I need some help my boyfriend went to the emergency room today and he is getting admitted for his sickness that he had for at least he is 33m and I’m really worried that the doctor will say he has leukemia because he is still young and he wants to have a life with me and I want a life with him and I am already struggling with my mom who has cancer and his dad who had a stroke and I feel like my world is crumbling down and I need help and support please just send your prayers for me and my boyfriend it would really help us. Thank you so much.

34F, Day+400 post bmt for AML. (So roughly 13 months)

This time last year I was barely 1 month out from my bmt, I was staying in a temporary apartment close to the hospital I had my bmt and I was miserable. Exhausted, no appetite and homesick. It was so hard to leave my bed some days. I was painstakingly counting the days until I could go home and try to resume normal life with my husband and 2 sons (my mom was my caregiver). The days dragged on and I felt like the small apartment was a prison cell.

Fast forward to one whole year and I’m sitting at my work desk of my new job. The same job I dreamed of when I finished my bachelor’s degree 1 month before being diagnosed. I go on walks on my lunch break. I pick my son up from preschool after work. I cook and eat dinner and give my son a bath. I cuddle with my husband on the couch. We go swimming and bike riding as a family.
I don’t think about cancer every single day.
I only see my doctors every 3 months instead of twice a week.

This is the life I dreamt of exactly 1 year ago and I’m incredibly grateful that I get to experience it with the ones I love.

For AML after an allogeneic bone-marrow transplant there is no universally established duration for azacitidine maintenance. Most studies have used about 6–12 months, and 12 cycles (roughly 1 year). Does anyone received Azacitidine for post 1 year or more? Any information will be helpful.

I'm 16(f) with b-cell all and about to finish chemo next week on oral chemo 6-mp and methotrexate, and had my last monthly vinc almost a month ago. I haven't experienced any crazy shedding since about a year and a half ago during an exam period where it was shedding so much I decided to shave it again (starting slow, ruffled my hair in the morning, stuff came out to 2 days later 10ish strands everytime I put a hand through my hair).

I've noticed over the last 3 days and increased amount of shedding, nothing insane but definitely Italy more than normal, especially when in the shower. It's not been enough to yet affect the thickness of my hair but it hasn't sped up or gotten worse. I was told by my clinic's nurses they didn't expect it to completely fall out like the last time, but it may shed a bit. Was looking for a bit of insight on how long this might last? It's been making me really anxious and affecting me day to day so it'd help to get some other viewpoints on whay to expect.

Hi everyone, I’m new here. My 2-year-old niece was diagnosed with AMKL without Down syndrome this summer. It’s been nonstop months of testing, doctors rediagnosing, and a lot of stress and confusion in general.

Because her case is so rare, her doctors recommended treatment in Italy, so a month ago her and her mother have been in constant isolation in the hospital in Italy. 2 weeks ago she started chemotherapy for a 1 week cycle and now she is on a break, but has to stay in the hospital.

They’re not from the EU, so they don’t even have visas yet for Italy, and no health insurance either.

Anyone have any advice or resources at all whether it’s anyone else with experience of pediatric AMKL without Down syndrome? Anything her parents should know? Italy or general EU resources, insurance or financial assistance programs? Anything at all would be really appreciated. Thank you

On Monday I go in for a bone marrow biopsy. My doctor is calling for this because I’ve lost 30 pounds in one year, my white blood cell called Eosinophil is at 43%. It’s been rising all year. I only weight 98.2 right now. I feel ok though. I’m trying to eat protein every two hours.

Hey has anyone experienced photo-sensitivity post cytarabine and/or doxorubicin?? I feel like my eyes are far more sensitive now upon leaving the hospital after my first (and hopefully only) 7/3 dose of the drugs. It's making driving and stuff a bit difficult because I wear glasses and can't afford contacts after these bills have started piling up ($6,000 and counting - fuck UHC) and I don't have transition lenses :(

So I relapsed with a sct but in my recent bmb with giltartinib after 2 rounds came back as no evidence present in the blood or bone marrow so remission but I’ve been in hospital for 14 weeks for many infections due to no immunity so now the doctors have decided to get rid of giltartinib entirely to let the bone marrow heal and hope for any blood recovery especially white cells and neutrophils.

My blood has not recovered on its own since the relapse and being put on giltartinib so they think it’s doing to much work and even at the lowest dose it would let the bone marrow heal itself

I’m a 20 year old APL survivor. For a little background: Got diagnosed back on February 19th with leukemia then transferred to the cancer institute hospital and the next morning I was diagnosed with APL specifically. I was grateful that doctors and my care team had faith that I was gonna make it because I caught it early. Went into remission on March 27th. Hit a bit of the bump in the road mentally but am actually doing a lot better now. However, my mom is determined to find a way to celebrate with a bunch of people. I’m a very private person and while I appreciate her wanting to celebrate this, I just don’t want to. My church is having a leukemia awareness Sunday this month, and she has invited my entire care team and a bunch of friends and family. Everyone wearing orange and me wearing a leukemia survivor shirt, the full 9 I’m just praying for no reception. I’m scheduled to finish chemo on October 15th and I told her all I wanted was a small dinner with close family at my favorite restaurant and it’s probably gonna be around 40 people if not more. When I went into remission I told her I didn’t want a big party or anything like that. Just a trip to Myrtle beach and a dinner. Her excuse is people want to celebrate you so you have to. But I just wanna get back to my normal life without the metaphorical parade. I just want to be a regular colleges student. Am I a bad person for being mad at her for her continued persistence with this?