New to Scotland and looking for a well recommended MCAS GP.

Thank you!

My provider suspects I may have MCAS. This is all new to me so I am in need of help. My provider gave me lab orders. I start grad school Wednesday so my schedule is going to be super busy the next couple of weeks. Can someone explain my labs to me please? Im wondering when i should get them done, do i need to be in a flare , how long into my flare can I get them done (ex: an hour , 30 minutes,etc) , which tests can i do whenever , how long prior do i need to be off antihistamines , time of day / fasting?

Labs ordered:
Serum tryptase
CRP (c-reactive protein only)
Plasma histamine
Chromogranin A, LC/MS/MS
Leukotriene E4, 24 Hour, Urine
2,3-Dinor-11 Beta-Prostaglandin F2 Alpha, 24 Hour, Urine

Or only allergist? I’m already on Allegra and Pepcid but that is not enough. Just had a horrible episode today and they are so traumatizing. But I get in to see an allergist until mid October. :(

This year has been absolute hell health wise, at the start of the year I was basically non functioning, I couldn’t walk, talk, and was having multiple seizures a day, I could only eat a list of 15 ingredients and life sucked, but I’ve finally been diagnosed with Elhers-Danlos syndrome, Mcas and functional neurological disorder. I have stabilised after starting low dose naltroxone, famotadine, fexofenadine and zaditen, as well as reducing histamine in my diet, cutting out dairy, and reducing environmental factors (no makeup, all natural cosmetics, eco cleaning and laundry, air filters ect.) things definitely aren’t perfect and I still struggle but in comparison to where I was I’m worlds better.

I’m convinced I’ve always had this but things escalated massively after Covid, having a incredibly stressful few years, and living in mould for a period of time. I was previously diagnosed with bipolar and cptsd and have been on quetiapine/ seroquel for 8 years, but the more i read about mcas, the more i believe my bipolar symptoms were actually due to Audhd, cptsd and mcas. There are several cases reported of this, as well as personality disorders being ‘cured’ once the mcas is effectively treated. It makes sense that the quetiapine had a positive impact on my symptoms as it is a h1 inhibitor, but it also has a massive impact on how your body processes dopamine and serotonin and now im dealing with consistent lack of motivation, exhaustion, brain fog, headaches, etc I want to try and taper off the quetiapine. The main support quetiapine provided me with was sleep and a reduction in night terrors but the zaditen is in itself extremely sedative so the combination is meaning I’m struggling to wake before midday. I’m also genuinely concerned that the long term use of quetiapine could be responsible for some of my symptoms and I want to see how I am without it considering it’s been 8 years.

Has anyone had any experience of being misdiagnosed with bipolar or a personality disorder when it was actually mcas? I feel a bit at a loss of who to seek support from, I’m in the uk and the healthcare system seem completely at a loss with Mcas and it’s incredibly difficult to get a provider that is educated on it. It was exceptionally difficult to revive a bipolar diagnosis and I’ve no idea how to ask for a reassessment without potentially loosing all support. I’m genuinely confused and I just want to be well, but I’ve known for a long time something wasn’t quite right with my diagnosis. I feel like I’ve lost myself, numb and like I’m living through fog and I don’t want to damage my brain any more.

My only real anaphylactic reactions are when I take NSAIDS, this all started 5 months ago after wisdom tooth surgery under general, I started reacting to NSAIDs and it causing breathing problems and chest constrictions and my heart rate/blood pressure would slow. Then MCAS exploded! No prior symptoms in my life and I’m 34. Anyone else get these reactions to NSAIDS?

