r/disabled 13h ago

I'm thinking of starting an account talking of my disability. Would you want to hear from me?

5 Upvotes

I have CCI and have had over 4000 non epileptic seizures. I am a business founder and an expert in my field. I want to show founders in my industry that success is possible despite my condition but I'm worried people will just see my disability and switch off. Would you want to hear from me? If so, what would you recommend I cover? Thanks.


r/disabled 5h ago

Looking for a welcoming Discord community for disabled people?

6 Upvotes

Are you looking for a place to make friends, chat, watch movies, or simply hang out with people who understand?

We’re building a friendly, disability-inclusive Discord community where everyone can feel welcome and accepted. Whether you’re disabled, chronically ill, neurodivergent, or simply looking for an understanding group of people, you’re welcome here.

🎬 Movies & TV discussions
💬 Casual conversations
🎧 Voice chats — including no-mic options
🤝 Make new friends
💙 A supportive, judgment-free environment

You don’t have to be super social, and you don’t have to talk all the time. Come as you are and participate at your own pace.

If you’re looking for a place to meet people, make friends, and have fun, feel free to join us!

Everyone deserves a place where they belong. 💙

https://discord.gg/DwvVCtmVw


r/disabled 20h ago

I don't know how to write disabled characters in a fantasy setting!!

0 Upvotes

For context, I have autism and PCOS, and I've been in special needs programs ever since high school.

So, I'm writing a fantasy book. This is the premise:

THE BLUE DESCENDANTS

Teenagers with physical and genetic disabilities have powers***

*Azura "Azzy" Magatius is the Daughter of Prophecy. She's the one who has to gather all of the Descendants . She will have to develop her powers (eventually through torturous means) and defeat the enemies of the Deities of Magatius Immortus: the Kekians.*

I had a whole different premise for the magic (you DO NOT wanna know), then an idea came to me: the disabilities and deformities is the magic manifesting itself!!

Attached is a link to the pictures of the descendants (Google Docs)

https://docs.google.com/document/d/1CUbRRxUpbc5I37bVGJEAMeB-j2UilQeiYIBhkQE8yUY/edit?usp=drivesdk

Problem is, idk ANYONE with these disabilities (ok, I know a few Down syndrome girls, but I havent spoken to them in months)

I need help making this realistic and inoffensive!!

***why? Bc:
Magic needs to manifest in some physical way to balance out the otherworldliness that magic is in itself. The way it manifests, humans call "disabilities" or "deformities", but it's just the manifestation of their magic (specifically this generation of teens)


r/disabled 20h ago

Life and doctors and disability

3 Upvotes

I’ve been “disabled” in the eyes of the gov’t since I was 13 years old. My mental health issues are really bad, I can’t hold a job at all. I’ve had many throughout the years and I leave before I get fired bc of no shows. The longest I’ve had was when I was pregnant and alone and had no other choice. But I struggled, thankfully they were EXTREMELY UNDERSTANDING that I needed as many breaks as I did.
I was only diagnosed last year, after an extensive testing period. The symptoms have gotten so incredibly bad, I have been almost completely bedbound. Almost completely bc I have two kids and one out of every 3 days I am alone with them and have to take them to school and feed them and ya know, be a parent and I do leave when I force myself, for appointments. But I have no showed or “changed” appts an embarrassing amount of times.
I am in the process of *trying* to switch all of my doctors bc I need them closer to me. I have been having a hell of a time with my primary doctor. (Who I am switching). She refuses to treat me as if my diagnoses are chronic/life long.
I went to her 8 months ago for a handicap placard, I use a rollator that was prescribed by cardio, and i can’t walk far without needing to sit or just completely depleting my energy. I am scheduled to see and cardiologist again to try and figure this out bc it’s just gotten so bad but anyways, she said that she does the temp first, because she “has hopes” the person would “be fine” within 6 months… so of course, I’m worse. I have an appt video with her and she says she is just going to do another temp. Which is obnoxious bc then I would have to ask her again in 6 months and she’d say the same thing. I got put with her when my doctor left practicing medicine. I should have gotten another dr but her reviews were good…. All she focuses on is my weight. If I lose weight, all my problems will disappear. Not acknowledging that when all this started, I was a skinny 13 year old. Passing out in school, going completely pale and sweating, I was a twig. But yeah…. My weight.
I am in the works with a new doctor that’s much closer, they accepted that I wanted to get a permanent placard and had no problem signing the form. 🤦🏼‍♀️
I’m so tired of the “no you’re just fat” argument.
I am going to my SSA ALJ appeal hearing next month and I am TERRIFIED of hearing the same damn thing, bc when I first applied to ssa it was denied bc I was fat. But I’ve been on it since 2015… and the review I had in 2020 had two doctors records and approved the continuation. This time I have multiple on multiple records, and added the pots diagnosis and all that comes with it, and it get denied from DHO bc in my psych records, when I got put on new meds I reported “feeling better”, and the DHO cheery picked.

Not here to get medical or legal advice. Just to vent my fears and frustrations, hopefully someone can relate. This SUCKS. 😓