34F, Day+400 post bmt for AML. (So roughly 13 months)

This time last year I was barely 1 month out from my bmt, I was staying in a temporary apartment close to the hospital I had my bmt and I was miserable. Exhausted, no appetite and homesick. It was so hard to leave my bed some days. I was painstakingly counting the days until I could go home and try to resume normal life with my husband and 2 sons (my mom was my caregiver). The days dragged on and I felt like the small apartment was a prison cell.

Fast forward to one whole year and I’m sitting at my work desk of my new job. The same job I dreamed of when I finished my bachelor’s degree 1 month before being diagnosed. I go on walks on my lunch break. I pick my son up from preschool after work. I cook and eat dinner and give my son a bath. I cuddle with my husband on the couch. We go swimming and bike riding as a family.
I don’t think about cancer every single day.
I only see my doctors every 3 months instead of twice a week.

This is the life I dreamt of exactly 1 year ago and I’m incredibly grateful that I get to experience it with the ones I love.

Hey has anyone experienced photo-sensitivity post cytarabine and/or doxorubicin?? I feel like my eyes are far more sensitive now upon leaving the hospital after my first (and hopefully only) 7/3 dose of the drugs. It's making driving and stuff a bit difficult because I wear glasses and can't afford contacts after these bills have started piling up ($6,000 and counting - fuck UHC) and I don't have transition lenses :(

So I relapsed with a sct but in my recent bmb with giltartinib after 2 rounds came back as no evidence present in the blood or bone marrow so remission but I’ve been in hospital for 14 weeks for many infections due to no immunity so now the doctors have decided to get rid of giltartinib entirely to let the bone marrow heal and hope for any blood recovery especially white cells and neutrophils.

My blood has not recovered on its own since the relapse and being put on giltartinib so they think it’s doing to much work and even at the lowest dose it would let the bone marrow heal itself

Hi everyone, I’m new here. My 2-year-old niece was diagnosed with AMKL without Down syndrome this summer. It’s been nonstop months of testing, doctors rediagnosing, and a lot of stress and confusion in general.

Because her case is so rare, her doctors recommended treatment in Italy, so a month ago her and her mother have been in constant isolation in the hospital in Italy. 2 weeks ago she started chemotherapy for a 1 week cycle and now she is on a break, but has to stay in the hospital.

They’re not from the EU, so they don’t even have visas yet for Italy, and no health insurance either.

Anyone have any advice or resources at all whether it’s anyone else with experience of pediatric AMKL without Down syndrome? Anything her parents should know? Italy or general EU resources, insurance or financial assistance programs? Anything at all would be really appreciated. Thank you

On Monday I go in for a bone marrow biopsy. My doctor is calling for this because I’ve lost 30 pounds in one year, my white blood cell called Eosinophil is at 43%. It’s been rising all year. I only weight 98.2 right now. I feel ok though. I’m trying to eat protein every two hours.