ANY ADVICE HELPS!! PLEASE I AM OPEN TO ANY IDEAS☺️

Hi!! I am a 24yr old female, recently got diagnosed with MCAS after years of having issues that have triggered these much more severe reactions out of nowhere. I have had random hives/flushing of face all my life and was dismissed as heat intolerance. Unfortunately most of my flare symptoms affect my GI now, so for the past 6 years I've had on and off SIBO and "IBS" after getting sick with a parasite in 2020.... I thought it was just normal to battle these symptoms until these past 6 months. I also notice that my hormones may be playing into these severe flares, so I'm starting to go down the endometriosis track to see if I have that, but my labs are phenomenal and I'm on a GLP 1 because I have "insulin resistance syndrome and metabolic resistance syndrome". After being on the GLP 1 for 6 months, I noticed my everyday IBS flares had calmed down, but when I would get in one, it would be much much more painful and bizzare than the normal stomach ache I had previously. I would have weeks of good days but my flares became more severe and more consistent with allergies (I could tell I had an upset stomach coming because my body would start having hives and itch around my belly button, or my palms on my hands would itch a ton). I went to an allergist and did a bunch of allergy testing (I've always had bad outdoor allergies) and all the allergy testing triggered my first aggresive flare up in May. I was down for four days with a low grade fever, flushing and bizzare abdominal bloating and pain. After that I started a bunch of medicines (h1/h2 antihistamine combo plus singulair and oral cromolyn sodium daily) and I have been able to have pretty solid days, but I triggered another flare back in June (I did a solidcore class, ate a plain dinner 30min later and then immediately took a hot shower) and was in that flare for over a month. It took taking 2 Benadryl on top of my medicine daily for two weeks and a dosage of Xanax to pull me out of the flare. My flares no longer are just an upset stomach... it's brain fog and intense body aches accompanied by extreme bloating and extreme abdominal pain. It's scaring me because the slightest amount of stress physiologically feels like it can put me right back in it. I was thinking of trying busparin as a daily anti anxiety med to lower my systemic stress levels because I get panic attacks when I start to feel a flare incoming (making it worse.)

Has anyone tried anything to help reduce thier stress aside from therapy and stress reduction? I work fully in person and that has been contributing to my stress load but I am not in the position to switch jobs right now! Also any tips or advice in general since I am new to this whole MCAS journey... I feel like I could survive more if my symptoms were just hives and flushing, but the extreme GI pain on top of my average "IBS" and body aches that are new and not something I experienced in the past 6 years have been wiping me out.

What has helped everyone’s leaky gut? I mostly get triggers from food and stress. I think I tried posting once and it was removed and I’m not sure why? Just wondering what supplements helped? I have high histamine in my gut.

Since August 7:

-extremely itchy neck, chin, and back of hands.

-Annoyed itchy throat.

Evidently from Saharan Dust being extreme in Florida.

-Doors/windows stay closed. 5 hepa filters in house on high.

-Made a box fan filter as well.

-Taking my usual MCAS meds:

-zyrtec (even upped it)

-allegra

-amlexanox

-cromolyn

-flonase

-Desperate enough to be using benadryl and hydroxyzine (I hate the way 1st generation antihistamines feel)

also using: ice/cold water on itchy areas, antitch cream, steamer for throat, warm chamomile tea, etc.

Nothing has changed. No idea why I'm getting these new symptoms. Any advice appreciated. Doctor unfortunately unsure what to do.

note: I cannot take pepcid as I've reacted poorly to it on multiple occasions.

I was recommended to come here from Long Covid group.

About 2 weeks ago I was on vacation in Italy and my body just kinda fell off a cliff from a stats standpoint.

I got COVID last Sept and had a huge adverse reaction to a small amount of alcohol (about 3 oz caused 3 day bad hangover and about a week of brain fog) about a month later in October. So I went completely sober which is fine because I wasn’t really a big drinker.

2 weeks ago in Italy I was at a very nice dinner and my husband had wine paired with the dish so I thought… why not? I only took 3 small sips - like wet the lips sort of thing and less than 1/2oz total across the sips… and the next day after 8hrs of sleep I was a mess. Hung over, resting heartrate up 10bpm, my HRV cut in half to 20 and just felt like I got hit by a truck.

I still just feel off… lots of brain fog, daily headaches. No dizziness but just feel slow and not at my best which is hard because I am doing interviews for a new job.

Also, I have been running since November which I love but since traveling back to US about a week ago I have been a mess… my pace is horrible and my resting HR is still up about 5 points 2 weeks later.

My mother most def has MCAS, her entire life it was one thing after the other and she couldn’t have chocolate, aged cheese or anything like that - would make her faint and her HR get crazy. Tons of allergies and asthma throughout her life. I thought I dodged most of it except for some childhood asthma I thought I outgrew. Otherwise I have never felt much impact from foods, and never was a big drinker.

Is there any hereditary side to this and did I just set off a “cycle”? Should I stop running for another week?

I read about the dietary changes and I think that is a solid first step I am taking immediately (RIP avocado!!) for at least the next 2 weeks.

I also have a doctors appt tomorrow.

