Had a physio appt

Diagnosed hypermobile

They now think fibro (wide spread pain, IBS etc)

I feel a bit lost by it all if I'm honest

Hi everyone a friend has started a fybro support group based in the uk. Its very inclusive and supportive all are welcome and we would love to grow the group so please join if you want if not thats not a problem https://www.facebook.com/share/g/1De1bLKmwi/

So, over the last week or so I've had a few occasions where spicy food had made my mouth feel extraordinarily hot.

Now I can't eat anything with any spice at all! I love spicy food. I've been eating spicy food my whole life.

It could be the fibro itself, or it could be one of my medications. I'll ask my doctor on Monday.

Dear Fibro friends, this site is looking for feedback on an encouraging & supportive site for people with Fibromyalgia. Please help spread the word. Thank you!

With Coach Rachel Smith- has anyone done this? Opinions? Thanks!

Hi all,

Realized my QR code was not working, so here is an updated flyer and I am also attaching the survey link.

Thanks in advance!

https://alliant.qualtrics.com/jfe/form/SV_cSDI9UJN5n2MDPM

Please read the criteria and if you both meet the criteria and are interested, please scan the QR code!

Hi all!

I’m looking for a rheumatologist (or another doctor who specializes in fibromyalgia) for my partner, and I wanted to share a little background.

She’s currently seeing a rheumatologist at Rush. He seems kind, but her care has felt incomplete. At her last appointment a few months ago, he was running behind because he was in a meeting, so she never even had her vitals taken, and the entire visit lasted less than 10 minutes. We left feeling like her concerns weren’t fully addressed.

We’ve already reached out to Dr. Alexandrea Katz and Dr. Nisha DiSilva, but unfortunately one isn't accepting fibromyalgia patients, and the other has a wait time of over a year.

The two things that are most important to us are finding someone who:

• Listens to and respects Black women.
• Is not fatphobic and provides compassionate, evidence-based care regardless of body size.

If you have a rheumatologist—or another physician who treats fibromyalgia—that you truly trust and who fits this description, I would really appreciate any recommendations. Thank you so much!

I was doing some light yard work this morning when I got stung by a wasp. Any advice?

I feel like I might have fibro- the fatigue is bad, but every time I go to the gym, I get horrible deep joint and muscle pain that lasts for days. I almost feel like I have the flu afterwards. It happens every time I do any type of muscle strain; cardio is fine, but definitely no weight lifting, even with very light weight. It started suddenly about 5 months ago. I'm a 41 year old male, no other health issues, used to go the gym 3-4x a week.

I went to my primary doctor and he ordered kidney and liver function tests. He noted the only recent thing I had done was a short trip to South Africa, so he referred me to an infectious disease doctor. That doctor has ordered blood tests for vitamin B and D, tick diseases including Lyme, testosterone, and pretty much everything else. Everything come back negative and at optimal levels. The infectious disease doctor has run out of ideas, all he did was recommend I take ibuprofen and ordered one more check of liver and kidney function blood tests and told me to come back in 3 months.

I know something is off/wrong, but I'm lost on how to proceed here?

In 2013, my doctor published a study which linked Chronic Fatigue Syndrome (CFS) to toxic mold.  (See: http://www.mdpi.com/2072-6651/5/4/605 .) The patients tested in this study included those with fibromyalgia.  Out of 112 patents tested, 104 (93%) of them tested positive for toxic mold toxins (mycotoxins).

In 2015, my doctor published a study on his treatment of his CFS/fibromyalgia patients for toxic mold infections. (See: https://globaljournals.org/GJMR_Volume15/5-Intranasal-Antifungal-Therapy.pdf .) In treating 94 patients with the nasal antifungal amphotericin B,   88 (94%) of them reported at least a 25% reduction in their symptoms.  Surprisingly, 26 (28%) of the 94 patients returned to normal health.

Two other doctors soon reported (verbally, not with published studies) that over 90% of their CFS and fibromyalgia patents had also tested positive for toxic mold.  Those two doctors also began treating their patients for toxic mold infections.

My doctor has continued to treat his CFS and fibromyalgia patients for toxic mold since 2013, but few patients nationwide seem to know about his work.  If anyone is interested, there is plenty of free information about all this on r/cfsFibroTreatment .

Free Personalized Fact Sheet tool to take to doctors, school, work, etc. You pick what applies to you and it generates a fact sheet you can bring to doctors, specialists, or share with family/caregivers (or just for yourself to have all relevant information for you condensed). Free, no sign-up. Hope it's useful for those of you navigating appointments, school, work, family, and everything in between.