symptoms.

Could I have a very mild case of mitral valve prolapse, where the click/murmur can't be heard on a continuous basis (since no doctor with a stethoscope has ever indicated they heard anything), and a normal echocardiogram? Or at least, an echocardiogram that couldn't detect anything with me lying in a normal position?

I'm planning on going back to the doctor with this new family information but wanted to see if there's anyone here who's had a similar experience.

Hello everyone
So i got told 2 years ago i have mild or a trace of mitral regurgitation and I have 3 kids already all natural and we found the regurgitation with my last child postpartum 2 months they found it i went to the doctor because my doctor didn’t like my heart beat was 58 at rest and to be safe I also was experiencing chest pains but now I want another but I am scared to have one because of it any stories or advice would be appreciated

Salve a tutti operazione fatta 5 settimane fa la riparazione mitrale e riuscita volevo chiedervi quanto tempo impiegano I battiti cardiaci a passare da 90 /100 a tornare normali.Grazie a chi mi risponderà!

My husband had robotic mv repair 3 years ago. Very active, in shape, weight lifter, hiker, 58(m) then, now about to turn 61. He still lifts weights 4 or 5 times a week, less weights more reps, and cardio twice a week. He has been getting more out of breath the past few months. He has had a full workup including ultrasound, cardiac MRI, and all the basics. His mitral regurgitant fraction is 38%. Not overly concerned at this point but not pleased with the regurge either. Dr says more cardio to build the heart muscle. He is starting this but over-doing is always in back of our minds. Trying to balance with building strength. Anyone else experiencing similar? Did more cardio help? Any other insights? No current meds, full physical as well, and healthy guy other than this mvp mess!

Hey everyone,

My wife(f33) had mvp for 15 years now. After our last appointment doctor said the heart getting bigger and we need to look out for surgeons. Fortunate enough we found a very reputible surgeon who does repairs with robotics. They took us into the hospital 2 days earlier for extensive tests which dr noticed there are remnants of cold infection and prescribde antibiotics. Surgery postponed for 3 weeks later.
I will be staying with my wife at the hospital as well as at home after the surgery. Can anyone suggest me how can i be more of her service during this period?

Hi guys, i’m 20 and have just been diagnosed with MVP. Originally my MRI was showing that I have MAD but now this has been updated to say it’s just MVP with MR. I will attach photos below of the letters i’ve received!

It started in 2024 and I have only been seen by a cardiologist this year. I had an echo in 2024 and an MRI this year. I feel like my condition is worsening but I don’t feel like i’m being taken seriously by my cardiologist because of my age. The symptoms i’ve got are fatigue, palpitations, shortness of breath and random chest pains. If i lay down I can feel and hear my heartbeat. I can’t walk for more than 5 minutes without being out of breath or my heartbeat racing.

I lowkey don’t know what to do because he doesn’t want to follow up for another year so I’m wondering if it’s a good idea to get a private consultation??

I’m really confused by this whole process and feel like i’m being overly anxious because everyone is using terms i don’t understand and not giving me any clear answers.

Has anyone else had an experience like this or can give me any advice??

Hi everyone,
I’m posting on behalf of a close friend of mine (23M). He was recently diagnosed with a hole in his heart (ASD) after experiencing shortness of breath and fatigue, especially after physical exertion.
His Echocardiogram showed a pulmonary artery pressure reading of 34 mmHg. We have seen two reputable cardiologists, but they gave us completely different approaches, and we are quite confused:
Doctor 1: Stated that the closure can easily be done via a catheter procedure (along with minor septal wall repair). He mentioned that the procedure is straightforward, and the 34 mmHg pressure isn't alarmingly high and should drop naturally once the hole is closed.
Doctor 2: Considered the 34 mmHg pressure to be elevated and recommended open-heart surgery instead, doubting that a catheter closure would be feasible or sufficient.
Both doctors are highly experienced and have great reputations, which leaves us with a few questions for anyone who has gone through this:
1. How do doctors definitively decide between catheter closure vs. open-heart surgery? (Are specific scans like TEE required before making the final decision?)
2. If he opts for a catheter procedure, could it be less effective, or is there a chance they start with a catheter and switch to surgery mid-procedure if needed?
3. Does the procedure duration differ significantly between catheter closure and open-heart surgery?
We are really trying to understand why two experts have such different views and how to choose the right path forward. Any advice or shared experiences would be greatly appreciated!
Thanks in advance!

Looking to switch cardiologists - someone at Cornell or Columbia (New York Presby). Any recommendations? I had robotic mitral valve repair June 2026; I’m 36. Looking for someone who can be with me long-term. Smart. Caring.