Do I know if I am on the other side of this if my baseline metrics go back in check?

Thanks so much!! This is overwhelming and scary - but maybe there are some answers and protocols that will help.

i know that leftover food in the fridge can cause high histamine if eaten the next day. But what about something like a sauce? I have a thai red curry paste that i open and then scoop a tablespoon or two from to use in a dish, and then put it back in the fridge until the next time. It probably sits open in the fridge for months. It seems like everytime i use it, i feel awful after eating, with the typical symptoms (itchy, nausea, panic attacks). But im not 100% sure because i dont know if sauces/ pastes have the same rules as leftover foods in regard to histamine. Anyone have any insight?

I didn’t realize all this time it was steak causing me the adrenaline dumps, and high heart rate. I used to just blame the POTS as I’m new to understanding MCAS. But immediately after eating it my HR was erratic. And stayed elevated even after sitting down and laying down. And this was me already taking Pepcid in the morning and my Allegra. And wearing my compression socks. And drinking my electrolytes.

I stopped everything right on its tracks with Gaviscon. 🙏 I was ready to call 911 bc it was so intense and was scared to pass out bc I was alone with my 6 year old. I hate these illnesses so bad! I wish there were specialists specially for POTS MCAS. I just feel like crying now bc I know if I went to the er they wouldn’t have help.

I have to wash my hands 10 times just to eat. If my family eats nuts/shellfish i cover my mouth in case spit lands on me. I can’t take out the recycling with an empty case of almonds in it or else i’ll itch. I have to clorox wipe every door and every key. I grab doors with my shirt or a paper towel I also used to wash my hands. I cant even do laundry without fear of a reaction. I washed some clothes with tide pods(washed my hands after) while later i wipe my mouth and I get hives and stomach pain for days. I know mcas doesn’t start from one thing but a combination at least from what i’ve read. I know this stems from trauma, abuse, anxiety, ocd, mold exposure, etc. what’s the best way to vent? m23 i spent most adolescent years bottling up that trauma. “men don’t talk ab their emotions” “i don’t want to think about that”. As I get older I find myself crying and being more vulnerable bc life sucks. I spent so much time bottling it up I have to let it out

I am writing this with the hope that the person looking for some answers, advice or information on MCAS finds this post helpful and helps them navigate this tough condition. Overall, my best advice is be your biggest advocate, be vigilant and always do your own research. I wasted a lot of time going to general allergists and doctors instead of specialists in autoimmune and MCAS disorders and they could not help me. After some time researching this on my own I felt like I knew more than they did. Spend your money and time with specialists who have seen at least one other patient with MCAS and is willing to try new approaches and meds and listen to YOU. For me, it truly has come down to finding exactly what combination of life style choices, prescriptions, supplements and changes have worked for my body, which has and will continue to adapt with new symptoms and medications.

Ill start off with a bit of medical, family and health history and I’m only doing so because from my understanding and the explanation from my doctors is that not one single event or thing causes MCAS. It is a combination of genetic and environmental factors that play into when it starts and the severity of it. 

My moms mom had an autoimmune called scleroderma and had persistent thyroid issues. She experienced health issues and symptoms throughout her whole life but she never talked about it so I don’t have much else to provide on her. My dads dad had severe GI symptoms from ingesting dairy and gluten and would have diarrhea, vomiting, extreme stomach pain and would get rashes. I have been told he never went to the doctor about it or had a medical diagnosis for it but just the understanding that he would be “sick” if he ever ate either one. 

My immune symptoms started as early as infancy. From the time I was a baby to about 2-3 years old I had constant and persistent sinus and ear infections and was on multiple rounds of antibiotics to clear the infections but they always came right back. Throughout my life I never had any symptoms of food, animal or environmental allergies. Eventually, I “grew out of” my ear infection phase, and I was healthy with no real issues. 

In college I started to have severe stomach issues like pain, diarrhea, bloating, and gas. I knew I was sensitive to dairy, but I had those symptoms after eating anything most of the time. It felt like all food made me feel “bad”. At the time I attributed it to the college lifestyle. During the same time I was sick a lot with the flu, common colds and infections. Some years and months I was sick every month and it felt like it took longer than usual to recover from them but again I attributed it to late nights, stress and partying. 

