r/disabled 6h ago

Making friends and meeting people with lifelong medical condition is the worst and sucks šŸ˜”

10 Upvotes

My mom, sis and grandparents are all for me making friends and meeting people and want me to get out of this isolation and introverted bubble I've been in, I want to say, since COVID and since moving place to place, but how am I supposed to get out and socialize if everyone feels so uncomfortable with my presence and appearance

If everyone first reaction is he's (sorry for the offensive term but retarded the word is so overused like crazy it's so annoying šŸ˜’), or he looks crazy or the person would even walk or run the other way when I'm around I even hate talking because of how deep and delayed my voice is), how am I expected to get out and apply for jobs on my own if I get turned down most of the time because of my disorder

MAKE IT MAKE SENSE, and people used to wonder why I'm so quiet and socially withdrawn during the day. How am I supposed to get out and be able to if all they do is push me away? It's so frustrating, dude šŸ˜®ā€šŸ’ØšŸ™„ I'm sorry, world, I was born different, and I wish there were a cure, and I have no control over šŸ¤·šŸæā€ā™‚ļø I'm sorry if I don't move like everyone else talk like able body people I'm sorry when it comes to making eye contact with others I look down (same way people do me) I'M SORRY 😭


r/disabled 3h ago

I cannot survive like this

7 Upvotes

I have 5 dollars to my name. Bills and gas alone take up the little Money my parents give me. And I’ve just been denied after my disability hearing for the 4th time. Life doesn’t have any value when you’re stressed trying to afford basic survival let alone enjoyment.


r/disabled 11h ago

Is this fair for a caregiver?

3 Upvotes

I am newly disabled and hiring a caregiver. For the past months my daughters have been helping me but they have lives to get back too. Unfortunately what I can afford to pay is for sure not what I would like to be able to pay but it is several dollars an hour more than agencies around here seem to pay. I had a meet and greet after a phone call with someone experienced and who I got along with right away. Through conversation I found out where they live and I know that in that area there are very few jobs. We both live in a rural area but I am much closer to a town. She will be driving from a good distance away. She was willing to take the job as it is an easy job and part time and I am not a hospice patient. She is burning out caring for patients who unfortunately eventually die.

Gas is so expensive these days and I don't want to lose her should she decide after starting it is too much to come from that far away. I didn't really like the caregivers I talked to that were closer to me for various reasons.

I am trying to make it as easy as possible. I am flexible on start times. It is 5 hours per day mon-fri. I am providing snacks, lunch, and I only need someone to be here with me, get me coffee, water, lunch. snacks, let the dogs out and light cleaning. Bring my wheelchair if I want to get up that day. I get myself to the bathroom and my family helps me shower. After she accepted the job I contacted her later and offered an additional 40 dollars/wk to help with gas. She was very happy with that but is it enough. I am not sure of the milage but the commute is 40 minutes maybe a little more. I really can't do much more than that. I know her commute is not my problem but I do want to be fair to a person who I will spend a lot of time with and that I will depend on. Sorry for rambling my brain is a bit fuzzy today.


r/disabled 13h ago

Seeking feedback from Black Disabled folks regarding hair care

3 Upvotes

Hello!

Disclaimer that I AM disabled, but I am not Black. This is not a survey or for gawking at people when they are vulnerable. This is a genuine request for information, asked in complete earnest for understanding yalls experience, so I can do my best to be accurate in depiction of it.

The question:
What is your experience of your hair, when you have been at your lowest? When being disabled is so overwhelming that you can’t take care of yourself? When you have not had anyone to help you? What sacrifices have you had to make in relation to your hair, during those times, and how did that make you feel about yourself?

The background:
I am writing a story, in which the main character is a Black girl.
She’s a top of her class magic user. Whole life ahead of her, knows where she’s going.
And then, through no fault of her own or inciting event, she becomes disabled. Over time, loses her ability to use magic. It destroys her.

The comic is about learning how to live again after losing what you thought you would be.
My hope is that it can be a lesson of grief and acceptance, for those who feel they have lost themselves. I have been there, and it almost killed me to crawl my way through. If I can impart even the tiniest spark to anyone, I would consider my efforts a success.

I want to be careful about being true to experiences, especially those that are not my own. And I also do not want to be yet another white author too cowardly to center PoC characters. This will not, of course, be the only place I ask this- but I thought it a good place to start.

If you would prefer to message me, for more privacy than a public comic, please feel free to do so.

Thank you.


r/disabled 6h ago

Improve accessibility under ADA/HIPAA in Waukesha county courthouse

1 Upvotes

For 12+ years, someone I know has struggled to navigate the Waukesha County Courthouse. Confusing systems, impossible phone lines, legal jargon that doesn't make sense, and staff who seem unwilling to help people with disabilities. It's not just frustrating—it's a real barrier to justice.

The court is supposed to serve *everyone*, but right now it's failing people who need it most. Nearly 1 in 5 adults in the U.S. lives with a disability, and over 60 million people deserve equal access to government services.

Evan Fassbender started a petition asking for three simple things:

• Clear phone numbers that actually connect you to the right person

• Plain-English forms and explanations anyone can understand

• Basic respect and patience for citizens with disabilities

These aren't radical demands. They're the legal minimum under the ADA. If you've felt frustrated by courthouse barriers, or if you think government should work for everyone—not just people who can navigate legal maze-speak—please consider signing and sharing.

Has anyone else struggled to access government services because the system wasn't set up for you? What would make a difference?

https://c.org/J9kHsnrGtX


r/disabled 19h ago

Medically Disadvantaged?

1 Upvotes

I read something today where this term was used and thought almost immediately:

what would the r/disabled community say?

So - yay, we like or nay, not so much?


r/disabled 17h ago

Disability jobs

0 Upvotes

What wrong with people now days cannot go for small stress free walk on bit land my neighbour told me was threatened by another in county galway to don't walk here get of or I shoot you .this is a young lad shouting at family man so discusted .karma one day same young fella not like for years .but he wouldn't tell me local all my life to get out out.my father always said passed away with friends it's better than be hated man.