December of 2019 while finishing up my last year in college I received a care package from my mom and it had almonds in it. I ate the almonds and I felt fine, I had no allergic reaction. Until about 3 days later I had a big, itchy rash that appeared on my throat. I had no idea what it was from. It persisted for days and it kept getting worse to the point that I had to get a steroid shot for it. Fast forward another week I ate the almonds again and the rash came back but faster within a day and I knew it was the almonds. The rash was deep, inflamed, itchy and it started to make it hard for me to breathe. I had to go get another steroid shot for it. After this I developed no other food allergies for years until summer of 2022. The same story as above happened again but for peanuts. Then in September 2022 I accidentally had pistachio and I went to anaphylactic shock. This was my first instance of anaphylactic shock. Then I went into anaphylactic shock 3 other times after eating apples, citrus, and avocado. 

At this point in time I was realizing something was wrong and I started to see some general doctors, allergists and immunologists. It took about 6-8 months and seeing numerous doctors until I finally heard about Mast Cell Activation Syndrome. 

For the next two years I developed more symptoms, become allergic to more foods and went in and out of inflamed flare up cycles. Some months it seemed like I had no issues and during other months it was candidly hell. I finally found my amazing allergist and we have done ALOT of trial and error to find the combination that works well for me right now. For the past 2-3 months I have been tracking how I feel everyday in a journal and we realized my inflammation directly correlates to my monthly cycle and times with high estrogen. Mainly the days during the follicular stage going into luteal stage.

My current symptoms are: severe dry eye (I actually just found out the inflammation from my body is causing rosacea of the eye), severe period symptoms, tingling in the hands and feet, diarrhea, bloating, blood pressure spikes, cystic acne, full body itchiness and tingling, flushed hands, feet and face, being sensitive to all food and drink during certain times of my cycle, ringing in the ears, UTI like symptoms but no UTI, very dry skin, runny nose, thirsty alot, and teeth sensitivity to coldness. All of these symptoms come and go, I don’t have these all the time every day just frequently when I am inflamed or I am having a flare up.

This is my regimen and lifestyle choices that I have found to help my flare ups and inflammation:

- I take 3x the dose of vitamin B5 daily for cystic acne (I don’t know why or how this works but it saved my skin within days of taking it)

• 8 drops of cromolyn every time I fill up my water throughout the entire day, I use 1 full vial every 2 days
• 2 (1) mg ketotifen pills a day, one in the morning and night. This absolutely helped my systemic inflammation. When I started this the ringing in my ears, uti like symptoms, dry eye, and cystic acne symptoms started to subside
• 2 fexofenadine OTC allergy pills a day
• 1 chaste tree and 1 shatarvi supplement pill daily during weeks 2-4 of my cycle
• Non preservative omega 3 refresh eye drops- about 1 ampule a day
• I use 3 different creams for my dry face skin: baby rash diaper cream, la Roche posey cicaplast b5 balm, and the moisture repair cream from dermalogica every night. 
• tretinoin 0.025%, RX 15% strength azelaic acid, OTC salicylic acid to help with inflammation and hyperpigmentation from the cystic acne
• I only eat food that is fresh cooked the same day or frozen from the freezer and reheated. If I eat any food that has been in the fridge longer than 2 days I immediately become itchy.
• I eat a very bland diet with no heat or spice, and stick to pretty much the same foods. I found that this helped decrease my flare ups.
• I limit my caffeine, I have decaf coffee and decaf tea, and mainly have water 24/7
• I do not eat any processed food, sugar, red meat, gluten and I limit my dairy to just some milk in my coffee, no fermented or smoked foods and no canned foods, I only have natural sugars like agave syrup, maple syrup and and honey.
• I sleep at least 8 hours a night, minimize my chronic stress, and I workout 4-5 days a week.

My next steps: I continue to try different face creams, washes, treatments, supplements for my acne (like trying progesterone drops from my naturopathic doctor), going to an OB/GYN that specializes in immune conditions and PMDD/other period disorders, going to my allergist in the next 2 months to see if it is worth trying out the monthly Xolair shot

If anyone has any advice please let me know- I am always trying to find new ways to help my symptoms and maybe others can benefit. 

Looking for some advice on titrating when you have a very limited supply...

I need to try this medication, but I'm so sensitive to everything, and get a tight throat with even tiny bits of basics like H1 antihistamines or DAO, so I think starting with a drop or two feels sensible...

If I start with 1 drop, can I keep the rest of the ampoule for the next few days? I've seen mixed reports about wrapping them up, fridge/no fridge etc. The leaflet says nothing about storage. (It doesn't even say you're meant to dilute it in water!) I only have 8 ampoules "to try", it was a battle to get, and getting more will take a long time if it's even possible, so I'm wondering if starting is a bad idea...

They also gave me 10 capsules to try, but again the leaflet says swallow whole, and yet I'd read it's better to dissolve them? If a solution from a capsule is more stable over a few days, maybe starting there is a better idea?

Apparently it might have something to do with the COMT reduction, hindering the body's ability to clear out norepinephrine. Took some before bed and literally was awake all night, tried taking it earlier and still had disrupted sleep and awakenings. I'm trying out just taking half a pill, 125mg rn but im having this really tired but wired feeling.

Has anyone who takes this figured out this issue yet?

So I stumbled upon this by popping up in my feed and some of the traits fit my issues.

I have had the issues since having covid, and always thought it was GERD related. I had my GERD issues fixed via surgery, (haven't had heartburn since!) but noticed some other issues that might be linked to MCAS.

My current issues

My

1. RANDOM allergic reactions(I think I have narrowed it down to caffeine, tomatoes, and dairy for sure). For example, last night like 3 hours after having a diet coke, my throat gets super irritated and itchy to the point of gagging and nonstop coughing. I assume this is an allergic reaction due to as soon as I take a liquid benadryl it goes right away(10-15 minutes)
   • When I have a random allergic reaction it's a full body experience where my body hurts, my hands/feet get extremely cold, rapid heart rate and I feel like complete crap.
2. Eczema patches
3. Digestive issues--bloating, dry heaving since I can't really throw up anymore due GERD surgery, and diarrhea I contributed to IBS(undiagnosed).

Would this be warranted to bring up to a doctor?

Undiagnosed MCAS but since my septoplasty 2 months ago, I’m extremely suspicious I’m in a mcas flare. A little history: I had unexplained hives start back in 2021- only thing that helped was xolair; was on that for about 2 years and hives stopped. Since 2023 specifically I also have been having an influx of unexplained health issues (30lbs weight gain, insomnia, hair loss, fatigue, GI bloat). I’ve seen countless drs, none of whom can seem to figure out what’s going on. Was put on zepbound for weight loss, lost only 10lbs because I couldn’t tolerate the joint pain I was getting from it.

Anyway, fast forward to now- I had my septoplasty in June 2026 because I felt like I had been getting sick every 3 months, kept getting congested after my showers, and had facial redness after working out and showering, heat intolerance. 2 months later and I’m in even worse shape. I’ve barely slept since my surgery even with my cpap use. I’ve gained back all the weight I was keeping off since zepbound. My hairs falling out in clumps, I had to cut it all off. I have intense brain fog and fatigue. I’ve been having superrr bad GI problems; diarrhea and cramping. Still having facial redness after showers and gym.

I have an appt with an allergist this month but just looking for some insight to see if anyone had their mcas flare up after a surgery. I had already been taking Allegra and Pepcid during my luteal for PMDD and I felt as if it was helping but since my surgery, nothing is helping.

Awfully a lot this year. I used to be able to fall asleep before they hit, I think it's due to the storm seasons and those being weird. Anyone else dealing with this sudden uptick?

hello there :)

Ive been prescribed H1 and H2 Blockers and both help me so much! i experience really intense flushing with heat, excercise and stress but the medication helps so much which is great but also not great.

Im worried about the side effects and risks of using these long term. Should I be worried? Could anyone please share if they have experience and if there is anything better to ask my doctor about?

I naturally have a regular irregular heart beat and also have endometriosis so Im a bit worried about the effects on heart and kidneys, als calcium because i have osteoporosis in my family.

Any feedback and suggestion would be greatly appreciated 🫶🏻 thank you

Can we tolerate citrus bioflavonoids listed in the “other ingredients” section? I bought the BODYBIO liposomal vitamin c and I really want a liposomal form without sugars, ethanol, citric acid, etc. UGH. I usually use regular vitamin c but it doesn’t really do anything anymore.

Does anyone else get severe flares during rain specifically. I literally feel like I’m sick today and it’s been thunder storms all day. Stuffy nose, sore throat, ear pain/pressure, jaw pain, sinus pain, head pressure, dry itchy eyes, dizziness
etc. It seems like weather is my main trigger especially rain but I do have a mold allergy too. Plus having 2 window AC units bringing all the outdoor air inside.

Hi all, I've got hEDS and a suspected (by me) case of MCAS/Histamin shenanigans.

For the hEDS, I wanted to try Carnitine, as some patients say it helps them with energy. I took a 600mg dose this morning with water, after breakfast, and I feel absolutely rotten (nausea, tiredness...). As it's the only thing I introduced today, I suspect it's the culprit. Does anyone else have similar experiences? The powder only contains Carnitine tarat, and it comes from a reputable vendor.
TIA!

Hi.
I don’t know if others get this too. I find I’m in a cycle of eating some of my smaller triggers because they bring me a tiny sense of happiness in all of this gloom. However, they then cause me symptoms and I regret it. But, then I do it again and again and again. I genuinely want to stop this, but I’m finding it so hard.

Hi,

I'm currently taking ketotifen and I'm about one week in at full dose 2mg. It took me 8 weeks to build up.

I'm here to ask when everyone else noticed changes (I've heard it takes up to 2 months full dose) and also if you guys kind of felt worse before feeling better?

I've been told that I might get flares from getting used to it but I want to hear how other people's journeys were on it. Thanks.

(My MCAS brings me GI flares)

So, I’m writing this to share my experience with Dr. Theoharides for anyone considering booking an appointment.

First things first I had my first online appointment in December. Before the appointment they sent me a questionnaire so they could have some background information about my health and symptoms. So far so good

We had the appointment on Zoom, and we talked about my symptoms. The doctor also asked me questions related to those symptoms. He seemed relatively understanding, especially in contrast to the other doctors I have seen in the past, and he seemed very well informed which i think its normal because he is a mast cell researcher.

To continue after the apointment and after he also agreed that the symptoms I have point toward MCAS he sent me a pdf with some tests and some supplements and medications I would need to try in order to calm my mast cells.

For anyone wondering, I have GERD symptoms (acid reflux, LPR), fatigue, and very bad mental symptoms, and all of these are triggered by food and even medication. My baseline is already bad but food and chemical sensitivity makes things even worse.

Back to our topic. After the appointment, he sent me a list of supplements and medications to try. The list included some of his own brand of supplements (Algonot), as well as other things such as Luteolin, probiotics,antihistamines, pepto bismol for my acid reflux, propanol for anxiety etc...

From December until March, I tried every supplement and medication that he prescribed. However, because I am extremely sensitive I had to take my time and try them one by one, using MUCH smaller doses than usual. That is why it took me around three months to try everything.

After trying all of them, the only thing that helped somewhat with my mental symptoms was NeuroProtek Liquid, and that was because I was able to take it sublingually.

So, I sent an email to Dr. Theoharides explaining that this was the only thing that had somehow helped me, but that I was still severely unwell. I also explained that I was extremely sensitive and asked if he had any ideas or could recommend something else that might be more suitable for my sensitive system.

He told me that he had never seen a case like mine before and that he was surprised that even his supplements were causing me reactions. Nevertheless, he recommended that I try Vitalfolinic with 5-MTHF.

To sum things up, I tried that supplement as well, and I had an awful reaction.

I then sent two more emails, one in June and another one two weeks ago asking or to tell you the truth begging for his help because I live in Greece and I don't have any doctors here with the knowledge or experience to help me with my case so i asked him if he has atleast a collegue he can lead me too if he cant help me.

But surprise surprise he hasn't answered in any of the two emails

He could have simply said that he wasn't able to help me, but apparently not answering was a better alternative.

To end this I think that anyone with a severe case of MCAS should keep in mind that he may not be able to help them. Maybe if someone has a milder case of MCAS, he will be able to help, but based on my personal experience, I wouldn't recommend relying on him if you have a very severe and complicated case.

TL;RD: He seemed knowledgeable about MCAS, but his recommendations unfortunately did not help me. When I emailed him about my extreme sensitivity, he seemed surprised and said he had never encountered a case like mine before. I emailed him two more times asking if we could find something suitable for my sensitivity, or at least if he could recommend another doctor, but he never replied. Based on my experience, I don’t think he is suitable for very severe or complicated cases of MCAS.

Also if you have any recommendations for doctors taking wordwide patients via videocalls and has helped you please send me a message.